{"title":"The Experiences and Challenges of Mothers of Adult Patients with Mucopolysaccharidosis; Mothers of Adults with Severe Mucopolysaccharidosis","authors":"Yukiko SAKAGUCHI, Kyoko KUBO","doi":"10.14391/ajhs.25.67","DOIUrl":"https://doi.org/10.14391/ajhs.25.67","url":null,"abstract":"Although many studies have examined the treatment and symptoms of children with MPS, very few studies have focused on adults with MPS. This study aimed to clarify the experiences and challenges of mothers of adult patients with severe mucopolysaccharidosis (MPS) who live at home. The data from semi-structured interviews with twelve mothers (patients’ ages ranged 19-44 years) were analyzed. The following six categories were extracted: fear that the disease will continue to progress despite treatment, tired of shifting gears in care and healing, fatigue due to multi-department visits to control the progression of the disease, the pain of not being able to see a bright future, desperate for new treatment methods for MPS, and developing care and a place to stay after parental support is gone. A unique issue of patients with MPS is that enzyme replacement therapy must be continued throughout life, and there is an urgent need to create a system that allows patients with severe MPS to receive enzyme replacement therapy for the rest of their lives, even after their parents pass away.","PeriodicalId":500544,"journal":{"name":"Asian journal of human services","volume":"34 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2023-10-30","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"136019415","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Development of Sustainable Work-styles for Individuals and Team Challenges (SWITCH) as a Tool for Measuring and Promoting Work Motivation; Theoretical Definition, Reliability, and Validity","authors":"Changwan HAN","doi":"10.14391/ajhs.25.1","DOIUrl":"https://doi.org/10.14391/ajhs.25.1","url":null,"abstract":"By working, people maintain their motivation to work and gain a sense of daily fulfillment and self-understanding. the aim of this study is to clarify how employees’ interest and motivation, considering their personal temperament and work environment, lead to goal achievement, and develop a scale to measure sustainable work styles. The data from 1,693 subjects out of 1,946 were analyzed. Cronbach's coefficient was used for reliability verification. Content validity and construct validity were also used to verify the validity of the scale. Among the participants, 97.7% were women. As a result of the analysis, the reliability coefficient for the entire scale was 0.967. The structural equation models showed that the fit of the model is good with RMSEA of 0.067, GFI of 0.926, and CFI of 0.927. Regarding the indicator variables in the path diagram, the indicator for “Relationships with co-worker” had a moderate correlation with “Work environment”. there was a weak causal relationship between “Personality”, “Concept formation”, “Interest”, and “Motivation” in “Relationships with co-workers”. Despite these weak causal relationships, the goodness of fit of the model in this study met the criterion value, indicating that it was conceptually valid. This research emphasizes evaluating how employee satisfaction is triggered and how it can lead to the achievement of work goals.","PeriodicalId":500544,"journal":{"name":"Asian journal of human services","volume":"1 3","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2023-10-30","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"136019275","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Influence of Kyphosis Posture on Lower Extremity Joint Moment Power during Walking","authors":"Chihiro NIIBO, Ryouta NAGAHAMA, Hidefumi FUKUDA, Hiroshi KATOH","doi":"10.14391/ajhs.25.217","DOIUrl":"https://doi.org/10.14391/ajhs.25.217","url":null,"abstract":"This study was conducted in order to investigate the effect of kyphosis alignment during walking on lower extremity joint power at the stance phase in healthy participants. The composite components of lower extremity joint power in three axial directions were calculated by using a three-dimensional motion analyzer in 15 healthy adult male participants. Two postural conditions, viz., a normal posture (normal posture) and a kyphosis posture with a brace (kyphosis posture), were used. The average and maximum values of joint power in the early, mid, and terminal phases of stance were compared. In the early stance phase, the average, and maximum values of lower extremity joint power were significantly different at the hip and knee joints. The hip joint power was significantly different in the terminal stance phase. The values of hip and knee joint power were significantly different in the terminal stance phase. The workload and work rate increased with hip power in the normal posture and with knee power in the kyphosis posture.","PeriodicalId":500544,"journal":{"name":"Asian journal of human services","volume":"193 4","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2023-10-30","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"136019270","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Characteristics of the Educational Status of Special Education Schools for the Physically Disabled in South Korea; Through Text Mining Analyses of School Goals and School Evaluations","authors":"Minji KIM","doi":"10.14391/ajhs.25.157","DOIUrl":"https://doi.org/10.14391/ajhs.25.157","url":null,"abstract":"","PeriodicalId":500544,"journal":{"name":"Asian journal of human services","volume":"180 11","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2023-10-30","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"136105431","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"The Impacts of Drama <i>Extraordinary Attorney Woo</i> on the Autistic Spectrum Disability Awareness Using Big Data Analysis","authors":"Sehyun NAM, Seryoung KIM","doi":"10.14391/ajhs.25.101","DOIUrl":"https://doi.org/10.14391/ajhs.25.101","url":null,"abstract":"The aim of this study is to impartially validate the impact of popular drama on shaping awareness of Autistic Spectrum Disability(ASD). This study used a combination of big data and content analysis to assess the patterns and significance of ASD-related news before and after the broadcast of the drama Extraordinary Attorney Woo. Big data analysis confirmed that after the broadcast of this drama, articles related to ‘autis(‘japye’ in Korean pronunciation) surged dramatically, ranging from a weekly average of at least 4.2 times to a peak of 11.4 times compared to the period before the drama aired. Also, keywords that were highly relevant in articles related to ‘autis’ in the year before the drama aired included terms indicating pathological conditions, which had the highest weight values in the analysis. After the drama aired, keywords highly associated with ‘autis’ included a significant number of terms related to the drama Extraordinary Attorney Woo or societal interest in ASD. The findings support the notion that the airing of the drama Extraordinary Attorney Woo has led to increased public attention to ASD. A comparison of news content before and after the drama aired revealed that perceptions of ASD shifted from an individual to a social model, influenced by the themes presented in the drama. Having confirmed the influence of drama on societal awareness of disability, it is imperative to portray individuals with disabilities in an inclusive manner, emphasizing the importance of enacting disability guidelines and educating producers due to the significant social responsibility and role of drama.","PeriodicalId":500544,"journal":{"name":"Asian journal of human services","volume":"23 4","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2023-10-30","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"136019416","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}