Disability and Rehabilitation-Assistive Technology最新文献

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Effects of different training methods in tele-exercise on acute performance decrement in adults with disability and wheelchair users. 远程锻炼中的不同训练方法对成年残疾人和轮椅使用者急性表现下降的影响。
IF 1.9 4区 医学
Disability and Rehabilitation-Assistive Technology Pub Date : 2024-10-01 Epub Date: 2024-01-02 DOI: 10.1080/17483107.2023.2299720
Frederico Ribeiro Neto, Gustavo Henrique Costa Bezerra, Rafael Xavier Couto de Oliveira, Luis Felipe Castelli Correia de Campos, Rodrigo Rodrigues Gomes Costa
{"title":"Effects of different training methods in tele-exercise on acute performance decrement in adults with disability and wheelchair users.","authors":"Frederico Ribeiro Neto, Gustavo Henrique Costa Bezerra, Rafael Xavier Couto de Oliveira, Luis Felipe Castelli Correia de Campos, Rodrigo Rodrigues Gomes Costa","doi":"10.1080/17483107.2023.2299720","DOIUrl":"10.1080/17483107.2023.2299720","url":null,"abstract":"<p><strong>Purpose: </strong>Wheelchair users and people with disabilities have limited access to physical exercise due to various factors, including medical follow-up and training facilities. Although tele-exercise guided by experts has become a viable option, there is limited knowledge about the acute performance decrement (APD) resulting from remote training methods. The current cross-sectional study aimed to: (1) assess the APD of muscle resistance strength after three synchronous tele-exercise training methods in wheelchair users and (2) compare the training loads associated with each training method.</p><p><strong>Materials and methods: </strong>Eighteen male and female wheelchair users who participated in tele-exercise strength practices were recruited. The participants performed a maximum resistance strength test by synchronous tele-assessment (push-up test, PUT) at baseline and immediately after three training methods: high-intensity interval training (HIIT), moderate-intensity continuous training (MICT) and sprint interval training (SIT). The primary outcome was the APD, which was measured by the percentage decrease in the number of repetitions of the PUT immediately after the training methods.</p><p><strong>Results: </strong>APD was observed for all three training methods, with no significant differences between them (-34.8%, -29.9% and -38.0% for MICT, SIT and HII, respectively), and presented a non-significant correlation with the training loads. HIIT had a significantly higher training load than MICT and SIT.</p><p><strong>Conclusions: </strong>APD occurred in all training sessions, but did not correlate with training load, indicating that it is not an appropriate metric for comparison. Findings provide insight into APD response and highlight the need to consider multiple metrics when comparing training protocols.</p>","PeriodicalId":47806,"journal":{"name":"Disability and Rehabilitation-Assistive Technology","volume":null,"pages":null},"PeriodicalIF":1.9,"publicationDate":"2024-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139075540","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Go Zika Go: feasibility study with modified motorized ride-on cars for the mobility of children with Congenital Zika Syndrome (CZS). 寨卡出发:改装电动乘骑车用于先天性寨卡综合症(CZS)儿童行动的可行性研究。
IF 1.9 4区 医学
Disability and Rehabilitation-Assistive Technology Pub Date : 2024-10-01 Epub Date: 2024-01-02 DOI: 10.1080/17483107.2023.2300052
Jean Bendito Felix, Ana Carolina de Campos, Samuel W Logan, Julianne Machado, Karoline Souza Monteiro, Egmar Longo
{"title":"Go Zika Go: feasibility study with modified motorized ride-on cars for the mobility of children with Congenital Zika Syndrome (CZS).","authors":"Jean Bendito Felix, Ana Carolina de Campos, Samuel W Logan, Julianne Machado, Karoline Souza Monteiro, Egmar Longo","doi":"10.1080/17483107.2023.2300052","DOIUrl":"10.1080/17483107.2023.2300052","url":null,"abstract":"<p><strong>Purpose: </strong>To explore the feasibility of an intervention using modified ride-on cars in terms of acceptability and potential changes in goal attainment, mobility, social function, and participation of children with Congenital Zika Syndrome (CZS).</p><p><strong>Materials and methods: </strong>A pre- and post-intervention feasibility study was conducted with children with CZS, levels IV and V of the Gross Motor Function Classification System (GMFCS). The intervention consisted of 12 weeks of training (3 times a week for 40 min per session) and 4 weeks of follow-up. The primary outcomes included adherence, satisfaction, and learning in mobility. Secondary outcomes encompassed goal attainment, mobility, social/cognitive function, and participation. Descriptive statistics were performed. To explore potential individual changes with the intervention, Wilcoxon test was used to analyze Pediatric Evaluation of Disability Inventory - Computer Adaptive Test (PEDI-CAT) data and Young Children's Participation and Environment Measure (YC-PEM)/Participation and Environment Measure for Children and Youth (PEM-CY), along with standard error measurements of the PEDI-CAT domains.</p><p><strong>Results: </strong>Four children participated (median age 4.75 years; two females: three at level V on the GMFCS). Adherence was 75% of the total intervention time, and family members reported being satisfied or very satisfied. Children showed gains in learning the use of the modified ride-on cars and an increase in goal attainment after the intervention. Individual changes were observed in the PEDI-CAT domains (mobility and social/cognitive), but there were no significant changes in participation outcomes.</p><p><strong>Conclusions: </strong>Children with CZS at GMFCS levels IV and V can learn to use motorized ride-on cars, attainment goals, and experience satisfaction.</p>","PeriodicalId":47806,"journal":{"name":"Disability and Rehabilitation-Assistive Technology","volume":null,"pages":null},"PeriodicalIF":1.9,"publicationDate":"2024-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139080972","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Development of a rocking chair for use by children with spinal cord injuries. 开发供脊髓损伤儿童使用的摇椅。
IF 1.9 4区 医学
Disability and Rehabilitation-Assistive Technology Pub Date : 2024-10-01 Epub Date: 2024-01-31 DOI: 10.1080/17483107.2024.2310268
Johnathan J George, Andrea L Behrman, Thomas J Roussel
{"title":"Development of a rocking chair for use by children with spinal cord injuries.","authors":"Johnathan J George, Andrea L Behrman, Thomas J Roussel","doi":"10.1080/17483107.2024.2310268","DOIUrl":"10.1080/17483107.2024.2310268","url":null,"abstract":"<p><strong>Purpose: </strong>Activity-based locomotor training improves intrinsic trunk control in children with spinal cord injury (SCI). To reinforce these improvements, there is a need to develop community integration activities to allow a patient to apply the retrained nervous system at home. One activity that has been explored is rocking in a rocking chair. This paper describes the design, fabrication, and evaluation of a rocking chair for children with SCI.</p><p><strong>Materials and methods: </strong>The Quality Function Deployment (QFD) design process was used. Fundamental needs and features for the rocking chair were defined in a focus group with experienced therapists, and needs were then rated for importance. A House of Quality (HOQ) matrix was developed to correlate needs with design features, and a prototype design was generated. Virtual motion studies and finite element analysis (FEA) were utilized to assess the design. The chair was fabricated and physical testing was performed, including tipping and static and dynamic load assessments.</p><p><strong>Results and conclusions: </strong>The needs identified through the QFD process were categorized into (1) safety, (2) therapeutic, (3) practical and aesthetic, and (4) data to track chair use. Features selected to meet these needs include safety stops, padding, straps, a stable base, armrests, adjustable footrest, and sensors to capture rocking data. FEA showed a factor of safety (FOS) > 5. Physical testing confirmed physical integrity, load-bearing capacity, and stability of the prototype glider rocking chair. The prototype provides a safe tool for further investigation of rocking for promotion of trunk muscle activation in children with SCI.</p>","PeriodicalId":47806,"journal":{"name":"Disability and Rehabilitation-Assistive Technology","volume":null,"pages":null},"PeriodicalIF":1.9,"publicationDate":"2024-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139643134","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Perceptions and experiences of first mobility aid provision for young children with cerebral palsy in the United States: a mixed-methods study. 美国脑瘫幼儿对首次移动辅助设备的看法和体验:一项混合方法研究。
IF 1.9 4区 医学
Disability and Rehabilitation-Assistive Technology Pub Date : 2024-10-01 Epub Date: 2024-02-12 DOI: 10.1080/17483107.2023.2301376
Nicole L Zaino, Zahra McKee, Charlotte D Caskey, Katherine M Steele, Heather A Feldner
{"title":"Perceptions and experiences of first mobility aid provision for young children with cerebral palsy in the United States: a mixed-methods study.","authors":"Nicole L Zaino, Zahra McKee, Charlotte D Caskey, Katherine M Steele, Heather A Feldner","doi":"10.1080/17483107.2023.2301376","DOIUrl":"10.1080/17483107.2023.2301376","url":null,"abstract":"<p><strong>Purpose: </strong>The purpose of this study was to establish and understand the provision process and impacts of first mobility aids for children with cerebral palsy (CP) in the United States - specifically orthoses, walkers and gait-trainers.</p><p><strong>Methods: </strong>We performed a mixed-methods study including surveys and semi-structured interviews of caregivers of young children with CP (<i>n</i> = 10) and clinicians who work with young children with CP (<i>n</i> = 29). We used content analysis for the surveys and inductive coding for the interviews.</p><p><strong>Results: </strong>Four themes emerged: (1) first mobility aids have mixed impacts and use patterns, (2) there is varied caregiver education and understanding about mobility aids, (3) clinician knowledge, consistency and connection impact care and (4) numerous access barriers exist for families, and there are still opportunities for improvement across all domains.</p><p><strong>Conclusions: </strong>This research provides insights into the lived experiences of clinicians and caregivers of young children with CP regarding the prescription, provision, use and impact of first mobility aids, specifically ankle foot orthoses and walkers/gait trainers. This study not only provides researchers and clinicians with an understanding of the current status of the prescription and provision process in the United States, but also offers suggestions for improvements of the process and mobility aids themselves. These results have implications for future research, mobility aid, design and the provision process of first mobility aids.</p>","PeriodicalId":47806,"journal":{"name":"Disability and Rehabilitation-Assistive Technology","volume":null,"pages":null},"PeriodicalIF":1.9,"publicationDate":"2024-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139724531","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Correction. 更正。
IF 1.9 4区 医学
Disability and Rehabilitation-Assistive Technology Pub Date : 2024-10-01 Epub Date: 2024-05-15 DOI: 10.1080/17483107.2024.2350776
{"title":"Correction.","authors":"","doi":"10.1080/17483107.2024.2350776","DOIUrl":"10.1080/17483107.2024.2350776","url":null,"abstract":"","PeriodicalId":47806,"journal":{"name":"Disability and Rehabilitation-Assistive Technology","volume":null,"pages":null},"PeriodicalIF":1.9,"publicationDate":"2024-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140923275","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Internet of things (IoT)-based assistive system for patients with spinal muscular atrophy (SMA): a case report. 基于物联网(IoT)的脊髓性肌萎缩症(SMA)患者辅助系统:案例报告。
IF 1.9 4区 医学
Disability and Rehabilitation-Assistive Technology Pub Date : 2024-10-01 Epub Date: 2024-01-13 DOI: 10.1080/17483107.2023.2300045
José Varela-Aldás, William Avila-Armijos, Guillermo Palacios-Navarro
{"title":"Internet of things (IoT)-based assistive system for patients with spinal muscular atrophy (SMA): a case report.","authors":"José Varela-Aldás, William Avila-Armijos, Guillermo Palacios-Navarro","doi":"10.1080/17483107.2023.2300045","DOIUrl":"10.1080/17483107.2023.2300045","url":null,"abstract":"<p><strong>Purpose: </strong>Assistive technologies based on IoT can contribute to improve quality of living of patients with severe motor difficulties by providing partial or total independence. The aim of this work was to analyse the usability and performance of an assistive system based on the IoT when is evaluated by a child patient with spinal muscular atrophy type 1 (SMA-I).</p><p><strong>Materials and methods: </strong>The study involved a child with SMA-I and his caregiver. The materials used include an M5Stack Core2 kit, a mobile app, and a smart switch based on the ESP-01S card. The patient sends requests to the caregiver from the app installed on the M5Stack Core2 to a mobile app, and controls smart switches located in the rooms. The system was tested by the participants for a period of 30 days to later evaluate its usability and performance.</p><p><strong>Results: </strong>The results show that the control function of smart switches is the most used and there is no decrease in interactions over the days for the system in general. In addition, the scores obtained from both usability tests (patient and caregiver) were 87.5% and 90%, respectively. The average performance of the entire system was 93.33%.</p><p><strong>Conclusion: </strong>The application of assistive technologies based on the IoT allows obtaining a practical solution that improves the development of daily activities in a patient with SMA-I.</p>","PeriodicalId":47806,"journal":{"name":"Disability and Rehabilitation-Assistive Technology","volume":null,"pages":null},"PeriodicalIF":1.9,"publicationDate":"2024-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139467041","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Harnessing the potential of digital health for assistive technology. 发掘数字医疗在辅助技术方面的潜力。
IF 1.9 4区 医学
Disability and Rehabilitation-Assistive Technology Pub Date : 2024-10-01 Epub Date: 2024-04-04 DOI: 10.1080/17483107.2024.2338122
Johan Borg, Kylie Shae
{"title":"Harnessing the potential of digital health for assistive technology.","authors":"Johan Borg, Kylie Shae","doi":"10.1080/17483107.2024.2338122","DOIUrl":"10.1080/17483107.2024.2338122","url":null,"abstract":"<p><p>Worldwide, one out of every three individuals requires assistive products to enjoy and exercise their human rights. In certain nations, only 3% have access to the assistive products they need. Digital technology, and specifically digital health interventions, stands as a powerful solution to improve access and maximize the benefits for users, their families, service providers, and society. Digital health interventions can enable user engagement, support service planning and monitoring, streamline procurement and stock management, boost service efficiency and coverage, and provide avenues for workforce competency development. By harnessing the potential of digital health, universal access to assistive technology can be accelerated.</p>","PeriodicalId":47806,"journal":{"name":"Disability and Rehabilitation-Assistive Technology","volume":null,"pages":null},"PeriodicalIF":1.9,"publicationDate":"2024-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140863782","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Assistive technology to facilitate children's play: a scoping review. 促进儿童游戏的辅助技术:范围界定综述。
IF 1.9 4区 医学
Disability and Rehabilitation-Assistive Technology Pub Date : 2024-10-01 Epub Date: 2024-01-02 DOI: 10.1080/17483107.2023.2298825
Minoo Dabiri Golchin, Jacquie Ripat, Michèle Verdonck
{"title":"Assistive technology to facilitate children's play: a scoping review.","authors":"Minoo Dabiri Golchin, Jacquie Ripat, Michèle Verdonck","doi":"10.1080/17483107.2023.2298825","DOIUrl":"10.1080/17483107.2023.2298825","url":null,"abstract":"<p><strong>Purpose: </strong>Play is a fundamental human right and one of the most important occupations in children's lives. Fewer opportunities exist for children with physical disabilities (CWPD) to play. This study aimed to conduct a scoping review of published peer-reviewed literature on using AT to enable \"play-for-the-sake-of-play\" by CWPD.</p><p><strong>Method: </strong>The review was conducted using a widely accepted scoping review methodology. Literature searches were conducted from January 2000 to March 2022 using MEDLINE, Central, CINAHL, ERIC, Scopus, and EMBASE. Pairs of reviewers used an online systematic review system to manage title, abstract, and full-text screening. Excel was used for data extraction and charting. Data was charted based on type of AT, play types according to LUDI definitions, and level of evidence.</p><p><strong>Results: </strong>The search yielded 5250 papers after the removal of duplicates. Title and abstract screening identified 58 studies for full-text screening. The final sample included 31 papers. Seven types of AT were identified in studies: power mobility, virtual reality, robots, adaptations for upper limb differences, switch-adapted games, augmentative and alternative communication devices, and mobility aids. Twenty-three papers addressed cognitive play, seven addressed social play, and one addressed both cognitive and social play. Most studies used case study, descriptive, or repeated measures designs.</p><p><strong>Conclusion: </strong>There is limited evidence regarding the use of AT to support play-for-the-sake-of-play in CWPD. Given the importance of play, further research using rigorous methodologies and the development of assistive technology dedicated to promoting play-for-the-sake-of-play is warranted.</p>","PeriodicalId":47806,"journal":{"name":"Disability and Rehabilitation-Assistive Technology","volume":null,"pages":null},"PeriodicalIF":1.9,"publicationDate":"2024-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139088982","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Factors that affect powered wheelchair use for an adult population: a systematic review. 影响成人使用电动轮椅的因素:系统综述。
IF 1.9 4区 医学
Disability and Rehabilitation-Assistive Technology Pub Date : 2024-10-01 Epub Date: 2024-01-29 DOI: 10.1080/17483107.2024.2304122
Lucy Fishleigh, Rachel Taylor, Gabrielle Hale, Daniel Sam Bowers
{"title":"Factors that affect powered wheelchair use for an adult population: a systematic review.","authors":"Lucy Fishleigh, Rachel Taylor, Gabrielle Hale, Daniel Sam Bowers","doi":"10.1080/17483107.2024.2304122","DOIUrl":"10.1080/17483107.2024.2304122","url":null,"abstract":"<p><strong>Purpose: </strong>The purpose of the review was to explore current factors affecting the use of a powered wheelchair for an adult person a with a disability.</p><p><strong>Materials and methods: </strong>This review followed the Preferred Reporting Items for Systematic Reviews and Meta-analysis (PRISMA) statement. Information about the characteristics of the studies (type, setting) and perceived barriers and facilitators to powered wheelchair use were extracted using a data extraction sheet. Data synthesis was achieved using narrative synthesis. The quality of the included studies was assessed using the Standard Quality Assessment Criteria for Evaluating Primary Research Papers from a Variety of Fields (SQAC) and the CASP checklist (Critical Appraisal Skills Programme), Centre for Evidence-Based Medicine, SIGN (Scottish Intercollegiate Guidelines Network).</p><p><strong>Results: </strong>Fifteen studies qualified for inclusion in the review. The narrative synthesis produced a conceptual map of reported factors affecting the usability of a powered wheelchair.</p><p><strong>Conclusions: </strong>This review demonstrates that powered wheelchair use is a multifaceted and multidisciplinary phenomenon that is dependent on numerous interconnected factors including individual adjustment, stakeholder cooperation, societal attitudes, functional performance, and environmental features. Based on the review findings, there are several applied learning outcomes and practical applications to the powered wheelchair prescription and provision.</p>","PeriodicalId":47806,"journal":{"name":"Disability and Rehabilitation-Assistive Technology","volume":null,"pages":null},"PeriodicalIF":1.9,"publicationDate":"2024-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139576961","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Getting Wheels: development and evaluation of a psychoeducational resource for parents of children with a neuromuscular condition following recommendation of wheelchair equipment. 获得轮子:在推荐轮椅设备后,为神经肌肉疾病患儿的父母开发和评估心理教育资源。
IF 1.9 4区 医学
Disability and Rehabilitation-Assistive Technology Pub Date : 2024-10-01 Epub Date: 2024-02-03 DOI: 10.1080/17483107.2024.2310282
Sarah-Grace Paguinto, Nadine A Kasparian, Kate Carroll, Nicole Thomas, Paula Bray, Michelle A Farrar
{"title":"<i>Getting Wheels:</i> development and evaluation of a psychoeducational resource for parents of children with a neuromuscular condition following recommendation of wheelchair equipment.","authors":"Sarah-Grace Paguinto, Nadine A Kasparian, Kate Carroll, Nicole Thomas, Paula Bray, Michelle A Farrar","doi":"10.1080/17483107.2024.2310282","DOIUrl":"10.1080/17483107.2024.2310282","url":null,"abstract":"<p><strong>Purpose: </strong>Access to credible information can facilitate parental engagement in wheelchair prescription for their child with a neuromuscular condition (NMC). In this study, we developed and evaluated acceptability, perceived usefulness and emotional responses to a psychoeducational booklet for parents of children with a NMC.</p><p><strong>Methods: </strong>Australian parents of children who had been recommended a wheelchair and clinicians caring for children with NMCs were invited to evaluate the booklet, <i>Getting Wheels</i>. The booklet included 11 chapters, each covering distinct aspects of wheelchair prescription and supportive care. Participants completed one online survey including validated and study-specific measures.</p><p><strong>Results: </strong>Twenty-seven parents (71% response rate, 78% mothers) and nine clinicians (90% response rate, 89% women) participated. All parents endorsed the booklet as addressing their information and support needs, and 93% agreed it would help parents engage in the wheelchair prescription process. All clinicians endorsed the booklet as addressing parents' information and support needs and agreed they could use the booklet in clinical practice.</p><p><strong>Conclusions: </strong>Parents and clinicians rate <i>Getting Wheels</i> as acceptable for use in the context of wheelchair recommendation for children with a neuromuscular condition. Next steps include prospective examination of booklet use in clinical practice and adaptation to culturally and linguistically diverse populations.Implications for rehabilitationThe co-designed \"<i>Getting Wheels</i>\" booklet provides tailored information for use in the context of wheelchair recommendation for children with a neuromuscular condition.The emotions elicited throughout wheelchair prescription endorse the need for integrated psychosocial multidisciplinary care to improve access and support the ongoing emotional needs of this population.Parents of children who receive wheelchair recommendation between zero and two years require greater support from clinicians regarding their thoughts and feelings about wheelchair prescription.Parents of children with a neuromuscular condition and treating clinicians support provision of a tailored psychoeducational resource when a child is recommended a wheelchair.</p>","PeriodicalId":47806,"journal":{"name":"Disability and Rehabilitation-Assistive Technology","volume":null,"pages":null},"PeriodicalIF":1.9,"publicationDate":"2024-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139673335","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
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