Gesundheitswesen最新文献

{"title":"Pandemic Preparedness - A Proposal for a Research Infrastructure and its Functionalities for a Resilient Health Research System.","authors":"Simone Scheithauer, Julia Hoffmann, Caroline Lang, Diana Fenz, Milena Maria Berens, Antonia Milena Köster, Ivonne Panchyrz, Lorenz Harst, Kristina Adorjan, Christian Apfelbacher, Sandra Ciesek, Claudia Maria Denkinger, Christian Drosten, Max Geraedts, Ruth Hecker, Wolfgang Hoffmann, André Karch, Thea Koch, Dagmar Krefting, Klaus Lieb, Jörg J Meerpohl, Eva Annette Rehfuess, Nicole Skoetz, Saša Sopka, Thomas von Lengerke, HaukeFelix Wiegand, Jochen Schmitt","doi":"10.1055/a-2365-9179","DOIUrl":"10.1055/a-2365-9179","url":null,"abstract":"<p><p>Während einer Pandemie muss Resilienz nicht nur als Eigenschaft des Gesundheitssystems, sondern auch des umgebenden Forschungsumfelds betrachtet werden. Um verlässliche, evidenzbasierte Empfehlungen aus der Universitätsmedizin an die Gesundheitspolitik und die Entscheidungsträger bereitstellen zu können, müssen wissenschaftliche Erkenntnisse schnell, integrativ und multidisziplinär generiert, synthetisiert und kommuniziert werden. Die Resilienz der öffentlichen Gesundheitssysteme und der Gesundheitsforschungssysteme sind somit eng verknüpft. Die Reaktion auf die SARS-CoV-2-Pandemie in Deutschland wurde jedoch durch das Fehlen einer adäquat vernetzten Gesundheitsforschungsinfrastruktur erschwert. Das Netzwerk Universitätsmedizin (NUM) wurde zu Beginn der Pandemie mit dem Ziel gegründet, Deutschland auf zukünftige Pandemien vorzubereiten. Ziel des Projektes \"PREparedness and PAndemic REsponse in Deutschland (PREPARED)\" ist es, ein ganzheitliches Konzept für eine kooperative, adaptierbare und nachhaltige Gesundheitsforschungsinfrastruktur innerhalb des NUM zu entwickeln und damit einen Beitrag zu einer umfassenden Pandemiebereitschaft zu leisten. Das vorgeschlagene Konzept dieser Infrastruktur vereint vier Kern- und drei Unterstützungsfunktionalitäten in vier verschiedenen Handlungsfeldern. Die Funktionalitäten gewährleisten im Falle zukünftiger Gesundheitskrisen ein effizientes Funktionieren des Gesundheitsforschungssystems und eine rasche Übertragung entsprechender Implikationen in andere Systeme. Die vier Handlungsfelder sind (a) Monitoring und Surveillance, (b) Synthese und Transfer, (c) Koordination und Organisation sowie (d) Kapazitäten und Ressourcen. Die sieben Funktionalitäten umfassen 1) eine Monitoring- und Surveillance-Einheit, 2) eine Pathogenkompetenz-Plattform, 3) Evidenzsynthese und vertrauenswürdige Empfehlungen, 4) eine Einheit zur regionalen Vernetzung und Implementierung, 5) eine Strategische Kommunikationseinheit, 6) Human Resources Management und 7) ein Rapid Reaction & Response (R<sup>3</sup>)-Cockpit. Die Governance wird als Kontroll- und Regulierungssystem eingerichtet, wobei agile Management-Methoden in interpandemischen Phasen trainiert werden, um die Reaktionsfähigkeit zu verbessern sowie die Eignung agiler Methoden für die wissenschaftliche Infrastruktur für die Pandemiebereitschaft zu untersuchen. Der Aufbau der PREPARED-Forschungsinfrastruktur muss vor der nächsten Pandemie erfolgen, da Training und regelmäßige Stresstests grundlegende Voraussetzungen für deren Funktionieren sind.During a pandemic, resilience must be considered not only as an attribute of the health care system, but also of the surrounding research environment. To provide reliable evidence-based advice from university medicine to health policy and decision makers, scientific evidence must be generated, synthesized and communicated in a rapid, integrative and multidisciplinary manner. The resilience of public health systems and the health research","PeriodicalId":47653,"journal":{"name":"Gesundheitswesen","volume":" ","pages":""},"PeriodicalIF":0.7,"publicationDate":"2024-10-31","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141621220","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"[Risk factors for a severe course of COVID-19 in a hotspot clinic during the first and second wave of the SARS-CoV-2 pandemic in Germany].","authors":"Steffi Richter, Thomas Finkenzeller, Wolfgang Uter, Hans Drexler, Anna Wolfschmidt","doi":"10.1055/a-2414-8447","DOIUrl":"10.1055/a-2414-8447","url":null,"abstract":"<p><strong>Background: </strong>During the first wave of the SARS-CoV-2 pandemic, Weiden Hospital was a hotspot and was thus in an exceptional medical situation. This study deals with the question of whether the recognized risk factors for a severe course of COVID-19 also apply to the patients treated in Weiden Hospital during this time or whether other factors could have influenced patient outcomes.</p><p><strong>Methods: </strong>In a retrospective analysis, data on 669 patients of Weiden Hospital with proven SARS-CoV-2 infections in the first year of the pandemic were evaluated. Risk factors for a severe case of COVID-19 were determined from medical and demographic information in a univariate analysis and subjected to logistic regression. The logistic regression analysis was performed for the overall collective as well as separately for patients from Wave 1 (3-6/2020) and 2 (7-12/2020).</p><p><strong>Results: </strong>Looking at all of 2020, significant risk factors for severe COVID-19 included being male, being a smoker, being 71 years or older, and a history of depression. All other commonly recognized risk factors were not applicable for the Weiden collective. When looking at both waves separately, in Wave 1 age was not a significant risk factor, whereas in Wave 2 an age of 61 years or older was associated with an increased risk of severe progression. For patients who were admitted to hospital in Wave 2, the risk of severe progression was reduced almost by half.</p><p><strong>Conclusion: </strong>It can be assumed that patient outcomes in Weiden's hotspot collective were predominantly determined by non-individual factors, like the difficult care situation in a hotspot clinic at the beginning of the pandemic. In preparation for future pandemics, provision of sufficient resources might significantly contribute to better patient outcomes.</p>","PeriodicalId":47653,"journal":{"name":"Gesundheitswesen","volume":" ","pages":""},"PeriodicalIF":0.7,"publicationDate":"2024-10-29","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142298694","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"[Telemedical Franconian Obesity Aftercare Therapy (Tele-FANT) Results of a Formative Evaluation].","authors":"Jutta Ahnert, Janina Hart-Kederer, Rainer Tischendorf, Heiner Vogel","doi":"10.1055/a-2423-1299","DOIUrl":"10.1055/a-2423-1299","url":null,"abstract":"<p><strong>Introduction: </strong>Following rehabilitation, patients are often unable to continue with the behavioral changes they had learned there in the long term. It is therefore important to offer aftercare services to improve self-management. Internet-based and telephone aftercare concepts in particular are low-cost and flexible in application, and offer an opportunity to significantly increase the use of aftercare measures. In, the\"Tele-FANT\" project, obese patients were supported by an aftercare therapist over a period of 12 months following their inpatient rehabilitation stay by regular telephone or video consultations.</p><p><strong>Method: </strong>A one-group pre-post design was used for the formative evaluation. Participants took part in a written survey at the start of rehabilitation, at the end of rehabilitation and 4, 8 and 12 months after rehabilitation. As a key variable, body weight (external measurement by the family doctor) was also recorded at all measurement times to calculate the percentage weight loss from the start of rehabilitation. Descriptive parameters were calculated at the beginning, as well as mean differences and standardized effect sizes (SES) at the post-measurement time points.</p><p><strong>Results: </strong>A total of 47 obese rehabilitation patients (mean BMI=44.56, SD=7.23) from the Frankenlandklinik Bad Windsheim were recruited to participate in the aftercare program. The complete program up to the 12-month follow-up was completed by 30 participants (drop-out: 36.2%). The remaining participants showed a high level of acceptance for both the structural processes and the content of the aftercare program. A weight loss of at least 10% was achieved by 13 participants (50%) at the 12-month follow-up, a further 4 participants (15.4%) had lost 5 to 10%. The participants were able to reduce their BMI by an average of 4.45 BMI points from 43.69 (SD=7.25) to 39.24 (SD=7.25) since the start of rehabilitation (mean effect size: SES=0.61).</p><p><strong>Conclusion: </strong>In the formative evaluation, the \"Tele-FANT\" aftercare program shows good feasibility and promising results with regard to the goal of weight reduction/stabilization. However, the high drop-out rate indicates that some of the participants were not satisfied with the program or were unable to achieve the desired outcome. The next step would be to test the effectiveness of the \"Tele-FANT\" aftercare concept in a randomized control group study.</p>","PeriodicalId":47653,"journal":{"name":"Gesundheitswesen","volume":" ","pages":""},"PeriodicalIF":0.7,"publicationDate":"2024-10-29","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142336959","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"[Compulsory Vaccination in Health Care - A Qualitative Study on Perceptions and Dynamics from the Perspective of Nurses].","authors":"Maya Stagge, Katharina Rädel-Ablass, Marion Roddewig, Melissa Henne, Patrick Fehling, Abdulillah Polat, Klaus Schliz","doi":"10.1055/a-2426-9524","DOIUrl":"https://doi.org/10.1055/a-2426-9524","url":null,"abstract":"<p><p>This exploratory study analyses the impact of mandatory COVID-19 vaccination on the perceptions of and dynamics in nursing teams. The 27 guided interviews with nurses revealed that the pressure to vaccinate and the introduction of mandatory vaccination in healthcare led to divisions and conflictual interactions between vaccinated and unvaccinated team members. These conflicts had a negative impact on the quality of work and team awareness, resulting in an increase in the number of nurses who resigned and thus placing even greater stress on the rest of the nursing teams.</p>","PeriodicalId":47653,"journal":{"name":"Gesundheitswesen","volume":" ","pages":""},"PeriodicalIF":0.7,"publicationDate":"2024-10-29","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142548310","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"[Gender-Specific and Cross-Gender Reasons for Choosing 'Surgeon' as a Career - A Scoping Review].","authors":"Johanna Hirsch, Vanessa Bäcker, Katrin Schüttpelz-Brauns","doi":"10.1055/a-2390-2343","DOIUrl":"https://doi.org/10.1055/a-2390-2343","url":null,"abstract":"<p><strong>Introduction: </strong>The availability of highly qualified surgical staff in Germany has been a challenge for years. Despite various initiatives to increase the attractiveness of surgical training programs, there are still problems in attracting motivated and qualified doctors to surgery. In order to develop customized offers for recruiting junior staff, the decision-making factors must be known.</p><p><strong>Objective: </strong>To present the gender-specific and cross-gender reasons for choosing a surgical specialist training program.</p><p><strong>Method: </strong>As part of a scoping review, studies were identified using PubMed and a subsequent reverse search to answer the research question. Data extracted from the studies were summarized narratively and categories were defined.</p><p><strong>Results: </strong>The analysis of 12 studies revealed that men and women wanted to become a surgeon based on the characteristics of the surgical specialty, personal factors and factors related to the training position. Gender-specific differences were also identified.</p><p><strong>Conclusion: </strong>Specific measures are proposed to promote the next generation of surgeons.</p>","PeriodicalId":47653,"journal":{"name":"Gesundheitswesen","volume":" ","pages":""},"PeriodicalIF":0.7,"publicationDate":"2024-10-28","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142523332","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"[Perspectives of Families with Seriously ill Children and Adolescents in Lower Saxony: Focus on Care and Support - An Analysis of the Current Situation and Possible Support Services].","authors":"Rebecca Toenne, Julia Geffron, Maike Höcker, Anika Koch, Theresa Guth, Dirk Reinhardt, Felix Reschke","doi":"10.1055/a-2415-6511","DOIUrl":"10.1055/a-2415-6511","url":null,"abstract":"<p><strong>Introduction: </strong>The care of children and adolescents in need of care at home is exacerbated by the shortage of skilled workers in the care sector, which leads to bottlenecks in care and presents caring families with major challenges. The implementation of new care approaches in existing structures in the healthcare system is proving to be a key development task in order to provide targeted support for affected families in the future.</p><p><strong>Methods: </strong>Qualitative explorative interview study to record the perspective of families with (seriously) ill children and adolescents on the current care situation and possible helpful support services. The sampling was criteria-driven and the analysis and evaluation was content-analytical. Respondents were given a short questionnaire to record socio-demographic characteristics.</p><p><strong>Results: </strong>In particular, the transmission of the diagnosis, the everyday challenges and the impact on quality of life were named as stress factors by n=10 participating parents. Improved access to information, voluntary structures and central contact points as well as digital services were named as key development needs.</p><p><strong>Conclusion: </strong>The interviews from real life and needs-oriented perspective show that there is a need to expand low-threshold care coordination services, strengthen voluntary structures and use telemedical services. Meeting these needs should enable access to specialized treatment and helpful services, especially in rural areas.</p>","PeriodicalId":47653,"journal":{"name":"Gesundheitswesen","volume":" ","pages":""},"PeriodicalIF":0.7,"publicationDate":"2024-10-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142298693","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"[Proposals for the Prevention Health Consequences of Heat Stress as a Cross-sectional Task in the Health Care System].","authors":"Stephan Böse-OʼReilly, Franziska Matthies-Wiesler, Jürgen Ritterhoff, Julia Schoierer, Andreas Hellmann, Andreas Matzarakis","doi":"10.1055/a-2388-5663","DOIUrl":"https://doi.org/10.1055/a-2388-5663","url":null,"abstract":"<p><strong>Introduction: </strong>Climate change is the greatest threat to human health in the 21^st century. Climate change poses a significant threat to human health in Germany, with increasing heatwaves causing high mortality rates. In recent years, the German medical profession has become increasingly concerned with the consequences of climate change, particularly extreme temperatures and heat, for human health.</p><p><strong>Suggestions: </strong>Although the Deutscher Wetterdienst (DWD) issues heat warnings, there is a lack of comprehensive heat action plans (HAPs). Initiatives such as the \"Berlin Heat Protection Action Alliance\" offer sector-specific plans for healthcare facilities. There is an urgent need for action in the healthcare sector, as doctors play a key role in implementing heat protection measures and advocating for action against climate change. In addition to initiatives such as signing the \"Climate Pact for Health\" and raising awareness among stakeholders in the healthcare sector, increased education about heat-related health risks is essential.</p><p><strong>Conclusion: </strong>The results emphasise the urgency of measures in the healthcare sector in the face of advancing climate change. The medical profession plays a key role in the implementation of heat protection measures and should be actively involved in the planning and implementation of HAPs. Education and training on heat and health is essential in the health sector. Registration for heat warnings from the DWD (www.hitzewarnungen.de) is recommended, followed by sensitisation of decision-makers and employees in healthcare facilities. The medical profession has a crucial responsibility in the implementation of heat protection measures and should actively position itself and contribute to the political discussion on heat and climate change.</p>","PeriodicalId":47653,"journal":{"name":"Gesundheitswesen","volume":" ","pages":""},"PeriodicalIF":0.7,"publicationDate":"2024-10-16","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142477667","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"[Strategies and Measures to Strengthen the Health Literacy of Migrants: An Online Survey of Primary Care Providers in Hessen].","authors":"Diana Wahidie, Latife Pacolli-Tabaku, Yüce Yilmaz-Aslan, Patrick Brzoska","doi":"10.1055/a-2390-2292","DOIUrl":"https://doi.org/10.1055/a-2390-2292","url":null,"abstract":"<p><strong>Background: </strong>Adequate health literacy is crucial for active participation in health-related decisions. Migrants are one of the population groups that can have more difficulties in finding and using relevant information to make their own decisions. Primary care providers in Germany are the main point of contact for health and disease-related questions and can therefore make an important contribution to strengthening the health literacy of this population group. It remains unclear which specific approaches they use for that purpose.</p><p><strong>Objectives: </strong>This study aimed to examine which strategies and measures primary care providers in Hessen, Germany, use to strengthen the health literacy of migrants and which additional measures of support they consider important for that purpose.</p><p><strong>Materials and methods: </strong>2,784 primary care providers in Hessen were invited by email between August 1, 2023 and October 24, 2023 to take part in a quantitative online survey. The data were analyzed descriptively.</p><p><strong>Results: </strong>The majority of respondents used multilingual information material, referred to reliable sources of information and contact persons and predominantly used native-speaking staff or digital translation tools to improve the health literacy of migrants. Resources to improve communication and information and an increase in staff were considered by healthcare providers to be helpful in promoting the health literacy of those affected. At the same time, it was emphasized that efforts should also be made on the part of migrant patients to acquire health literacy.</p><p><strong>Conclusion: </strong>Although primary care providers already use strategies to support migrants in communication and decision-making, there is still room for improvement by taking steps to improve access and navigation within the doctor's office, by increasing collaboration with other stakeholders, and by integrating health literacy into the organizational structures of the office.</p>","PeriodicalId":47653,"journal":{"name":"Gesundheitswesen","volume":" ","pages":""},"PeriodicalIF":0.7,"publicationDate":"2024-10-16","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142477668","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"[Integration of Inventory Data from Cohort and Registry Studies into an Existing Research Network: National Pandemic Cohort Network (NAPKON)].","authors":"Anna-Lena Hofmann, Jörg Janne Vehreschild, Martin Witzenrath, Wolfgang Hoffmann, Thomas Illig, Stefan Schreiber, Gabriele Anton, Johannes Christian Hellmuth, Maximilian Muenchhoff, Clemens Scherer, Christina Pley, Charlotte Thibeault, Florian Kurth, Sarah Berger, Michael Hummel, Sina Marie Hopff, Melanie Stecher, Katharina Appel, Dana Stahl, Monika Kraus, Bettina Lorenz-Depiereux, Sabine Hanß, Sebastian von Kielmansegg, Irene Schlünder, Anna Niemeyer, Peter Heuschmann, Michael Krawczak, Jens-Peter Reese","doi":"10.1055/a-2346-9680","DOIUrl":"10.1055/a-2346-9680","url":null,"abstract":"<p><p>In the early phase of the COVID-19 pandemic, many local collections of clinical data on patients infected with SARS-CoV-2 were initiated in Germany. As part of the National Pandemic Cohort Network (NAPKON) of the University Medicine Network, the \"Integration Core\" was established to design the legal, technical and organisational requirements for the integration of inventory data into ongoing prospective data collections and to test the feasibility of the newly developed solutions using use cases (UCs). Detailed study documents of the data collections were obtained. After structured document analysis, a review board evaluated the integrability of the data in NAPKON according to defined criteria. Of 30 university hospitals contacted, 20 responded to the request. Patient information and consent showed a heterogeneous picture with regard to the pseudonymised transfer of data to third parties and re-contact. The majority of the data collections (n=13) met the criteria for integration into NAPKON; four studies would require adjustments to the regulatory documents. Three cohorts were not suitable for inclusion in NAPKON. The legal framework for retrospective data integration and consent-free data use via research clauses (§27 BDSG) was elaborated by a legal opinion by TMF - Technology, Methods and Infrastructure for Networked Medical Research, Berlin. Two UCs selected by the NAPKON steering committee (CORKUM, LMU Munich; Pa-COVID-19, Charité- Universitätsmedizin Berlin) were used to demonstrate the feasibility of data integration in NAPKON by the end of 2021. Quality assurance and performance-based reimbursement of the cases were carried out according to the specifications. Based on the results, recommendations can be formulated for various contexts in order to create technical-operational prerequisites such as interoperability, interfaces and data models for data integration and to fulfil regulatory requirements on ethics, data protection, medical confidentiality and data access when integrating existing cohort data. The possible integration of data into research networks and their secondary use should be taken into account as early as the planning phase of a study - particularly with regard to informed consent - in order to maximise the benefits of the data collected.</p>","PeriodicalId":47653,"journal":{"name":"Gesundheitswesen","volume":" ","pages":"647-654"},"PeriodicalIF":0.7,"publicationDate":"2024-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11469301/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142037293","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"[What Medical Specialties do ME/CFS Sufferers Consult? A Public Health Study on the need for Better Medical Education and Training].","authors":"Lotte Habermann-Horstmeier, Lukas Maximilian Horstmeier","doi":"10.1055/a-2323-9507","DOIUrl":"10.1055/a-2323-9507","url":null,"abstract":"<p><strong>Background: </strong>The disease ME/CFS is unknown to many doctors in Germany. Within the healthcare system, significant deficits in dealing with ME/CFS patients have been repeatedly revealed. Hence, the aim of the present study was to identify the specialties of the doctors consulted by ME/CFS patients and to find out whether information on the medical procedure in the context of the diagnosis process can be derived from this.</p><p><strong>Method: </strong>As part of the APAV-ME/CFS survey, the quantitative responses of 674 adult ME/CFS sufferers (>20 y.; 554 ♀, 120 ♂) who already had a medical ME/CFS diagnosis were statistically examined. The sampling was done by self-activation and via the snowball principle. The data were primarily evaluated descriptively. An analysis of variance was carried out to consider possible relationships.</p><p><strong>Results: </strong>Almost a quarter of the patients said they had suffered from ME/CFS for 6 to 10 years. Diagnosis was made within 10 years of disease onset in 62%. For 6.4% it took 21-40 years. 75% of the participants consulted 6 to 15 different doctors from a wide range of disciplines in the course of the disease, in particular from general medicine, neurology, internal medicine and psychosomatics/psychiatry. Diagnosis was made in particular by GPs and immunologists. On average, the test persons named 11 mostly neuroregulatory symptoms.</p><p><strong>Conclusions: </strong>The results suggest that in the context of finding a diagnosis in Germany for ME/CFS, referral behaviour to specialists based on single ME/CFS symptoms or rather arbitrary contacting of doctors from a wide variety of disciplines has prevailed so far. Therefore, training and further education measures on the subject of ME/CFS are urgently needed in all specialist disciplines in the resident, inpatient and rehabilitation sectors.</p>","PeriodicalId":47653,"journal":{"name":"Gesundheitswesen","volume":" ","pages":"625-632"},"PeriodicalIF":0.7,"publicationDate":"2024-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11469179/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140904916","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}