Journal of Policy and Practice in Intellectual Disabilities最新文献

筛选
英文 中文
Expressions of a humanistic orientation among service providers supporting adults with intellectual and developmental disabilities 为智力和发育障碍成人提供支持的服务提供者对人文取向的表述
IF 1.7 4区 医学
Journal of Policy and Practice in Intellectual Disabilities Pub Date : 2023-10-16 DOI: 10.1111/jppi.12477
Ran Neuman, Shunit Reiter, Nirit Karni-Vizer
{"title":"Expressions of a humanistic orientation among service providers supporting adults with intellectual and developmental disabilities","authors":"Ran Neuman,&nbsp;Shunit Reiter,&nbsp;Nirit Karni-Vizer","doi":"10.1111/jppi.12477","DOIUrl":"10.1111/jppi.12477","url":null,"abstract":"<p>The study investigated the influence of the humanistic orientation on the perspectives of service providers working with individuals with intellectual and developmental disabilities (IDD) and the self-evaluation of service users. The humanistic orientation, which emerged in the 1990s, emphasizes the rights of people with IDD to lead a meaningful life based on their personal needs and desires. However, challenges persist as some service providers prioritize the acquisition of normative life skills over fostering autonomy. The study was based on quantitative methodology and included 61 service providers and 95 of their service users. The study's findings indicate that the humanistic orientation was endorsed by nearly one half of the service providers compared with one third who endorsed a medical orientation. Those endorsing a humanistic orientation also reported that their service users had higher levels of efficacy than those with a medical perception of IDD. Positive correlations were found regarding the assessments made by service providers and their service users on self-efficacy. Findings suggest that a humanistic orientation encourages optimism among service providers and a positive dyadic interaction between providers and users. It is suggested that the humanistic orientation be applied as a guiding principle underlying the daily support provided to adults with IDD.</p>","PeriodicalId":47236,"journal":{"name":"Journal of Policy and Practice in Intellectual Disabilities","volume":null,"pages":null},"PeriodicalIF":1.7,"publicationDate":"2023-10-16","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"136112354","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 1
Quality of life between the hammer and the anvil: Challenges of living with a disability in areas of protracted political conflict 锤与砧之间的生活质量:长期政治冲突地区残疾人的生活挑战
IF 1.7 4区 医学
Journal of Policy and Practice in Intellectual Disabilities Pub Date : 2023-10-15 DOI: 10.1111/jppi.12472
Yael Karni-Visel, Dana Roth, Neveen Ali-Saleh Darawshy, Mitchell Schertz
{"title":"Quality of life between the hammer and the anvil: Challenges of living with a disability in areas of protracted political conflict","authors":"Yael Karni-Visel,&nbsp;Dana Roth,&nbsp;Neveen Ali-Saleh Darawshy,&nbsp;Mitchell Schertz","doi":"10.1111/jppi.12472","DOIUrl":"10.1111/jppi.12472","url":null,"abstract":"<p>Article 11 of the United Nations' <i>Convention for the Rights of Persons with Disabilities</i> and various relevant humanitarian actors recognize the obligation to ensure the protection and safety of persons with disabilities in various situations of risk, including armed and political conflict. Nonetheless, protracted crises exacerbate the existing inequalities and vulnerabilities of individuals with disabilities. This article suggests that, in addition to recognized subcultural issues, the political context should be considered in the policies and practices concerning those with disabilities. To assist individuals with disabilities and their families who are living in situations of protracted political conflict and the professionals who serve them, research should further explore these issues and their effects in terms of quality-of-life measures. A better understanding of the individual, organizational, and social contextual factors of political conflict in the conceptualization and measurement of the quality of life of individuals with disabilities and their families will promote improved and more sensitive services, support, and interventions.</p>","PeriodicalId":47236,"journal":{"name":"Journal of Policy and Practice in Intellectual Disabilities","volume":null,"pages":null},"PeriodicalIF":1.7,"publicationDate":"2023-10-15","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"135758946","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Augmentative and alternative communication continuing education programs for multidisciplinary teams—Does it make a difference? 多学科团队的辅助和替代性交流继续教育计划--它能带来改变吗?
IF 1.7 4区 医学
Journal of Policy and Practice in Intellectual Disabilities Pub Date : 2023-10-04 DOI: 10.1111/jppi.12467
Orit E. Hetzroni, Adi Ne'eman
{"title":"Augmentative and alternative communication continuing education programs for multidisciplinary teams—Does it make a difference?","authors":"Orit E. Hetzroni,&nbsp;Adi Ne'eman","doi":"10.1111/jppi.12467","DOIUrl":"10.1111/jppi.12467","url":null,"abstract":"<p>Although augmentative and alternative communication (AAC) has been in use for several decades, many multidisciplinary teams do not implement the available knowledge in their practice. Limited availability of AAC programs has been purported as a reason for its limited use. The purpose of this study was to investigate the effects of a dynamic intensive continuing education program aimed to provide multidisciplinary teams with theoretical and practical knowledge in AAC, teamwork, literacy, and family issues regarding the application of AAC for individuals with complex communication needs, on the participants' knowledge, skills, attitudes, and myths. A mixed method was used to investigate two out-service and three in-service continuing education programs consisting of 136 multidisciplinary staff members. Results demonstrate that participants gained knowledge and skills, changed attitudes, and refuted previously held myths. Participants reported changes in practice and in collaboration within their teams, with individuals at their settings, and with their families.</p>","PeriodicalId":47236,"journal":{"name":"Journal of Policy and Practice in Intellectual Disabilities","volume":null,"pages":null},"PeriodicalIF":1.7,"publicationDate":"2023-10-04","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/jppi.12467","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"135643994","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Family quality of life application among older caregivers of adults with intellectual/ developmental disabilities 智力/发育障碍成人的老年照顾者的家庭生活质量应用
IF 1.7 4区 医学
Journal of Policy and Practice in Intellectual Disabilities Pub Date : 2023-10-04 DOI: 10.1111/jppi.12475
Preethy S. Samuel
{"title":"Family quality of life application among older caregivers of adults with intellectual/ developmental disabilities","authors":"Preethy S. Samuel","doi":"10.1111/jppi.12475","DOIUrl":"10.1111/jppi.12475","url":null,"abstract":"<p>Family quality of life (FQOL) is a multidimensional social construct that can be used to enhance a family's well-being by providing a framework to plan interventions and evaluate outcomes. Although researchers and policymakers see value in the FQOL domains and dimensions, families and practitioners are often skeptical of lengthy evaluations and aggregate scores. Furthermore, many practitioners find that family caregivers who require support and services overwhelmingly focus on the family member needing the most care. In doing so, they perceive their situations in a “spaghetti-like” way. This strong focus on one aspect of the situation, or one “spaghetti” strand, can result in conversations about planning and implementing interventions becoming cyclical, like a messy tangle of strands. The FQOL lens can be used in intervention planning to transform overlapping spaghetti-like thoughts into a waffle-like system of interconnected and compartmentalized thoughts. The purpose of this paper was to describe the individual-level application of the FQOL theory to plan and evaluate the benefits of a peer-mediated family empowerment project for aging caregivers of adults with intellectual/ developmental disabilities in Michigan, USA. The study provides examples of how individual-level FQOL evaluation at pretest informed the development of individualized action plans that focused on the strengths, desires, and challenges of 100 aging families in this statewide project.</p>","PeriodicalId":47236,"journal":{"name":"Journal of Policy and Practice in Intellectual Disabilities","volume":null,"pages":null},"PeriodicalIF":1.7,"publicationDate":"2023-10-04","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"135645404","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
The role of microboards in enhancing quality of life for children with intellectual disability and their families 微板在提高智障儿童及其家庭生活质量方面的作用
IF 1.7 4区 医学
Journal of Policy and Practice in Intellectual Disabilities Pub Date : 2023-10-02 DOI: 10.1111/jppi.12474
Susan Taylor, Jennifer David, Angela Dew, Joanne Watson
{"title":"The role of microboards in enhancing quality of life for children with intellectual disability and their families","authors":"Susan Taylor,&nbsp;Jennifer David,&nbsp;Angela Dew,&nbsp;Joanne Watson","doi":"10.1111/jppi.12474","DOIUrl":"10.1111/jppi.12474","url":null,"abstract":"<p>Disability support systems have not consistently used family-centered practices when supporting families of children with disability. Families have experienced structural and interpersonal barriers that have negatively impacted not only their child's quality of life, but also family quality of life (FQOL). The eight domains of QOL as defined by the International Association for the Scientific Study of Intellectual Disabilities [IASSID] are reflected in a family-centered model of support developed for children and young people by Microboards Australia. The Microboards for Children [MB4C] model reflects best family centered practice based on principles that integrate well with recognised FQOL domains such as family relationships, support from other people and from disability-related services, and leisure and enjoyment of life. The MB4C model aims to enhance families’ knowledge, skills, confidence, and sense of wellbeing to support them develop a vision for an active, socially connected, and happy future with their child. The model consists of a structured network of formal and informal support to enhance not only their child or young person's personal relationships, social networks, and community inclusion but also to enable parents and siblings to access education, employment and to enjoy life in their community – all indicators of FQOL. In this paper we explore how these features of MB4C policies and practice align with family-centered practice principles and with FQOL domains. We argue that the MB4C model provides an example of how FQOL may be enhanced by a holistic family-centered disability service system that works in partnership with families with disability.</p>","PeriodicalId":47236,"journal":{"name":"Journal of Policy and Practice in Intellectual Disabilities","volume":null,"pages":null},"PeriodicalIF":1.7,"publicationDate":"2023-10-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/jppi.12474","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"135830233","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Voice, disability and ‘end of life’ research: Strategies for including people with intellectual disabilities in qualitative research related to death and dying 声音、残疾和 "生命终结 "研究:将智障人士纳入与死亡和临终有关的定性研究的策略
IF 1.7 4区 医学
Journal of Policy and Practice in Intellectual Disabilities Pub Date : 2023-09-29 DOI: 10.1111/jppi.12476
Marissa A Diaz, Carla Sabariego, Jerome E Bickenbach
{"title":"Voice, disability and ‘end of life’ research: Strategies for including people with intellectual disabilities in qualitative research related to death and dying","authors":"Marissa A Diaz,&nbsp;Carla Sabariego,&nbsp;Jerome E Bickenbach","doi":"10.1111/jppi.12476","DOIUrl":"10.1111/jppi.12476","url":null,"abstract":"<p>This brief report proposes strategies to support qualitative research with people with intellectual disabilities on topics related to death and dying. We prepared a scoping review on methodological approaches used for qualitative research on death and dying involving participants with intellectual disabilities and a study on perceived barriers and facilitators to accessing end of life settings, conducted with co-researchers on an online video communication platform. Through conducting these two studies, we found three strategies that we believe will increase the uptake of this research for policymakers, funding bodies and other researchers. The strategies concern research agendas, structured methodological guidance, and allocation of funds. When planning out qualitative research projects about death and dying topics, people with intellectual disabilities must be on the research agendas on topics related to death and dying. To realize this obligation, stakeholders would benefit from structured methodological guidance. The design, planning, and conduct of such studies would benefit greatly from such guidance and would ideally result in the uptake of this type of research. Additionally, proper funding taking into account needed but time-consuming accommodations for participants is necessary. These strategy options aim to increase the amount of qualitative research that includes people with intellectual disabilities as participants.</p>","PeriodicalId":47236,"journal":{"name":"Journal of Policy and Practice in Intellectual Disabilities","volume":null,"pages":null},"PeriodicalIF":1.7,"publicationDate":"2023-09-29","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/jppi.12476","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"135243510","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Personal emergency response systems and people with intellectual and developmental disabilities in the United States 美国的个人紧急反应系统和智障人士
IF 1.7 4区 医学
Journal of Policy and Practice in Intellectual Disabilities Pub Date : 2023-09-06 DOI: 10.1111/jppi.12469
Carli Friedman
{"title":"Personal emergency response systems and people with intellectual and developmental disabilities in the United States","authors":"Carli Friedman","doi":"10.1111/jppi.12469","DOIUrl":"10.1111/jppi.12469","url":null,"abstract":"<p>Personal Emergency Response Systems (PERS) are electronic medical alert devices that help people with intellectual and developmental disabilities (IDD) receive assistance in emergencies. According to research on older adults, PERS improve health outcomes, provide people with a sense of security and peace of mind, promote independence, and prevent institutionalization. The aim of this study was to examine if, and how, states provided PERS to people with IDD in their Medicaid Home and Community Based Services (HCBS) waiver programs in fiscal year (FY) 2021. To do so, we qualitatively and quantitatively analyzed HCBS data on participant services and cost-neutrality demonstrations to examine thematic trends in how and why states offered PERS, as well as total unduplicated participants, total projected spending, projected spending per participant, reimbursement rates, and annual service provision per participant. In FY 2021, 42 waivers (39.25%) from 25 states and the District of Columbia (57.78%) projected spending $9.87 million on PERS services for 9538 people with IDD. PERS services included the installation of devices (77.78%), monthly service fees (73.61%), equipment maintenance (44.44%), and training of people with IDD or their caregivers about the equipment (41.67%). States said they provided PERS in order to prevent institutionalization (23.61%), promote independence (16.67%), and maximize mobility (11.11%). Given the potential benefits for independent living, independence, and reducing costs, as well as the disparities unearthed in this study, we believe states should expand how they provide PERS to people with IDD in HCBS and do so in a more consistent manner. This may be especially beneficial as PERS can be cost-prohibitive for many people with IDD, who frequently live in poverty, and HCBS reimbursement for technology is the top barrier to implementing technology according to IDD providers.</p>","PeriodicalId":47236,"journal":{"name":"Journal of Policy and Practice in Intellectual Disabilities","volume":null,"pages":null},"PeriodicalIF":1.7,"publicationDate":"2023-09-06","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"41430011","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Understanding quality of life of persons with profound intellectual and multiple disabilities 了解重度智力残疾者和多重残疾者的生活质量
IF 1.7 4区 医学
Journal of Policy and Practice in Intellectual Disabilities Pub Date : 2023-09-04 DOI: 10.1111/jppi.12473
A. M. Nieuwenhuijse, D. L. Willems, K. Kruithof
{"title":"Understanding quality of life of persons with profound intellectual and multiple disabilities","authors":"A. M. Nieuwenhuijse,&nbsp;D. L. Willems,&nbsp;K. Kruithof","doi":"10.1111/jppi.12473","DOIUrl":"10.1111/jppi.12473","url":null,"abstract":"<p>In this paper, we discuss the applicability of the consensus document, prepared by the Special Interest Research Group on quality of life (QoL) of the International Association for the Scientific Study of Intellectual Disabilities in August 2000, for persons with Profound Intellectual and Multiple disabilities (PIMD). We compare our findings from previous empirical research with some elements of the themes and principles of the consensus document. We will reflect (1) on the domains of QoL mentioned in the consensus document, and (2) on the assessment by proxies. We recommend reflection on the following aspects when composing a new consensus document, which includes QoL of persons with PIMD: first, reconsider whether all eight domains are useful in care practice for—and research about—persons with PIMD. We assert that the domains of health, well-being, capability to influence the environment, and also (family) relationships, are particularly relevant for the QoL of persons with PIMD and, second, accept interpretation of signals and signs by proxies in the assessment of QoL in persons with PIMD and do not value this as second best.</p>","PeriodicalId":47236,"journal":{"name":"Journal of Policy and Practice in Intellectual Disabilities","volume":null,"pages":null},"PeriodicalIF":1.7,"publicationDate":"2023-09-04","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/jppi.12473","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"44651837","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Ten-year impact of a Down syndrome pediatric clinic 唐氏综合症儿科诊所十年的影响
IF 1.7 4区 医学
Journal of Policy and Practice in Intellectual Disabilities Pub Date : 2023-08-31 DOI: 10.1111/jppi.12471
Francis Hickey, Kristine Wolter-Warmerdam, Patricia Winders, Samantha Holland, Karen Kelminson, Dee Daniels
{"title":"Ten-year impact of a Down syndrome pediatric clinic","authors":"Francis Hickey,&nbsp;Kristine Wolter-Warmerdam,&nbsp;Patricia Winders,&nbsp;Samantha Holland,&nbsp;Karen Kelminson,&nbsp;Dee Daniels","doi":"10.1111/jppi.12471","DOIUrl":"10.1111/jppi.12471","url":null,"abstract":"<p>To report the 10-year experience of a new pediatric Down syndrome (DS) center at one of the top 10 pediatric hospitals in the United States identified by U.S. News and World Report serving children and young adults with DS. This is a retrospective cohort study design of 1812 children with DS at a single, large, pediatric referral center specializing in DS. Children were identified from the comprehensive clinic database populated by the clinic's Visit and Intake Forms and electronic medical records. The average age at initial clinic visit was 5.50 years (SD ± 5.64). Most patients had a gastrointestinal diagnosis (<i>n</i> = 1319, 72.8%), ophthalmologic anomaly (<i>n</i> = 1286, 71.0%), cardiac defect (<i>n</i> = 1056, 58.3%), and obstructive sleep apnea (<i>n</i> = 975, 53.8%). The most common referrals made for American Academy of Pediatrics DS Guidelines compliance were for labs (<i>n</i> = 1152), audiology (<i>n</i> = 1145), ophthalmology (<i>n</i> = 966), and cardiology (<i>n</i> = 491). Clinic outreach to community pediatricians to ensure compliance with guidelines was statistically impactful with audiology (2017–2020 = 59.8%; 2011–2016 = 65.5%) and sleep study referrals (2017–2020 = 17.2%; 2011–2016 = 28.0%). Over its 10 years, the DS pediatric clinic produced over 9800 department and 5250 testing or procedure referrals. The highest volume procedures were in ear, nose, and throat with tonsillectomy/adenoidectomy and pressure equalizer tubes. Our data support that the pediatric DS clinic model can positively impact the overall health measures of patients and produce significant revenue generated by referral appointments, testing, and procedures.</p>","PeriodicalId":47236,"journal":{"name":"Journal of Policy and Practice in Intellectual Disabilities","volume":null,"pages":null},"PeriodicalIF":1.7,"publicationDate":"2023-08-31","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"43445281","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 1
Using the quality of life framework to operationalize and assess the CRPD articles and the Sustainable Development Goals 使用生活质量框架实施和评估《残疾人权利公约》条款和可持续发展目标
IF 1.7 4区 医学
Journal of Policy and Practice in Intellectual Disabilities Pub Date : 2023-08-23 DOI: 10.1111/jppi.12470
Laura E. Gómez, M. Lucía Morán, Patricia Navas, Miguel Ángel Verdugo, Robert L. Schalock, Marco Lombardi, Eva Vicente, Verónica M. Guillén, Giulia Balboni, Chris Swerts, Susana Al-Halabí, M. Ángeles Alcedo, Asunción Monsalve, Ivan Brown
{"title":"Using the quality of life framework to operationalize and assess the CRPD articles and the Sustainable Development Goals","authors":"Laura E. Gómez,&nbsp;M. Lucía Morán,&nbsp;Patricia Navas,&nbsp;Miguel Ángel Verdugo,&nbsp;Robert L. Schalock,&nbsp;Marco Lombardi,&nbsp;Eva Vicente,&nbsp;Verónica M. Guillén,&nbsp;Giulia Balboni,&nbsp;Chris Swerts,&nbsp;Susana Al-Halabí,&nbsp;M. Ángeles Alcedo,&nbsp;Asunción Monsalve,&nbsp;Ivan Brown","doi":"10.1111/jppi.12470","DOIUrl":"10.1111/jppi.12470","url":null,"abstract":"<p>This article describes how rights, the United Nations Sustainable Development Goals (SDGs), and the quality of life (QOL) framework are closely interrelated. Although legislation can be used as a tool for the practical application of QOL principles, QOL assessment information is required to further develop legislation and monitor the fulfillment of laws, policies, and the SDGs. A validated QOL model, which provides a set of concepts that can be one useful way for understanding and assessing QOL, can also function to assess many of the rights and goals promulgated in the Convention on the Rights of Persons with Disabilities (CRPD) and in the SDGs. This article illustrates the overlap between the CRPD, SDGs and QOL using the <i>#Rights4MeToo Scale</i>, a new measurement instrument for people with intellectual and developmental disabilities (IDD). The instrument's value lies in its potential to: (a) raise awareness about the rights enshrined in the CRPD; (b) design, implement, and evaluate the effectiveness of interventions aimed at facilitating the exercise of those rights and the achievement of the SDGs; and (c) ultimately improve the QOL of people with IDD.</p>","PeriodicalId":47236,"journal":{"name":"Journal of Policy and Practice in Intellectual Disabilities","volume":null,"pages":null},"PeriodicalIF":1.7,"publicationDate":"2023-08-23","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/jppi.12470","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"43161565","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
0
×
引用
GB/T 7714-2015
复制
MLA
复制
APA
复制
导出至
BibTeX EndNote RefMan NoteFirst NoteExpress
×
提示
您的信息不完整,为了账户安全,请先补充。
现在去补充
×
提示
您因"违规操作"
具体请查看互助需知
我知道了
×
提示
确定
请完成安全验证×
相关产品
×
本文献相关产品
联系我们:info@booksci.cn Book学术提供免费学术资源搜索服务,方便国内外学者检索中英文文献。致力于提供最便捷和优质的服务体验。 Copyright © 2023 布克学术 All rights reserved.
京ICP备2023020795号-1
ghs 京公网安备 11010802042870号
Book学术文献互助
Book学术文献互助群
群 号:481959085
Book学术官方微信