{"title":"Cancer on the margins: experiences of living with neuroendocrine tumours","authors":"Stefanie Plage, A. Gibson, M. burge, D. Wyld","doi":"10.1080/14461242.2017.1387068","DOIUrl":"https://doi.org/10.1080/14461242.2017.1387068","url":null,"abstract":"ABSTRACT Cancer is a multifaceted entity with recent developments in treatment only increasing this diversification. Yet, some cancers are less common, less well understood, and receive less attention. Taking neuroendocrine tumours (NETs) as a case study, we explore the lived experience of people with a type of cancer that is virtually unknown among the general population. Drawing on interviews with 30 people living with NETs in Australia, we explored how their experiences are shaped by social and cultural understandings of cancer, and the tensions between chronicity and terminality. We found that people with NETs draw on common narratives around cancer to make sense of their diagnosis. However, NETs were understood as atypical, because they are often incurable, slowly progressing and not associated with treatment side effects such as hair or weight loss. The embodied effects of NETs made them unrecognisable as cancer to participants and community. The specificities of the NET illness experience resulted in the need to reframe narratives around agency and positivity. This hindered social recognition but also provided opportunities to bracket illness and gain some control over the illness experience. The findings of this study highlight the importance of recognising multiple modes of living with cancer.","PeriodicalId":46833,"journal":{"name":"Health Sociology Review","volume":"27 1","pages":"153 - 167"},"PeriodicalIF":3.6,"publicationDate":"2018-05-04","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1080/14461242.2017.1387068","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"43438135","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"The Palgrave international handbook of social theory in health, medicine and illness","authors":"Melissa-Jane Belle","doi":"10.1080/14461242.2018.1465832","DOIUrl":"https://doi.org/10.1080/14461242.2018.1465832","url":null,"abstract":"","PeriodicalId":46833,"journal":{"name":"Health Sociology Review","volume":"27 1","pages":"229 - 230"},"PeriodicalIF":3.6,"publicationDate":"2018-04-25","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1080/14461242.2018.1465832","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"43377124","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Wellbeing machine: how health emerges from the assemblages of everyday life","authors":"Kenneth Yates","doi":"10.1080/14461242.2018.1461575","DOIUrl":"https://doi.org/10.1080/14461242.2018.1461575","url":null,"abstract":"","PeriodicalId":46833,"journal":{"name":"Health Sociology Review","volume":"27 1","pages":"330 - 331"},"PeriodicalIF":3.6,"publicationDate":"2018-04-25","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1080/14461242.2018.1461575","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"49400072","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Cancer treatment decision-making with/ for older adults with dementia: the intersections of autonomy, capital, and power","authors":"Peta S. Cook, A. McCarthy","doi":"10.1080/14461242.2018.1466187","DOIUrl":"https://doi.org/10.1080/14461242.2018.1466187","url":null,"abstract":"ABSTRACT In healthcare, health risk assessments are influenced by technical ‘objective’ measurements of the physical body and disease; the values that underlie professional practices (such as beneficence, non-maleficence, and autonomy); the organisations healthcare professionals work for; and subjective belief systems of individual healthcare professionals. As a result, cancer treatments prescribed for older adults can be tempered by personal views about a patient’s age, and other age-associated health conditions or comorbidities that they may have. Drawing from interviews undertaken with nine key staff members in a large cancer service, we examine how treatment recommendations and decisions are determined when older adults with cancer also have dementia; two health conditions more common in older age. Our analysis reveals two themes that underlie the complicated processes of risk-benefit assessment in treatment decision-making: the unequal distribution of capital and power between health workers; and whether older adults with cancer and dementia are assessed as solely individuals or embedded in supportive social networks (individual versus relational autonomy). This analysis exposes capital and personal beliefs about dementia are implicit in health risk assessments for older adults who have cancer and dementia which, in conjunction with organisational constraints, significantly influence how treatment recommendations and decisions are reached.","PeriodicalId":46833,"journal":{"name":"Health Sociology Review","volume":"27 1","pages":"184 - 198"},"PeriodicalIF":3.6,"publicationDate":"2018-04-22","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1080/14461242.2018.1466187","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"45479999","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Digital health: critical and cross-disciplinary perspectives","authors":"R. Wilding","doi":"10.1080/14461242.2018.1465833","DOIUrl":"https://doi.org/10.1080/14461242.2018.1465833","url":null,"abstract":"blems of health and wellbeing, particularly for those with some awareness of the post-structuralist and continental philosophy that broadly informs the new-materialist assemblage framework. Those without such familiarity may initially find their ontological preconceptions challenged, but this is not to say that it is an insurmountable task for the interested reader. The book makes efforts to outline its conceptual lineage and its contributions without unreasonable assumptions about its audience. Those with existing predispositions toward such theoretical terrain may find the book of more immediate interest and benefit, supplementing, expanding, and challenging their own conceptual commitments. That said, any interested scholar would find this text a useful inclusion in their reading, if not for the sake of applying it to their own work, then to better understand how others are drawing upon the emerging rich theoretical terrain loosely assembled under the various labels of post-structuralism, new-materialism, post-humanism and assemblage theory.","PeriodicalId":46833,"journal":{"name":"Health Sociology Review","volume":"27 1","pages":"331 - 332"},"PeriodicalIF":3.6,"publicationDate":"2018-04-19","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1080/14461242.2018.1465833","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"45602638","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Resignation, goal orientation or cultural essentialism? Health care practitioners’ approaches to interventions on childhood obesity","authors":"Kia Ditlevsen","doi":"10.1080/14461242.2018.1465352","DOIUrl":"https://doi.org/10.1080/14461242.2018.1465352","url":null,"abstract":"ABSTRACT This qualitative study investigates health care practitioners’ approaches to early childhood obesity in Denmark and their view on their own ability to initiate processes of change in affected families, and it asks the overall question of whether perceived barriers become real through practitioners’ reluctance to intervene in families labelled as ´problematic’. The paper identifies three approaches in the practitioners’ narratives: the socially oriented, the individually oriented, and the mixed. The individually oriented approach was based on a logic resembling individualistic explanatory models of behaviour change, and was related to a positive perspective on their own ability to move families towards healthier habits by health care practitioners. The socially oriented approach borrowed elements from a sociological perspective, which seemed to lead to resigned pessimism in the face of the complexity of the problem of childhood overweight and a reluctance to address early childhood overweight in some families. In practitioners of all three types, widespread cultural essentialism was found. Non-western, ethnic minority background was seen as determining family habits and making preventive action especially difficult. Based on this, the current paper discusses whether individual actions and choices are being ascribed too much explanatory power, and the health system's biased perceptions too little.","PeriodicalId":46833,"journal":{"name":"Health Sociology Review","volume":"27 1","pages":"231 - 247"},"PeriodicalIF":3.6,"publicationDate":"2018-04-19","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1080/14461242.2018.1465352","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"42001988","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Food insecurity, psychological distress and alcohol use: understanding the salience of family roles for gender disparities","authors":"Gabriele Ciciurkaite, R. Brown","doi":"10.1080/14461242.2018.1461574","DOIUrl":"https://doi.org/10.1080/14461242.2018.1461574","url":null,"abstract":"ABSTRACT The goal of this paper was to expand upon research documenting the adverse mental health effects of food insecurity by assessing the explanatory role of gender differences in family roles and arrangements among a nationally-representative sample of U.S. adults. Using data from the combined 2011–2012 and 2013–2014 cycles of The National Health and Nutrition Examination Survey (NHANES), we estimated a series of models using adult food insecurity measures and self-reported gender as main predictors of depressive symptoms and alcohol use. Our results demonstrate that marriage is protective against greater depressive symptomatology among women and men, and higher alcohol consumption among men. However, the protective effects of marriage against high alcohol use are reduced within the context of food insecurity among men. Further, the results indicate that parenthood is protective against greater depressive symptoms and alcohol consumption among women, but not men. The protective effects of having children are, however, diminished among women in food insecure households. These findings add to the growing literature on the mental health consequences of household food insecurity, and extend this work by clarifying ways in which family roles come to bear on gender differences in the association between food insecurity and psychological and behavioural outcomes.","PeriodicalId":46833,"journal":{"name":"Health Sociology Review","volume":"27 1","pages":"294 - 311"},"PeriodicalIF":3.6,"publicationDate":"2018-04-16","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1080/14461242.2018.1461574","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"45142013","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Exploring the emergence of traditional healer organizations: the case of an ethno-medical association in Bolivia","authors":"Deby Babis","doi":"10.1080/14461242.2018.1452624","DOIUrl":"https://doi.org/10.1080/14461242.2018.1452624","url":null,"abstract":"ABSTRACT The purpose of this research was to explore the phenomenon of the emergence of ethno-medical organisations among traditional healers from the late twentieth century. A case study was carried out on the Bolivian organisation Kallawayas sin Fronteras (KASFRO). According to the findings, KASFRO has been founded to demand formal recognition and inclusion in the national health system. Following historical discrimination against traditional medical heritage and the supremacy of the allopathic medical system, new trends of worldwide legitimisation of indigenous people's rights, as well as the worldwide acceptance of non-Western medical systems, were identified as crucial factors in the emergence of KASFRO. As a civil society organisation, KASFRO has been found to be a platform of social capital development which enables both, bonding within the Kallawaya community as well as with other traditional healer organisations (THO's), and bridging with governmental entities, which eventually led to the recognition of traditional doctors as professionals in Bolivia. These findings corroborate the roles of nongovernmental and nonprofit organisations as agents of political and social change, serving the preservation of medical ancestral cultures.","PeriodicalId":46833,"journal":{"name":"Health Sociology Review","volume":"27 1","pages":"136 - 152"},"PeriodicalIF":3.6,"publicationDate":"2018-03-29","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1080/14461242.2018.1452624","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"45906220","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
R. Guldager, I. Poulsen, I. Egerod, L. Mathiesen, Kristian Larsen
{"title":"Rehabilitation capital: a new form of capital to understand rehabilitation in a Nordic welfare state*","authors":"R. Guldager, I. Poulsen, I. Egerod, L. Mathiesen, Kristian Larsen","doi":"10.1080/14461242.2018.1434808","DOIUrl":"https://doi.org/10.1080/14461242.2018.1434808","url":null,"abstract":"ABSTRACT Social, educational and health related equality is an ideal in the Nordic welfare states. However studies have shown that well-positioned patients achieve better treatment and more services, for example time and examinations, than others do. This article examines how patients and relatives mobilise resources in decision-making in a stroke unit. In particular, it focuses on the challenges in optimising the rehabilitation process faced by patients and relatives, and the strategies they use. Data were generated using participant observation and semi-structured interviews. Qualitative content analysis was applied to investigate the patients’ and relatives’ experiences of decision-making. We present a field-specific form of capital: An individual or a family's resources that are valued in the field of rehabilitation as physical, behavioural and cognitively embedded attitudes and practices. Rehabilitation capital consists of four closely interrelated components: Performative Participation (Cognitively Embedded Performance and Self-initiating Activities), Bodily Progression, Institutional Acceptance and Institutional Potential. It is a resource potentially benefitting patients and relatives during inpatient rehabilitation and may provide patients with an advantage, to ensure the best rehabilitation. The possession of Rehabilitation capital (high or low) contributes explanations for unequal practices and treatments at a micro-level in healthcare institutions.","PeriodicalId":46833,"journal":{"name":"Health Sociology Review","volume":"27 1","pages":"199 - 213"},"PeriodicalIF":3.6,"publicationDate":"2018-02-07","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1080/14461242.2018.1434808","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"46703029","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Making sense of the abortion pill: a sociotechnical analysis of RU486 in Canada","authors":"Patricia Campbell","doi":"10.1080/14461242.2018.1426996","DOIUrl":"https://doi.org/10.1080/14461242.2018.1426996","url":null,"abstract":"ABSTRACT In January 2017, the ‘abortion pill’ was finally used legally in Canada. This paper provides a sociotechnical analysis of the controversy surrounding RU486 in Canada, focusing on its entry into public discourse, 1990–1995. The case study draws primarily on statements made about the pill, both in Canadian media and in various actors’ print communications. Using approaches from science and technology studies, the analysis identifies the multiple human and nonhuman actors, their discursive mobilizations of RU486 and each other, and their contingent alliances, illustrating how RU486 mediates and shapes the communication that attempts to define it. Unpacking the network's complexity illuminates how these sense-making practices established the early setting of the technology's path, a first step in understanding why Canada has been a laggard in making the pill available. The discussion illustrates the tensions, instabilities, and reversals in the network that have hindered RU486′s movement from development to diffusion. Finally, the paper suggests a framework for future sociological research on controversial reproductive technologies in their shift from discursive to material diffusion, one that recognises the integral role of women as users.","PeriodicalId":46833,"journal":{"name":"Health Sociology Review","volume":"27 1","pages":"121 - 135"},"PeriodicalIF":3.6,"publicationDate":"2018-02-07","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1080/14461242.2018.1426996","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"45002130","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}