Health Sociology Review最新文献

{"title":"Beyond the challenge to research integrity: imposter participation in incentivised qualitative research and its impact on community engagement.","authors":"Kerryn Drysdale, Nathanael Wells, Anthony K J Smith, Nilakshi Gunatillaka, Elizabeth Ann Sturgiss, Tim Wark","doi":"10.1080/14461242.2023.2261433","DOIUrl":"10.1080/14461242.2023.2261433","url":null,"abstract":"<p><p>Participant recruitment for qualitative research often offers incentives (honoraria; financial compensation) to increase participation and to recognise lived expertise and time involved in research. While not necessarily a new concern for survey and other quantitative based research, 'spam', 'bot', and other inauthentic forms of research participation has rarely been an apparent issue for qualitative research, given it often involves levels of interaction with potential participants prior to the conduct of in-depth interviews and other methods of data generation. This is no longer the case. A troubling new occurrence has meant that recruitment calls for qualitative research with incentives on public-facing social media have attracted 'imposter' expressions of interest and research participation. In this commentary, we explore this challenge that goes beyond research integrity. In particular, we consider the risks of employing strategies to screen for legitimate participants and the importance of building trust and maintaining community engagement.</p>","PeriodicalId":46833,"journal":{"name":"Health Sociology Review","volume":" ","pages":"372-380"},"PeriodicalIF":2.5,"publicationDate":"2023-11-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"41167658","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"'It's not within my control': local explanations for the development of lung cancer in China.","authors":"Jiong Tu,&nbsp;Elanah Uretsky,&nbsp;Lu Kang,&nbsp;Juan Yuan,&nbsp;Jiudi Zhong","doi":"10.1080/14461242.2022.2085056","DOIUrl":"https://doi.org/10.1080/14461242.2022.2085056","url":null,"abstract":"<p><p>Rates of lung cancer in China are rising rapidly, creating an urgent need for prevention. Effective prevention measures require understanding local beliefs and perceptions about the risk for developing lung cancer. This article explores the explanations that Chinese lung cancer patients and their families give about the aetiology of their disease. Fifty-three interviews were conducted among lung cancer patients and their family members at a large tumour hospital in southern China. Participants presented a complex multifactorial explanation of lung cancer associating their disease with risks like tobacco use, occupational exposures, environmental pollution, lifestyle changes, and personal characters. While these are all standard risk factors commonly associated with lung cancer, participants presented them within a larger contextual frame of structural issues that impede their ability to change their behaviours. Using a social ecological model, we demonstrate how China's socio-cultural environment shapes assumptions about the risk of lung cancer with particular reference to work, home, social situations, and the natural environment.</p>","PeriodicalId":46833,"journal":{"name":"Health Sociology Review","volume":" ","pages":"326-341"},"PeriodicalIF":3.6,"publicationDate":"2022-11-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"40194730","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Structural violence and barriers to pain management during an opioid crisis: accounts of women who use drugs in Nigeria.","authors":"Ediomo-Ubong Ekpo Nelson","doi":"10.1080/14461242.2021.1950024","DOIUrl":"https://doi.org/10.1080/14461242.2021.1950024","url":null,"abstract":"<p><p>Chronic pain management among marginalised populations have been extensively researched in North America, particularly amidst the opioid crisis. But little published research exists on this subject from Africa. This study explored experiences and management of chronic pain among marginalised women in the context of regulation of opioid prescribing using data from 16 qualitative interviews with women who use drugs (WWUD) in Uyo, Nigeria. Chronic pain was exacerbated by structural and everyday violence that acted to marginalise women and create a context of risk for inadequately managed pain. Participants experienced difficulty accessing biomedical pain management due to structural and systemic barriers, including cost, restrictions on opioid prescribing, stigma and other discriminatory practices, communication barriers and lack of social support. Restrictions on opioid prescribing and systemic discriminations against marginalised WWUD encouraged reliance on informal sources for falsified and substandard medications for pain treatment, which increased the risk of harm. Findings highlight a need for multi-component responses that address structural and systemic barriers to pain management, including improving access to opioid medications.</p>","PeriodicalId":46833,"journal":{"name":"Health Sociology Review","volume":"31 3","pages":"232-246"},"PeriodicalIF":3.6,"publicationDate":"2022-11-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1080/14461242.2021.1950024","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"39155161","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"The myth of medical multiculturalism: how social closure marginalises traditional Chinese medicine in New Zealand.","authors":"Brittany Palatchie,&nbsp;Alice Beban,&nbsp;Barbara Andersen","doi":"10.1080/14461242.2021.1987955","DOIUrl":"https://doi.org/10.1080/14461242.2021.1987955","url":null,"abstract":"<p><p>This article uses neo-Weberian social closure theory and Bourdieu's theory of symbolic violence to examine the epistemic tension between biomedicine and traditional Chinese medicine (TCM) in Aotearoa New Zealand (NZ), a country that aspires to a multicultural model of healthcare. Drawing on interviews with TCM practitioners and analysis of TCM practitioners' attempt to become a regulated profession, we argue that a multicultural health model remains a myth as biomedical stakeholders deploy material and symbolic forms of social closure that limit the scope of TCM practice. Discourses of the need for scientific evidence, public safety, qualification standards and English language fluency undermine the culturally distinctive but pragmatic forms of medicine that TCM practitioners utilise. This has implications for TCM as practitioners are denied public funding, their scope of practice is limited, and the expectations for TCM to conform to a biomedical model of healthcare have created tensions within the TCM community.</p>","PeriodicalId":46833,"journal":{"name":"Health Sociology Review","volume":"31 3","pages":"262-277"},"PeriodicalIF":3.6,"publicationDate":"2022-11-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"39548073","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Analysis of the social consequences and value implications of the Everyday Discrimination Scale (EDS): implications for measurement of discrimination in health research.","authors":"Allie Slemon,&nbsp;V Susan Dahinten,&nbsp;Cheyanne Stones,&nbsp;Vicky Bungay,&nbsp;Colleen Varcoe","doi":"10.1080/14461242.2021.1969980","DOIUrl":"https://doi.org/10.1080/14461242.2021.1969980","url":null,"abstract":"<p><p>The Everyday Discrimination Scale (EDS) is one of the most widely used measures of discrimination in health research, and has been useful for capturing the impact of discrimination on health. However, psychometric analysis of this measure has been predominantly among Black Americans, with limited examination of its effectiveness in capturing discrimination against other social groups. This paper explores the theoretical and historical foundations of the EDS, and draws on the analytic framework of Messick's theory of unified validity to examine the effectiveness of the EDS in capturing diverse experiences of discrimination. Encompassing both social consequences and value implications, Messick's unified validity contends that psychometric evaluation alone is insufficient to justify instrument use or ensure social resonance of findings. We argue that despite the robust psychometric properties and utility in addressing anti-Black race-related discrimination, the theoretical foundations and research use of the EDS have yet to respond to current discrimination theory, particularly intersectionality. This paper concludes with guidance for researchers in using the EDS in health research across diverse populations, including in data collection, analysis, and presentation of findings.</p>","PeriodicalId":46833,"journal":{"name":"Health Sociology Review","volume":"31 3","pages":"247-261"},"PeriodicalIF":3.6,"publicationDate":"2022-11-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"39332232","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Selective adoption of therapeutic devices among people with type 1 diabetes.","authors":"Alberto Ardissone","doi":"10.1080/14461242.2021.2007160","DOIUrl":"https://doi.org/10.1080/14461242.2021.2007160","url":null,"abstract":"<p><p>This paper contributes to the debate regarding the adoption/rejection of technologies by focusing on the selective use of therapeutic devices among people with type 1 diabetes. I show that patients often refuse to use a device (either insulin pumps or sensors for glycaemic control), despite suggestions from diabetologists. The study was conducted in Italy in 2019. Theoretically, the paper relied on a perspective that amalgamates actor-network theory and postphenomenology around the key concept of multistability. I then detected the three main features of stabilities that explain device use/non-use: relation to embodied users, contextual embedment (within larger social assemblages), concrete tailoring. Findings helped to stress the relevance of not only focusing on the type of device and its technical functioning, but also unveiling the underlying ongoing and situated socio-technical processes. Selective adoption of devices should be investigated at the level of the whole patient-device assemblage in order to assess the diverse stabilities that may arise from such networks.</p>","PeriodicalId":46833,"journal":{"name":"Health Sociology Review","volume":"31 3","pages":"278-292"},"PeriodicalIF":3.6,"publicationDate":"2022-11-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"39833373","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"The use of E-health during the COVID-19 pandemic: a case study in China's Hubei province.","authors":"Weiquan Wang,&nbsp;Li Sun,&nbsp;Tao Liu,&nbsp;Tian Lai","doi":"10.1080/14461242.2021.1941184","DOIUrl":"https://doi.org/10.1080/14461242.2021.1941184","url":null,"abstract":"<p><p>Globally, the use of e-health has accelerated dramatically during the coronavirus pandemic. Based on both quantitative and qualitative data collected in China's Hubei province (i.e. the first epicentre of COVID-19), this research explores how the pandemic influences the practices of e-health from the perspective of users. Through analysis of 1,033 surveys and 14 in-depth interviews, we find that e-health has played a crucial role in residents' healthcare during the COVID-19 pandemic. Certain external factors influence the choice of digital health, including the high risk of infection outdoors, the shutting down of transport systems, and dysfunctional healthcare facilities that neglect non-COVID-19 patients' clinical demands. Against this backdrop, we argue digital health acts as a functional equivalent to traditional medical treatment and has largely satisfied patients and users in the crisis period. Additionally, the COVID-19 pandemic has unintentionally sped up the diffusion of digital medicine over the long term as respondents expressed their willingness to continue use of e-health in the post-COVID-19 phase. However, we assert that despite the increasing use of e-health, it cannot fully substitute traditional offline treatment. Thus, we suggest a combination of online and offline healthcare will be more commonly practiced in the future.</p>","PeriodicalId":46833,"journal":{"name":"Health Sociology Review","volume":"31 3","pages":"215-231"},"PeriodicalIF":3.6,"publicationDate":"2022-11-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1080/14461242.2021.1941184","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"39097607","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Evaluation of 'Ask the Specialist': a cultural education podcast to inspire improved healthcare for Aboriginal peoples in Northern Australia.","authors":"Vicki Kerrigan, Stuart Yiwarr McGrath, Rarrtjiwuy Melanie Herdman, Pirrawayingi Puruntatameri, Bilawara Lee, Alan Cass, Anna P Ralph, Marita Hefler","doi":"10.1080/14461242.2022.2055484","DOIUrl":"10.1080/14461242.2022.2055484","url":null,"abstract":"<p><p>In Australia's Northern Territory (NT) most people who access health services are Aboriginal and most healthcare providers are non-Indigenous; many providers struggle to deliver culturally competent care. Cultural awareness training is offered however, dissatisfaction exists with the limited scope of training and the face-to-face or online delivery format. Therefore, we developed and evaluated <i>Ask the Specialist: Larrakia, Tiwi and Yolŋu stories to inspire better healthcare</i>, a cultural education podcast in which Aboriginal leaders of Larrakia, Tiwi and Yolŋu nations, known as the <i>Specialists</i>, answer doctors' questions about working with Aboriginal patients. The Specialists offer 'counterstories' which encourage the development of critical consciousness thereby challenging racist narratives in healthcare. After listening to the podcast, doctors reported attitudinal and behavioural changes which led to stereotypes being overturned and more culturally competent care delivery. While the podcast was purposefully local, issues raised had applicability beyond the NT and outside of healthcare. Our approach was shaped by cultural safety, critical race theory and Freirean pedagogy. This pilot is embedded in a Participatory Action Research study which explores strategies to improve culturally safe communication at the main NT hospital Royal Darwin Hospital.</p>","PeriodicalId":46833,"journal":{"name":"Health Sociology Review","volume":"31 1","pages":"139-157"},"PeriodicalIF":2.5,"publicationDate":"2022-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"42149719","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"The consequences of household composition and household change for Indigenous health: evidence from eight waves of the Longitudinal Study of Indigenous Children (LSIC).","authors":"Belinda Hewitt,&nbsp;Maggie Walter","doi":"10.1080/14461242.2020.1865184","DOIUrl":"https://doi.org/10.1080/14461242.2020.1865184","url":null,"abstract":"<p><p>Households are important health contexts, providing social, emotional, financial and material support, but little is known about the role of household composition in the social etiology of Indigenous health. Our research is framed by an Indigenous standpoint, using eight waves of data from the Longitudinal Study of Indigenous Children. We investigated whether household composition and change in household composition were associated with the self-reported general health of Indigenous children and their mothers, adjusting for socioeconomic, household structure and social support factors. Our measure of household composition comprised eight groups differentiating lone and couple parents, living with and without other children and adults. Study children in couple households with other children and adults were 16% less likely to have excellent health and mothers in these same households were 7% less likely to report excellent health than children and mothers in couple households. We find little evidence that mothers in lone parent households have poorer health than mothers in couple households, after adjustment for covariates. Change in household composition was positively associated with health for both children and mothers. The results caution against presuming a direct translatability of research findings from non-Indigenous to Indigenous Peoples.</p>","PeriodicalId":46833,"journal":{"name":"Health Sociology Review","volume":"31 2","pages":"121-138"},"PeriodicalIF":3.6,"publicationDate":"2022-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1080/14461242.2020.1865184","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"25317520","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Yuwinbir - this way! Going beyond meeting points between Indigenous knowledges and health sociology.","authors":"Megan Williams,&nbsp;Demelza Marlin","doi":"10.1080/14461242.2022.2091304","DOIUrl":"https://doi.org/10.1080/14461242.2022.2091304","url":null,"abstract":"We acknowledge the Gadigal and Wangal people of the Eora Nation, Dabee people of the Wiradjuri Nation, and Wurundgeri Woi Wurrung and Bunurong Boon Wurrung peoples of the Kulin Nation, whose lands have supported the leadership of this Yuwinbir Special Issue of Health Sociology Review. We acknowledge their ancestors, spirits and knowledges, Elders of the past, and Elders of the present. We acknowledge Indigenous people who shaped each article and extend our thanks to their collaborators in exploring meeting points between health sociology and Indigenous knowledges. While ‘meeting points’ is the theme of this issue, we offer a critique of it in the editorial below. We respectfully use the Wiradjuri word ‘Yuwinbir’ to name this special issue, signalling ‘this way’ (Grant & Rudder, 2010) health sociology: this is the way Indigenous authors cited here say we must go. While our editorial names some distressing knowledge and research practice traps to dismantle along the way, it also outlines the way that conscious, critically reflective enquiry about self and sovereignty could transform relationships between Indigenous people and health sociology. The development of the Yuwinbir special issue grew from guest co-editor MeganWilliams’ experience as an associate editor of Health Sociology Review and related to Megan’s role as Chief Investigator of the Centre for Research Excellence – Strengthening systems for InDigenous health care Equity (CRE-STRIDE). CRE-STRIDE builds on 15 years of efforts from a large number of collaborators to improve the quality of health research particularly in partnership with Aboriginal and Torres Strait Islander community controlled health organisations. CRE-STRIDE was established to address health inequity using Indigenous knowledges. It has Indigenous people’s leadership across multi-level project governance structures. An Indigenous Research Framework guides community engagement in research and research on wellbeing, health systems and service quality improvement processes. Relationality and relationships are central, with supportive project structures, and an ‘all teach, all learn’ capacity strengthening commitment that is continuous, reciprocal and reflexive (CRESTRIDE, 2020). The applied health research for health equity that CRE-STRIDE progresses has much to do with health sociology. Some CRE-STRIDE collaborators are trained in social sciences and sociology and for Megan this combines with training in Indigenous knowledges and public health. Belonging to Wiradjuri and palawa peoples and with Anglo-Celtic heritage, Megan’s work is multi-disciplinary across health and justice fields, focusing on the health of Aboriginal people in prison and reforms (Finlay, Williams, Sweet, McInerney, & Ward, 2016; Williams, 2021a). Co-editor Dr Demelza Marlin was trained in sociology and developed experience in health from her research on the intersections between culture, community, sports leadership and physical activity in Aboriginal a","PeriodicalId":46833,"journal":{"name":"Health Sociology Review","volume":" ","pages":"113-120"},"PeriodicalIF":3.6,"publicationDate":"2022-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"40479483","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}