Hec ForumPub Date : 2022-12-01DOI: 10.1007/s10730-022-09493-9
Marta Simpson-Tirone, Samantha Jansen, Marilyn Swinton
{"title":"Correction: Medical Assistance in Dying (MAiD) Care Coordination: Navigating Ethics and Access in the Emergence of a New Health Profession.","authors":"Marta Simpson-Tirone, Samantha Jansen, Marilyn Swinton","doi":"10.1007/s10730-022-09493-9","DOIUrl":"https://doi.org/10.1007/s10730-022-09493-9","url":null,"abstract":"","PeriodicalId":46160,"journal":{"name":"Hec Forum","volume":null,"pages":null},"PeriodicalIF":1.5,"publicationDate":"2022-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9828847/pdf/10730_2022_Article_9493.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10516018","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"哲学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Hec ForumPub Date : 2022-12-01Epub Date: 2022-07-23DOI: 10.1007/s10730-022-09489-5
Marta Simpson-Tirone, Samantha Jansen, Marilyn Swinton
{"title":"Medical Assistance in Dying (MAiD) Care Coordination: Navigating Ethics and Access in the Emergence of a New Health Profession.","authors":"Marta Simpson-Tirone, Samantha Jansen, Marilyn Swinton","doi":"10.1007/s10730-022-09489-5","DOIUrl":"https://doi.org/10.1007/s10730-022-09489-5","url":null,"abstract":"<p><p>Medical assistance in dying (MAiD) in Canada is a complex, novel interprofessional practice governed by stringent legal criteria. Often, patients need assistance navigating the system, and MAiD providers/assessors struggle with the administrative challenges of MAiD. Resultantly, the role of the MAiD care coordinator has emerged across the country as a novel practice dedicated to supporting access to MAiD and ensuring compliance with regulatory requirements. However, variability in the roles and responsibilities of MAiD care coordinators across Canada has highlighted the need for accountability and standardization for this practice. This manuscript constitutes a first attempt to describe this emerging role, through discussion of proposed standards of practice, as well as roles and responsibilities, and ethical duties of this emergent professional practice. We detail the core commitments of MAiD care coordinators to patients, providers/assessors and institutions involved in the MAiD process. We address the core competencies that inform the unique skillset required by MAiD care coordinators to facilitate high-quality care, while highlighting the moral and ethical considerations embedded in this work. To illustrate the complexity of the MAiD care coordinator role, case examples involving ethical dilemmas encountered in practice are included. Finally, a code of ethics is proposed to serve as a guide for appropriate professional practice and conduct. This manuscript is intended to illustrate the importance of transparency and accountability for this new role that provides service to vulnerable patients and families; this is especially critical as the ethical complexity of MAiD is likely to increase with future changes in legislation opening MAiD access to new populations.</p>","PeriodicalId":46160,"journal":{"name":"Hec Forum","volume":null,"pages":null},"PeriodicalIF":1.5,"publicationDate":"2022-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9308109/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"40639901","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"哲学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Hec ForumPub Date : 2022-12-01Epub Date: 2022-08-26DOI: 10.1007/s10730-022-09486-8
Andrea Frolic, Marilyn Swinton, Allyson Oliphant, Leslie Murray, Paul Miller
{"title":"Access Isn't Enough: Evaluating the Quality of a Hospital Medical Assistance in Dying Program.","authors":"Andrea Frolic, Marilyn Swinton, Allyson Oliphant, Leslie Murray, Paul Miller","doi":"10.1007/s10730-022-09486-8","DOIUrl":"https://doi.org/10.1007/s10730-022-09486-8","url":null,"abstract":"<p><p>Following an initial study of the needs of healthcare providers (HCP) regarding the introduction of Medical Assistance in Dying (MAiD), and the subsequent development of an assisted dying program, this study sought to determine the efficacy and impact of MAiD services following the first two years of implementation. The first of three aims of this research was to understand if the needs, concerns and hopes of stakeholders related to patient requests for MAiD were addressed appropriately. Assessing how HCPs and families perceived the quality of MAiD services, and determining if the program successfully accommodated the diverse needs and perspectives of HCPs, rounded out this quality evaluation. This research implemented a mixed-methods design incorporative of an online survey with Likert scale and open-ended questions, as well as focus groups and interviews with staff and physicians, and interviews with MAiD-involved family members. There were 356 online surveys, as well as 39 participants in six focus groups with HCP, as well as fourteen interviews with MAiD-involved family members. Participants indicated that high-quality MAiD care could only be provided with enabling resources such as policies and guidelines to ensure safe, evidence-based, standardized care, as well as a specialized, trained MAiD team. Both focus group and survey data from HCPs suggest the infrastructure developed by the hospital was effective in delivering high-quality MAiD care that supports the diverse needs of various stakeholders. This study may serve as a model for evaluating the impact and quality of services when novel and ethically-contentious clinical practices are introduced to healthcare organizations.</p>","PeriodicalId":46160,"journal":{"name":"Hec Forum","volume":null,"pages":null},"PeriodicalIF":1.5,"publicationDate":"2022-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9671975/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"33438961","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"哲学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Hec ForumPub Date : 2022-09-01DOI: 10.1007/s10730-020-09419-3
Jonathan Quong
{"title":"On Flanigan's Pharmaceutical Freedom.","authors":"Jonathan Quong","doi":"10.1007/s10730-020-09419-3","DOIUrl":"https://doi.org/10.1007/s10730-020-09419-3","url":null,"abstract":"<p><p>This paper discusses Jessica Flanigan's book, Pharmaceutical Freedom. The paper advances two main claims. First, the paper argues that, despite what Flanigan claims, there is a coherent way to endorse the Doctrine of Informed Consent while resisting the view that there is a right to self-medicate. Second, the paper argues that Flanigan is committed to a more radical conclusion than she acknowledges in the book; namely, that under some conditions it is morally permissible for people to take medications from drug manufacturers or pharmacies without paying the full price for those medications. The paper concludes by suggesting that this thesis about permissible theft, when combined with some further premises regarding the morality of defensive force, implies some even more radical conclusions regarding the use of force to obtain these medications.</p>","PeriodicalId":46160,"journal":{"name":"Hec Forum","volume":null,"pages":null},"PeriodicalIF":1.5,"publicationDate":"2022-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1007/s10730-020-09419-3","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"38322380","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"哲学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Hec ForumPub Date : 2022-09-01DOI: 10.1007/s10730-020-09409-5
Connor K Kianpour
{"title":"It Only Affects Me: Pharmaceutical Regulation and Harm to Others.","authors":"Connor K Kianpour","doi":"10.1007/s10730-020-09409-5","DOIUrl":"https://doi.org/10.1007/s10730-020-09409-5","url":null,"abstract":"<p><p>In her Pharmaceutical Freedom, Jessica Flanigan argues that antibiotics can be regulated consistent with her otherwise largely deregulatory view with respect to pharmaceuticals and recreational drugs. I contend in this essay that the reasons for justifying antibiotic regulation are reasons that can be offered to justify the regulation of many other drugs, both pharmaceutical and recreational. After laying out the specifics of Flanigan's view, I suggest that it is amenable to the regulation of drugs like varenicline. Though such drugs can legitimately improve the quality of a patient's life by helping them quit smoking, they could be permissibly regulated if they expose others to impermissible risks. I then argue that recreational drugs like alcohol could be regulated using the same reasoning. In the penultimate section of this essay, I anticipate objections that one might have to my extension of arguments favoring antibiotic regulation to drugs correlated with aggression. Flanigan might find my extrapolation of her view as entirely plausible and accept that her view is relatively friendly to these regulations, or she might reconsider her antibiotic caveat if these regulations are overly paternalistic on her understanding. I conclude by briefly considering the benefits and drawbacks of adopting each view.</p>","PeriodicalId":46160,"journal":{"name":"Hec Forum","volume":null,"pages":null},"PeriodicalIF":1.5,"publicationDate":"2022-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1007/s10730-020-09409-5","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"37824285","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"哲学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Hec ForumPub Date : 2022-09-01DOI: 10.1007/s10730-020-09415-7
Joseph T F Roberts
{"title":"How to Regulate the Right to Self-Medicate.","authors":"Joseph T F Roberts","doi":"10.1007/s10730-020-09415-7","DOIUrl":"https://doi.org/10.1007/s10730-020-09415-7","url":null,"abstract":"<p><p>In Pharmaceutical Freedom Professor Flanigan argues we ought to grant people self-medication rights for the same reasons we respect people's right to give (or refuse to give) informed consent to treatment. Despite being the most comprehensive argument in favour of self-medication written to date, Flanigan's Pharmaceutical Freedom leaves a number of questions unanswered, making it unclear how the safe-guards Flanigan incorporates to protect people from harming themselves would work in practice. In this paper, I extend Professor Flanigan's account by discussing a hypothetical case to illustrate how these safe-guards could work together to protect people from harms caused by their own ignorance or incompetence.</p>","PeriodicalId":46160,"journal":{"name":"Hec Forum","volume":null,"pages":null},"PeriodicalIF":1.5,"publicationDate":"2022-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1007/s10730-020-09415-7","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"38007199","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"哲学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Hec ForumPub Date : 2022-09-01Epub Date: 2022-07-20DOI: 10.1007/s10730-022-09480-0
James Stacey Taylor
{"title":"Special Issue on Jessica Flanigan's Pharmaceutical Freedom: Why Patients Have a Right to Selfmedicate.","authors":"James Stacey Taylor","doi":"10.1007/s10730-022-09480-0","DOIUrl":"https://doi.org/10.1007/s10730-022-09480-0","url":null,"abstract":"","PeriodicalId":46160,"journal":{"name":"Hec Forum","volume":null,"pages":null},"PeriodicalIF":1.5,"publicationDate":"2022-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9297264/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"40631359","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"哲学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Hec ForumPub Date : 2022-09-01DOI: 10.1007/s10730-020-09414-8
Jeffrey Carroll
{"title":"Is Visiting the Pharmacy Like Voting at the Poll? Behavioral Asymmetry in Pharmaceutical Freedom.","authors":"Jeffrey Carroll","doi":"10.1007/s10730-020-09414-8","DOIUrl":"https://doi.org/10.1007/s10730-020-09414-8","url":null,"abstract":"<p><p>Jessica Flanigan argues that individuals have the right to self-medicate. Flanigan presents two arguments in defense of this right. The first she calls the epistemic argument and the second she calls the rights-based argument. I argue that the right to self-medicate hangs and falls on the rights-based argument. This is because for the epistemic argument to be sound agents must be assumed to be epistemically competent. But, Flanigan's argument for a constitutionally mandated right to self-medicate models agents as epistemically incompetent. For Flanigan, agents are different at the pharmacy than they are at the polls. I identify this behavioral asymmetry and advocate a symmetric and realistic behavioral postulate for both arguments. The result, however, is that the success of the epistemic argument becomes contingent which fails to justify a constitutionally mandated right. I proceed to raise skepticism about the rights-based argument as well. I conclude that there is reason to be skeptical that these arguments can justify a constitutionally mandated right to self-medicate. Ultimately, a bottom-up approach to pharmaceutical ethics is preferable.</p>","PeriodicalId":46160,"journal":{"name":"Hec Forum","volume":null,"pages":null},"PeriodicalIF":1.5,"publicationDate":"2022-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1007/s10730-020-09414-8","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"38015698","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"哲学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Hec ForumPub Date : 2022-06-01Epub Date: 2020-11-29DOI: 10.1007/s10730-020-09430-8
Cornelius Cappelen, Tor Midtbø, Kristine Bærøe
{"title":"Responsibility Considerations and the Design of Health Care Policies: A Survey Study of the Norwegian Population.","authors":"Cornelius Cappelen, Tor Midtbø, Kristine Bærøe","doi":"10.1007/s10730-020-09430-8","DOIUrl":"https://doi.org/10.1007/s10730-020-09430-8","url":null,"abstract":"<p><p>The objective of this article is to explore people's attitudes toward responsibility in the allocation of public health care resources. Special attention is paid to conceptualizations of responsibility involving blame and sanctions. A representative sample of the Norwegian population was asked about various responsibility mechanisms that have been proposed in the theoretical literature on health care and personal responsibility, from denial of treatment to a tax on unhealthy consumer goods. Survey experiments were employed to study treatment effects, such as whether fairness considerations affect attitudes about responsibility. We find that, overall, a substantial minority of the respondents find it fair to let the health care system sanction people-in one way or another-for voluntary behaviors that increase the risk of becoming ill. Quite surprisingly, we find that people are more prone to report that they should themselves be held responsible for unhealthy lifestyles than others.</p>","PeriodicalId":46160,"journal":{"name":"Hec Forum","volume":null,"pages":null},"PeriodicalIF":1.5,"publicationDate":"2022-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1007/s10730-020-09430-8","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"38652308","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"哲学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}