Ethics and Social Welfare最新文献_第5页

Ethical Considerations When Conducting Pan-European Research with and for Adolescent Young Carers 对青少年护理人员进行泛欧研究时的伦理考虑

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Ethics and Social Welfare Pub Date : 2023-04-03 DOI: 10.1080/17496535.2023.2205654

E. Hanson, F. Lewis, F. Barbabella, R. Hoefman, G. Casu, L. Boccaletti, A. Leu, V. Hlebec, Irena Bolko, S. Santini, M. Svensson, S. Becker, L. Magnusson

{"title":"Ethical Considerations When Conducting Pan-European Research with and for Adolescent Young Carers","authors":"E. Hanson, F. Lewis, F. Barbabella, R. Hoefman, G. Casu, L. Boccaletti, A. Leu, V. Hlebec, Irena Bolko, S. Santini, M. Svensson, S. Becker, L. Magnusson","doi":"10.1080/17496535.2023.2205654","DOIUrl":"https://doi.org/10.1080/17496535.2023.2205654","url":null,"abstract":"ABSTRACT Adolescent young carers (AYCs) are a sub-group of young carers who carry out significant or substantial caring tasks and assume a level of responsibility which would usually be associated with an adult. They are a potentially vulnerable group of minors because of the risk factors associated with their caring role. AYCs face a critical transition phase from adolescence to adulthood often with a lack of tailored support from service providers. The recently completed European funded ‘ME-WE’ project, which forms the focus of this paper, aimed to change the ‘status quo’ by advancing the situation of AYCs in Europe, via responsive research and knowledge translation actions. This paper outlines the participatory, co-creation approach employed in the project to optimise AYC’s involvement. It describes the ethical framework adopted by the project consortium to ensure the wellbeing of AYCs within all project activities. Ethical issues that arose in the field study work in all six countries are presented, followed by a discussion of the level of success or otherwise of the consortium to address these issues. The paper concludes with lessons learned regarding ethically responsible research with and for AYCs that are likely transferable to other vulnerable research groups and pan-European projects.","PeriodicalId":46151,"journal":{"name":"Ethics and Social Welfare","volume":null,"pages":null},"PeriodicalIF":1.0,"publicationDate":"2023-04-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"46751652","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

‘It’s All Public Anyway’: A Collaborative Navigation of Anonymity and Informed Consent in a Study with Identifiable Parent Carers “无论如何都是公开的”：匿名和知情同意在一项与可识别父母看护人的研究中的合作导航

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Ethics and Social Welfare Pub Date : 2023-04-03 DOI: 10.1080/17496535.2023.2206671

P. Joseph

{"title":"‘It’s All Public Anyway’: A Collaborative Navigation of Anonymity and Informed Consent in a Study with Identifiable Parent Carers","authors":"P. Joseph","doi":"10.1080/17496535.2023.2206671","DOIUrl":"https://doi.org/10.1080/17496535.2023.2206671","url":null,"abstract":"ABSTRACT For qualitative researchers seeking the perspectives of people with unusual characteristics or circumstances, compliance with expectations about participant anonymity can be difficult, if not impossible. In the age of internet communications and emerging research methodologies, traditional strategies require ongoing re-examination to ensure cohesion between a project’s ethical framework and its research practice. This paper reflects on the approach to informed consent used in a study with parent carers whose children had high-level support needs. A two-step process of written consent was developed in response to concerns about the possible re-identification of these parents as a result of their highly individual circumstances. This approach acknowledged the potential for identification, and maximised participants’ agency in choosing the level of risk that they were comfortable to accommodate. The paper discusses the researcher’s and participants’ responses to the adapted consent process and recommends that researchers and ethics review committees remain open to the development of collaborative and innovative approaches that are also culturally and contextually relevant, to enable people to contribute perspectives that might otherwise be silenced by the very ethical frameworks that purport to protect their interests.","PeriodicalId":46151,"journal":{"name":"Ethics and Social Welfare","volume":null,"pages":null},"PeriodicalIF":1.0,"publicationDate":"2023-04-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"41815353","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 1

Ethical Issues in Participatory Action Research on Covid-appropriate Behaviour and Vaccine Hesitancy in India: A Case with Commentaries 印度应对新冠病毒行为和疫苗犹豫的参与性行动研究中的伦理问题:一个带有评论的案例

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Ethics and Social Welfare Pub Date : 2023-04-03 DOI: 10.1080/17496535.2023.2209363

P. Narayanan, M. Brear, Pinky N Shabangu, B. Groot, Charlotte van den Eijnde, Sarah Banks

{"title":"Ethical Issues in Participatory Action Research on Covid-appropriate Behaviour and Vaccine Hesitancy in India: A Case with Commentaries","authors":"P. Narayanan, M. Brear, Pinky N Shabangu, B. Groot, Charlotte van den Eijnde, Sarah Banks","doi":"10.1080/17496535.2023.2209363","DOIUrl":"https://doi.org/10.1080/17496535.2023.2209363","url":null,"abstract":"ABSTRACT This article starts with a case outlining ethical challenges encountered in participatory action research (PAR) on vaccine hesitancy in rural India during Covid-19. Community researchers were recruited by a not-for-profit organisation, with the aim of both discovering the reasons for vaccine hesitancy and encouraging take-up. This raised issues about the roles and responsibilities of local researchers in their own communities, where they might be blamed for adverse reactions to vaccination. They and their mentor struggled with balancing societal protection against individual rights to make choices. These themes are explored in two commentaries discussing the difficulties in balancing ethics in public health (prioritising societal benefits), social research (protecting participants from harm and respecting their rights not to be involved) and participatory research practices (maximising democratic participation and decision-making). As discussed in the first commentary, often these cohere, but tensions can arise. The second commentary also raises the issue of epistemic justice, questioning the extent to which the villagers could have a say in the design, implementation and interpretation of the research, and the dangers of not hearing the voices and arguments of people who reject vaccination. The case and commentaries highlight the complexities of PAR and additional challenges in a public health context.","PeriodicalId":46151,"journal":{"name":"Ethics and Social Welfare","volume":null,"pages":null},"PeriodicalIF":1.0,"publicationDate":"2023-04-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"46781661","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

The Ethics of Engagement and Representation in Community-based Participatory Research 基于社区的参与性研究中的参与与代表伦理

IF 1

Ethics and Social Welfare Pub Date : 2023-04-03 DOI: 10.1080/17496535.2023.2211756

S. O'Sullivan, E. Desmond, Margaret Buckley

{"title":"The Ethics of Engagement and Representation in Community-based Participatory Research","authors":"S. O'Sullivan, E. Desmond, Margaret Buckley","doi":"10.1080/17496535.2023.2211756","DOIUrl":"https://doi.org/10.1080/17496535.2023.2211756","url":null,"abstract":"ABSTRACT This paper focuses on ethics in community-based participatory research (CBPR) from inception to post-publication. Central to CBPR is a collaborative, partnership approach that recognises the strengths of partners and engages their distinctive voice and knowledge in the research process. While the ethical complexities that arise in the course of research practice in CBPR can transcend individual projects, they are also grounded in the particularity of the project, community, and research partners. This paper reflects on the experiences of two participatory social policy research projects on housing in Ireland, conducted over the past three years. These projects involved collaborating with older people living in rural areas nationwide and with residents of small communities on offshore islands. The paper explores the ethics of engagement (regarding methods of involvement and access), and the ethics of representation (incorporating the depiction and sharing of research findings) and argues that researchers must pay attention to the specificity of each project and be alive to generating an organic research ethics in how research is set up, conducted, represented, and disseminated. In so doing, we can better foster agency and authenticity in the relationships developed throughout research processes and reflect on and meet shared values and responsibilities.","PeriodicalId":46151,"journal":{"name":"Ethics and Social Welfare","volume":null,"pages":null},"PeriodicalIF":1.0,"publicationDate":"2023-04-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"60111187","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 1

Advocacy as a Human Rights Enabler for Parents in the Child Protection System 在儿童保护制度中倡导父母的人权

IF 1

Ethics and Social Welfare Pub Date : 2023-03-15 DOI: 10.1080/17496535.2023.2186460

C. Maylea, Lucy Bashfield, Sherie Thomas, Bawa Kuyini, Kate Fitt, Robyn Buchanan

引用次数: 0

Ethics, ethnocentrism and social science research 伦理学、种族中心主义与社会科学研究

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Ethics and Social Welfare Pub Date : 2023-02-21 DOI: 10.1080/17496535.2023.2178328

Claire Dorrity

引用次数: 0

CareVisions: Enacting the Feminist Ethics of Care in Empirical Research 护理愿景：在实证研究中建构女性主义护理伦理

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Ethics and Social Welfare Pub Date : 2023-02-06 DOI: 10.1080/17496535.2023.2173794

J. O’Riordan, Felicity Daly, C. Loughnane, C. Kelleher, Claire Edwards

{"title":"CareVisions: Enacting the Feminist Ethics of Care in Empirical Research","authors":"J. O’Riordan, Felicity Daly, C. Loughnane, C. Kelleher, Claire Edwards","doi":"10.1080/17496535.2023.2173794","DOIUrl":"https://doi.org/10.1080/17496535.2023.2173794","url":null,"abstract":"ABSTRACT CareVisions (2022–2026) is an interdisciplinary researcj project reflecting on care experiences during and beyond the COVID-19 pandemic to re-imagine care relations, practices and policies in Ireland and internationally. Inspired by feminist ethics of care perspectives and Irish traditions of relatedness and living in the community, epitomised in the quote: Is ar scáth a chéile a mhaireann na daoine (We live in each other's shadow and in each other's shelter) (Higgins, M. 2021. Letter from the President of Ireland to the President of the United States of America, 20thJanuary 2021. Accessed 18 January 2022. https://twitter.com/PresidentIRL/status/1352162151817949184?s=20Q2), CareVisions prioritises the creation of deliberative and participative spaces to enable care debates from a wide and diverse range of voices. Thus, the project's essence required examination of and attention to ‘care-full' internal and external working relations. Informed by an advisory group comprised of care practitioners, researchers and activists, CareVisions' ethical statement recognises that adopting this approach requires a focus on ‘a dialogic and narrative form of practice' (Barnes et al. 2015b:238).This paper focuses on the process of conceptualising, operationalising and illustrating a feminist ethics of care from the early stages of the project’s development and in approaching its empirical studies.","PeriodicalId":46151,"journal":{"name":"Ethics and Social Welfare","volume":null,"pages":null},"PeriodicalIF":1.0,"publicationDate":"2023-02-06","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"45959595","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

A Personal-Ethical Reflection on the Training for Foster Parents in Austria 奥地利寄养父母培训的个人伦理思考

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Ethics and Social Welfare Pub Date : 2023-02-06 DOI: 10.1080/17496535.2023.2172197

G. Schweiger

引用次数: 0

Institutional Bioethical Malpractice at Spanish Public Hospitals 西班牙公立医院的机构生物伦理渎职

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Ethics and Social Welfare Pub Date : 2023-01-02 DOI: 10.1080/17496535.2022.2159310

David Alvargonzález

引用次数: 1

On Decision Variability in Child Protection: Respect, Interactive Universalism and Ethics of Care 儿童保护中的决策变异性:尊重、互动普遍主义与关怀伦理

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Ethics and Social Welfare Pub Date : 2023-01-02 DOI: 10.1080/17496535.2022.2073381

Emily Keddell

{"title":"On Decision Variability in Child Protection: Respect, Interactive Universalism and Ethics of Care","authors":"Emily Keddell","doi":"10.1080/17496535.2022.2073381","DOIUrl":"https://doi.org/10.1080/17496535.2022.2073381","url":null,"abstract":"ABSTRACT This article conceptualises theories of ethics relevant to the recognised problem of decision variability in child protection. Within this field, social workers are faced with multiple ethical imperatives when making decisions about children’s care. They must respond to justice principles concerned with duties and consequences, as well as ethical obligations created by the relational and contextual elements of each case. Recent scholarship on decision variability highlights the justice issues that arise when decisions in response to apparently similar cases differ. An ethical imperative is that similar cases should be treated ‘like for like’ so that children’s and family’s rights are upheld consistently. This article contends that ethical concepts relating to both universalist duties such as respect for persons, extended by the concept of interactive universalism, and contextual responses based on an ethic of care, help theorise the complexities of ethical decisions in child protection. These concepts develop a nuanced understanding of the ways social workers resist risk discourses, may make decisions reflecting the participation of service users, and contextual evaluations of risk based on understanding service user’s life histories. Understanding this combination helps explain the reasons behind variability, and evaluate the moral acceptability or otherwise of apparently variable decisions.","PeriodicalId":46151,"journal":{"name":"Ethics and Social Welfare","volume":null,"pages":null},"PeriodicalIF":1.0,"publicationDate":"2023-01-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"43933518","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 4