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Scandinavian Journal of Disability Research最新文献

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Exploring Co-Production in Residences with Special Services for Children and Adolescents with Intellectual Disability in Sweden 探索在瑞典为智障儿童和青少年提供特殊服务的住宅中合作生产
Scandinavian Journal of Disability Research Pub Date : 2021-09-22 DOI: 10.16993/sjdr.789
P. Wallin, Annika M M Nordin, C. Petersson, K. Josefsson
{"title":"Exploring Co-Production in Residences with Special Services for Children and Adolescents with Intellectual Disability in Sweden","authors":"P. Wallin, Annika M M Nordin, C. Petersson, K. Josefsson","doi":"10.16993/sjdr.789","DOIUrl":"https://doi.org/10.16993/sjdr.789","url":null,"abstract":"In Sweden, children and adolescents with intellectual disability in special residences often have complex support needs. In this study, co-production refers to when and how staff in special residences and children and adolescents living there interact to promote support that enhances their participation in everyday life according to their desires and needs. The study explores staff experiences of the conditions for co-producing individual support at special residences for children and adolescents with intellectual disability. Qualitative content analysis was used to analyze focus group interviews with residential staff. The analysis identified three generic categories: establishment of a structured context, continuous individual support development, and influencing factors for co-production. A key finding derived from the generic categories was that the conditions for co-produced support are impeded by communication barriers between staff and children/adolescents. Practical implications and future research are discussed.","PeriodicalId":46073,"journal":{"name":"Scandinavian Journal of Disability Research","volume":" ","pages":""},"PeriodicalIF":0.0,"publicationDate":"2021-09-22","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"46456537","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 3
Patient or Citizen? Participation and Accessibility for Deaf and Hard-of-Hearing People in the Context of Interpretation in Sweden 病人还是公民?瑞典聋人和听力障碍者在口译中的参与和可及性
Scandinavian Journal of Disability Research Pub Date : 2021-08-31 DOI: 10.16993/sjdr.733
Ingela Holmström, Sangeeta Bagga-Gupta
{"title":"Patient or Citizen? Participation and Accessibility for Deaf and Hard-of-Hearing People in the Context of Interpretation in Sweden","authors":"Ingela Holmström, Sangeeta Bagga-Gupta","doi":"10.16993/sjdr.733","DOIUrl":"https://doi.org/10.16993/sjdr.733","url":null,"abstract":"Drawing upon ethnographic data from two projects, this paper focuses on interpretation issues in deaf and hard-of-hearing (DHH) individuals’ everyday lives. A specific issue is the importance of and the ways in which interpretation services and Swedish – Swedish Sign Language interpreters shape their experiences and participation. Three themes are illustrated, highlighting tensions that facilitate or obstruct DHH individuals’ participation. The analysis shows that they are positioned as both patients and citizens. Unequal power relationships position them in passive roles, as patients, with limited possibilities to shape the interpreter services, while they simultaneously shoulder major responsibility for its smooth functioning. The mundane nature of the analysis also highlights how they are accorded the position of citizen within the same services.","PeriodicalId":46073,"journal":{"name":"Scandinavian Journal of Disability Research","volume":" ","pages":""},"PeriodicalIF":0.0,"publicationDate":"2021-08-31","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"41612724","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Interdisciplinary Disability Research in the Time of a Pandemic 大流行时期的跨学科残疾研究
Scandinavian Journal of Disability Research Pub Date : 2021-08-06 DOI: 10.16993/sjdr.845
Inger Marie Lid, Hisayo Katsui, J. McLaughlin, S. Macdonald, Karin Ljuslinder, M. Tarvainen
{"title":"Interdisciplinary Disability Research in the Time of a Pandemic","authors":"Inger Marie Lid, Hisayo Katsui, J. McLaughlin, S. Macdonald, Karin Ljuslinder, M. Tarvainen","doi":"10.16993/sjdr.845","DOIUrl":"https://doi.org/10.16993/sjdr.845","url":null,"abstract":"","PeriodicalId":46073,"journal":{"name":"Scandinavian Journal of Disability Research","volume":" ","pages":""},"PeriodicalIF":0.0,"publicationDate":"2021-08-06","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"43386478","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Research Methods and Practices of Doing Disability Studies in the Global South 发展中国家残疾研究的研究方法与实践
Scandinavian Journal of Disability Research Pub Date : 2021-07-09 DOI: 10.16993/sjdr.841
Hisayo Katsui, L. Swartz
{"title":"Research Methods and Practices of Doing Disability Studies in the Global South","authors":"Hisayo Katsui, L. Swartz","doi":"10.16993/sjdr.841","DOIUrl":"https://doi.org/10.16993/sjdr.841","url":null,"abstract":"Disability studies has long been based primarily on theories and practices in the global North also in the Scandinavian Journal of Disability Research. Today there is an increase in disability research conducted in the global South. Yet, many studies continue to frame data using already existing concepts, debates and research strategies from the global North, focusing less on building theory situated in the global South. The reliance on theories developed in the global North may reinforce the epistemic vulnerability of disability studies in the global South. As disability studies as a whole is concerned with the politics of voice, in this special section, therefore, we explicitly aimed at triggering critical discussion on how to develop research methods and practices in contexts outside the global North. The four papers in this section challenge us and our epistemological and methodological norms towards more nuanced approaches in each research context. The lessons to be learned from these papers go beyond issues in the global South. The great heterogeneity of disability and its contexts, as well as its evolving nature, mean that we must all think deeply about interconnectedness, relationality, and continuity of disability with other phenomenon across different time and space. The global perspective to disability simultaneously teaches us the global structures of inequalities beyond country borders.","PeriodicalId":46073,"journal":{"name":"Scandinavian Journal of Disability Research","volume":" ","pages":""},"PeriodicalIF":0.0,"publicationDate":"2021-07-09","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"45469541","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 2
‘I Got To Answer the Way I Wanted To’: Intellectual Disabilities and Participation in Technology Design Activities “我必须以我想要的方式回答”：智力残疾与参与技术设计活动
Scandinavian Journal of Disability Research Pub Date : 2021-07-07 DOI: 10.16993/SJDR.798
Mugula Chris Safari, Sofie Wass, E. Thygesen
{"title":"‘I Got To Answer the Way I Wanted To’: Intellectual Disabilities and Participation in Technology Design Activities","authors":"Mugula Chris Safari, Sofie Wass, E. Thygesen","doi":"10.16993/SJDR.798","DOIUrl":"https://doi.org/10.16993/SJDR.798","url":null,"abstract":"User involvement in technology design processes can have positive implications for the designed service, but less is known about how such participation affects people with intellectual disabilities. We explored how 13 individuals with intellectual disabilities experienced participation in the design of a transport support application. The study is based on qualitative interviews, photovoice interviews, participant observations, and Smileyometer ratings. A thematic analysis generated the following themes: a sense of pride and ownership, an experience of socialization, and a sense of empowerment. The findings suggest that participation in design activities is a primarily positive experience that develops the participants’ skills. However, experiences such as boredom may occur. The variability within the experiences of the participants show that it is crucial to be aware of individuality, preferences, and personal interests when designing with people with intellectual disabilities.","PeriodicalId":46073,"journal":{"name":"Scandinavian Journal of Disability Research","volume":" ","pages":""},"PeriodicalIF":0.0,"publicationDate":"2021-07-07","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"47763246","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 4
‘Even a Self-Advocate Needs to Buy Milk’ – Economic Barriers to Self-Advocacy in the Autism and Intellectual Disability Movement “即使是自我倡导也需要买牛奶”——自闭症和智障运动中自我倡导的经济障碍
Scandinavian Journal of Disability Research Pub Date : 2021-07-05 DOI: 10.16993/SJDR.738
G. Petri, J. Beadle‐Brown, J. Bradshaw
{"title":"‘Even a Self-Advocate Needs to Buy Milk’ – Economic Barriers to Self-Advocacy in the Autism and Intellectual Disability Movement","authors":"G. Petri, J. Beadle‐Brown, J. Bradshaw","doi":"10.16993/SJDR.738","DOIUrl":"https://doi.org/10.16993/SJDR.738","url":null,"abstract":"Autistic people and people with an intellectual disability have been actively involved in disability advocacy; however, it is still often parents and professionals who lead organisations speaking on their behalf. Previous studies have found that autistic self-advocates and self-advocates with an intellectual disability have been systematically marginalised in the disability movement. This article appraises how economic factors influence self-advocates’ position within the disability movement, based on qualitative analysis of data collected in two countries, the UK and Hungary. The study found that lack of resources, poverty and unpaid positions at organisations strongly hinder self-advocates’ participation in advocacy/disability rights organisations speaking for them. Findings also suggest that practices of disability organisations may contribute to maintaining these barriers.","PeriodicalId":46073,"journal":{"name":"Scandinavian Journal of Disability Research","volume":" ","pages":""},"PeriodicalIF":0.0,"publicationDate":"2021-07-05","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"43080406","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 5
Methodologically Thinking: Doing Disability Research in Ghanaian Cultural Communities 方法论思考：在加纳文化社区开展残疾研究
Scandinavian Journal of Disability Research Pub Date : 2021-07-02 DOI: 10.16993/sjdr.702
Jeff D Grischow, Augustina Naami, W. Mprah, Magnus Mfoafo-M’Carthy
{"title":"Methodologically Thinking: Doing Disability Research in Ghanaian Cultural Communities","authors":"Jeff D Grischow, Augustina Naami, W. Mprah, Magnus Mfoafo-M’Carthy","doi":"10.16993/sjdr.702","DOIUrl":"https://doi.org/10.16993/sjdr.702","url":null,"abstract":"This article discusses methodological challenges encountered during a collaborative North-South research project. Based on fieldwork on the oral history of disability rights in Ghana, we argue that conducting research in the global South requires adapting international research methodologies to Southern socio-cultural contexts. Adaptations are needed in all stages, including ethics (where trust-building and culturally informed consent are vitally important), recruitment (which must consider local socio-cultural factors), and data collection and analysis (where flexibility and adaptiveness are essential in response to the lived reality of participants with different disability types). We conclude that flexible, collaborative methods can produce results that reflect the lived experiences of persons with disabilities in the global South, while following international methodological norms.","PeriodicalId":46073,"journal":{"name":"Scandinavian Journal of Disability Research","volume":" ","pages":""},"PeriodicalIF":0.0,"publicationDate":"2021-07-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"46761253","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 1
Universal Design as Guiding, Striving and Unifying: A Qualitative Study about how Universal Design is Understood, Practised and Realised in Contemporary Sweden 通用设计作为指导、奋斗和统一:关于当代瑞典如何理解、实践和实现通用设计的定性研究
Scandinavian Journal of Disability Research Pub Date : 2021-06-28 DOI: 10.16993/sjdr.770
Emil Erdtman, K. Rassmus-Gröhn, P. Hedvall
{"title":"Universal Design as Guiding, Striving and Unifying: A Qualitative Study about how Universal Design is Understood, Practised and Realised in Contemporary Sweden","authors":"Emil Erdtman, K. Rassmus-Gröhn, P. Hedvall","doi":"10.16993/sjdr.770","DOIUrl":"https://doi.org/10.16993/sjdr.770","url":null,"abstract":"Universal design (UD) is a concept that originates in architecture and design. Through its enrollment in the United Nations Convention on the Rights of Persons with Disabilities (CRPD), UD may contribute to the realisation of a more inclusive society. By means of qualitative interviews and content analysis, this study deepens the knowledge about how UD is understood, practised and realised in Sweden. Eight professionals from academia, business, civil society and the public sector were interviewed in 2019. They expressed a breadth of personal and non-authoritative opinions about UD and viewed it as enriching and provocative but also fuzzy and difficult to grasp, especially in relation to accessibility. Three ways of talking about UD were discerned: as guiding principle in the design process, as striving for an inclusive society and as unifying policies into a whole. Together they elucidate the implementation of the CRPD and inspire engagement for social innovation.","PeriodicalId":46073,"journal":{"name":"Scandinavian Journal of Disability Research","volume":" ","pages":""},"PeriodicalIF":0.0,"publicationDate":"2021-06-28","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"42772665","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 5
Two Jobs in One Day: Exploring the Dynamics of Personal Assistance Relationships in the Workplace 一天两份工作:探索工作场所个人协助关系的动态
Scandinavian Journal of Disability Research Pub Date : 2021-06-08 DOI: 10.16993/SJDR.761
Katherine Graham, Jenni Brooks, Jane Maddison, Y. Birks
{"title":"Two Jobs in One Day: Exploring the Dynamics of Personal Assistance Relationships in the Workplace","authors":"Katherine Graham, Jenni Brooks, Jane Maddison, Y. Birks","doi":"10.16993/SJDR.761","DOIUrl":"https://doi.org/10.16993/SJDR.761","url":null,"abstract":"Disabled people are under-represented and can experience discrimination in the workplace in the UK and globally. The employment of a Workplace Personal Assistant (WPA) is an option for disabled people who require assistance to undertake their job role. The WPA role is designed to increase the accessibility of the workplace via personalised and self-directed assistance, yet is little known or understood. The dynamics of these assistance relationships are explored from analysis of interviews with disabled people, their WPAs and representatives of the organisations in which they work. Disabled people who use a WPA undertake two jobs in one day - their substantive role and the management of their WPA. Understanding these dual roles, and recognising the subtle skills required and additional labour undertaken, can help to challenge the ableist assumptions which shape the workplace and help open up the workplace for disabled people who require a WPA.","PeriodicalId":46073,"journal":{"name":"Scandinavian Journal of Disability Research","volume":" ","pages":""},"PeriodicalIF":0.0,"publicationDate":"2021-06-08","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"46290595","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 3
Parenting with Assistance – The Views of Disabled Parents and Personal Assistants 协助养育子女——残疾父母和个人助理的观点
Scandinavian Journal of Disability Research Pub Date : 2021-05-27 DOI: 10.16993/SJDR.775
Viveca Selander, Kristina Engwall
{"title":"Parenting with Assistance – The Views of Disabled Parents and Personal Assistants","authors":"Viveca Selander, Kristina Engwall","doi":"10.16993/SJDR.775","DOIUrl":"https://doi.org/10.16993/SJDR.775","url":null,"abstract":"This qualitative study, based on semi-structured interviews with eight parents with disabilities and five personal assistants, explores two different but interrelated perspectives: how parents with extensive physical disabilities use personal assistants in their parenting strategies and how personal assistants experience assisting in parenting strategies. The assistance users’ parenting strategies are affected by gender, age of the children and whether the disabilities were congenital or acquired later in life. The assistants were seen as enablers, competitors for the child’s love or compensators. Access to personal assistance has increased parents’ possibilities to be active in their parenting. However, total adaptation to the assistance user’s parenting strategies could be challenging for assistants with different parenting ideals. There is a need for discussions on how assistants can work to strengthen parenting roles as well as receive support to work in a sustainable way.","PeriodicalId":46073,"journal":{"name":"Scandinavian Journal of Disability Research","volume":" ","pages":""},"PeriodicalIF":0.0,"publicationDate":"2021-05-27","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"45029503","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 2
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