{"title":"Shifting the balance of power","authors":"Jo Whaley, Di Domenico, Jane Alltimes","doi":"10.1108/AMHID-03-2018-0009","DOIUrl":"https://doi.org/10.1108/AMHID-03-2018-0009","url":null,"abstract":"\u0000Purpose\u0000This purpose of this paper is to examine the role of engagement and empowerment in “Transforming Care”, for people with a learning disability. The aim is to shift the balance of power so that people are able to live ordinary lives in the community, in the home they choose, close to people they love. It shares ideas to support people to take control over their own lives and to influence the system, so that it works with people, rather than “doing to” people.\u0000\u0000\u0000Design/methodology/approach\u0000The paper examines barriers and enablers to people having their rights as citizens. So that people have as much choice and control as they are comfortable with to live an ordinary life (bearing in mind any legal restrictions). The paper includes people’s involvement in system/service redesign. It critiques traditional views of looking at language, participation and power. The authors have used the language throughout which people have told us they prefer as a descriptor.\u0000\u0000\u0000Findings\u0000The authors present a framework for looking at the power of, and around, people with a learning disability who have mental health issues or have displayed behaviour that can challenge services.\u0000\u0000\u0000Originality/value\u0000This paper offers advice on how to address power imbalances at individual level and at organisational/system level. It looks at the language we use, the information we share and how we work with experts by experience to ensure we can transform care and support and enable people to live ordinary lives as citizens.\u0000","PeriodicalId":44693,"journal":{"name":"Advances in Mental Health and Intellectual Disabilities","volume":" ","pages":""},"PeriodicalIF":1.1,"publicationDate":"2019-02-15","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1108/AMHID-03-2018-0009","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"44315995","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
D. Branford, D. Gerrard, Nigget Saleem, Carl Shaw, A. Webster
{"title":"Stopping over-medication of people with intellectual disability, Autism or both (STOMP) in England part 1 – history and background of STOMP","authors":"D. Branford, D. Gerrard, Nigget Saleem, Carl Shaw, A. Webster","doi":"10.1108/AMHID-02-2018-0004","DOIUrl":"https://doi.org/10.1108/AMHID-02-2018-0004","url":null,"abstract":"\u0000Purpose\u0000The programme – Stopping the over-medication of people with an intellectual disability, Autism or Both (STOMP) is a three-year programme supported by NHS England. Concern about the overuse of antipsychotic drugs has been a constant theme since the 1970s. However, despite a multitude of guidelines the practice continues. The report into the events at Winterbourne View not only raised concerns about the overuse of antipsychotic drugs but of antidepressants and multiple psychotropic drug use. The purpose of this paper is twofold: Part 1 is to present the history and background to the use of psychotropic drugs in intellectual disabilities, autism or both; and Part 2 presents the progress with the STOMP programme.\u0000\u0000\u0000Design/methodology/approach\u0000The review tracks the various concerns, guidelines and attempts to tackle the issue of over medication of people with intellectual disability autism or both.\u0000\u0000\u0000Findings\u0000The review identifies that despite the many studies and guidelines associated with the prescribing of psychotropic drugs for people with an intellectual disability, autism or both the practice is common. Programmes that minimise the use of psychotropic drugs involve a full use of the multidisciplinary team and an availability of alternative methods of managing challenging behaviours.\u0000\u0000\u0000Originality/value\u0000STOMP is part of an English national agenda – Transforming care. The English Government and leading organisations across the health and care system are committed to transforming care for people with intellectual disabilities, autism or both who have a mental illness or whose behaviour challenges services. This review identifies many studies, programmes and guidelines associated with psychotropic drug use for people with an intellectual disability, autism or both.\u0000","PeriodicalId":44693,"journal":{"name":"Advances in Mental Health and Intellectual Disabilities","volume":" ","pages":""},"PeriodicalIF":1.1,"publicationDate":"2019-02-15","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1108/AMHID-02-2018-0004","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"44407352","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"North Cumbria and North East Transforming Care, transforming lives case study","authors":"U. Turner","doi":"10.1108/AMHID-03-2018-0011","DOIUrl":"https://doi.org/10.1108/AMHID-03-2018-0011","url":null,"abstract":"\u0000Purpose\u0000The purpose of this paper is to describe how, as part of a national initiative led by NHS England and key partners, it is transforming lives by helping people with a learning disability, autism or both to live more independent and better quality lives in their own home rather than spending many years in hospital unnecessarily.\u0000\u0000\u0000Design/methodology/approach\u0000The methodology applied was to capture the real experience of a person with a learning disability, autism or both who successfully moved from long-term hospital care to home. This was achieved through developing a narrative story by capturing their experiences in their own words and the words of the individual’s support team who made this life changing event possible.\u0000\u0000\u0000Findings\u0000This story shows how with the right planning and support, people with a learning disability can live in their own homes, gain their independence and be supported to take risks.\u0000\u0000\u0000Originality/value\u0000This is an original case study that has not been published previously and has been written for the sole purpose of this journal.\u0000","PeriodicalId":44693,"journal":{"name":"Advances in Mental Health and Intellectual Disabilities","volume":" ","pages":""},"PeriodicalIF":1.1,"publicationDate":"2019-02-15","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1108/AMHID-03-2018-0011","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"46684314","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Ensuring a personalised approach","authors":"James Sanderson, N. Hawdon","doi":"10.1108/AMHID-03-2018-0010","DOIUrl":"https://doi.org/10.1108/AMHID-03-2018-0010","url":null,"abstract":"\u0000Purpose\u0000The purpose of this paper is to outline how personal health budgets and a universal, integrated model of support, can positively transform the way in which individuals with a learning disability experience their health and support needs.\u0000\u0000\u0000Design/methodology/approach\u0000The review recognises that Integrated Personal Commissioning, as a policy approach, provides the framework to offer personalised care, and enables people to live an independent, happy, healthy and meaningful life.\u0000\u0000\u0000Findings\u0000Evidence suggests that a personalised and integrated approach to both health and social care not only offers better outcomes on all levels for the individual, but also benefits the system as a whole.\u0000\u0000\u0000Originality/value\u0000The study reveals that a personalised care leads to people to have choices and control over decisions that affect in better health and wellbeing outcomes for people.\u0000","PeriodicalId":44693,"journal":{"name":"Advances in Mental Health and Intellectual Disabilities","volume":" ","pages":""},"PeriodicalIF":1.1,"publicationDate":"2019-02-15","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1108/AMHID-03-2018-0010","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"44333298","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Transforming care in England","authors":"J. O'hara","doi":"10.1108/AMHID-01-2019-070","DOIUrl":"https://doi.org/10.1108/AMHID-01-2019-070","url":null,"abstract":"","PeriodicalId":44693,"journal":{"name":"Advances in Mental Health and Intellectual Disabilities","volume":" ","pages":""},"PeriodicalIF":1.1,"publicationDate":"2019-02-15","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1108/AMHID-01-2019-070","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"43501555","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Comparing psychopathology rates across autism spectrum disorders and intellectual disabilities","authors":"M. Matthews, E. Bell, Brigit Mirfin-Veitch","doi":"10.1108/AMHID-04-2018-0023","DOIUrl":"https://doi.org/10.1108/AMHID-04-2018-0023","url":null,"abstract":"The purpose of this paper is to compare the rates and patterns of comorbid anxiety, depression and ADHD across people with: autism spectrum disorder (ASD) plus intellectual disability (ID), ASD/no ID (AS/HFA) and ID only.,Data were obtained using structured file review and two psychometric screening instruments. File reviews used a modified version of the Case Review Protocol from the Diagnostic Criteria for Psychiatric Disorders for Use with Adults with Learning Disabilities. Screening employed the Reiss Screen for Maladaptive Behaviour and the ASD-Comorbidity-Adults scale.,Levels of anxiety, depression and ADHD were high for all three groups, and greater than in general population studies. Between groups, the AS/HFA sample had significantly higher anxiety, while the ASD/ID group had significantly greater ADHD. Groups did not differ on measures of depression or total psychopathology. Levels of ADHD, but not anxiety or depression, increased with severity of ID and ASD symptoms.,More research is needed on the relationship between ASD and both anxiety and ADHD, particularly the identification of these comorbid conditions and their treatment.,Rigorous screening for comorbid mental health conditions is required to achieve the best outcomes for adults with ASD.,The study used a broader community-based sample than previous comorbidity research. Including adults with ID but without ASD enabled a comparison of types and rates of disorder across three distinct but related groups with neurodevelopmental disorders.","PeriodicalId":44693,"journal":{"name":"Advances in Mental Health and Intellectual Disabilities","volume":"12 1","pages":"163-172"},"PeriodicalIF":1.1,"publicationDate":"2018-11-05","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1108/AMHID-04-2018-0023","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"42467681","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"“We can feel good”: evaluation of an adapted DBT informed skills programme in medium security","authors":"S. Ashworth, Natalie Brotherton","doi":"10.1108/AMHID-06-2018-0031","DOIUrl":"https://doi.org/10.1108/AMHID-06-2018-0031","url":null,"abstract":"PurposeThe purpose of this paper is to provide a routine evaluation of clinical effectiveness of an adapted DBT informed skills programme (“I Can Feel Good”; Ingamells and Morrissey, 2014), run on both male and female intellectual disability wards of a medium security psychiatric hospital.Design/methodology/approachA pre–post evaluation study of routine clinical practice was undertaken utilising staff report scales collected as the primary source of evaluation.FindingsFindings show a positive shift regarding each module for both gender groups. Due to observed baseline differences between gender groups, data were separated and analysed separately. Non-parametric statistical analysis demonstrates statistically significant improvement across three modules for the male sample (managing feelings, coping in crisis and people skills) and two modules for the female sample (managing feelings and people skills).Originality/valueThere appears to be subtle outcome differences regarding this programme for both gender groups across modules. Potential reasons for this are discussed, along with clinical reflections regarding gender differences and adaptations. Reflections upon future revisions including the integration of the new DBT skills (Linehan, 2014) are made in light of these findings.","PeriodicalId":44693,"journal":{"name":"Advances in Mental Health and Intellectual Disabilities","volume":" ","pages":""},"PeriodicalIF":1.1,"publicationDate":"2018-11-05","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1108/AMHID-06-2018-0031","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"46564385","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Impact of challenging behaviour on siblings of people with Autism","authors":"Evan Yacoub, Michael Dowd, L. McCann, L. Burke","doi":"10.1108/AMHID-01-2018-0001","DOIUrl":"https://doi.org/10.1108/AMHID-01-2018-0001","url":null,"abstract":"Despite being largely supportive of their sibling with an autism spectrum disorder (ASD), some siblings without ASD also feel the effects of the disorder particularly in relation to challenging behaviour and lack of empathy. The purpose of this paper is to explore the experiences adults who have a sibling with ASD and intellectual disability (ID) with challenging behaviour.,Interviews were conducted with 11 capacitous adult siblings of service users who have ASD and ID as well as a history of challenging behaviour. A modified version of the autism Parenting Stress Index was used to assess the impact on those siblings. thematic analysis was utilised to analyse their responses.,Four main themes emerged from the interviews, which highlighted that challenging behaviour can cause emotional losses and can impact upbringing and the sibling relationship. Despite the siblings making adjustments, they continue to have concerns for the future.,Chronic challenging behaviour can impact on siblings, and it is important to support entire families, and not exclusively parents.","PeriodicalId":44693,"journal":{"name":"Advances in Mental Health and Intellectual Disabilities","volume":"12 1","pages":"145-152"},"PeriodicalIF":1.1,"publicationDate":"2018-11-05","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1108/AMHID-01-2018-0001","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"48221224","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
T. L. Bakken, Olav Ose Evensen, Tale Gjertine Bjørgen, Inger Nilsen, Nina Bang, Unni Pedersen, K. Berge, K. E. Ellingsen, Terje Baasland, S. B. Helverschou
{"title":"Mental health services for adolescents and adults with intellectual disabilities in Norway: a descriptive study","authors":"T. L. Bakken, Olav Ose Evensen, Tale Gjertine Bjørgen, Inger Nilsen, Nina Bang, Unni Pedersen, K. Berge, K. E. Ellingsen, Terje Baasland, S. B. Helverschou","doi":"10.1108/AMHID-03-2018-0012","DOIUrl":"https://doi.org/10.1108/AMHID-03-2018-0012","url":null,"abstract":"\u0000Purpose\u0000The purpose of this paper is to present and discuss mental health services for people with intellectual disability (ID) in Norway.\u0000\u0000\u0000Design/methodology/approach\u0000A literature review and a survey were conducted to map services for people with ID and mental health problems in Norway.\u0000\u0000\u0000Findings\u0000The results were sparse and confirmed what is already known among clinicians working with these patients. The Norwegian services are fragmented and there are geographical differences.\u0000\u0000\u0000Research limitations/implications\u0000There are no special services for children with ID developing mental illness. For offenders with ID, a national unit assesses and follows up, also when the person is sentenced to compulsory care and services are provided in their home municipality.\u0000\u0000\u0000Practical implications\u0000More data about both the patients and the services are needed in order to improve mental health services for people with ID in Norway.\u0000\u0000\u0000Originality/value\u0000This paper describes mental health services for people with ID in Norway.\u0000","PeriodicalId":44693,"journal":{"name":"Advances in Mental Health and Intellectual Disabilities","volume":" ","pages":""},"PeriodicalIF":1.1,"publicationDate":"2018-07-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1108/AMHID-03-2018-0012","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"45943067","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Mental health services for people with intellectual disability in Ireland: evidence, barriers and opportunities","authors":"H. Ramsay, P. Dodd","doi":"10.1108/AMHID-03-2018-0016","DOIUrl":"https://doi.org/10.1108/AMHID-03-2018-0016","url":null,"abstract":"\u0000Purpose\u0000The purpose of this paper is to outline the historical background and policy context of mental health services for people with intellectual disability (ID) in Ireland. It then considers recent implementation and lessons from the Irish experience.\u0000\u0000\u0000Design/methodology/approach\u0000The policy background and research literature relevant to the development of mental health services for people with ID in Ireland was reviewed and discussed.\u0000\u0000\u0000Findings\u0000Mental health services in Ireland remain in a state of change, moving towards the implementation of specialist multi-disciplinary teams in the community, alongside previous models of care and service.\u0000\u0000\u0000Research limitations/implications\u0000This paper summarises recent advances and research regarding mental health services for people with ID in Ireland.\u0000\u0000\u0000Practical implications\u0000The paper illustrates the process of delivering changes to mental health services with practical implications for mental health services internationally.\u0000\u0000\u0000Originality/value\u0000This is the first paper in many years to summarise the development of mental health services for people with ID in Ireland. There has been considerable recent change and it is therefore important to provide a useful reference for the current status of services.\u0000","PeriodicalId":44693,"journal":{"name":"Advances in Mental Health and Intellectual Disabilities","volume":"1 1","pages":""},"PeriodicalIF":1.1,"publicationDate":"2018-07-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1108/AMHID-03-2018-0016","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"44563148","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}