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Journal of Intellectual & Developmental Disability最新文献

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The effect of a walking, dancing, and strength training program on the functional fitness of adults with intellectual disability: A randomised controlled trial 步行、舞蹈和力量训练计划对智障成人功能性体能的影响：随机对照试验
Journal of Intellectual & Developmental Disability Pub Date : 2023-12-22 DOI: 10.3109/13668250.2023.2260582
E. Steyn, P. H. Boer, G. Joubert
{"title":"The effect of a walking, dancing, and strength training program on the functional fitness of adults with intellectual disability: A randomised controlled trial","authors":"E. Steyn, P. H. Boer, G. Joubert","doi":"10.3109/13668250.2023.2260582","DOIUrl":"https://doi.org/10.3109/13668250.2023.2260582","url":null,"abstract":"","PeriodicalId":444774,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":"1 6","pages":""},"PeriodicalIF":0.0,"publicationDate":"2023-12-22","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138944731","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Educating the educated: The impact of educational interventions on knowledge, attitudes and confidence of healthcare professionals in caring for patients with intellectual disability: A systematic review 教育受教育者:教育干预对医疗保健专业人员照顾智力残疾患者的知识、态度和信心的影响:一项系统综述
Journal of Intellectual & Developmental Disability Pub Date : 2023-09-03 DOI: 10.3109/13668250.2023.2243771
Gracie Hay, N. Wilson, Natalie Ong, Patrick Benson, Gisselle Gallego
{"title":"Educating the educated: The impact of educational interventions on knowledge, attitudes and confidence of healthcare professionals in caring for patients with intellectual disability: A systematic review","authors":"Gracie Hay, N. Wilson, Natalie Ong, Patrick Benson, Gisselle Gallego","doi":"10.3109/13668250.2023.2243771","DOIUrl":"https://doi.org/10.3109/13668250.2023.2243771","url":null,"abstract":"","PeriodicalId":444774,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":"15 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2023-09-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"116126157","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
“A life well led”: What does this mean for a person with severe intellectual disability? “过得好”:这对一个有严重智力残疾的人来说意味着什么?
Journal of Intellectual & Developmental Disability Pub Date : 2023-09-03 DOI: 10.3109/13668250.2023.2238148
S. Wark, Martin Kingstone
{"title":"“A life well led”: What does this mean for a person with severe intellectual disability?","authors":"S. Wark, Martin Kingstone","doi":"10.3109/13668250.2023.2238148","DOIUrl":"https://doi.org/10.3109/13668250.2023.2238148","url":null,"abstract":"","PeriodicalId":444774,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":"10 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2023-09-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"126663505","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Young people with intellectual disability speak out about life after school: “I want to do more in life than just…be a disability person” 有智力障碍的年轻人谈论放学后的生活:“我想在生活中做更多的事情，而不仅仅是……做一个残疾人。”
Journal of Intellectual & Developmental Disability Pub Date : 2023-08-22 DOI: 10.3109/13668250.2023.2245276
L. Mogensen, G. Drake, J. McDonald, N. Sharp
{"title":"Young people with intellectual disability speak out about life after school: “I want to do more in life than just…be a disability person”","authors":"L. Mogensen, G. Drake, J. McDonald, N. Sharp","doi":"10.3109/13668250.2023.2245276","DOIUrl":"https://doi.org/10.3109/13668250.2023.2245276","url":null,"abstract":"","PeriodicalId":444774,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":"392 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2023-08-22","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"124571184","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
A comparative analysis of the prevalence and predictors of chronic pain in older adults with and without intellectual disability in Australia 澳大利亚有智力残疾和无智力残疾的老年人慢性疼痛患病率和预测因素的比较分析
Journal of Intellectual & Developmental Disability Pub Date : 2023-08-07 DOI: 10.3109/13668250.2023.2238482
S. Wark, R. Hussain, M. Janicki, M. Knox, T. Parmenter
{"title":"A comparative analysis of the prevalence and predictors of chronic pain in older adults with and without intellectual disability in Australia","authors":"S. Wark, R. Hussain, M. Janicki, M. Knox, T. Parmenter","doi":"10.3109/13668250.2023.2238482","DOIUrl":"https://doi.org/10.3109/13668250.2023.2238482","url":null,"abstract":"","PeriodicalId":444774,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":"21 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2023-08-07","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"120948598","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
A qualitative study investigating the experiences of young adults caring for a sibling with disability within immigrant families in the UK: “Challenges are just the constant” 一项定性研究调查了英国移民家庭中照顾残疾兄弟姐妹的年轻人的经历:“挑战是不变的。”
Journal of Intellectual & Developmental Disability Pub Date : 2023-08-02 DOI: 10.3109/13668250.2023.2233238
Simrit Sangha, Joanna K. Anderson, A. Burn
{"title":"A qualitative study investigating the experiences of young adults caring for a sibling with disability within immigrant families in the UK: “Challenges are just the constant”","authors":"Simrit Sangha, Joanna K. Anderson, A. Burn","doi":"10.3109/13668250.2023.2233238","DOIUrl":"https://doi.org/10.3109/13668250.2023.2233238","url":null,"abstract":"ABSTRACT Background Despite a growing body of literature investigating the impact of disabilities on family relationships, the experiences of ethnic minorities remain underexplored. Method Semi-structured online interviews were conducted with eight young people (aged 18-28 years) with disabled sibling(s) within an immigrant family to understand how this affects their wellbeing and relationships, identify sources of support and strain, and explore the significance of balancing different cultural expectations. We used reflexive thematic analysis to analyse the transcribed data. Results Analysis identified three themes: constant challenges, negative consequences on self and relationships, and coping strategies to overcome difficulties. Despite maintaining positive relationships with their siblings, challenges took a serious toll on young people’s psychological wellbeing and relationships. Participants used various coping strategies but desired culturally appropriate extra-familial support. Conclusions This study has highlighted the urgent requirement for policy makers to investigate how to better support young carers from diverse backgrounds.","PeriodicalId":444774,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":"46 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2023-08-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"133748539","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Home literacy environment and literacy outcomes in individuals with Williams syndrome and Down syndrome 威廉姆斯综合症和唐氏综合症患者的家庭读写环境和读写结果
Journal of Intellectual & Developmental Disability Pub Date : 2023-07-26 DOI: 10.3109/13668250.2023.2226917
J. Lettington, J. Van Herwegen
{"title":"Home literacy environment and literacy outcomes in individuals with Williams syndrome and Down syndrome","authors":"J. Lettington, J. Van Herwegen","doi":"10.3109/13668250.2023.2226917","DOIUrl":"https://doi.org/10.3109/13668250.2023.2226917","url":null,"abstract":"Background: The home literacy environment (HLE) has rarely been examined for individuals with neurodevelopmental disorders, including individuals with Williams syndrome and Down syndrome. Method: The current study surveyed carers of individuals with Down syndrome (n = 48) and Williams syndrome (n = 18) in the United Kingdom (UK). Results: The study reports that individuals with Down syndrome were rated higher in general reading skills and writing, while the Williams syndrome group scored higher for speaking. Yet, individuals with Down syndrome were more likely to engage in informal activities than instructional activities and the frequency of informal activities related to reading outcomes for those with Down syndrome but not Williams syndrome. Additionally, this study reports that age was not related to the HLE for both groups. Conclusion: This is the fi rst study to report on the HLE of individuals with Williams syndrome and supports the key role of the HLE in the development of literacy skills for individuals with Williams syndrome and Down syndrome.","PeriodicalId":444774,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":"12 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2023-07-26","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"127822216","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
A comparison of the sensory needs of autistic adults with and without intellectual disabilities: A short report 有智力障碍和无智力障碍的自闭症成人感官需求的比较:一个简短的报告
Journal of Intellectual & Developmental Disability Pub Date : 2023-07-20 DOI: 10.3109/13668250.2023.2231696
J. Bradshaw, Jane Pringle, D. Milton, J. Beadle‐Brown
{"title":"A comparison of the sensory needs of autistic adults with and without intellectual disabilities: A short report","authors":"J. Bradshaw, Jane Pringle, D. Milton, J. Beadle‐Brown","doi":"10.3109/13668250.2023.2231696","DOIUrl":"https://doi.org/10.3109/13668250.2023.2231696","url":null,"abstract":"","PeriodicalId":444774,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":"43 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2023-07-20","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"123489275","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
How should we support families of people with intellectual disability to promote their self-determination? A Delphi study on critical components for intervention 我们应该如何支持智障人士的家庭促进他们的自我决定?干预关键成分的德尔菲研究
Journal of Intellectual & Developmental Disability Pub Date : 2023-07-20 DOI: 10.3109/13668250.2023.2234547
Cristina Mumbardó‐Adam, Araceli Arellano, Eva Vicente, A. Berástegui
{"title":"How should we support families of people with intellectual disability to promote their self-determination? A Delphi study on critical components for intervention","authors":"Cristina Mumbardó‐Adam, Araceli Arellano, Eva Vicente, A. Berástegui","doi":"10.3109/13668250.2023.2234547","DOIUrl":"https://doi.org/10.3109/13668250.2023.2234547","url":null,"abstract":"ABSTRACT Background and aims Self-determination related skills are central for achieving a life of quality for people with intellectual disability and develop as the person interacts with his/her contexts, such as home. As such, families are crucial agents in supporting the self-determination of their children with intellectual disability, although to date, little is known about how to support those families. Methods To address this need, the present study used a Delphi technique to build and reach a consensus on the critical components that should inform interventions targeting families to promote their children’s self-determination. Results Academics and professionals participated in this three-round Delphi study that concluded with a 90-item list of critical components for intervention, concretely relating to general principles, format, content, and methodology. Conclusions This knowledge has the potential to guide emergent intervention initiatives to support families in fostering their children’s self-determination. Implications for research and practice fields are provided and discussed.","PeriodicalId":444774,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":"232 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2023-07-20","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"124786780","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Health-related quality of life of children and adolescents with one vs. multiple disabilities – Are there differences from the parents’ perspective? 与多重残疾相比，儿童和青少年的健康相关生活质量——从父母的角度来看是否存在差异?
Journal of Intellectual & Developmental Disability Pub Date : 2023-07-19 DOI: 10.3109/13668250.2023.2229988
Željka Nikolašević, Karolina Čučković, Ksenija Gebauer-Bukurov, V. Bugarski Ignjatović
{"title":"Health-related quality of life of children and adolescents with one vs. multiple disabilities – Are there differences from the parents’ perspective?","authors":"Željka Nikolašević, Karolina Čučković, Ksenija Gebauer-Bukurov, V. Bugarski Ignjatović","doi":"10.3109/13668250.2023.2229988","DOIUrl":"https://doi.org/10.3109/13668250.2023.2229988","url":null,"abstract":"","PeriodicalId":444774,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":"30 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2023-07-19","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"122737412","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
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