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Bereavement support in the UK – a rapid evidence assessment 英国的丧亲支持——快速证据评估
Bereavement Care Pub Date : 2020-05-03 DOI: 10.1080/02682621.2020.1728086
A. Hewison, Shazia Zafar, N. Efstathiou
{"title":"Bereavement support in the UK – a rapid evidence assessment","authors":"A. Hewison, Shazia Zafar, N. Efstathiou","doi":"10.1080/02682621.2020.1728086","DOIUrl":"https://doi.org/10.1080/02682621.2020.1728086","url":null,"abstract":"Abstract Bereavement can be a distressing experience and the importance of bereavement support has been recognised in policy and practice for many years. This rapid evidence assessment was undertaken to evaluate the provision and effectiveness of bereavement support in the United Kingdom (UK) and to identify gaps in service provision and areas of need with regard to bereavement services. The main finding of the review was that the provision of bereavement support is extremely varied and there is no conclusive evidence for its effectiveness. There is widespread recognition of the potentially negative impact of bereavement on people, and a plethora of recommendations focused on raising awareness and ameliorating these effects have been made. However, the evidence for how best to support people experiencing bereavement is limited and contested.","PeriodicalId":44115,"journal":{"name":"Bereavement Care","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2020-05-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1080/02682621.2020.1728086","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"43862550","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 10
Clinical psychologists’ response to bereavement in adults with intellectual disability 临床心理学家对成年智障患者丧亲之痛的反应
Bereavement Care Pub Date : 2020-05-03 DOI: 10.1080/02682621.2020.1771957
L. Irwin, Grace O’ Malley, S. Guerin
{"title":"Clinical psychologists’ response to bereavement in adults with intellectual disability","authors":"L. Irwin, Grace O’ Malley, S. Guerin","doi":"10.1080/02682621.2020.1771957","DOIUrl":"https://doi.org/10.1080/02682621.2020.1771957","url":null,"abstract":"Abstract This study aimed to explore the current clinical psychology approach in supporting bereaved adults with intellectual disability (ID). As the literature in this area is limited, report of real clinical practice may enhance our understanding of the usual role of clinical psychologists, and any factors which may shape this. Semi-structured interviews were carried out with six clinical psychologists and the resulting data analysed thematically. Findings identified the approach of participants when supporting bereaved adults with ID, as well as some factors affecting this, such as the impact of grief across support systems and the complexity of best practice in the absence of clear guidance. This absence of an evidence base to guide the clinical response in supporting bereaved adults with ID was identified as a source of professional concern for participants. Further guidance and resources, derived from high-quality research, are urgently required in order to address this issue.","PeriodicalId":44115,"journal":{"name":"Bereavement Care","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2020-05-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1080/02682621.2020.1771957","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"45333185","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
End of life and bereavement care on a tertiary neonatal unit: a parental survey 第三新生儿单位的生命终结和丧亲护理:一项父母调查
Bereavement Care Pub Date : 2020-01-02 DOI: 10.1080/02682621.2020.1728105
F. Paize, J. Macwilliam
{"title":"End of life and bereavement care on a tertiary neonatal unit: a parental survey","authors":"F. Paize, J. Macwilliam","doi":"10.1080/02682621.2020.1728105","DOIUrl":"https://doi.org/10.1080/02682621.2020.1728105","url":null,"abstract":"Abstract This article reports on a small qualitative review of the impact on families when a baby dies on a neonatal unit. The study aim was to see how the service that is provided in a tertiary neonatal unit could be improved in order to help others in the same situation. This led to me carrying out a postal survey of parents who had had a baby die on the neonatal unit at the Liverpool Women’s Hospital in order to gain insight into the care they received and focus on continuing the good aspects of care while improving the areas that needed some work. To maintain high standards of care reviews of practice must happen to encourage a culture of learning and feedback.","PeriodicalId":44115,"journal":{"name":"Bereavement Care","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2020-01-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1080/02682621.2020.1728105","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"49075096","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 2
Before and after loss: A neurologist's perspective on loss, grief and our brain 失落前后：神经学家对失落、悲伤和我们大脑的看法
Bereavement Care Pub Date : 2020-01-02 DOI: 10.1080/02682621.2020.1728160
C. M. Parkes
{"title":"Before and after loss: A neurologist's perspective on loss, grief and our brain","authors":"C. M. Parkes","doi":"10.1080/02682621.2020.1728160","DOIUrl":"https://doi.org/10.1080/02682621.2020.1728160","url":null,"abstract":"","PeriodicalId":44115,"journal":{"name":"Bereavement Care","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2020-01-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1080/02682621.2020.1728160","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"49285043","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 6
Losing your child: becoming a hero to zero parent 失去孩子：成为零父母的英雄
Bereavement Care Pub Date : 2020-01-02 DOI: 10.1080/02682621.2020.1728159
Toni Bewley
{"title":"Losing your child: becoming a hero to zero parent","authors":"Toni Bewley","doi":"10.1080/02682621.2020.1728159","DOIUrl":"https://doi.org/10.1080/02682621.2020.1728159","url":null,"abstract":"","PeriodicalId":44115,"journal":{"name":"Bereavement Care","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2020-01-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1080/02682621.2020.1728159","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"43651855","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
‘An all-consuming cumulonimbus of pain’: a scoping review exploring the impact of ambiguous loss when someone is missing and the counselling interventions relevant to the experience “痛苦的积雨云”:一项范围审查，探讨了当某人失踪时，模棱两可的损失的影响以及与这种经历相关的咨询干预
Bereavement Care Pub Date : 2020-01-02 DOI: 10.1080/02682621.2020.1728089
S. Wayland, M. Maple
{"title":"‘An all-consuming cumulonimbus of pain’: a scoping review exploring the impact of ambiguous loss when someone is missing and the counselling interventions relevant to the experience","authors":"S. Wayland, M. Maple","doi":"10.1080/02682621.2020.1728089","DOIUrl":"https://doi.org/10.1080/02682621.2020.1728089","url":null,"abstract":"Abstract 2019 marks the twentieth anniversary of the 1999 landmark publication Ambiguous loss: learning to live with unresolved grief by Emeritus Professor Pauline Boss. The book, and its exploration of uncertainty, has invited ambiguous loss into the grief counselling space, as a way to provide specialised care for families and friends of missing people. This scoping review aims to examine the breadth of literature regarding counselling interventions from the previous work of Boss to the present day, as a way to enhance quality of life for people left behind when someone is missing. The literature highlights the experience of trauma relating to complicated mourning, as well as opportunities for post-traumatic growth while people wait for news of their loved ones. The results of the review, and suggestions for future research and therapeutic interventions, demonstrate that families of missing people need specialised support when they access grief counselling. The review demonstrates how counsellors can extend their knowledge of grief interventions and learn to tolerate uncertainty themselves in order to provide support to this important group of individuals post-loss and potentially prior to a confirmed bereavement.","PeriodicalId":44115,"journal":{"name":"Bereavement Care","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2020-01-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1080/02682621.2020.1728089","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"46772617","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 4
How do communities best support the bereaved? 社区如何最好地支持丧亲者？
Bereavement Care Pub Date : 2020-01-02 DOI: 10.1080/02682621.2020.1732097
J. Fish
{"title":"How do communities best support the bereaved?","authors":"J. Fish","doi":"10.1080/02682621.2020.1732097","DOIUrl":"https://doi.org/10.1080/02682621.2020.1732097","url":null,"abstract":"Compassionate initiatives to support the bereaved increasingly come from a diverse range of different resources within our local and national communities. There has been a growing recognition by researchers of the significance of the wide variety of community support available, identifying and describing some of the characteristics and benefits of these different resources. As we consider our local community, and how best we serve the needs of the bereaved, these studies can give us inspiration and guidance as we create networks of provision.","PeriodicalId":44115,"journal":{"name":"Bereavement Care","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2020-01-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1080/02682621.2020.1732097","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"46256659","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
This party's dead: a journey to seven death festivals 这个派对死了：七个死亡节之旅
Bereavement Care Pub Date : 2020-01-02 DOI: 10.1080/02682621.2019.1608634
Erica Buist
{"title":"This party's dead: a journey to seven death festivals","authors":"Erica Buist","doi":"10.1080/02682621.2019.1608634","DOIUrl":"https://doi.org/10.1080/02682621.2019.1608634","url":null,"abstract":"","PeriodicalId":44115,"journal":{"name":"Bereavement Care","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2020-01-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1080/02682621.2019.1608634","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"48058291","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Bereavement support after the death of a child with cancer: implications for practice 癌症儿童死亡后的丧亲支持:对实践的影响
Bereavement Care Pub Date : 2020-01-02 DOI: 10.1080/02682621.2020.1728094
S. Neilson, F. Gibson, S. Greenfield
{"title":"Bereavement support after the death of a child with cancer: implications for practice","authors":"S. Neilson, F. Gibson, S. Greenfield","doi":"10.1080/02682621.2020.1728094","DOIUrl":"https://doi.org/10.1080/02682621.2020.1728094","url":null,"abstract":"Abstract The effects of bereavement are unique and support must be individually tailored. The role of the general practitioner (GP) in paediatric cancer palliative care is wide-ranging and challenging, yet little is known about offered bereavement support in this context. We carried out an in-depth secondary analysis of text relating to bereavement support from a semi-structured interview study exploring GPs’ and parents’ experiences. Findings highlight the importance of early GP-initiated face-to-face contact with parents, exploring opportunities for innovative practice and maintaining close collaboration with hospital-based teams. A co-ordinated, equitable and sustainable approach to bereavement support may help address identified GP knowledge deficits and time-pressures.","PeriodicalId":44115,"journal":{"name":"Bereavement Care","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2020-01-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1080/02682621.2020.1728094","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"43021139","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
The emergence and effect of hospital protocols for perinatal loss in Canada 加拿大围产期损失医院协议的出现和效果
Bereavement Care Pub Date : 2020-01-02 DOI: 10.1080/02682621.2020.1728081
D. Davidson
{"title":"The emergence and effect of hospital protocols for perinatal loss in Canada","authors":"D. Davidson","doi":"10.1080/02682621.2020.1728081","DOIUrl":"https://doi.org/10.1080/02682621.2020.1728081","url":null,"abstract":"Abstract The 1980s and 1990s saw the remaking of the meaning of perinatal death in Canadian hospitals from that of the silencing to the recognition and attention to women’s grief (Davidson, 2007). By the mid-twentieth century both birth and death were increasingly removed from the home and placed in healthcare and funeral facilities (Aries, 1981; Walter, 1994). Beginning in the 1950s when hospital birth had become the general social norm, death around the time of birth became a new institutional concern. Using a symbolic interactionist approach, I document how this new standard of care emerged as perinatal bereavement protocols in the Canadian context. Situating the emergence in its historical context, it is examined here through the time-relevant literature – that is, the literature that influenced the changes from the 1960s through the early 2000s. Then, examined through more recent literature, I illustrate how the protocols continue to work for one extended family after their experience of stillbirth in 2012.","PeriodicalId":44115,"journal":{"name":"Bereavement Care","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2020-01-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1080/02682621.2020.1728081","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"43070388","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
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