{"title":"Introduction: Trauma and Surrogate Decision Makers: An Argument for Moral Priority in Futility Disputes.","authors":"Autumn Fiester","doi":"10.1086/733270","DOIUrl":"https://doi.org/10.1086/733270","url":null,"abstract":"","PeriodicalId":39646,"journal":{"name":"Journal of Clinical Ethics","volume":"36 1","pages":"39"},"PeriodicalIF":0.0,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143392145","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"How Providers Can Acquire Structural and Intersectional Competencies.","authors":"Edmund G Howe","doi":"10.1086/734480","DOIUrl":"https://doi.org/10.1086/734480","url":null,"abstract":"<p><p>AbstractThis piece describes two patients whose external circumstances caused harm to them. One had poor health insurance and lacked financial resources. The other lacked access to optimal healthcare because he was not a U.S. citizen. These external factors are commonly now referred to as \"structural\" and \"intersectional\" when they are single and multiple, respectively. This piece initially discusses how providers may better come to identify these external sources of harm to patients and then, hopefully, seek to alleviate them. It then discusses how providers, too, may cause external harm. They may make erroneous presuppositions about their patients based on their having certain impairments or symptoms, not know this, and as a result cause these patients iatrogenic harm. Means to avoid this, drawn largely from <i>The Anti-Ableist Manifesto</i>, a recently published, authoritative text on this subject written by Tiffany Yu, are outlined. Finally, the life of a young man, Mats Steen, is presented. His life most profoundly poses the questions of how we make inferences regarding people based only on how they look and what (little) we may know about them and how this may then affect how we can relate with them. Steen's life story is viewable on Netflix.</p>","PeriodicalId":39646,"journal":{"name":"Journal of Clinical Ethics","volume":"36 2","pages":"105-111"},"PeriodicalIF":0.0,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144121114","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Letter to the Editor.","authors":"","doi":"10.1086/734774","DOIUrl":"https://doi.org/10.1086/734774","url":null,"abstract":"","PeriodicalId":39646,"journal":{"name":"Journal of Clinical Ethics","volume":"36 2","pages":"203-204"},"PeriodicalIF":0.0,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144121123","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Jordan Potter, David S Reis, Jason Lesandrini, Eric Nelson
{"title":"Patient Perspectives on the Authority of Advance Directives in Times of Conflict: A Mixed Methods Study.","authors":"Jordan Potter, David S Reis, Jason Lesandrini, Eric Nelson","doi":"10.1086/734771","DOIUrl":"https://doi.org/10.1086/734771","url":null,"abstract":"<p><p>AbstractContext: As advance directives (ADs) become more frequently utilized, opportunities increase for conflict between a patient's designated healthcare power of attorney (POA) and the treatment preferences outlined in their living will (LW). Little is known about patient preferences regarding how to resolve these conflicts.</p><p><strong>Objectives: </strong>To assess patient preferences regarding whether their POA or LW should have authority in times of conflict.</p><p><strong>Methods: </strong>In this mixed methods study, we completed a retrospective chart review to analyze patient selections in their AD, including selections in a novel section of the AD called the \"Binding Guidance\" section that gives patients the ability to designate whether their POA or LW should have authority when there is conflict between the two. Additionally, willing patient participants were asked two interview questions about their selections to further elucidate their perspectives.</p><p><strong>Results: </strong>Out of 143 patients, 48.3 percent (<i>n</i> = 69) chose to have their LW followed over their POA and 51.7 percent (<i>n</i> = 74) chose to have their POA followed over their LW. Several statistically significant associations were identified regarding binding guidance selections. Seventy-four (51.75%) of these patients also answered the additional interview questions, with the participants evenly distributed (<i>n</i> = 37 each) in their binding guidance selections.</p><p><strong>Conclusion: </strong>Patients have varying preferences regarding whether their POA or LW should have authority in times of conflict. ADs should reflect this variation in preferences and allow patients the ability to designate whether they prefer their POA or LW to have ultimate authority when in conflict.</p>","PeriodicalId":39646,"journal":{"name":"Journal of Clinical Ethics","volume":"36 2","pages":"121-131"},"PeriodicalIF":0.0,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144121138","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"The Safety and Comfort of Home: Can Medical Deportation Alleviate Suffering?","authors":"Medha Palnati","doi":"10.1086/734772","DOIUrl":"https://doi.org/10.1086/734772","url":null,"abstract":"<p><p>AbstractMedical deportation, or the forced removal of severely injured and chronically ill, low-income, uninsured migrants to their countries of origin, remains a practice implemented by hospitals throughout the United States. This practice has been rightfully highly criticized by immigration advocates and human rights organizations. In 2019, the U.S. government eliminated a deferred action program allowing migrants without documentation to avoid deportation while they or their relatives were undergoing lifesaving medical treatment, forcing patients with highly complex medical needs to give up specialized healthcare allowing them to survive and thrive. When meaningful recovery from severe disease and injury is possible, medical deportation is unquestionably abhorrent, often rooted in media-driven, racialized criminalization of U.S. residents without documentation. However, extreme circumstances call into question whether there is ever an appropriate implementation of this practice. This commentary on a case seeks to highlight that in circumstances where patients face no chance of meaningful recovery, medical deportation may serve as an avenue through which to alleviate suffering.</p>","PeriodicalId":39646,"journal":{"name":"Journal of Clinical Ethics","volume":"36 2","pages":"191-195"},"PeriodicalIF":0.0,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144121146","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Attending to Trauma, Balancing Power, and Prioritizing Stakeholders in Ethics Consultation.","authors":"Paul J Ford, Georgina Morley, Lauren R Sankary","doi":"10.1086/733387","DOIUrl":"10.1086/733387","url":null,"abstract":"<p><p>AbstractClinical ethicists ought to account for stakeholder traumas while finding an acceptable balance between competing obligations and responsibilities. Among these is the ethical responsibility to avoid unnecessary suffering that can occur if the decision-making process is prolonged when accounting for the past and present traumas of patients, healthcare team members, and surrogate decision makers (SDMs). Autumn Fiester makes a radical proposal to prioritize avoidance of SDM retraumatization, suggesting that current ethics consultation best practices fall short of standards in trauma-informed approaches. We respond to Fiester and argue that current best practices in ethics consultation already support creating space to identify stakeholder traumas and integrate them into the decision-making process, which sufficiently fulfills an ethics consultant's responsibility to implement trauma-informed practices. Fiester's proposal of prioritizing SDMs, even when this risks violating a patient's bodily dignity, falls back on a traditional view of prioritizing a power structure of those who are related to a patient by genetics or by law. Ethics consultants should flexibly negotiate all stakeholder perspectives to avoid unnecessary retraumatization and to prioritize stakeholders, depending on the specific ethical issues and context.</p>","PeriodicalId":39646,"journal":{"name":"Journal of Clinical Ethics","volume":"36 1","pages":"63-68"},"PeriodicalIF":0.0,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143392058","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Response to Ford, Morley, and Sankary, \"Attending to Trauma, Balancing Power, and Prioritizing Stakeholders in Ethics Consultation\".","authors":"Autumn Fiester","doi":"10.1086/733390","DOIUrl":"10.1086/733390","url":null,"abstract":"<p><p>AbstractIn their article \"Attending to Trauma, Balancing Power, and Prioritizing Stakeholders in Ethics Consultation,\" Ford, Morley, and Sankary respond to my argument about surrogate trauma and prioritization. They offer the most challenging set of arguments against my thesis. They also offer the sharpest critique of Lanphier and Anani's original TIEC proposal. Ford, Morley, and Sankary likely represent the reaction that most professional clinical ethicists will have to my proposal, and their voice is essential in this debate, both for their own philosophical insights and for the representation of the views of many in the field.</p>","PeriodicalId":39646,"journal":{"name":"Journal of Clinical Ethics","volume":"36 1","pages":"69-76"},"PeriodicalIF":0.0,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143392149","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Psychiatry's Small-World Problem: Ethical Challenges in Treating Multiple Patients from the Same Family or Household.","authors":"Jacob M Appel","doi":"10.1086/733385","DOIUrl":"10.1086/733385","url":null,"abstract":"<p><p>AbstractTreating two patients who either are closely related or are members of the same household can raise a distinct set of ethical challenges. These challenges, which differ depending on whether or not the overlapping patients are aware of the common provider, may include ethics issues related to confidentiality, entanglement, objectivity, expectations, and potential manipulation. This article examines each of these issues and offers general guidance on how to manage such cases. While the focus is on psychiatric care, where these issues are often more pronounced, the reasoning applies to other medical subfields, including those in which overlapping care is either tolerated or sanctioned. The goal is to generate awareness about an underappreciated challenge that has not yet received significant consideration in either the medical or ethics literature.</p>","PeriodicalId":39646,"journal":{"name":"Journal of Clinical Ethics","volume":"36 1","pages":"97-103"},"PeriodicalIF":0.0,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143392147","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Hindering or Helping: Discussing Patient Participation in Clinical Ethics Support Service Deliberation.","authors":"Katherine Murdoch","doi":"10.1086/733393","DOIUrl":"10.1086/733393","url":null,"abstract":"<p><p>AbstractClinical ethics support services (CESS) are advisory bodies that deal with ethical conflict arising in healthcare. Patient involvement with CESS remains a contentious issue, without uniform practice regarding whether, how, and when patients should be involved. The overall objective of the study was to understand key stakeholders' viewpoints about CESS and urgent decision-making. Patient involvement and clinical ethics emerged as a key area of discussion. Three stakeholder groups were recruited: doctors in England, CESS members in England, and CESS members in the United States. Recruitment occurred via dissemination of the study online and via email. This resulted in a sample size of 13 participants. The focus group transcripts were analyzed using reflexive thematic analysis. The study found that there was uniform acceptance of the importance of patient representation by all stakeholders. However, the ways in which their involvement was facilitated varied. CESS members in the United States routinely involved the family directly by discussion with the clinical ethicist. However, CESS members and doctors in England viewed patient presence in committee meetings as a barrier to open discussion. Instead, CESS in England would seek ways in which involvement could occur, such as a written statement or advocation by the clinical team. The clinical ethicist model, adopted in the United States, appears to support direct patient involvement in the consultation process, in comparison to the clinical ethics committee model adopted in England. However, these results are limited by the small sample size and small number of viewpoints represented.</p>","PeriodicalId":39646,"journal":{"name":"Journal of Clinical Ethics","volume":"36 1","pages":"9-15"},"PeriodicalIF":0.0,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143392144","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Dual-Physician Decision-Making for Unrepresented Patients: Legal and Ethical Obligations for the Second Nontreating Physician.","authors":"Ryan Ward, Holland Kaplan","doi":"10.1086/734767","DOIUrl":"https://doi.org/10.1086/734767","url":null,"abstract":"<p><p>AbstractPatients without capacity or a surrogate decision maker are known as unrepresented. These patients are highly vulnerable and frequently encountered in healthcare settings, though there is little consensus regarding how medical decisions should be made on these patients' behalf. Several states now require a second nontreating physician (SNTP) to evaluate nonemergent medical decisions for unrepresented patients. This article examines the legal and ethical challenges faced by SNTPs in the dual-physician authorization process, including biases in SNTP selection, time constraints, power dynamics, and accountability concerns. We propose a checklist to guide SNTPs in the care of unrepresented patients while minimizing biases and conducting rigorous risk-benefit assessments. Institutional strategies to address the challenges faced by SNTPs include systematic SNTP selection processes, protected time for evaluations, peer review panels, training to mitigate implicit bias, and iterative review for quality improvement. By providing an ethical framework for dual-physician authorization and actionable processes for minimizing bias, we seek to promote fair and thoughtful decision-making on behalf of unrepresented patients.</p>","PeriodicalId":39646,"journal":{"name":"Journal of Clinical Ethics","volume":"36 2","pages":"152-157"},"PeriodicalIF":0.0,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144121070","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}