Oxford Textbook of Palliative Care for Children最新文献_第4页

Haematological symptoms 血液学的症状

Oxford Textbook of Palliative Care for Children Pub Date : 2021-07-01 DOI: 10.1093/med/9780198821311.003.0027

M. Chan, K. Weingarten

引用次数: 0

Care in the final hours and days 在最后的时刻和日子里关心

Oxford Textbook of Palliative Care for Children Pub Date : 2012-05-24 DOI: 10.1093/MED/9780199595105.003.0032

D. Davies

引用次数: 1

Neurological and neuromuscular conditions and symptoms 神经和神经肌肉疾病和症状

Oxford Textbook of Palliative Care for Children Pub Date : 2012-05-24 DOI: 10.1093/MED/9780199595105.003.0026

J. Hauer, K. W. Faulkner

{"title":"Neurological and neuromuscular conditions and symptoms","authors":"J. Hauer, K. W. Faulkner","doi":"10.1093/MED/9780199595105.003.0026","DOIUrl":"https://doi.org/10.1093/MED/9780199595105.003.0026","url":null,"abstract":"Conditions associated with the impaired nervous system are common in paediatric palliative care (PPC). And yet, many neurological conditions are themselves rare, thereby limiting knowledge about each condition and its expected course. Parents and providers often face significant uncertainty about the risks and benefits associated with treatment decisions as prognostic information and scientific evidence may be limited. Other challenges include difficult assessment for the presence and source of distressing symptoms and the lifelong nature of many of the symptoms these children experience. This chapter addresses several aspects of palliative care in the management of neurological and neuromuscular symptoms. The first section provides a palliative framework for addressing neurological and neuromuscular conditions and a brief overview of the major life-limiting conditions related to the nervous system. The second section reviews the associated symptoms of the impaired central nervous system (CNS) along with their treatment strategies. This chapter deliberately focuses on care for children with severe neurological impairment, as these children increasingly benefit from the specific expertise of palliative care teams.","PeriodicalId":383589,"journal":{"name":"Oxford Textbook of Palliative Care for Children","volume":"2013 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2012-05-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"129190736","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Depression, anxiety, and delirium 抑郁、焦虑和精神错乱

Oxford Textbook of Palliative Care for Children Pub Date : 2012-05-24 DOI: 10.1093/med/9780199595105.003.0027

A. Muriel, R. McCulloch, J. Hammel

{"title":"Depression, anxiety, and delirium","authors":"A. Muriel, R. McCulloch, J. Hammel","doi":"10.1093/med/9780199595105.003.0027","DOIUrl":"https://doi.org/10.1093/med/9780199595105.003.0027","url":null,"abstract":"The assessment and treatment of psychological disorders such as depression, anxiety, and delirium can prove challenging in paediatric palliative care (PPC). Clinicians face the difficulties of distinguishing among symptoms of disease progression, medical side effects, and ‘normal’ psychological distress; the roles of cognitive and emotional development; and the lack of standardized assessment measures. Because research in this area is limited, recommendations often are extrapolated from adult palliative care (PC), or paediatric psychiatric or psychological literature in populations without life-threatening conditions. Patient- and family-centred care require that we address these symptoms, which may not meet clear diagnostic criteria, but significantly impair quality of life (QOL). Careful history taking, active listening, and close observation are essential in unearthing psychological symptoms. Collaboration with mental health professionals is recommended whenever possible, to provide specialist assessment and inform non-pharmacological and psychopharmacological treatment. Clinicians must incorporate limited data with clinical judgement and consultation to guide interventions that best reduce suffering and improve quality of life.","PeriodicalId":383589,"journal":{"name":"Oxford Textbook of Palliative Care for Children","volume":"22 10","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2012-05-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"131506012","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 1

Introduction to pain 疼痛介绍

Oxford Textbook of Palliative Care for Children Pub Date : 2012-05-24 DOI: 10.1093/MED/9780199595105.003.0018

A. Bioy, C. Wood

{"title":"Introduction to pain","authors":"A. Bioy, C. Wood","doi":"10.1093/MED/9780199595105.003.0018","DOIUrl":"https://doi.org/10.1093/MED/9780199595105.003.0018","url":null,"abstract":"When caring for a child who is in pain in a palliative care setting, the extent and intensity of the physical components of pain represent only one of many important aspects that need to be considered. How does the child understand their pain? Are they afraid of the actual pain or the future pain? How do they interpret their disease? Can they control or cope with the pain? It is of fundamental importance not only to help the child to cope with their condition, but also to help them through the disease by building a trustworthy and interactive relationship between the patient, their family, and their peers. One must try to carefully monitor the child’s level of distress, their defense strategies, their coping strategies, and the attitudes and opportunities that they encounter in their environment (e.g. encouragement, active participation in activities). All of this takes place within a biopsychosocial and holistic model of care that ‘reflects modern society’s attempt to face up to the reality of death by introducing dying and bereavement into the midstream of life.’ It personalizes care by adopting a relationship-centered approach and, with the collaboration of all caregivers, it humanizes care. In this chapter we first explore the history of pain in medicine and then develop our actual knowledge about pain. Finally, we shall establish some guidelines for understanding and analyzing the complaint of the child in palliative care.","PeriodicalId":383589,"journal":{"name":"Oxford Textbook of Palliative Care for Children","volume":"6 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2012-05-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"131388327","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

The psychological impact of life-limiting conditions on the child 限制生活条件对儿童的心理影响

Oxford Textbook of Palliative Care for Children Pub Date : 2012-05-24 DOI: 10.1093/MED/9780199595105.003.0008

J. Aldridge, Barbara M. Sourkes

引用次数: 2

Healthcare providers’ responses to the death of a child 医疗保健提供者对儿童死亡的反应

Oxford Textbook of Palliative Care for Children Pub Date : 2012-05-24 DOI: 10.1093/MED/9780199595105.003.0036

D. Papadatou

引用次数: 1