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H: Clinical care and clinical services最新文献

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H37 Validating the Edinburgh cognitive and behavioural als screen (ECAS) as a screening measure of cognitive impairment in pre-manifesting huntington’s disease H37验证爱丁堡认知和行为筛查(ECAS)作为预先表现的亨廷顿病认知障碍的筛查措施
H: Clinical care and clinical services Pub Date : 2022-09-01 DOI: 10.1136/jnnp-2022-ehdn.201
Mairéad Fallon, S. Abrahams, Donal Campbell, Emily Cleary, Michaela Hammond, O. Hardiman, Colm Peelo, N. Pender
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引用次数: 0
H34 Defining disease-associated cognitive decline: a normative calculator for Huntington disease H34定义疾病相关认知衰退:亨廷顿病的标准计算器
H: Clinical care and clinical services Pub Date : 2022-09-01 DOI: 10.1136/jnnp-2022-ehdn.198
A. Mühlbäck, Josef Mana, W. Frank, Michael Wallner, K. Lindenberg, G. Hoffmann, O. Klempířová, J. Klempír, G. Landwehrmeyer, O. Bezdicek
{"title":"H34 Defining disease-associated cognitive decline: a normative calculator for Huntington disease","authors":"A. Mühlbäck, Josef Mana, W. Frank, Michael Wallner, K. Lindenberg, G. Hoffmann, O. Klempířová, J. Klempír, G. Landwehrmeyer, O. Bezdicek","doi":"10.1136/jnnp-2022-ehdn.198","DOIUrl":"https://doi.org/10.1136/jnnp-2022-ehdn.198","url":null,"abstract":"","PeriodicalId":379897,"journal":{"name":"H: Clinical care and clinical services","volume":"35 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2022-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"114517023","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
H23 Co-creating a physical activity resource for carers of people with Huntington’s disease H23共同为亨廷顿舞蹈症患者的护理人员创建体育活动资源
H: Clinical care and clinical services Pub Date : 2022-09-01 DOI: 10.1136/jnnp-2022-ehdn.187
U. Jones, K. Hamana, M. Busse
{"title":"H23 Co-creating a physical activity resource for carers of people with Huntington’s disease","authors":"U. Jones, K. Hamana, M. Busse","doi":"10.1136/jnnp-2022-ehdn.187","DOIUrl":"https://doi.org/10.1136/jnnp-2022-ehdn.187","url":null,"abstract":"","PeriodicalId":379897,"journal":{"name":"H: Clinical care and clinical services","volume":"66 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2022-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"123473931","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
H53 Views of case managers on their professional role in relation to informal caregivers’ concerns in huntington’s disease H53病例管理人员对其职业角色与非正式护理人员对亨廷顿舞蹈病的关注的看法
H: Clinical care and clinical services Pub Date : 2022-09-01 DOI: 10.1136/jnnp-2022-ehdn.217
Annemarie Helmers, M. Ekkel, L. V. Dusseldorp, Y. Zwaagstra, R. Veenhuizen
{"title":"H53 Views of case managers on their professional role in relation to informal caregivers’ concerns in huntington’s disease","authors":"Annemarie Helmers, M. Ekkel, L. V. Dusseldorp, Y. Zwaagstra, R. Veenhuizen","doi":"10.1136/jnnp-2022-ehdn.217","DOIUrl":"https://doi.org/10.1136/jnnp-2022-ehdn.217","url":null,"abstract":"","PeriodicalId":379897,"journal":{"name":"H: Clinical care and clinical services","volume":"17 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2022-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"121158210","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
H35 Cognitive and neuropsychiatric differences between asymptomatic and symptomatic carriers of Huntington´s disease H35无症状和有症状的亨廷顿病携带者的认知和神经精神差异
H: Clinical care and clinical services Pub Date : 2022-09-01 DOI: 10.1136/jnnp-2022-ehdn.199
Miriam Turuelo, Mariéa Aéngeles Acera, Tamara Fernaéndez-Valle, J. Sømme, Javier Ruiéz-Martiénez, L. Pardina-Vilella, A. Gabilondo, B. Tijero, Marta Ruiéz-Loépez, M. Carmona, I. Croitoru, Naia Ayo, A. Murueta-Goyena, I. Gabilondo, J. Gómez-Esteban, R. Del Pino
{"title":"H35 Cognitive and neuropsychiatric differences between asymptomatic and symptomatic carriers of Huntington´s disease","authors":"Miriam Turuelo, Mariéa Aéngeles Acera, Tamara Fernaéndez-Valle, J. Sømme, Javier Ruiéz-Martiénez, L. Pardina-Vilella, A. Gabilondo, B. Tijero, Marta Ruiéz-Loépez, M. Carmona, I. Croitoru, Naia Ayo, A. Murueta-Goyena, I. Gabilondo, J. Gómez-Esteban, R. Del Pino","doi":"10.1136/jnnp-2022-ehdn.199","DOIUrl":"https://doi.org/10.1136/jnnp-2022-ehdn.199","url":null,"abstract":"","PeriodicalId":379897,"journal":{"name":"H: Clinical care and clinical services","volume":"28 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2022-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"134333233","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
H36 Does performance of the 9 Hole Peg test improve awareness of motor impairment in Huntington’s disease patients? H36 9孔Peg测试的表现是否提高了亨廷顿病患者对运动障碍的认识?
H: Clinical care and clinical services Pub Date : 2022-09-01 DOI: 10.1136/jnnp-2022-ehdn.200
E. Sitek, W. Sołtan, Marek Dąbrowski, J. Sławek
{"title":"H36 Does performance of the 9 Hole Peg test improve awareness of motor impairment in Huntington’s disease patients?","authors":"E. Sitek, W. Sołtan, Marek Dąbrowski, J. Sławek","doi":"10.1136/jnnp-2022-ehdn.200","DOIUrl":"https://doi.org/10.1136/jnnp-2022-ehdn.200","url":null,"abstract":"","PeriodicalId":379897,"journal":{"name":"H: Clinical care and clinical services","volume":"18 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2022-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"131538371","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
H29 Co-design of a physical activity volunteer training e-kitbag for Huntington’s disease with stakeholders (PIVOT-HD) H29与利益相关者共同设计亨廷顿病体育活动志愿者培训电子包(PIVOT-HD)
H: Clinical care and clinical services Pub Date : 2022-09-01 DOI: 10.1136/jnnp-2022-ehdn.193
K. Hamana, G. Paul-Taylor, U. Jones, Andy Hillbourne, R. Ferriday, J. McCabe, R. Sands
{"title":"H29 Co-design of a physical activity volunteer training e-kitbag for Huntington’s disease with stakeholders (PIVOT-HD)","authors":"K. Hamana, G. Paul-Taylor, U. Jones, Andy Hillbourne, R. Ferriday, J. McCabe, R. Sands","doi":"10.1136/jnnp-2022-ehdn.193","DOIUrl":"https://doi.org/10.1136/jnnp-2022-ehdn.193","url":null,"abstract":"","PeriodicalId":379897,"journal":{"name":"H: Clinical care and clinical services","volume":"27 1 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2022-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"128827854","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
H08 The Swedish lay organization, RHS, approches target groups in a creative and unique way by using its webpage in practical nursing guidance H08瑞典外行组织，RHS，通过在实际护理指导中使用其网页，以创造性和独特的方式接近目标群体
H: Clinical care and clinical services Pub Date : 2022-09-01 DOI: 10.1136/jnnp-2022-ehdn.172
C. Hvalstedt, A. Carlsson, M. Linne
{"title":"H08 The Swedish lay organization, RHS, approches target groups in a creative and unique way by using its webpage in practical nursing guidance","authors":"C. Hvalstedt, A. Carlsson, M. Linne","doi":"10.1136/jnnp-2022-ehdn.172","DOIUrl":"https://doi.org/10.1136/jnnp-2022-ehdn.172","url":null,"abstract":"","PeriodicalId":379897,"journal":{"name":"H: Clinical care and clinical services","volume":"29 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2022-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"126128811","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
H61 Representations about end of life discussions in patients with neurogenetic diseases and their casegivers: diragene study H61关于神经遗传疾病患者及其病例提供者生命终结讨论的陈述:一项研究
H: Clinical care and clinical services Pub Date : 2022-09-01 DOI: 10.1136/jnnp-2022-ehdn.225
Anne-Claire Dorsemans, Giulia Coarelli, Anna Heinzmann, A. Durr, M. Gargiulo, C. Ewenczyk
{"title":"H61 Representations about end of life discussions in patients with neurogenetic diseases and their casegivers: diragene study","authors":"Anne-Claire Dorsemans, Giulia Coarelli, Anna Heinzmann, A. Durr, M. Gargiulo, C. Ewenczyk","doi":"10.1136/jnnp-2022-ehdn.225","DOIUrl":"https://doi.org/10.1136/jnnp-2022-ehdn.225","url":null,"abstract":"","PeriodicalId":379897,"journal":{"name":"H: Clinical care and clinical services","volume":"13 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2022-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"120947406","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
H26 EHDN physiotherapy working group: understanding the perspectives of the HD community regarding the presentation and dissemination of the physiotherapy practice guidelines H26 EHDN物理治疗工作组:了解HD社区对物理治疗实践指南的介绍和传播的观点
H: Clinical care and clinical services Pub Date : 2022-09-01 DOI: 10.1136/jnnp-2022-ehdn.190
L. Muratori, L. Quinn, N. Fritz, T. Cruickshank
{"title":"H26 EHDN physiotherapy working group: understanding the perspectives of the HD community regarding the presentation and dissemination of the physiotherapy practice guidelines","authors":"L. Muratori, L. Quinn, N. Fritz, T. Cruickshank","doi":"10.1136/jnnp-2022-ehdn.190","DOIUrl":"https://doi.org/10.1136/jnnp-2022-ehdn.190","url":null,"abstract":"","PeriodicalId":379897,"journal":{"name":"H: Clinical care and clinical services","volume":"24 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2022-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"131266863","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
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