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Depression, Anxiety, and Quality of Life In Children and Adolescents With Sickle Cell Disease. 儿童和青少年镰状细胞病患者的抑郁、焦虑和生活质量
Pediatric nursing Pub Date : 2016-05-01
J Kelly Graves, Christopher Hodge, Eufemia Jacob
{"title":"Depression, Anxiety, and Quality of Life In Children and Adolescents With Sickle Cell Disease.","authors":"J Kelly Graves,&nbsp;Christopher Hodge,&nbsp;Eufemia Jacob","doi":"","DOIUrl":"","url":null,"abstract":"<p><p>The relationships among depression, anxiety, and quality of life were tested, as were the effects of age, gender, and pain frequency on these variables in children (n = 44) and adolescents (n = 31) with sickle cell disease. Participants completed the Revised Child Anxiety and Depression Scale (ROADS) and the Pediatric Quality of Life (PedQL Generic Model). The mean and standard deviation for summary RCADS scores for the majority of participants were below the clinical thresholds of T < 65, indicating low risk for depression (n = 65; 89.3%) and anxiety (n = 70; 93.3%). The subscale scores for the different dimensions of QOL health were a) psychosocial (73.3 ± 15.9), b) emotional (75.0 ± 20.7), c) social (80.8 ± 19.1), d) school functioning (64.0 ≥ 19.8), and e) physical (77.4 ± 17.4). Significant negative correlations were found between mean total quality of life scores and symptoms of a) general anxiety (r = -0.51, p < 0.0001), b) depression (r = -0.66, p < 0.0001), c) obsessive compulsive (r = -0.53, p < 0.0001), d) panic (r = -0.60, p < 0.0001), and e) social phobia (r = -0.57, p < 0.0001). Age and gender did not have significant effects on risk for depression and anxiety or poor QOL. Pain frequency also did not have significant effects on the risk for depression and anxiety. Findings suggest that health care providers need to screen for anxiety and depression, and make referrals for early interventions to improve quality of life and promote school function in youth with sickle cell disease.</p>","PeriodicalId":35613,"journal":{"name":"Pediatric nursing","volume":"42 3","pages":"113-9, 144"},"PeriodicalIF":0.0,"publicationDate":"2016-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"34712630","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Taking It Home. 带回家。
Pediatric nursing Pub Date : 2016-05-01
Jean Ivey
{"title":"Taking It Home.","authors":"Jean Ivey","doi":"","DOIUrl":"","url":null,"abstract":"","PeriodicalId":35613,"journal":{"name":"Pediatric nursing","volume":"42 3","pages":"137"},"PeriodicalIF":0.0,"publicationDate":"2016-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"34712634","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Online Focus Groups with Parents And Adolescents with Heart Transplants: Challenges and Opportunities. 在线焦点小组与父母和青少年心脏移植:挑战和机遇。
Pediatric nursing Pub Date : 2016-05-01
Beatrice Boateng, Mary Kathryn Nelson, Amy Huett, Julie B Meaux, Sherry Pye, Barbara Schmid, Alex Berg, Kelci LaPorte, Linda Riley, Angela Green
{"title":"Online Focus Groups with Parents And Adolescents with Heart Transplants: Challenges and Opportunities.","authors":"Beatrice Boateng,&nbsp;Mary Kathryn Nelson,&nbsp;Amy Huett,&nbsp;Julie B Meaux,&nbsp;Sherry Pye,&nbsp;Barbara Schmid,&nbsp;Alex Berg,&nbsp;Kelci LaPorte,&nbsp;Linda Riley,&nbsp;Angela Green","doi":"","DOIUrl":"","url":null,"abstract":"<p><p>Pediatric heart transplant recipients are scarce and widely dispersed. Previous studies of adolescents in this population were limited to small homogenous samples. Although online focus groups are an emerging data collection method, its use in pediatric populations has not been fully realized. The purpose of this study was to explore the feasibility of using online focus groups with pediatric populations. Adolescents (aged 13 to 21 years) at least 6 months post-heart transplant and their parents were recruited from two children's hospitals. An online discussion forum (iTracks) was used to conduct asynchronous focus groups with separate parent and adolescent groups. Six parents and four adolescents participated in the discussions. iTracks provided a framework for conducting focus groups in dispersed populations. Access to the discussion transcripts enhanced data analysis and eliminated transcription costs. Overall, online discussion forums were a feasible and cost-effective option to conduct online focus groups in this pediatric population.</p>","PeriodicalId":35613,"journal":{"name":"Pediatric nursing","volume":"42 3","pages":"120-3, 154"},"PeriodicalIF":0.0,"publicationDate":"2016-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"34712633","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Mentoring Practice and Mentoring Benefit 2: Mapping the Future and Career Optimism--An Overview and Application to Practice Using Mentoring Activities. 导师制实践与导师制效益2:规划未来与职业乐观——导师制活动的概述与实践应用
Pediatric nursing Pub Date : 2016-05-01
Louise D Jakubik, Aris B Eliades, Meghan M Weese, Jennifer J Huth
{"title":"Mentoring Practice and Mentoring Benefit 2: Mapping the Future and Career Optimism--An Overview and Application to Practice Using Mentoring Activities.","authors":"Louise D Jakubik,&nbsp;Aris B Eliades,&nbsp;Meghan M Weese,&nbsp;Jennifer J Huth","doi":"","DOIUrl":"","url":null,"abstract":"","PeriodicalId":35613,"journal":{"name":"Pediatric nursing","volume":"42 3","pages":"145-6"},"PeriodicalIF":0.0,"publicationDate":"2016-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"34614663","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Promoting Children's Health-Related Quality of Life. 促进儿童与健康有关的生活质量。
Pediatric nursing Pub Date : 2016-03-01
Cara Sisk
{"title":"Promoting Children's Health-Related Quality of Life.","authors":"Cara Sisk","doi":"","DOIUrl":"","url":null,"abstract":"<p><p>Pediatric health care practitioners have the ability to impact a child's HRQoL. Children's HRQoL is well documented in the literature as an important matter for children receiving health care, with research to support its significance in their lives. Children and adolescents have much to teach practitioners, and listening to their perspectives of health care experiences has a direct effect on the clinician's ability to improve their HRQoL. Pediatric practitioners focused on providing high-quality patient care must incorporate the goal to positively influence children's HRQoL.</p>","PeriodicalId":35613,"journal":{"name":"Pediatric nursing","volume":"42 2","pages":"86-8"},"PeriodicalIF":0.0,"publicationDate":"2016-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"34606242","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Brilliant, Absolutely Brilliant: Reading to Dogs. 聪明，绝对聪明:读给狗听。
Pediatric nursing Pub Date : 2016-03-01
Judy A Rollins
{"title":"Brilliant, Absolutely Brilliant: Reading to Dogs.","authors":"Judy A Rollins","doi":"","DOIUrl":"","url":null,"abstract":"","PeriodicalId":35613,"journal":{"name":"Pediatric nursing","volume":"42 2","pages":"58"},"PeriodicalIF":0.0,"publicationDate":"2016-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"34606238","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Sibling Experiences: Living with Young Persons with Autism Spectrum Disorders. 兄弟姐妹的经历:与患有自闭症谱系障碍的年轻人一起生活。
Pediatric nursing Pub Date : 2016-03-01
Beth Ward, Brianna Smith Tanner, Barbara Mandleco, Tina T Dyches, Donna Freeborn
{"title":"Sibling Experiences: Living with Young Persons with Autism Spectrum Disorders.","authors":"Beth Ward,&nbsp;Brianna Smith Tanner,&nbsp;Barbara Mandleco,&nbsp;Tina T Dyches,&nbsp;Donna Freeborn","doi":"","DOIUrl":"","url":null,"abstract":"<p><p>Like other young people, those with autism spectrum disorder (ASD) have an impact on siblings in both positive and negative ways. Research indicates positive attributes include maturity and responsibility; positive self-concept; less quarrelling and competition; admiration for the person with ASD; and satisfactory sibling relationships. Negative attributes include fear of frightening or violent behavior, decreased sibling intimacy, and social and emotional difficulties. However, most research relies on information from parents/teachers, rather than from siblings. Therefore, this qualitative descriptive study explored experiences of 11 brothers and 11 sisters living with a young person with ASD through audiorecorded semi-structured interviews. Analysis revealed the overall theme was contradiction. Participants recognized difficulties (decreased parental attention, extra responsibility, bothersome behaviors, communication difficulties) and positive aspects (became empathetic, loved and appreciated the child, realized the experience was life-changing) of living with a young person with ASD. Younger siblings frequently reflected on childhood experiences, wished they could play together, and mentioned what the young person could do. Adolescent siblings learned life lessons from the experience, talked about life changes when ASD was diagnosed, and seemed introspective and protective toward the young person with ASD. Male siblings often wished they played more often while growing up with the young person, and frequently mentioned the child/adolescent's aggressive behaviors; female siblings focused on relationship and communication difficulties of the young person ASD. Interventions to help siblings provide positive behavioral support, engage in developmentally appropriate play, and communicate reciprocally are warranted. Nurses can help parents understand siblings' perceptions and can encourage parents to support siblings.</p>","PeriodicalId":35613,"journal":{"name":"Pediatric nursing","volume":"42 2","pages":"69-76"},"PeriodicalIF":0.0,"publicationDate":"2016-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"34606240","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Children's Specialized Hospital and GetWellNetwork Collaborate to Improve Patient Education and Outcomes Using an Innovative Approach. 儿童专科医院和GetWellNetwork合作，采用创新方法改善患者教育和结果。
Pediatric nursing Pub Date : 2016-03-01
Laura Kompany, Kiersten Luis, Julie Manganaro, Kathleen Motacki, Elaine Mustacchio, Donna Provenzano
{"title":"Children's Specialized Hospital and GetWellNetwork Collaborate to Improve Patient Education and Outcomes Using an Innovative Approach.","authors":"Laura Kompany,&nbsp;Kiersten Luis,&nbsp;Julie Manganaro,&nbsp;Kathleen Motacki,&nbsp;Elaine Mustacchio,&nbsp;Donna Provenzano","doi":"","DOIUrl":"","url":null,"abstract":"<p><p>Patient education in a pediatric setting is unique. There are different patient ages, degrees of learning, and diagnoses to take into account when educating children and their families. A new and innovative trend in practice called Interactive Patient Care (IPC) integrates technology into care processes to advance pediatric nursing education and patient and family satisfaction. Children's Specialized Hospital is the first pediatric rehabilitation hospital to develop and implement this type of program using an IPC platform from the GetWellNetwork. With the implementation of the GetWellNetwork, Children's Specialized Hospital has achieved positive results in patient satisfaction, health care utilization, quality, and safety measures.</p>","PeriodicalId":35613,"journal":{"name":"Pediatric nursing","volume":"42 2","pages":"95-9"},"PeriodicalIF":0.0,"publicationDate":"2016-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"34540888","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Measuring Perception: Purpose and Methods. 测量感知:目的和方法。
Pediatric nursing Pub Date : 2016-03-01
Jean Ivey
{"title":"Measuring Perception: Purpose and Methods.","authors":"Jean Ivey","doi":"","DOIUrl":"","url":null,"abstract":"","PeriodicalId":35613,"journal":{"name":"Pediatric nursing","volume":"42 2","pages":"83"},"PeriodicalIF":0.0,"publicationDate":"2016-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"34606243","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Development of a Pediatric Fall Risk And Injury Reduction Program. 儿童跌倒风险和伤害减少计划的发展。
Pediatric nursing Pub Date : 2016-03-01
Debra L Kramlich, Denise Dende
{"title":"Development of a Pediatric Fall Risk And Injury Reduction Program.","authors":"Debra L Kramlich,&nbsp;Denise Dende","doi":"","DOIUrl":"","url":null,"abstract":"<p><p>Fall prevention programs that include reliable, valid, and clinically tested screening tools have demonstrated more positive effects for adult and geriatric populations than those not including such assessment. In contrast, because falling is a natural part of growth and development for pediatric patients, progression toward effective prevention programs for this population has proven to be a challenge; a significant impediment is the lack of definition regarding what constitutes a reportable fall. This project explored pediatric health care providers' perceptions of patient falls in order to define a reportable pediatric fall and inform development of a prevention program. A concept analysis of defining attributes, antecedents, and consequences of pediatric falls from literature formed the basis for a set of questions; a convenience sample of 28 pediatric health care providers in an acute care hospital in New England participated in six moderated focus groups. Constant comparison method was used to code the qualitative data and develop themes. Participants unanimously agreed on several points; as expected, their years of experience in pediatric practice provided valuable insight. Three major themes emerged: patient characteristics, caregiver characteristics, and environmental characteristics. Based on factors identified by staff, a screening tool was adopted and integrated into the electronic medical record. Staff were actively engaged in developing definitions, selecting tools, and identifying next steps toward a comprehensive fall reduction program for their patients. As a result, they have embraced changes and advocated successfully for endorsement by the organization.</p>","PeriodicalId":35613,"journal":{"name":"Pediatric nursing","volume":"42 2","pages":"77-82"},"PeriodicalIF":0.0,"publicationDate":"2016-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"34606245","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
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