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Coverage uncertainty range: A new method for calculating uncertainty around summary statistics in healthcare quality indicators 覆盖不确定性范围:一种计算医疗质量指标汇总统计不确定性的新方法
Norsk Epidemiologi Pub Date : 2023-10-20 DOI: 10.5324/nje.v31i1-2.5617
Kari Krizak Halle, Tormod Aarlott Digre, Ragna Elise Støre, Torunn Varmdal
{"title":"Coverage uncertainty range: A new method for calculating uncertainty around summary statistics in healthcare quality indicators","authors":"Kari Krizak Halle, Tormod Aarlott Digre, Ragna Elise Støre, Torunn Varmdal","doi":"10.5324/nje.v31i1-2.5617","DOIUrl":"https://doi.org/10.5324/nje.v31i1-2.5617","url":null,"abstract":"Data from clinical health registries, such as medical quality registries, are often used as basis for healthcarequality indicators (QI). To aid the interpretation of quality indicators and support decisions, it is importantto quantify the uncertainty around the QI summary statistics. In this paper we suggest a novel method forquantifying such uncertainty: the Coverage uncertainty range. The method is based on the size of thepopulation present in the register relative to the total relevant population and does not make any assumptionsabout the sampling strategy or the value of the summary statistic. Furthermore, using both simulated dataand real-life data from a Norwegian medical quality registry, we illustrate why using confidence intervalswhen presenting healthcare quality indicators may lead to erroneous conclusions.","PeriodicalId":35548,"journal":{"name":"Norsk Epidemiologi","volume":"7 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2023-10-20","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"135618513","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Norsk register for analinkontinens NRA – registeret for de tause pasientene 挪威肛门失禁 NRA 登记册 - 沉默患者登记册
Norsk Epidemiologi Pub Date : 2023-10-20 DOI: 10.5324/nje.v31i1-2.5609
Tone Prøsch-Bilden, Stig Norderval
{"title":"Norsk register for analinkontinens NRA – registeret for de tause pasientene","authors":"Tone Prøsch-Bilden, Stig Norderval","doi":"10.5324/nje.v31i1-2.5609","DOIUrl":"https://doi.org/10.5324/nje.v31i1-2.5609","url":null,"abstract":"-","PeriodicalId":35548,"journal":{"name":"Norsk Epidemiologi","volume":"29 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2023-10-20","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"135618507","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Kvalitetsregistre innen fagområdene psykisk helsevern og rusbehandling 精神保健和药物滥用治疗专业领域的质量登记册
Norsk Epidemiologi Pub Date : 2023-10-20 DOI: 10.5324/nje.v31i1-2.5616
Inge Joa, Tore Tjora, Kent Jensen
{"title":"Kvalitetsregistre innen fagområdene psykisk helsevern og rusbehandling","authors":"Inge Joa, Tore Tjora, Kent Jensen","doi":"10.5324/nje.v31i1-2.5616","DOIUrl":"https://doi.org/10.5324/nje.v31i1-2.5616","url":null,"abstract":"-","PeriodicalId":35548,"journal":{"name":"Norsk Epidemiologi","volume":"84 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2023-10-20","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"135618511","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Innhold Innhold
Norsk Epidemiologi Pub Date : 2023-10-20 DOI: 10.5324/nje.v31i1-2.5601
- -
{"title":"Innhold","authors":"- -","doi":"10.5324/nje.v31i1-2.5601","DOIUrl":"https://doi.org/10.5324/nje.v31i1-2.5601","url":null,"abstract":"--","PeriodicalId":35548,"journal":{"name":"Norsk Epidemiologi","volume":"5 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2023-10-20","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"135618837","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
The impact of longitudinal surveillance of individuals with CP in Norway; a 20-year quality registry and follow-up program perspective 挪威CP个体纵向监测的影响20年的质量登记和后续计划的观点
Norsk Epidemiologi Pub Date : 2023-10-20 DOI: 10.5324/nje.v31i1-2.5606
Sandra Julsen Hollung, Reidun Jahnsen, Gunvor Lilleholt Klevberg, Nina Kløve, Guro L. Andersen
{"title":"The impact of longitudinal surveillance of individuals with CP in Norway; a 20-year quality registry and follow-up program perspective","authors":"Sandra Julsen Hollung, Reidun Jahnsen, Gunvor Lilleholt Klevberg, Nina Kløve, Guro L. Andersen","doi":"10.5324/nje.v31i1-2.5606","DOIUrl":"https://doi.org/10.5324/nje.v31i1-2.5606","url":null,"abstract":"ABSTRACTThe Norwegian Quality and Surveillance Registry for Cerebral Palsy (NorCP) has systematically collecteddata on individuals with cerebral palsy (CP) and been a driver of knowledge dissemination for over 20 years.NorCP data have increased the competence of health professionals in both the municipal and specialisthealthcare services through publication of multiple scientific articles ranging from risk factors for CP tolifelong interventions, quality improvement projects, and training services. This has led to a streamlinedprocess in the diagnosis and follow-up of children and youths with CP in Norway to ensure that they receive\"the right treatment at the right time,\" regardless of where they live using evidence-based interventions basedon needs that are revealed in the registrations.NORSK SAMMENDRAGNorsk kvalitets- og oppfølgingsregister for cerebral parese (NorCP) har systematisk samlet inn data ompersoner med cerebral parese og vært en pådriver for kunnskapsformidling i over 20 år. NorCP data har øktkompetansen til helsepersonell i både kommune- og spesialisthelsetjenesten gjennom publisering av flerevitenskapelige artikler om risikofaktorer for CP til livslange intervensjoner, kvalitetsforbedringsprosjektersamt kurs og kompetansetjenester. Dette har ført til økt kvalitet på diagnostisering og oppfølging av barn ogunge med CP i Norge, som sikrer at de får «riktig behandling til rett tid», uansett hvor de bor i landet medbruk av evidensbaserte intervensjoner basert på behov som avdekkes ved registreringene.","PeriodicalId":35548,"journal":{"name":"Norsk Epidemiologi","volume":"11 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2023-10-20","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"135617961","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Nasjonalt register for gastrokirurgi (NORGAST): noen tanker etter ti år 国家胃肠道外科登记册（NORGAST）：十年后的一些想法
Norsk Epidemiologi Pub Date : 2023-10-20 DOI: 10.5324/nje.v31i1-2.5610
Stig Norderval, Kjerstin Havnes, Kristoffer Lassen
{"title":"Nasjonalt register for gastrokirurgi (NORGAST): noen tanker etter ti år","authors":"Stig Norderval, Kjerstin Havnes, Kristoffer Lassen","doi":"10.5324/nje.v31i1-2.5610","DOIUrl":"https://doi.org/10.5324/nje.v31i1-2.5610","url":null,"abstract":"-","PeriodicalId":35548,"journal":{"name":"Norsk Epidemiologi","volume":"183 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2023-10-20","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"135617962","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Realizing the potentials of a National Spinal Cord Injury Registry – 10 years of experiences 实现国家脊髓损伤登记的潜力- 10年的经验
Norsk Epidemiologi Pub Date : 2023-10-20 DOI: 10.5324/nje.v31i1-2.5612
Annette Halvorsen, Ann Louise Pettersen, Sara Rise Langlo, Horn Siv Anita, Rekand Tiina
{"title":"Realizing the potentials of a National Spinal Cord Injury Registry – 10 years of experiences","authors":"Annette Halvorsen, Ann Louise Pettersen, Sara Rise Langlo, Horn Siv Anita, Rekand Tiina","doi":"10.5324/nje.v31i1-2.5612","DOIUrl":"https://doi.org/10.5324/nje.v31i1-2.5612","url":null,"abstract":"The Norwegian Spinal Cord Injury Registry is a national quality registry that just celebrated its 10-year anniversary. The registry contributes to quality improvement in spinal cord injury care in Norway and other Nordic countries. The continuous improvement in clinical practice goes hand-in-hand with the further registry development. Data from the registry are furthermore used in different kinds of research projects. This article aims to provide an overview of how the Norwegian Spinal Cord Injury Registry was established, to share our experiences, insights, lessons learned during its development and ten years in operation, and to highlight its potential.","PeriodicalId":35548,"journal":{"name":"Norsk Epidemiologi","volume":"63 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2023-10-20","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"135618512","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Medisinske kvalitetsregistere i Norge 挪威的医疗质量登记
Norsk Epidemiologi Pub Date : 2023-10-20 DOI: 10.5324/nje.v31i1-2.5603
Eva Stensland, Philip Skau
{"title":"Medisinske kvalitetsregistere i Norge","authors":"Eva Stensland, Philip Skau","doi":"10.5324/nje.v31i1-2.5603","DOIUrl":"https://doi.org/10.5324/nje.v31i1-2.5603","url":null,"abstract":"-","PeriodicalId":35548,"journal":{"name":"Norsk Epidemiologi","volume":"67 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2023-10-20","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"135618502","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
MS-registeret: meget viktig for MS-pasientene og enda viktigere fremover 多发性硬化症登记处：对多发性硬化症患者非常重要，未来将更加重要
Norsk Epidemiologi Pub Date : 2023-10-20 DOI: 10.5324/nje.v31i1-2.5604
Jan Anders Istad, Magne Wang Fredriksen
{"title":"MS-registeret: meget viktig for MS-pasientene og enda viktigere fremover","authors":"Jan Anders Istad, Magne Wang Fredriksen","doi":"10.5324/nje.v31i1-2.5604","DOIUrl":"https://doi.org/10.5324/nje.v31i1-2.5604","url":null,"abstract":"-","PeriodicalId":35548,"journal":{"name":"Norsk Epidemiologi","volume":"16 1 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2023-10-20","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"135617964","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Forord 前言
Norsk Epidemiologi Pub Date : 2023-10-20 DOI: 10.5324/nje.v31i1-2.5602
Eva Stensland
{"title":"Forord","authors":"Eva Stensland","doi":"10.5324/nje.v31i1-2.5602","DOIUrl":"https://doi.org/10.5324/nje.v31i1-2.5602","url":null,"abstract":"Eva StenslandSenter for klinisk dokumentasjon og evaluering (SKDE)Helse Nord RHF","PeriodicalId":35548,"journal":{"name":"Norsk Epidemiologi","volume":"38 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2023-10-20","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"135618515","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
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