Transdisciplinary Insights最新文献

{"title":"Down to Counsel: Towards A Transdisciplinary Toolbox for Non-directive Counseling in Prenatal Screening for Down Syndrome","authors":"Laura Costan, M. Devine, Maud van Dinther, L. Hendrickx, J. Meijer, Nynke van Uffelen, E. Zenner","doi":"10.11116/TDI2018.2.2","DOIUrl":"https://doi.org/10.11116/TDI2018.2.2","url":null,"abstract":"Abstract Since the introduction of non-invasive prenatal testing (NIPT) in Belgium in 2013, expectant parents have had access to a new efficient and reliable test for genetic abnormalities, including trisomy 13, 18 and 21. In 2017, the Belgian government decided to cover\u0000 over 95% of the cost for all women who choose to take this test. In this context, a diagnosis of trisomy 21 (Down syndrome) presents an especially challenging decision for parents: it is impossible to tell the severity of impairment prenatally, and although several medical risks are involved\u0000 in the condition, many individuals with Down syndrome live a long, happy, and relatively independent life (Shakespeare, 1998; Scott et. al., 2014). Expectant parents face a very difficult situation: how to decide whether or not to terminate a pregnancy? It appears that termination is becoming\u0000 the routinized outcome of the clinical encounter during which a diagnosis is delivered.The intricacy of the matter, and the fact that many actors are involved, lead to the necessity of a transdisciplinary methodology when scrutinizing the future of prenatal counseling. However, medical\u0000 professionals tend to approach Down syndrome from an exclusively medical perspective (Skirton and Barr, 2010), leaving aside the economic, social and psychological dimensions of living with Down syndrome. This may result in unbalanced information; some (perhaps precipitously) refer to this\u0000 phenomenon as ‘nudging practices’ (Hippman et. al., 2012; Reid et. al., 2009). In order to address this imbalance, we adopt a stakeholder approach in this project: we consulted experts with diverse backgrounds and fields of expertise.\u0000 Through this transdisciplinary approach, we hope to bring about a more transdisciplinary perspective directly within the offices of gynecologists and GPs. More specifically, we aim to find ways to provide GPs and gynecologists with direct access to information about the aforementioned dimensions\u0000 of Down syndrome.The next step is to define a strategy to achieve this goal. Given the fact that medical professionals often lack both time and easy access to concise information about Down syndrome to present a nuanced perspective (Ahmed et. al., 2007), but are still the first in the\u0000 prenatal screening process, the output of this project is the idea of an online tool in a succinct Q&A format. The goal of such a website would be to provide up-to-date, easily accessible and balanced information for general practitioners and gynecologists on multiple aspects of Down syndrome.\u0000 This way, in anticipation of and directing explicitly towards further counseling by a multidisciplinary team, physicians can provide expectant parents with a more balanced, transdisciplinary view of Down syndrome, thereby enhancing their capability to make informed, autonomous and hence sustainable\u0000 decisions about their pregnancies.","PeriodicalId":316049,"journal":{"name":"Transdisciplinary Insights","volume":"21 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2018-12-15","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"121231607","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Facing the Future: A Blueprint for a Resilient and Equitable Society: Connecting the Functional Building Blocks","authors":"F. Bocken, E. Brennan, N. Claessens, D. Claeys, S. Debeaussaert, T. Dubois, A. Franken, B. Vanwyngaerden, J. R. N. Blanco, K. Becher, P. Vandenbroeck","doi":"10.11116/TDI2018.2.1","DOIUrl":"https://doi.org/10.11116/TDI2018.2.1","url":null,"abstract":"Abstract Contemporary society is plagued by a number of issues and inconsistencies on both an environmental and a socio-economic level. Reliance on bank loans forces debtors to seek means to repay their debts, thus facilitating the current boundless economic growth in which\u0000 long-term, environmental considerations typically come second. On the individual level, since virtually nothing is free, everyone has to ensure his or her own livelihood, mostly in the form of wage labour. For fear of poverty, the unemployed must adjust to the needs of the job market and risk\u0000 not being able to fully explore their potential. Other socio-economic groups also face stigmatisation, and inequality is rampant as a result of the pervasive market-based pricing mechanisms. In view of these issues, it seems unjustified to accept these terms and conditions in the future, especially\u0000 since the West has to cater to its ageing population and the ensuing pressure this will exert on welfare systems. Therefore, as a transdisciplinary team assisted by various experts and armed with insights from a wide variety of sources, we propose\u0000 an alternative model of society based on the values of fairness, inclusion and transparency, with the goal of developing a representative systems map for a future, resilient and equitable society. The exact workings of this society are captured by several\u0000 building blocks, which together endeavour to cover the full range of functions and responsibilities associated with society today, and jointly promote democratisation while guaranteeing equal political representation for all members of society.","PeriodicalId":316049,"journal":{"name":"Transdisciplinary Insights","volume":"2022 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2018-12-15","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"121379819","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"How Storytelling Can Combat Vaccine Hesitancy: a Transdisciplinary Approach","authors":"J. Laura, Kattumana Tarunjose, Konnova Angelina, Obasa Mojisola, Smlatic Enisa, Vandendriessche Valentine, Voragen Fleur, Boey Lise, Vandermeulen Corinne","doi":"10.11116/TDI2018.2.4","DOIUrl":"https://doi.org/10.11116/TDI2018.2.4","url":null,"abstract":"Abstract The recent decline in vaccination rates across Europe has led to outbreaks of vaccine preventable diseases such as measles. Although there have always been persons opposed to vaccination, in recent years an increasing number of parents are losing confidence in or\u0000 are being complacent about vaccinating their children. Given the accessibility of information on the internet, parents are actively and independently researching vaccines. They are exposed to negative claims about vaccines that appeal to their emotions and emotional stories tend make parents\u0000 doubt vaccinations. By contrast, most positive vaccine messages focus on providing information through scientific data which has proven to be ineffective for some hesitant parents.Vaccine hesitancy can only be understood by looking at it from different perspectives and by exchanging knowledge\u0000 between multiple fields of study. A transdisciplinary approach, in which individuals with different backgrounds search for solutions together, is necessary to be able to provide one or more solutions to the problem. Therefore, we spent eight months trying to solve part of this wicked problem from a transdisciplinary perspective. Based on literature reviews of different topics within vaccine hesitancy, interviews with hesitant parents, interactions with various stakeholders within and outside academia, and analyses of popular views on\u0000 social media concerning vaccines, we question the effectiveness of the current pro-vaccine approaches. We also suggest adopting ‘storytelling’ that incorporates scientific data to inform parents and we argue that narratives are intrinsically persuasive as they are easier to understand\u0000 and could prove more effective than traditional scientific communication. We expect that this strategy will contribute to the increase in and maintenance of high vaccination coverage rates and stop the circulation and outbreak of vaccine preventable diseases.","PeriodicalId":316049,"journal":{"name":"Transdisciplinary Insights","volume":"12 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2018-12-15","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"133217539","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}