{"title":"Myélome multiple et approche palliative des soins : étude théorique ancrée dans la pratique.","authors":"Ambereen Weerahandi, Shane Sinclair, Shelley Raffin-Bouchal, Linda Christine Watson, Laurie Lemieux","doi":"10.5737/23688076344550","DOIUrl":"10.5737/23688076344550","url":null,"abstract":"<p><strong>Objectif: </strong>Le myélome multiple est un cancer hématologique incurable. Pour alléger la souffrance, il est possible d'employer une approche palliative en conjonction avec un traitement curatif, mais cette approche est sous-utilisée chez les patients en hémato-oncologie. L'objectif de la présente étude est d'examiner l'expérience des personnes atteintes d'un myélome multiple qui reçoivent un traitement palliatif dans le cadre de leurs soins, et de comprendre comment ils perçoivent cette approche.</p><p><strong>Méthodologie: </strong>La présente étude suit le modèle de la théorie ancrée de Strauss. En tout, 10 personnes atteintes de myélome multiple y ont participé entre octobre 2021 et mai 2022.</p><p><strong>Résultats: </strong>Les chercheuses ont créé un modèle théorique illustrant le processus de l'expérience du myélome multiple. Les données ont permis d'extrapoler 7 catégories, ainsi qu'une catégorie centrale, c'est-à-dire « le fait d'exister dans l'espace liminal entre la vie avec le myélome multiple et la mort à cause de la maladie ». Selon les résultats, le recours à l'approche palliative manquait de constance.</p><p><strong>Conclusion: </strong>Le modèle conçu à partir des données recueillies auprès des participants rend compte de l'expérience du myélome multiple et de l'utilité de l'approche palliative.</p>","PeriodicalId":31563,"journal":{"name":"Canadian Oncology Nursing Journal","volume":"34 4","pages":"539-561"},"PeriodicalIF":0.0,"publicationDate":"2024-11-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11537437/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142591209","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"The role of mental health nursing in pediatric hematology/oncology - Part 3: Evaluating feasibility, acceptability, and appreciation.","authors":"Pascal Bernier, Leandra Desjardins, Marie-Claude Charette, Jacinthe Harnois, Éloise Poirier, Karyne Daigle","doi":"10.5737/23688076344514","DOIUrl":"10.5737/23688076344514","url":null,"abstract":"<p><strong>Introduction: </strong>In February 2022, we introduced the innovative new role of mental health nurse clinician (MHNC) in pediatric hematology/ oncology in a pediatric hospital in Quebec with the aim of better addressing the needs of young cancer patients and their families. In two previous articles, we explained the method used to develop the role, as well as the strategy employed to implement it.</p><p><strong>Objectives: </strong>In this article, we seek to evaluate the effectiveness of the implementation strategy by measuring role feasibility. We will also examine role acceptability and appreciation 1 year following implementation.</p><p><strong>Methodology: </strong>We asked three groups of participants (adolescents, parents and care providers) to complete a research questionnaire based on the Theoretical Framework of Acceptability (TFA), with good inter-rater reliability and discriminant validity. The questionnaire, which was made available online, consisted of statements with Likert-scale responses (from 1 to 5), as well as open questions. We performed a standard descriptive analysis and used the responses to the open questions to support or add nuance to the quantitative results.</p><p><strong>Results: </strong>In total, 31 healthcare professionals, 10 adolescent cancer patients and 10 parents of adolescent cancer patients filled out the questionnaire. Between February 2022 and February 2023, the MHNC provided a total of 691 interventions to 112 individuals (patients and parents). Follow-up sessions were offered to 61 individuals, and 99.6% of them accepted. We found a very strong correlation (r = 0.96) between the number of hours worked by the MHNC and the number of interventions provided. The vast majority of participants from all three groups agreed that the role is appropriate, appreciated and necessary, and that it brings much-needed clinical expertise in mental health to the department. Care providers, adolescents, and parents indicated that they would request this service again and would recommend it to others, if it were needed. The results, therefore, demonstrate excellent feasibility and high levels of acceptability and appreciation.</p><p><strong>Conclusion: </strong>Our study shows that the implemented MHNC role helps improve the clinical management of the mental health of adolescents with cancer, as well as their parents. The role brings much-needed expertise in psychiatric nursing care and supports the clinical practice of care providers. Another study will be conducted in the near future to measure the effectiveness of the MHNC's interventions.</p>","PeriodicalId":31563,"journal":{"name":"Canadian Oncology Nursing Journal","volume":"34 4","pages":"505-522"},"PeriodicalIF":0.0,"publicationDate":"2024-11-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11537428/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142591284","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Experiences and meaningfulness of breast cancer survivorship care in improving the quality of life of immigrant women: A qualitative systematic review.","authors":"Melba Sheila D'Souza, Tolulope Apelegan, Ashwin Abhijth Nairy","doi":"10.5737/23688076343304","DOIUrl":"10.5737/23688076343304","url":null,"abstract":"<p><strong>Introduction: </strong>Holistic healthcare approaches tailored to people's needs can enhance quality of life. However, needs of immigrant women in breast cancer survivorship have received little attention. Language barriers can result in significant challenges to accessing healthcare and difficulty in translating information from healthcare providers into self-management. The purpose of this review was to examine the experiences and meaningfulness of breast cancer survivorship care in improving the quality of life for immigrant breast cancer survivors.</p><p><strong>Methods: </strong>A qualitative systematic review using a systematic search of peer-reviewed and non-peer-reviewed articles of empirical research was conducted. Articles about immigrant women who were diagnosed, treated, and completed their initial course of breast cancer treatment were included. Exclusion criteria were non-immigrant women, men, younger than 18 years, no breast cancer diagnosis, not currently undergoing active or advanced treatment, and not receiving palliative or end-of-life care. Thematic synthesis and qualitative systematic review included studies of survivorship care targeting breast cancer treatment and post-treatment. Articles were obtained from PubMed/MEDLINE, CINAHL, Embase, PsycINFO, Web of Science, and Google Scholar searches, with findings configured according to the JBI methodology.</p><p><strong>Results: </strong>Twenty studies, most of moderate-to high-quality were included. The thematic synthesis identified two overall themes regarding breast cancer survivorship care, as well as subthemes for both. The subthemes of the first theme, challenges and experiences accessing and using healthcare services, were inadequate insurance and benefits, less acculturation and decision-making, discrimination and differential treatment, and influencing sociocultural factors. The subthemes of the second theme, facilitators and barriers to accessing and using healthcare services, included ineffective knowledge and communication, lack of continuity and information, cultural and language barriers, limited access to services, and quality of care.</p><p><strong>Conclusions: </strong>Supporting and engaging immigrant women throughout their breast cancer journey is critical. To do so requires integrating advancements in survivorship care as a systematic approach to lead to a better quality of life and improving patient-reported outcomes.</p>","PeriodicalId":31563,"journal":{"name":"Canadian Oncology Nursing Journal","volume":"34 3","pages":"304-356"},"PeriodicalIF":0.0,"publicationDate":"2024-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11534351/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142584433","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Riley Martens, Mary Hou, Susan Isherwood, Alison Hunter-Smith, May-Lynn Quan, Colleen Cuthbert
{"title":"Use and impact of virtual resources for peer support by young adults living with cancer: A systematic review.","authors":"Riley Martens, Mary Hou, Susan Isherwood, Alison Hunter-Smith, May-Lynn Quan, Colleen Cuthbert","doi":"10.5737/23688076343381","DOIUrl":"10.5737/23688076343381","url":null,"abstract":"<p><strong>Background: </strong>Young adults (YA) with cancer often have unmet psychosocial needs. The impact of peer support delivered in an online format to fulfil these needs in the populations of YA with cancer has not been thoroughly examined.</p><p><strong>Methods: </strong>We searched Cochrane Central Register of Controlled Trials, CINAHL, Embase, and Medline databases. We included articles about online peer support interventions for YA cancer survivors between the ages of 18 to 40 years old.</p><p><strong>Results: </strong>Our literature search yielded n = 2,773 articles and we obtained consensus on 12 articles for inclusion. We qualitatively synthesized these articles using data abstraction based on the Template for Intervention and Replication (TIDierR) checklist. Overall, six studies demonstrated correlation between online peer support and improved wellbeing of participants. Thus, online peer support may be useful for young cancer patients.</p><p><strong>Conclusion: </strong>This systematic review summarizes the current state of knowledge regarding the availability and evaluation of online YA peer support programs and reveals the need for further research in this field.</p>","PeriodicalId":31563,"journal":{"name":"Canadian Oncology Nursing Journal","volume":"34 3","pages":"381-403"},"PeriodicalIF":0.0,"publicationDate":"2024-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11534361/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142584439","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"The role of mental health nursing in pediatric hematology/oncology - Part 2: Developing an implementation strategy for an innovative practice.","authors":"Pascal Bernier, Leandra Desjardins, Marie-Claude Charette","doi":"10.5737/23688076343287","DOIUrl":"10.5737/23688076343287","url":null,"abstract":"<p><strong>Objective: </strong>The objective of this article is to describe the process of implementing and performing a preliminary assessment of an innovative mental health nursing practice in a pediatric hematology/oncology department. The preliminary assessment will help us determine whether the implementation strategy used was appropriate.</p><p><strong>Background: </strong>Pediatric cancers present patients and their families with many difficulties that can sometimes give rise to mental health issues during and after treatment. A mental health nurse clinician with expertise in hematology/oncology could help patients and families experiencing such issues by providing care that complements currently available psychosocial services. As implementing changes in practice is often challenging, and introducing a role without a clear plan can lead to failure, we decided it was important to develop a clear implementation strategy. Our project, which involves creating the role of a mental health nurse clinician (MHNC) in pediatric hematology/oncology, is divided into three stages: (1) development of the MHNC role, (2) development of an implementation strategy and (3) evaluation of role feasibility, acceptability and appreciation one year after implementation. In this article, we discuss the second stage. The objectives of this article are to (1) present the strategy involved in implementing the role of the MHNC and (2) report on the findings of a preliminary post-implementation assessment of the feasibility, acceptability and appreciation of the role for exploratory purposes.</p><p><strong>Methodology: </strong>The implementation strategy we developed was based on the approach proposed by Fry and Rogers (2009) and adapted to the context of our project. The five steps of the approach are: (1) the communication strategy, (2) the consultative process to define the role and scope of practice, (3) education, (4) the establishment of a support structure and (5) assessment and feedback mechanisms. This last step took the form of a preliminary exploratory assessment, which we performed by administering a survey to nurses, specialized nurse practitioners, and doctors three months after the MHNC role was implemented.</p><p><strong>Results: </strong>In the results section, we present our detailed five-step implementation plan. The preliminary results of the survey administered three months following implementation indicate that the MHNC worked an average of 150 hours a month and carried out 22.7 consultations and 52.3 follow-ups per month, the average length of which was 53.1 minutes. In all, 96% of the healthcare professionals who responded to the survey said that someone with this type of expertise is needed in pediatric hematology/oncology, and only 28% said that they themselves felt they had the knowledge and skills required to effectively manage the medications used to treat mental health disorders.</p><p><strong>Conclusion: </strong>Our results seem to con","PeriodicalId":31563,"journal":{"name":"Canadian Oncology Nursing Journal","volume":"34 3","pages":"281-292"},"PeriodicalIF":0.0,"publicationDate":"2024-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11534357/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142584437","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Long-term neurocognitive effects of chimeric antigen receptor T-cell therapy: Integrating assessments into nursing practice.","authors":"Emma McArthur","doi":"10.5737/23688076343293","DOIUrl":"10.5737/23688076343293","url":null,"abstract":"<p><p>Chimeric antigen receptor t-cell (CAR-T) therapy is a newly evolving therapy with well-known acute neurotoxic effects. While the long-term neurotoxic effects of this therapy are under-researched, they exist in subsets of the post-treatment population. Nurses can focus on assessments before and after CAR-T therapy to determine the degree to which these neurotoxic effects progress. These assessments include subjective and objective tools, as well as an understanding of risk factors associated with a higher degree of adverse cognitive events. By utilizing current research, hematological nurses can advocate for this unmet need to be monitored and intervened upon to improve patient outcomes.</p>","PeriodicalId":31563,"journal":{"name":"Canadian Oncology Nursing Journal","volume":"34 3","pages":"293-303"},"PeriodicalIF":0.0,"publicationDate":"2024-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11534354/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142584435","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Palliative Care Consult Team: Program evaluation over a 15-year period.","authors":"Anita Chakraborty, Kalli Stilos","doi":"","DOIUrl":"","url":null,"abstract":"","PeriodicalId":31563,"journal":{"name":"Canadian Oncology Nursing Journal","volume":"34 3","pages":"431-438"},"PeriodicalIF":0.0,"publicationDate":"2024-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11534358/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142584436","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"The role of the mental health nurse in pediatric hematology-oncology - Part 1: Developing an innovative practice.","authors":"Pascal Bernier, Leandra Desjardins, Marie-Claude Charette, Marie-Paule Latour, Marie-Pierre Bastien","doi":"10.5737/23688076343274","DOIUrl":"10.5737/23688076343274","url":null,"abstract":"<p><strong>Introduction: </strong>Pediatric hematological and oncological illnesses present many coping challenges. Mental health issues can arise during and after treatment, in both patients and their families. The current model of care does not always seem to meet the needs identified by some young patients. In Quebec, nurses are allowed to assess and care for patients experiencing physical and mental health difficulties (Ordre des infirmières et infirmiers du Québec, 2016). Therefore, a mental health nurse clinician (MHNC) with experience in pediatric hematology/oncology could provide care that is complementary to that offered by psychologists, social workers, and other psychosocial professionals in the pediatric hematology/oncology unit in order to meet any needs that remain unmet. The MHNC project has three stages: (1) role development, (2) role implementation, and (3) role assessment one year after implementation. In this first article, we explain how the MHNC role was developed.</p><p><strong>Methodology: </strong>We used the participatory, evidence-based, patient-focused process for advanced practice nursing (APN) role development, implementation, and evaluation (PEPPA Framework; Bryant-Lukosius & Dicenso, 2004) to develop this model. The first five steps in the PEPPA Framework were applied in the creation of the MHNC role to (1) select the target population, (2) identify the stakeholders to be involved, (3) ascertain needs, (4) determine and prioritize problems and set goals, and (5) define a new model of care.</p><p><strong>Results: </strong>After multiple meetings involving numerous health professionals and managers, the MHNC role was developed with a versatile, transdisciplinary perspective to address better the needs of young cancer patients (especially those in their teens) and their families. The role was developed around four main areas of practice: (1) interventions offered to patient-family, (2) interventions offered to health professionals, (3) psychiatric consultation-liaison, and (4) education and research.</p><p><strong>Conclusion: </strong>The next steps are to use a strategic plan to implement the role and then to evaluate the impact of the role one year after implementation.</p>","PeriodicalId":31563,"journal":{"name":"Canadian Oncology Nursing Journal","volume":"34 3","pages":"267-280"},"PeriodicalIF":0.0,"publicationDate":"2024-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11534363/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142584438","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Engaging stakeholders in research and quality improvement projects.","authors":"Margaret Fitch","doi":"","DOIUrl":"","url":null,"abstract":"","PeriodicalId":31563,"journal":{"name":"Canadian Oncology Nursing Journal","volume":"34 3","pages":"266"},"PeriodicalIF":0.0,"publicationDate":"2024-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11534362/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142584425","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}