Karine Bilodeau, Pegah Torabi, Charlotte Gélinas-Gagné, Billy Vinette, Pascale Rousseau, Benedicta Hartono, Ludovic Tamaro, Nicolas Fernandez
{"title":"Bridging gaps in cancer care for young adults: A collaborative e-learning initiative for oncology nurses.","authors":"Karine Bilodeau, Pegah Torabi, Charlotte Gélinas-Gagné, Billy Vinette, Pascale Rousseau, Benedicta Hartono, Ludovic Tamaro, Nicolas Fernandez","doi":"10.5737/23688076353496","DOIUrl":"10.5737/23688076353496","url":null,"abstract":"<p><strong>Background: </strong>The global incidence of cancer in young adults aged 18 to 39 has risen significantly, presenting unique challenges that permeate many aspects of their lives, from education to careers and finances. Despite expressing a desire for psychological support, many young adults are reluctant to share their concerns with nurses. As a result, these young adults may feel that their unique experience is not properly acknowledged and that their complex needs are not satisfied.</p><p><strong>Objectives: </strong>This project aims to share the experience of developing an e-learning training for continuous nursing education, focusing on enhancing nurses' awareness, knowledge, and support for young adults with hematological cancer through a collaborative approach.</p><p><strong>Methods: </strong>Utilizing verbatim data from co-design workshops, literature reviews, and The Leukemia & Lymphoma Society of Canada (LLSC) podcasts and resources, a multidisciplinary team developed three modules on understanding young adults, exploring psychosocial challenges, and providing effective support. Pedagogical approaches, inspired by Adult Learning Theory, were combined for a comprehensive and engaging learning experience.</p><p><strong>Findings: </strong>The collaborative e-learning initiative provides a tailored educational experience for nurses that addresses young adults' unique needs and challenges. The program's innovation consists of collaboration with patient-partners and community organizations to design, develop and evaluate its content and its structure. The preliminary evaluation highlights the program's strong potential to enhance nurses' awareness in addressing the unique psychosocial needs of young adults.</p>","PeriodicalId":31563,"journal":{"name":"Canadian Oncology Nursing Journal","volume":"35 3","pages":"496-517"},"PeriodicalIF":0.0,"publicationDate":"2025-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12379951/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144972200","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Solid reasons to equitably screen.","authors":"Nav Persaud, Aisha Lofters","doi":"","DOIUrl":"","url":null,"abstract":"<p><p>Preventive care can address inequities, or avoidable disparities in health outcomes. Preventive care, including screening for cardiovascular disease and cancer, and health promotion including offering counselling and preventive treatments, remains a routine part of primary care for good reasons. Here, we provide a fresh perspective on preventive care that focuses on health equity and we explain how centering on health equity can bring into focus the demonstrated benefits of screening in the context of other primary care interventions, the importance of patient preferences, and the relative magnitude of screening harms. Informed patients often prefer screening, and this should be offered where reasonable and the potential implications of negative screening recommendations for health equity should be carefully considered. The evidence for screening is better than the evidence of many other routine and uncontroversial aspects of care and the downsides of screening are sometimes overstated.</p>","PeriodicalId":31563,"journal":{"name":"Canadian Oncology Nursing Journal","volume":"35 3","pages":"518-521"},"PeriodicalIF":0.0,"publicationDate":"2025-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12379896/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144972168","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Thomas Christensen, Colleen Cuthbert, Melanie R Keats
{"title":"Informal cancer caregivers' perceptions on dyadic exercise with their care recipients.","authors":"Thomas Christensen, Colleen Cuthbert, Melanie R Keats","doi":"10.5737/23688076353446","DOIUrl":"10.5737/23688076353446","url":null,"abstract":"<p><strong>Purpose: </strong>To explore the needs, preferences, and opinions of informal cancer caregivers regarding exercise programs.</p><p><strong>Methods: </strong>Guided by an interpretative description approach, semi-structured interviews with eight informal cancer caregivers were conducted. Interviews were transcribed verbatim and analyzed using an iterative approach.</p><p><strong>Results: </strong>A throughline of missed opportunities to support informal cancer caregiver health with dyadic exercise programs under-pinned three themes in the data: (1) No Time for Exercise, (2) Lack of Oncology Care Team Support, and (3) Do It for Them. Each theme was characterized by opposing barriers and opportunities to participating in dyadic exercise programs.</p><p><strong>Conclusions: </strong>Informal cancer caregivers appear ready and willing to participate in dyadic exercise programs with their care recipient, yet opportunities and supports to do so are limited. Oncology nurses may play an important role in supporting their patients to be physically active through referrals to exercise programs led by qualified exercise professionals.</p>","PeriodicalId":31563,"journal":{"name":"Canadian Oncology Nursing Journal","volume":"35 3","pages":"446-462"},"PeriodicalIF":0.0,"publicationDate":"2025-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12379925/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144972225","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Melba Sheila D'Souza, Ruby Gidda, Subrahmanya N Karkada, Ashwin Nairy
{"title":"Determinants of supportive care experiences for women living with breast cancer in rural communities of British Columbia.","authors":"Melba Sheila D'Souza, Ruby Gidda, Subrahmanya N Karkada, Ashwin Nairy","doi":"10.5737/23688076353413","DOIUrl":"10.5737/23688076353413","url":null,"abstract":"<p><strong>Background: </strong>Enabling women with breast cancer to actively participate in their care requires a better understanding of the interplay between contextual factors and mediators. This research explored the determinants of supportive care experiences for women living with breast cancer in rural communities of British Columbia.</p><p><strong>Methods: </strong>The study used a quantitative, descriptive, cross-sectional design. A survey regarding demographic, health, decision support, and breast cancer supportive care experiences was administered to 100 participants.</p><p><strong>Results: </strong>The combination of being less than 40 years old, having an undergraduate education, and being three to five years post-diagnosis is associated with higher (more positive) total survey scores. A linear combination of undergraduate school and health problems post-treatment showed higher medical treatment scores, with R<sup>2</sup> = 23%.</p><p><strong>Conclusion: </strong>The findings emphasize the growing need for psychosocial and emotional supportive care for cancer survivors. The results highlight the potential benefits of informed decision-support tools to fortify supportive care, emphasizing the need to facilitate better supportive care services for women battling breast cancer.</p><p><strong>Recommendation: </strong>Supportive care plays a crucial role in guiding individuals' experiences with cancer through the healthcare system. Increasing supportive care centres, especially in rural areas, could improve patient-reported outcomes, and experiences, and ensure timely access to care.</p>","PeriodicalId":31563,"journal":{"name":"Canadian Oncology Nursing Journal","volume":"35 3","pages":"413-445"},"PeriodicalIF":0.0,"publicationDate":"2025-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12379899/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144972165","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Lauriane Giguère, Brittany Mutsaers, Dina Babiker, Paola Garcia, Tori Langmuir, Carrie MacDonald-Liska, Justin Presseau, Gail Larocque, Cheryl Harris, Marie-Hélène Chomienne, Kednapa Thavorn, Sophie Lebel
{"title":"Breast and colorectal cancer survivors' experience with transition to primary care provider follow-up care : A qualitative study on cancer type and sex.","authors":"Lauriane Giguère, Brittany Mutsaers, Dina Babiker, Paola Garcia, Tori Langmuir, Carrie MacDonald-Liska, Justin Presseau, Gail Larocque, Cheryl Harris, Marie-Hélène Chomienne, Kednapa Thavorn, Sophie Lebel","doi":"10.5737/23688076353463","DOIUrl":"10.5737/23688076353463","url":null,"abstract":"<p><p>As of 2024, 64% of cancer survivors live five years or longer after their treatment. However, this growing population, with its specific follow-up care needs, has struggled with the transition from active cancer treatment to follow-up in primary care. More information is required on what facilitates or hinders this transition. Potential factors that influence how cancer survivors experience this transition include sex and cancer type. Using secondary thematic and content analysis of 30 colorectal and breast cancer survivors interviews, we examined the impact of sex and cancer type on survivorship experiences. Themes extracted showed that sex and cancer type influenced survivors' experience of transition both intersectionally and separately. Colorectal cancer survivors reported more late and long-term side effects than breast cancer survivors, with differently described and experienced quality of life (QOL) and unmet needs. Males relied more on their wives to manage their follow-up care and were more distant with their healthcare providers, while females took charge of their own follow-up care and reported closeness to their healthcare providers, which favorably impacted their follow-up care transition.</p>","PeriodicalId":31563,"journal":{"name":"Canadian Oncology Nursing Journal","volume":"35 3","pages":"463-481"},"PeriodicalIF":0.0,"publicationDate":"2025-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12379927/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144972159","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Joanne Crawford, Elizabeth Holmes, Jagbir Kaur, Allison Wiens, Gabriella Wong Ken
{"title":"Advancing health equity for underserved and priority populations: CANO/ACIO and Canadian Cancer Society (CCS) Joint Symposium.","authors":"Joanne Crawford, Elizabeth Holmes, Jagbir Kaur, Allison Wiens, Gabriella Wong Ken","doi":"","DOIUrl":"","url":null,"abstract":"<p><p>Advancing health equity is imperative to reducing the current social and health inequities that impact those at risk of or diagnosed with cancer. The CANO/ACIO National Underserved and Priority Population (UPP) Working Group and the Canadian Cancer Society (CCS) partnered to create a forum for dialogue at a joint symposium during the 35<sup>th</sup> Annual Conference. The symposium began with a presentation of findings from a CCS-led nationwide project that focused on advancing equity for 10 underserved communities or groups. The aim of the CCS project was to understand gaps, barriers and challenges that underserved communities face in accessing information, support and care; the report is foundational to guide engagement efforts and strategies for key underserved groups across Canada. To situate the goals of advancing health equity, oncology nurses shared experiences of community engagement, partnerships and tools used in practice. This paper will provide a synthesis of the CCS report along with panel members' experience on ways in which healthy equity was advanced in their communities and settings.</p>","PeriodicalId":31563,"journal":{"name":"Canadian Oncology Nursing Journal","volume":"35 2","pages":"391-405"},"PeriodicalIF":0.0,"publicationDate":"2025-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12379901/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144971961","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Correlation of COOP/WONCA charts with the Spanish version of the Nottingham Health Profile for oncology patients and the Beck Inventories: Clinical implications.","authors":"Esther Soler Climent, Matilde Miguel Manzanera, Vanesa Pavia Miralles, Aitor Serrano Saez","doi":"10.5737/23688076352285","DOIUrl":"10.5737/23688076352285","url":null,"abstract":"<p><strong>Background: </strong>The rising prevalence of cancer presents a major public health challenge in Spain and globally. In 2023, the Spanish Society of Medical Oncology (SEOM) projected 279,260 new cancer cases in Spain, with colon, breast, lung, prostate, and bladder cancers being predominant. Cancer remains a leading cause of death worldwide, with 18.1 million new cases and 9.5 million deaths in 2018, expected to rise significantly by 2040. Given these alarming statistics, there is an urgent need to address the complex needs of cancer patients. This study assesses the psychometric properties of the COOP/WONCA charts and Nottingham Health Profile (NHP) in oncology patients, evaluating their correlation with the Beck Anxiety Inventory (BAI) and Beck Depression Inventory-II (BDI-2).</p><p><strong>Methods: </strong>An analytical observational cohort study included oncology patients from the General Hospital of Elche, Spain, undergoing chemotherapy and/or radiotherapy. The COOP/WONCA charts, NHP, BAI, and BDI-2 assessed health-related quality of life (HRQoL) and psychological states at baseline, 15 days after treatment initiation, monthly during treatment, and at the end of treatment. Correlations were analyzed using Pearson and Spearman coefficients.</p><p><strong>Results: </strong>Among 75 patients (36% men, 64% women), significant correlations were observed between COOP/WONCA charts and NHP dimensions, including energy (rho = 0.560), pain (rho = 0.520), physical movement (rho = 0.718), emotional reaction (rho = 0.662), sleep (rho = 0.486), social isolation (rho = 0.674), and functionality (rho = 0.778), all p < 0.001. HRQoL improvements were significantly correlated with reductions in anxiety and depression.</p><p><strong>Conclusion: </strong>The COOP/WONCA charts are effective tools for assessing HRQoL in oncology patients, correlating strongly with the NHP and psychological states measured by BAI and BDI-2. Future research should explore their applicability in diverse clinical settings and the development of personalized interventions integrating HRQoL assessments.</p>","PeriodicalId":31563,"journal":{"name":"Canadian Oncology Nursing Journal","volume":"35 2","pages":"285-303"},"PeriodicalIF":0.0,"publicationDate":"2025-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12379880/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144971998","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Ana Júlia Rozo, Milena Schneiders, Mateus Rodrigo Palombit, Kassiano Carlos Sinski, Rafael de Lima Carmo, Ana Cláudia Mesquita Garcia, Jeferson Santos Araújo, Júlia Valéria de Oliveira Vargas Bitencourt, Rosana Aparecida Spadoti Dantas, Vander Monteiro da Conceição
{"title":"Moral distress among family caregivers of people with cancer in palliative care: A qualitative study.","authors":"Ana Júlia Rozo, Milena Schneiders, Mateus Rodrigo Palombit, Kassiano Carlos Sinski, Rafael de Lima Carmo, Ana Cláudia Mesquita Garcia, Jeferson Santos Araújo, Júlia Valéria de Oliveira Vargas Bitencourt, Rosana Aparecida Spadoti Dantas, Vander Monteiro da Conceição","doi":"10.5737/23688076352361","DOIUrl":"10.5737/23688076352361","url":null,"abstract":"<p><p>The study aimed to understand the triggering events of moral distress according to the family caregivers of people with cancer in palliative care. This is a longitudinal qualitative approach study, using the concept of moral distress as an interpretative reference. Ten family caregivers participated in in-depth interviews. The data were analyzed according to the inductive thematic analysis technique, and two themes were identified. In the first theme, entitled \"The repercussions following diagnosis,\" participants reported the uncertainties they experienced following their family member's cancer diagnosis. In the second theme, entitled \"The transformation of daily life\", participants expressed how providing care for the family member with cancer changed their daily lives. While experiencing the role of a caregiver, they faced dilemmas and uncertainties that led them to feel moral distress, since this situation will follow them continuously until the outcome of the disease.</p>","PeriodicalId":31563,"journal":{"name":"Canadian Oncology Nursing Journal","volume":"35 2","pages":"361-375"},"PeriodicalIF":0.0,"publicationDate":"2025-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12379905/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144972032","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}