Kidney to SharePub Date : 2021-05-15DOI: 10.7591/cornell/9781501755439.003.0004
M. Gershun, J. Lantos
{"title":"Meeting “My” Recipient","authors":"M. Gershun, J. Lantos","doi":"10.7591/cornell/9781501755439.003.0004","DOIUrl":"https://doi.org/10.7591/cornell/9781501755439.003.0004","url":null,"abstract":"This chapter talks about the process of medical tests, information sessions, and psychological evaluations after Deb Porter Gill and the author matched with on all six HLA tissue type markers. The chapter displays the author's excitement to meet Deb, however, the Health Insurance Portability and Accountability Act (HIPAA) privacy rules preclude the hospital from disclosing a potential donor's name to an unrelated recipient. By fortunate coincidence, Deb was en route to spend a week in Kansas City when she read the author's Facebook message. They both agreed they should take advantage of this chance to meet in person. The chapter then narrates the conversation they had about writing and publishing, politics, child welfare, and everyone they knew in common.","PeriodicalId":297467,"journal":{"name":"Kidney to Share","volume":"25 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2021-05-15","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"133829883","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Kidney to SharePub Date : 2021-05-15DOI: 10.7591/cornell/9781501755439.003.0017
M. Gershun, J. Lantos
{"title":"Staying Healthy","authors":"M. Gershun, J. Lantos","doi":"10.7591/cornell/9781501755439.003.0017","DOIUrl":"https://doi.org/10.7591/cornell/9781501755439.003.0017","url":null,"abstract":"This chapter focuses on the author's set of self-imposed restrictions to be healthy in preparation for the surgery date. The chapter tells how the author managed to attend the synagogue's Rosh Hashanah services, where hundreds of people gathered for worship. It also discusses the CaringBridge site that the author set up to keep her family and friends updated throughout her surgery and recovery. It then highlights her support system: her girlfriends, her weekly walking buddy, and her fellow graduates of the Harvard Business School. Many more friends and family sent emails, messages on CaringBridge, and texts. Finally, the chapter narrates her preparation to leave for Rochester.","PeriodicalId":297467,"journal":{"name":"Kidney to Share","volume":"1 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2021-05-15","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"129425102","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Kidney to SharePub Date : 2021-05-15DOI: 10.7591/cornell/9781501755439.003.0007
M. Gershun, J. Lantos
{"title":"Are “Stranger Donors” Irrational?","authors":"M. Gershun, J. Lantos","doi":"10.7591/cornell/9781501755439.003.0007","DOIUrl":"https://doi.org/10.7591/cornell/9781501755439.003.0007","url":null,"abstract":"This chapter seeks to understand the motivations of people who offered to donate a kidney to a stranger. It explores the degree of emotional relationship that was essential to justify the claim that donation provided a psychological benefit to the donor. The chapter also mentions a law in the United Kingdom called the Unrelated Live Transplant Registry Authority which required organ donors to provide proof that they had a relationship with the recipient. In the United States, however, there is no federal legislation or public policy regulating stranger donors. The chapter then turns to discuss a study led by nephrologist Aaron Spital showing how attitudes within the transplant community gradually shifted from almost universal rejection of stranger donors to their gradual acceptance. It assesses the struggles that nephrologists went through in trying to determine whether such altruists were noble or irrational. Ultimately, the chapter offers a unique glimpse into the motivations of an altruistic donor and into the forms of skepticism that doctors and psychologists bring to evaluations of such donors.","PeriodicalId":297467,"journal":{"name":"Kidney to Share","volume":"19 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2021-05-15","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"121145391","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Kidney to SharePub Date : 2021-05-15DOI: 10.7591/cornell/9781501755439.003.0016
M. Gershun, J. Lantos
{"title":"Ethics, Organ Markets, and Dry Ice","authors":"M. Gershun, J. Lantos","doi":"10.7591/cornell/9781501755439.003.0016","DOIUrl":"https://doi.org/10.7591/cornell/9781501755439.003.0016","url":null,"abstract":"This chapter argues that thr author's dry ice saga graphically illustrates one of the central problems in organ donation today. It examines why most medical centers make it harder than is needed for people to donate organs. Advocates for markets in organs talk about the power of incentives, however, what we see today, is the power of disincentives. The chapter offers a better model to treat organ donors: to treat them like financial donors. Philanthropy professionals in medical centers around the country are expert at taking care of donors, making it easy for them to give, cultivating them, and showing gratitude. The chapter explores how organ donation programs could improve their customer service, and possibly retain more potential donors, if they developed the ethos of their philanthropy departments instead of the ethos of their surgery departments. The chapter also explains the logic of supply and demand in relation to the barriers of cost and inconvenience for people who are willing to donate. Ultimately, it presents the arguments of the opponents and the defenders of markets about the idea of legalized organ markets.","PeriodicalId":297467,"journal":{"name":"Kidney to Share","volume":"3 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2021-05-15","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"128259195","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Kidney to SharePub Date : 2021-05-15DOI: 10.7591/cornell/9781501755439.003.0011
M. Gershun, J. Lantos
{"title":"Paired Exchanges, Chain Donations, and Organ Markets","authors":"M. Gershun, J. Lantos","doi":"10.7591/cornell/9781501755439.003.0011","DOIUrl":"https://doi.org/10.7591/cornell/9781501755439.003.0011","url":null,"abstract":"This chapter introduces the use of an innovation called “paired exchange,” a way to encourage donations even when there is no match. The chapter shows a graphic presentation to simply describe the idea of paired donation exchange. It explains the risks of paired exchange for the donors' and recipients' perspective, arguing that the risks were the same from the donors' perspective, while the outcomes from the recipients' perspective would be much better as a result of receiving a histocompatible organ than they would be if they received their own designated recipient's organ. The chapter also offers some legal questions after lawyers wondered whether a paired kidney exchange was a sort of barter and thus the beginning of a gray market in organs. Ultimately, the chapter looks at another suggestion of creating a serial chain of donor–recipient pairs, with the world's first kidney–liver swap took place in 2017.","PeriodicalId":297467,"journal":{"name":"Kidney to Share","volume":"3 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2021-05-15","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"124261343","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Kidney to SharePub Date : 2021-05-15DOI: 10.7591/cornell/9781501755439.003.0018
M. Gershun, J. Lantos
{"title":"First Attempt","authors":"M. Gershun, J. Lantos","doi":"10.7591/cornell/9781501755439.003.0018","DOIUrl":"https://doi.org/10.7591/cornell/9781501755439.003.0018","url":null,"abstract":"This chapter begins with detailing the author's travel to Rochester for the upcoming surgery and the final pre-op tests. The chapter recounts the experience the author went through from the rigorous process and evaluation of managing the evaluation and testing schedule, working to get the blood pressure down, handling the packing and shipping for the lab kits, and staying healthy. It then presents all the risks of the surgery including the possibilities of bleeding and infection, and the unlikely event of needing to convert to an open procedure with a much more significant incision and longer recovery time. It also highlights the author's final appointment scheduled with a social worker assigned to her donor advocate. Ultimately, the chapter focuses on how the author managed her time in Rochester after the recipient's doctors found a lung infection and postponed the surgery. With the sudden turn of events, the chapter narrates the author's plan to just attend Yom Kippur Kol Nidre services, drive to the Twin Cities, and spend Yom Kippur day with her son and daughter-in-law.","PeriodicalId":297467,"journal":{"name":"Kidney to Share","volume":"88 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2021-05-15","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"126207219","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Kidney to SharePub Date : 2021-05-15DOI: 10.7591/cornell/9781501755439.003.0006
M. Gershun, J. Lantos
{"title":"Evaluation at Mayo","authors":"M. Gershun, J. Lantos","doi":"10.7591/cornell/9781501755439.003.0006","DOIUrl":"https://doi.org/10.7591/cornell/9781501755439.003.0006","url":null,"abstract":"This chapter begins with narrating the author's preparation for the required tests and evaluations at the Mayo Clinic. It reviews the two purposes of the tests and consultations: they were designed to ensure that donating an organ would not adversely impact the author's medical or emotional health in either the short or long term, and they wanted to be sure that her kidney would not hurt Deb Porter Gil, the recipients. The chapter also mentions a paper that reviewed fifty-two other studies on the health outcomes for 118,000 adult, living kidney donors over twenty-four years. It shows that the living kidney donors in the study had no increased risk for chronic diseases such as type 2 diabetes, hypertension, or cardiovascular disease; no adverse psychological outcomes; and they lived just as long as everyone else. Ultimately, the chapter recounts the author's 400-mile drive from Kansas City to Rochester and her meeting with the Mayo doctors.","PeriodicalId":297467,"journal":{"name":"Kidney to Share","volume":"20 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2021-05-15","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"132984947","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Kidney to SharePub Date : 1900-01-01DOI: 10.1515/9781501755453-fm
{"title":"Frontmatter","authors":"","doi":"10.1515/9781501755453-fm","DOIUrl":"https://doi.org/10.1515/9781501755453-fm","url":null,"abstract":"","PeriodicalId":297467,"journal":{"name":"Kidney to Share","volume":"2 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"1900-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"124545451","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Kidney to SharePub Date : 1900-01-01DOI: 10.1515/9781501755453-016
{"title":"14 The Countdown Begins","authors":"","doi":"10.1515/9781501755453-016","DOIUrl":"https://doi.org/10.1515/9781501755453-016","url":null,"abstract":"","PeriodicalId":297467,"journal":{"name":"Kidney to Share","volume":"40 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"1900-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"116867345","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Kidney to SharePub Date : 1900-01-01DOI: 10.1515/9781501755453-013
{"title":"11 The Odyssey Continues","authors":"","doi":"10.1515/9781501755453-013","DOIUrl":"https://doi.org/10.1515/9781501755453-013","url":null,"abstract":"","PeriodicalId":297467,"journal":{"name":"Kidney to Share","volume":"22 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"1900-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"126251661","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}