{"title":"Using Text Mining to Compare Research to Practice in the Use of a Social Networking Platform for Pain Management of Genetic Disorders","authors":"Sadaf Ashtari, Joseph Taylor, Sorio Boit","doi":"10.4018/ijpch.2020070101","DOIUrl":"https://doi.org/10.4018/ijpch.2020070101","url":null,"abstract":"Social media allows for the creation of communities of interest around a wide variety of medical conditions; one example of which is pain management. Pain management is a critical portion of the overall healthcare system, as evidenced by the pervasive opioid crisis in the United States. One population that struggles with pain management is communities that experience genetic disorders. The goal of this paper is to examine the findings of the extant academic literature regarding pain management for genetic disorders on social media and compare it with the actual posting of people on social media in regard to their chronic pain and pain management. The authors used text mining techniques of the Brandwatch application to analyze the users' posts on different social media platforms such as online discussion forum, blog, Tumblr, Twitter, YouTube, etc. The analysis demonstrates differences in the focus of scholarly inquiry regarding social media with user practice in relation to the topic of pain management.","PeriodicalId":296225,"journal":{"name":"International Journal of Patient-Centered Healthcare","volume":"60 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2020-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"127149334","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Wendy Rowan, Yvonne O’Connor, Laura Lynch, C. Heavin
{"title":"Beyond a “Take It” or “Leave It” Approach to eConsent Design on Health Social Networks","authors":"Wendy Rowan, Yvonne O’Connor, Laura Lynch, C. Heavin","doi":"10.4018/ijpch.2020070103","DOIUrl":"https://doi.org/10.4018/ijpch.2020070103","url":null,"abstract":"With the proliferation of eHealth resources promoting health data storage, analysis, and dissemination, it is important for individuals to understand the implications of sharing their highly sensitive personal health information (PHI) online. However, uncertainty remains about the level of individual awareness and understanding when sharing PHI on health social networks (HSN). This article explores individuals' emotion and cognition in the provision of eConsent for PHI on a HSN focusing on individual engagement of emotion pre- and post-registration. Prior to participants reading the HSN's privacy policy (PP) and terms and conditions (T&Cs), a ‘just click' behavior was widely observed. This article shows that educating users about the implications of T&Cs and PPs changes their attitudes toward giving eConsent. By exploring individual emotion and cognition, this study proposes guidelines for software developers designing eConsent for HSNs.","PeriodicalId":296225,"journal":{"name":"International Journal of Patient-Centered Healthcare","volume":"86 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2020-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"115651864","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Adolescent Sexual Reproductive Health Services in Bindura Urban of Zimbabwe","authors":"Jeffrey Kurebwa","doi":"10.4018/ijpch.2019070101","DOIUrl":"https://doi.org/10.4018/ijpch.2019070101","url":null,"abstract":"This study seeks to understand the capacity of adolescent-friendly reproductive health services (AFRHS) in promoting sexual reproductive health (SRP) among adolescents in Bindura Urban of Zimbabwe. The data collection methods used allowed the researcher to get insight on adolescents' experience and the factors associated with their accessing SRH services from AFRHS, the meaning of AFRHS for adolescents, healthcare providers' attitudes towards adolescents seeking SRH services, and community perceptions and readiness to accept AFRHS. The findings showed that both socio-cultural and health facility factors influence utilisation of SRH services. Many of these factors stem from the moral framework encapsulated in socio-cultural norms and values related to the sexual health of adolescents and healthcare providers' poor value clarification. This study provides an empirical understanding of the reasons and factors associated with SRH service utilisation, which goes much deeper than program provision of AFRHS in Zimbabwe.","PeriodicalId":296225,"journal":{"name":"International Journal of Patient-Centered Healthcare","volume":"19 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2019-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"116897470","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Organic Business Modeling and the Organism-Ecosystem Unit Duality","authors":"P. Washburn","doi":"10.4018/ijpch.20190701.oa1","DOIUrl":"https://doi.org/10.4018/ijpch.20190701.oa1","url":null,"abstract":"The health of a corporation relies most heavily upon healthy human beings' value-based productivity for optimal growth and evolution. A duality between personhoods and their respective systems' weighted impacts are in question, as the U.S. Healthcare industries weighted impact affects all other U.S.-GDP subsectors. The author performed an analysis of 21 main U.S.-GDP subsectors based on unclassified 1960-2014 U.S. Bureau of Economic Analysis reports. The author derived a [Consumption:Value] ratio-based equation, demonstrating results in [0.0,2.0] and U.S. dollar scales. The U.S.-GDP-Healthcare subsector increased its average annual consumption by $122,232,000,000 and was part of the U.S.-GDP's 71.4% demonstrating a reduced value ratio between 1960-1969 and 2005-2014. The author describe a weighted duality of personhoods classification, a potential ripple effect violation, and presents a new description of a pathologic, malignant organic business model due to a negatively balanced [Consumption:Value] alteration. These findings highlight reduced marginal utility and value of the U.S.-Healthcare subsector.","PeriodicalId":296225,"journal":{"name":"International Journal of Patient-Centered Healthcare","volume":"12 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2019-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"124963561","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Supporting Patient-led Initiatives to Improve Healthcare","authors":"M. Hosoda, M. Hosoda","doi":"10.4018/ijpch.20190701.oa2","DOIUrl":"https://doi.org/10.4018/ijpch.20190701.oa2","url":null,"abstract":"In modern times, the main disease structure has changed from infectious disease to chronic disease, and many people are now living with illness. Despite the patients' current situation, society still expects people with disease to behave consistently with the “Sick Role”, which Talcott Parson's previously defined. Once people are diagnosed, for example, as cancer patients, they may lose their jobs and social participation opportunities and their hope to live. To change this situation, people living with disease do a variety of things, for instance, changing their illness image and repelling social stigma, by collaborating with other stakeholders such as medical and health professionals, persons from the workplace, fellow patients, and their community. The actions undertaken by patients in cancer and ME/CFS support groups and prefectural Medical Councils in Japan as well as patients' collaboration with various stakeholders can be seen as a form of health governance. Patient-led initiatives are critical for the overall amelioration of healthcare.","PeriodicalId":296225,"journal":{"name":"International Journal of Patient-Centered Healthcare","volume":"17 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2019-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"123424001","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Neuroeconomic Psychology","authors":"T. Larsen","doi":"10.4018/ijpch.2019010101","DOIUrl":"https://doi.org/10.4018/ijpch.2019010101","url":null,"abstract":"A neuroeconomic decision-making model identifies risk-preference as the basal parameter of economic behavior. Other studies show that persons differentiated by weak, medium, and strong risk-preference have separate behavioral patterns. However, general personality psychology identifies five different personality types. A study of the relationship between risk-preference and personality type shows complementarity and strong correlation between risk-preference and extreme personality types “extravert” and “risk-averter.” The moderated personality types “open-minded,” “respective,” “agreeable,” or “conscientious” behave risk neutral with an internal order according to degree of flexibility. The integrated model of neuroeconomic psychology operates in three complementary cognitive tools: general skills to differentiate between the five types of economic agents is relevant for collaboration; the substance of the moderated personality types is the dual thinking process; and to handle stress the action-mechanism of classical mantra-meditation is explained as reinforcing open-mindedness.","PeriodicalId":296225,"journal":{"name":"International Journal of Patient-Centered Healthcare","volume":"39 5 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2019-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"126040053","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
P. Padungsutt, W. Tassanawipas, Agripino Beng Javier, Paul Nierva
{"title":"Utility and Acceptability of Perskindol Spray and Gel as a Topical Treatment for Musculoskeletal Pain","authors":"P. Padungsutt, W. Tassanawipas, Agripino Beng Javier, Paul Nierva","doi":"10.4018/ijpch.2019010103","DOIUrl":"https://doi.org/10.4018/ijpch.2019010103","url":null,"abstract":"Perskindol (study treatment) is a topical pain treatment in gel or spray form which contains menthol and herbal components. These two open-label, prospective, nonrandomized monadic studies in the Philippines and Thailand investigated the utility and acceptability of the study treatment for musculoskeletal pain. Adults with musculoskeletal pain were advised to use the study gel or spray as needed for up to 7 days. Their usage, perceptions, and response to treatment were assessed by patient diary and structured questionnaire. At study end, patients from both studies generally rated the study treatment higher in terms of ease of use, onset, and duration of pain relief, low potential for skin irritation and overall rating compared with their previous treatment. Differentiation analysis showed that the study treatment addressed patient preferences perceived as important, which were rapid relief of pain and ease of use. These findings suggest that the study spray and gel are useful and acceptable topical treatments for musculoskeletal pain and may be considered in self-directed pain management.","PeriodicalId":296225,"journal":{"name":"International Journal of Patient-Centered Healthcare","volume":"31 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2019-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"121925407","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Chronic Illnesses, Vulnerability, and Uncertainty","authors":"E. C. D. S. Marco, E. Vegni, L. Borghi","doi":"10.4018/ijpch.2019010104","DOIUrl":"https://doi.org/10.4018/ijpch.2019010104","url":null,"abstract":"The goal of this chapter is to describe some of the recent challenges that modern medicine is facing using patient-centered medicine as a theoretical frame of reference. First, the work will describe the origin, the development, and the main implications of patient-centered medicine (PCM). Then, it will address the critical increase of chronic illnesses and how PCM could be the best-suited theoretical framework for enhancing patient engagement and coping with chronicity. Additionally, it will address the difficulties raised by increased uncertainty in medical practice, especially from the physicians' point of view. Finally, a relationship-centered care (RCC) will be proposed as a more effective theoretical perspective than PCM to deal with uncertainty and its impact on the patients' and physicians' inner life.","PeriodicalId":296225,"journal":{"name":"International Journal of Patient-Centered Healthcare","volume":"159 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"1900-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"127559075","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}