A. Powell, Ami Morseu-Diop, Maya Morton Ninomiya, U. Yadav, E. Phillips, L. Whop, D. Singh, Tamara L. Butler, E. Allanson
{"title":"Review of gynaecological cancer among Aboriginal and/or Torres Strait Islander people in Australia","authors":"A. Powell, Ami Morseu-Diop, Maya Morton Ninomiya, U. Yadav, E. Phillips, L. Whop, D. Singh, Tamara L. Butler, E. Allanson","doi":"10.14221/2653-3219.1029","DOIUrl":"https://doi.org/10.14221/2653-3219.1029","url":null,"abstract":"","PeriodicalId":263246,"journal":{"name":"Journal of the Australian Indigenous HealthInfoNet","volume":"64 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2023-05-16","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"127039905","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Review of diabetes among Aboriginal and Torres Strait Islander people","authors":"S. Burrow, K. Ride","doi":"10.14221/aihjournal.v3n2.1","DOIUrl":"https://doi.org/10.14221/aihjournal.v3n2.1","url":null,"abstract":"Diabetes is the fastest growing chronic disease condition globally. Type 2 diabetes in particular, has reached epidemic proportions, with the greatest burden falling on socially disadvantaged groups and Indigenous peoples. This review focuses primarily on type 2 diabetes among Aboriginal and Torres Strait Islander people, which is responsible for the majority of cases of diabetes in this population. It provides general information on the social and cultural context of diabetes, and the behavioural and biomedical factors that contribute to diabetes among Aboriginal and Torres Strait Islander people. This review provides detailed information on: the extent of diabetes among Aboriginal and Torres Strait Islander people, including incidence and prevalence data; hospitalisations; mortality and burden of disease the prevention and management of diabetes relevant programs, services, policies and strategies that address the health issue of diabetes among Aboriginal and Torres Strait Islander people two special population groups: adolescents pregnant and post-partum women. This review concludes by suggesting possible future directions for combatting the growing epidemic of diabetes among Aboriginal and Torres Strait Islander people. This review is part of a suite of knowledge exchange products that includes a summary, a video, and a fact sheet.","PeriodicalId":263246,"journal":{"name":"Journal of the Australian Indigenous HealthInfoNet","volume":"106 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2016-07-04","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"126674792","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
M. Symons, David Tucker, K. Bruce, Annalee E. Stearne, Annette Kogolo, M. Carter, J. Oscar, Glenn Pearson, James P Fitzpatrick
{"title":"The Development and Implementation of a Culturally Safe Survey for Measuring Knowledge, Attitudes and Values around FASD and Alcohol Use During Pregnancy in a Remote Australian Aboriginal Community Setting","authors":"M. Symons, David Tucker, K. Bruce, Annalee E. Stearne, Annette Kogolo, M. Carter, J. Oscar, Glenn Pearson, James P Fitzpatrick","doi":"10.14221/aihjournal.v2n3.2","DOIUrl":"https://doi.org/10.14221/aihjournal.v2n3.2","url":null,"abstract":"Fetal Alcohol Spectrum Disorder (FASD) describes a lifelong neurodevelopmental disability caused by prenatal alcohol exposure that has a devastating impact on individuals, families and communities. The prevalence of FASD is high in some Indigenous communities around the World and the only active case ascertainment prevalence study conducted in Australia found a rate of 19.44 per 100 children in the remote Fitzroy Valley region of Western Australia. Following this study community led FASD prevention activities were implemented under the Marulu (“Worth Nurturing”) Strategy in the Fitzroy Valley. A Knowledge, Attitudes and Practices survey was designed to assess the impact of the prevention campaign and gather more information about knowledge of the dangers of alcohol use in pregnancy and FASD, local attitudes, and health behaviours both around alcohol and more generally including where residents received their health information. Best practices recommend including local Aboriginal people in the development of surveys and aiming to achieve cultural security. Actions taken included consulting with local health workers during survey development, translation of key sections of the survey into the local Kimberley Kriol, and performing the surveys with the assistance of Aboriginal Community Researchers. The full survey is made available in this paper. The surveys were conducted with 200 community members during August 2015 and 203 in October 2015. Surveys were updated between the first and second waves based on learnings during implementation. Key implementation details around weather and timing, gender/kinship issues, group participation, declining participation, problematic questions and responses to the survey are described. Cultural safety was achieved but further steps could be taken to ensure future cultural security by embedding cultural safety protocols in the survey and further community consultation.","PeriodicalId":263246,"journal":{"name":"Journal of the Australian Indigenous HealthInfoNet","volume":"7 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"1900-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"114521592","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Johanna Neville, Allison Hempenstall, Caroline Taunton, Valmay Fisher, Malcolm I McDonald
{"title":"Brief Report: Out of Sight Out of Mind - Preventable Childhood Kidney Disease in the Far North","authors":"Johanna Neville, Allison Hempenstall, Caroline Taunton, Valmay Fisher, Malcolm I McDonald","doi":"10.14221/aihjournal.v4n2.8","DOIUrl":"https://doi.org/10.14221/aihjournal.v4n2.8","url":null,"abstract":"APSGN is an immune-mediated kidney disease that occurs after a Streptococcus pyogenes skin or throat infection in children and contributes to chronic kidney disease later in life. It is a disease of poverty and regrettably common in Aboriginal and Torres Strait Islander children. There have been seven documented APSGN outbreaks across Far North Queensland in the last nine years. Despite this disease being notifiable in both Western Australia and the Northern Territory, Queensland is yet to acknowledge the importance of early notification in the management of APSGN. Notification-driven publication of APSGN incidence should help raise its profile and stimulate better public health policy.","PeriodicalId":263246,"journal":{"name":"Journal of the Australian Indigenous HealthInfoNet","volume":"4 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"1900-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"128484573","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Review of Fetal Alcohol Spectrum Disorder (FASD) among Aboriginal and Torres Strait Islander people","authors":"Sharynne L. Hamilton, M. Doyle, Carol Bower","doi":"10.14221/aihjournal.v2n1.1","DOIUrl":"https://doi.org/10.14221/aihjournal.v2n1.1","url":null,"abstract":"Fetal Alcohol Spectrum Disorder (FASD) is a preventable, lifelong disability that disproportionately affects Aboriginal and Torres Strait Islander people. This review provides a comprehensive synthesis of the available information on FASD among Aboriginal and Torres Strait Islander people, with reference to the limitations on population-based data and evaluated programs. The review outlines; the harms of alcohol use in the context of colonisation, cultural perspectives on assessment and diagnosis, effective prevention programs and a summary of state and national policies. Health impacts, educational outcomes and the effects of FASD on vulnerable populations such as children in protection and young people in the justice system, are also discussed. Specific perspectives on why women drink during pregnancy and the role of Aboriginal women in preventing FASD are explored. Recommendations include that there be greater focus on the benefits of involving men in the prevention and management of FASD and that future FASD prevention strategies for Aboriginal and Torres Strait Islander people should be community identified, led, and driven. FASD assessment, treatment and public health programs must also consider the history of trauma incurred by Aboriginal and Torres Strait Islander communities as a result of colonisation.","PeriodicalId":263246,"journal":{"name":"Journal of the Australian Indigenous HealthInfoNet","volume":"5 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"1900-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"131212726","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Intellectual Disability in the Australian Aboriginal Population: A Critical Review","authors":"Ryan YJ Chong, R. Bhandarkar","doi":"10.14221/aihjournal.v2n3.5","DOIUrl":"https://doi.org/10.14221/aihjournal.v2n3.5","url":null,"abstract":"Objectives Aboriginal and Torres Strait Islander people are the Indigenous population of Australia. Australian Aboriginal people represent a small percentage of the overall Australian population. However, this population group has a higher rate of Intellectual Disability when compared to the non-Indigenous Australian population. This article aims to review the current literature regarding Intellectual Disability in the Australian Aboriginal Population, build on the current evidence base for Intellectual Disability specific to the Australian Aboriginal population, investigate if any changes to the evidence base have occurred, and identify areas where further research is required. This is in comparison to a literature review completed by Roy and Balaratnasingam in 2014. Methods Literature review. Results The literature review affirms that there exists a disproportionate representation of Intellectual Disability in the Australian Aboriginal population. It highlights the current focus on predisposing risk factors and the resulting risks associated with Intellectual Disability. It also highlights the current lack of evidence-based research around interventions for Intellectual Disability in the Australian Aboriginal population. Conclusions Australian Aboriginal people are disproportionately affected by Intellectual Disability which, as mental health practitioners in Australia, we believe is an area that urgently requires further research and redress. This literature review summarises the current evidence base and identifies potential areas for further research.","PeriodicalId":263246,"journal":{"name":"Journal of the Australian Indigenous HealthInfoNet","volume":"19 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"1900-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"124776481","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"An exploration of interventions for healing intergeneration trauma to develop successful healing programs for Aboriginal Australians: A literature review","authors":"Alison Simpson, W. Abur, J. Charles","doi":"10.14221/aihjournal.v1n1.1","DOIUrl":"https://doi.org/10.14221/aihjournal.v1n1.1","url":null,"abstract":"Introduction Health outcomes and life expectancy of Indigenous people throughout the world are far poorer than non-Indigenous populations. Emerging evidence from research shows that many social issues which impact on Indigenous peoples globally is linked to trauma over generations. This review explores literature about Indigenous people from around the world to seek interventions which have been successful in healing intergenerational trauma. Method To identify interventions that have been successful in healing intergenerational trauma amongst Indigenous populations globally, a systematic search strategy was conducted using keywords and synonyms related to the topic. Peer reviewed academic literature was sourced from four different databases i.e. Ebscohost, PubMed, CINAHL and Medline. Results There were 89 citations, 55 were identified as relevant, after duplicate copies were removed. Of these 55 papers, 23 met inclusion/exclusion criteria. Two additional papers from a reference lists were included and a total of 25 papers were analysed. A comprehensive critical appraisal of the literature was undertaken using three different appraisal tools. This review found that interventions which were successful in healing intergenerational trauma amongst Indigenous populations incorporated traditional cultural practices within their healing method(s). Discussion There was strong evidence that strengthening and reclaiming cultural identity enhances mental health disorders commonly experienced throughout Indigenous populations. Often non-Indigenous clinicians, although well intentioned, fail to address the needs of Indigenous people because they lack the understanding and awareness of Indigenous people’s culture. This review highlights benefits of blending Indigenous and Western approaches into healing intergenerational trauma and the concept of ‘Two-Eyed Seeing’. This concept acknowledges that each of our worlds has its strengths and if we respectfully and methodically accept these strengths, they can work together and effectively to bring about healing. Conclusion Healing from intergenerational trauma is not a straightforward process. Incorporating traditional healing methods assists in the development of cultural identity, which was found to be extremely important in the healing process. To address trauma effectively, clinicians need to acknowledge the historical impact from public policies by having a real understanding of our history.","PeriodicalId":263246,"journal":{"name":"Journal of the Australian Indigenous HealthInfoNet","volume":"22 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"1900-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"122295145","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Examining the Associations Between Experiences of Perceived Racism and Drug and Alcohol Use in Aboriginal Australians","authors":"V. Gentile, A. Carter, Laura Jobson","doi":"10.14221/aihjournal.v3n1.3","DOIUrl":"https://doi.org/10.14221/aihjournal.v3n1.3","url":null,"abstract":"Objective This study aimed to explore the relationships between experiences of perceived racism, mental health and drug and alcohol use among Aboriginal Australians. Method Sixty-two Aboriginal Australians, ranging in age from 19-64 years (Mage = 33.71, SD = 12.47) and residing in Victoria completed an online questionnaire containing measures of perceived racism, alcohol use, substance use and mental health. Results First, 66% of the sample reported experiencing interpersonal racism, with the highest proportion of reported experiences occurring in health settings, educational/academic settings and by staff of government agencies. Second, perceived racism was significantly associated with poorer mental health and well-being. Finally, while perceived racism was not significantly associated with substance use, there was an indirect pathway from perceived racism to substance use through mental health concerns. Conclusions The current research indicates that racism is still frequently experienced by Aboriginal Australians and is directly associated with poorer mental health, and indirectly with substance use through poorer mental health. The findings demonstrate a clear need for further research in this area.","PeriodicalId":263246,"journal":{"name":"Journal of the Australian Indigenous HealthInfoNet","volume":"1 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"1900-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"130097510","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
P. Cashman, S. Munnoch, K. Clark, Natalie Allan, Stephen Clarke, K. Macartney, D. Durrheim
{"title":"The Aboriginal gap in online active vaccine safety surveillance","authors":"P. Cashman, S. Munnoch, K. Clark, Natalie Allan, Stephen Clarke, K. Macartney, D. Durrheim","doi":"10.14221/aihjournal.v1n1.3","DOIUrl":"https://doi.org/10.14221/aihjournal.v1n1.3","url":null,"abstract":"Objectives: To investigate if Aboriginal people are equally included in new forms of vaccine safety post-marketing surveillance that support safety signal detection and confidence in the vaccine program by comparing the use of Vaxtracker active adverse events following immunisation (AEFI) surveillance between Aboriginal and non-Aboriginal parents of vaccinated children. Methods: In 2016, automated AEFI surveillance was conducted to monitor seasonal influenza vaccine in children aged 18 months to less than 5 years and for DTPa vaccine after the inclusion of a new dose at 18 months of age. To explore reasons for non-response, Aboriginal Immunisation Officers contacted the parents/carers of 24 (48.0%) Aboriginal children and 31 (26.7%) non-Aboriginal children who did not respond to the online survey. Results: There were differential response rates for both vaccines between Aboriginal and non-Aboriginal enrolees; 56.4% vs 76.8% (p=0.005) and 55.1% vs 78.2% (p Conclusion: New systems of vaccine safety surveillance may not adequately include Aboriginal people. Implications: Vaccine safety surveillance systems need to be designed to ensure high levels of participation and response from Aboriginal people.","PeriodicalId":263246,"journal":{"name":"Journal of the Australian Indigenous HealthInfoNet","volume":"8 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"1900-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"130267633","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Tracy McRae, J. Jacky, Janine McNamara, Slade Sibosado, Janella Isaac, J. Augustine, Rosanna Smith, J. Bunning, A. Bowen
{"title":"Keeping it real: Virtual connection with SToP trial community navigators","authors":"Tracy McRae, J. Jacky, Janine McNamara, Slade Sibosado, Janella Isaac, J. Augustine, Rosanna Smith, J. Bunning, A. Bowen","doi":"10.14221/aihjournal.v1n1.5","DOIUrl":"https://doi.org/10.14221/aihjournal.v1n1.5","url":null,"abstract":"Building trust and forging relationships with remote Aboriginal communities is an essential element of culturally informed, reciprocal research. Historically these relationships have been formed over-time where community members and researchers come together face to face to share their knowledge and yarn in both an informal and formal manner. Researchers from Telethon Kids Institute are partnering with local stakeholders and remote Aboriginal communities in the Kimberley, Western Australia (WA) to support healthy skin through the SToP (See, Treat, Prevent skin sores and scabies) Trial. The SToP trial, a collaboration between Telethon Kids Institute, Kimberley Aboriginal Medical Services (KAMS), Nirrumbuk Environmental Health Services and Western Australia Country Health Services (WACHS) – Kimberley is a clustered randomised trial with a stepped-wedge design. SToP trial consultation with stakeholders and communities commenced in 2016 to proceed consenting in 2018 and trial commencement in 2019. Since that time, the SToP trial team have been conducting intermittent fieldwork in nine remote Aboriginal communities in the Kimberley. However, due to the COVID-19 pandemic when Aboriginal health leaders recommended a cessation to research related travel in northern WA from March 11, 2020 to prevent the incursion of COVID-19 into Aboriginal communities with health vulnerabilities, crucial face-to-face yarning was no longer possible. At the time it appeared the existing relationships with communities involved in our research (the SToP trial) would be challenging to maintain without this ability to visit the communities. Fortunately, when tested, this assumption was erroneous. Here we report the successful use of technology to bridge the inability to visit communities in 2020 due to COVID-19. The Telethon Kulunga Aboriginal Unit (Kulunga) and SToP trial team members were able to connect virtually with Community Navigators from the Dampier Peninsula communities. The initial virtual meeting using Microsoft Teams technology involved four Community Navigators and their mentor, three Telethon Kids Institute and five Kulunga staff members. Community Navigators joined Microsoft Teams from their respective communities and Kulunga and Telethon Kids Institute staff joined from their homes. Not only was this an exciting new way of communicating, it enabled existing relationships to continue to be strengthened. Since the initial meeting, the teams have continued to meet virtually, and plan SToP trial health promotion activities including a community-driven, collaborative music video. While the significance of face-to-face yarning can never be overstated, having to adjust to a new way of yarning has reiterated the importance of connection, albeit virtually. Unfortunately, due to technical limitations, intermittent internet connectivity and various other challenges, there has been no opportunity to engage virtually with SToP trial communities in the East Kimberley. Howev","PeriodicalId":263246,"journal":{"name":"Journal of the Australian Indigenous HealthInfoNet","volume":"1 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"1900-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"129289929","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}