B9. B009 PATIENT, FAMILY, AND PROVIDER EXPERIENCES IN CRITICAL CARE AND CHRONIC PATIENT MANAGEMENT最新文献

{"title":"COVID-19 Pandemic: Impact on Nurses Working in Critical Care in the United States","authors":"J. Guttormson, K. Calkins, N. McAndrew, J. Fitzgerald, H. Losurdo, D. Loonsfoot","doi":"10.1164/ajrccm-conference.2021.203.1_meetingabstracts.a1087","DOIUrl":"https://doi.org/10.1164/ajrccm-conference.2021.203.1_meetingabstracts.a1087","url":null,"abstract":"Rationale: It is likely the COVID-19 pandemic has and will continue to have a tremendous influence on intensive care unit (ICU) nurses' mental health and continuation in the critical care work force. The purpose of this study is to describe the impact of COVID-19 on nurse moral distress, burnout, anxiety, and depression. Methods: This descriptive study recruited a national sample of nurses that have worked in the ICU during the COVID-19 pandemic through American Association of Critical Care Nurses newsletters and social media (Twitter;Facebook). Reliable and Valid measures included: Measure of Moral Distress in Healthcare Professionals, Professional Quality of Life Scale, and the Patient Health Questionnaire Anxiety and Depression Scale. Results: The survey was launched in November 2020 and data collection is ongoing. To date, 498 nurses have completed the survey. Staff nurses comprise 90% of respondents with the majority working in a University Medical Center or a community hospital. Of the respondents, 28% were reassigned to a COVID unit other than their usual ICU. The majority (71%) experienced a shortage of personal protective equipment (PPE). Analysis of respondent anxiety, depression, burnout, and moral distress will be completed after the survey closes at the end of December 2020. Conclusion: To fully support nurses working on the frontline, we must understand the impact of the pandemic on ICU nurses. Results from this study will be used to develop recommendations for supporting nurses as the pandemic continues, as well as after the crisis. Improving the well-being of ICU nurses and decreasing nurse turnover are urgent critical care research and practice priorities. This study offers important insights about the mental health of nurses during a global pandemic that can guide the development of tailored interventions for ICU nurses.","PeriodicalId":249164,"journal":{"name":"B9. B009 PATIENT, FAMILY, AND PROVIDER EXPERIENCES IN CRITICAL CARE AND CHRONIC PATIENT MANAGEMENT","volume":"88 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"1900-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"127142152","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Physical Function, Symptoms and Health-Related Quality of Life in Pulmonary Arterial Hypertension","authors":"L. Matura, J. Fargo, J. Fritz, A. Smith, J. Mazurek, D. Pinder, C. Archer-Chicko, H. Palevsky, C. Burwell, K. Mark, A. Pack, M. Sommers, S. Kawut","doi":"10.1164/ajrccm-conference.2021.203.1_meetingabstracts.a1085","DOIUrl":"https://doi.org/10.1164/ajrccm-conference.2021.203.1_meetingabstracts.a1085","url":null,"abstract":"","PeriodicalId":249164,"journal":{"name":"B9. B009 PATIENT, FAMILY, AND PROVIDER EXPERIENCES IN CRITICAL CARE AND CHRONIC PATIENT MANAGEMENT","volume":"382 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"1900-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"128650195","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Parent Experience of Neonatal Hospitalization During the COVID-19 Pandemic","authors":"A. Vance, K. Malin, C. Shuman, T. A. Moore","doi":"10.1164/ajrccm-conference.2021.203.1_meetingabstracts.a1083","DOIUrl":"https://doi.org/10.1164/ajrccm-conference.2021.203.1_meetingabstracts.a1083","url":null,"abstract":"Rationale: Prior to the COVID-19 pandemic, parental presence was encouraged through unrestricted visitation and family-centered care practices in neonatal intensive care units (NICU). Parental caregiving is essential to an infant's healthy development, especially during hospitalization. Parental presence encourages attachment, improves parental well-being and confidence, enhances management of illness, and promotes continuity of care. By examining parental experience of hospitalization during the pandemic, we can better understand parental needs during neonatal hospitalization. Therefore, our objective was to describe the impact of neonatal hospitalization during the COVID-19 pandemic from the parent perspective Methods: We conducted an online survey to explore parent's experiences of neonatal hospitalization during the first 6 months of the COVID-19 pandemic. We invited parents to participate via social media through parental support groups. Inclusion criteria included having an infant admitted to a NICU between February 1-July 31, 2020. We used a thematic analytic approach to identify shared patterns of how parents experienced their child's NICU stay. Free text responses from five open-ended questions covering topics such as visitation experience, transition home, and clinician interactions were analyzed using NVivo 11 qualitative data analysis software. Results: Of the 178 survey respondents, 169 answered one or more of the open-ended questions. We focused on examining continuities and discontinuities of parents' perspectives of neonatal hospitalization within the context of COVID-19. Through this lens, we identified three broad themes: 1) Parents' NICU experiences during COVID-19 were emotionally isolating and overwhelming, 2) Restrictive visitation policies split the family unit, and 3) Interactions with NICU staff exacerbated or mitigated the emotional strain on parents (figure 1). To quote a parent, “hospital policies [were] not in touch with the reality of families, making the impossible pain of [having] a baby in the NICU even more impossible.” Overall, parents of infants in the NICU experienced and expressed feelings of painful separation, disconnection, isolation, splitting, and alienation. Parents desired more empathy from providers and hospital administrators. Conclusions: Parental distress and disconnection were exacerbated amidst neonatal hospitalization during COVID-19. Perceived lack-of empathy and restrictive policies intensified parental distress related to lack of support, separation and isolation. Parents expressed a strong desire to engage in decision making and advocated for the value of connection and community during these challenging times. NICU clinicians need to support parents with empathy and connection to mitigate parental distress. (Table Presented).","PeriodicalId":249164,"journal":{"name":"B9. B009 PATIENT, FAMILY, AND PROVIDER EXPERIENCES IN CRITICAL CARE AND CHRONIC PATIENT MANAGEMENT","volume":"109 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"1900-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"117281882","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Nurse-Led Palliative Care Improves Knowledge and Preparedness in Caregivers of Patients with Idiopathic Pulmonary Fibrosis","authors":"K. Lindell, S. Klein, M. Veatch, K. Gibson, D. Kass, S. Nouraie, M. Rosenzweig","doi":"10.1164/ajrccm-conference.2021.203.1_meetingabstracts.a1084","DOIUrl":"https://doi.org/10.1164/ajrccm-conference.2021.203.1_meetingabstracts.a1084","url":null,"abstract":"","PeriodicalId":249164,"journal":{"name":"B9. B009 PATIENT, FAMILY, AND PROVIDER EXPERIENCES IN CRITICAL CARE AND CHRONIC PATIENT MANAGEMENT","volume":"21 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"1900-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"121524654","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Feasibility Acceptability, and Perceived Value of a Nurse-Led Intervention to Ensure Timely, Routine Interprofessional Family Meetings in the ICU: Findings from the SET-to-Meet Pilot Trial","authors":"J. Seaman, D.B. White, D. Ren, A. Vercelli, A.K. Carpenter, T. Cohen, E. Miller, A.E. Sullivan, R. Arnold","doi":"10.1164/ajrccm-conference.2021.203.1_meetingabstracts.a1082","DOIUrl":"https://doi.org/10.1164/ajrccm-conference.2021.203.1_meetingabstracts.a1082","url":null,"abstract":"","PeriodicalId":249164,"journal":{"name":"B9. B009 PATIENT, FAMILY, AND PROVIDER EXPERIENCES IN CRITICAL CARE AND CHRONIC PATIENT MANAGEMENT","volume":"172 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"1900-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"122057538","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Seen but Not Heard: An Analysis of Nurse Involvement in Interprofessional Family Meetings in Intensive Care Units","authors":"K. Kraevsky-Phillips, D. B. White, R. Arnold, J. Seaman","doi":"10.1164/ajrccm-conference.2021.203.1_meetingabstracts.a1089","DOIUrl":"https://doi.org/10.1164/ajrccm-conference.2021.203.1_meetingabstracts.a1089","url":null,"abstract":"","PeriodicalId":249164,"journal":{"name":"B9. B009 PATIENT, FAMILY, AND PROVIDER EXPERIENCES IN CRITICAL CARE AND CHRONIC PATIENT MANAGEMENT","volume":"6 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"1900-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"133772622","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Quality of Unsupervised Home Spirometry in Children with Asthma","authors":"N. Agerskov, S. Coughlin, H. Parrott, S. Saglani, S. Sonnappa, L. Fleming","doi":"10.1164/ajrccm-conference.2021.203.1_meetingabstracts.a1088","DOIUrl":"https://doi.org/10.1164/ajrccm-conference.2021.203.1_meetingabstracts.a1088","url":null,"abstract":"","PeriodicalId":249164,"journal":{"name":"B9. B009 PATIENT, FAMILY, AND PROVIDER EXPERIENCES IN CRITICAL CARE AND CHRONIC PATIENT MANAGEMENT","volume":"46 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"1900-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"122807239","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Medication Literacy in Older Adults with Asthma","authors":"B. Polivka, L. Huntington-Moskos, R. Folz, D. Antimisiaris","doi":"10.1164/ajrccm-conference.2021.203.1_meetingabstracts.a1086","DOIUrl":"https://doi.org/10.1164/ajrccm-conference.2021.203.1_meetingabstracts.a1086","url":null,"abstract":"","PeriodicalId":249164,"journal":{"name":"B9. B009 PATIENT, FAMILY, AND PROVIDER EXPERIENCES IN CRITICAL CARE AND CHRONIC PATIENT MANAGEMENT","volume":"35 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"1900-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"123109194","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Development of a Mobile Application to Promote Family Caregiver Engagement in the Assessment and Management of Patient Symptoms During Mechanical Ventilation in the Intensive Care Unit (ICU)","authors":"B. Hetland, C. Bach, E. Grotts, J. Heusinkvelt, B. Pozehl, E. Rubenfeld, A. Wawers","doi":"10.1164/ajrccm-conference.2021.203.1_meetingabstracts.a1090","DOIUrl":"https://doi.org/10.1164/ajrccm-conference.2021.203.1_meetingabstracts.a1090","url":null,"abstract":"","PeriodicalId":249164,"journal":{"name":"B9. B009 PATIENT, FAMILY, AND PROVIDER EXPERIENCES IN CRITICAL CARE AND CHRONIC PATIENT MANAGEMENT","volume":"18 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"1900-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"122515921","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}