Palliative Medicine in Practice最新文献

筛选
英文 中文
This birth is difficult but beautiful — parents' experience of giving birth to a baby with a lethal foetal diagnosis 这次分娩很艰难,但很美好——一对父母生下一个诊断为致命胎儿的婴儿的经历
Palliative Medicine in Practice Pub Date : 2023-04-28 DOI: 10.5603/pmpi.a2023.0017
Urszula Tataj-Puzyna, Beata Szlendak, Magdalena Szabat, Joanna Krzeszowiak, Dorota Sys
{"title":"This birth is difficult but beautiful — parents' experience of giving birth to a baby with a lethal foetal diagnosis","authors":"Urszula Tataj-Puzyna, Beata Szlendak, Magdalena Szabat, Joanna Krzeszowiak, Dorota Sys","doi":"10.5603/pmpi.a2023.0017","DOIUrl":"https://doi.org/10.5603/pmpi.a2023.0017","url":null,"abstract":"Background: Doświadczenie porodu podczas którego rodzice witają i jednocześnie żegnają swoje dziecko, jest niewyobrażalnie trudnym/traumatycznym doświadczeniem. Zbadanie doświadczeń rodziców, wynikających z narodzin letalnie chorego dziecka. Metoda: W tym badaniu jakościowym przeprowadzono półstrukturalne wywiady pogłębione. Wywiady zostały opracowane przy użyciu analizy treści, poprzez kodowanie i konstruowanie tematów w trakcie iteracyjnych, zespołowych spotkań, za pomocą narzędzia MAXQDA. W badaniu wiło udział 13 rodziców, dziewięć kobiet po prenatalnej diagnozie o letalnym rokowaniu dla dziecka i czterech ojców dziecka. Wyniki: Analiza treści ujawniła dwa główne tematy i dwa podtematy. Pierwszy temat: „Oswojenie trudnych informacji w okresie ciąży”, w ramach drugiego tematu: „ Ten poród jest trudny ale piękny”, wyodrębniono podtematy: „radość ze spotkania z dzieckiem” i podtemat: „ czas pożegnania jest ważny”. Wnioski: Dla rodziców, którzy przygotowywali się do porodu po prenatalnej diagnozie o letalnym rokowaniu dla dziecka, doświadczenie porodu miało pozytywne implikacje. Spotkanie z nowonarodzonym dzieckiem było dla nich ważnym momentem, potwierdzeniem ich rodzicielstwa. Rodzice podkreślali, że czas pożegnania z dzieckiem był celebrowaniem ich krótkiego rodzicielstwa.","PeriodicalId":19965,"journal":{"name":"Palliative Medicine in Practice","volume":"14 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2023-04-28","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"136081803","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 1
Palliative, hospice and supportive care is beneficial for patients, families, staff and healthcare systems 姑息、临终关怀和支持性护理对患者、家属、工作人员和医疗系统都是有益的
Palliative Medicine in Practice Pub Date : 2023-03-31 DOI: 10.5603/pmpi.2023.0001
W. Leppert
{"title":"Palliative, hospice and supportive care is beneficial for patients, families, staff and healthcare systems","authors":"W. Leppert","doi":"10.5603/pmpi.2023.0001","DOIUrl":"https://doi.org/10.5603/pmpi.2023.0001","url":null,"abstract":"","PeriodicalId":19965,"journal":{"name":"Palliative Medicine in Practice","volume":" ","pages":""},"PeriodicalIF":0.0,"publicationDate":"2023-03-31","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"49588859","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Midwives' experience of delivering women with a life-threatening foetal diagnosis 助产士接生有生命危险胎儿诊断的妇女的经验
Palliative Medicine in Practice Pub Date : 2023-03-22 DOI: 10.5603/pmpi.a2023.0012
Zuzanna Mucha, Beata Szlendak, Joanna Krzeszowiak, N. Anuszkiewicz, Urszula Tataj-Puzyna
{"title":"Midwives' experience of delivering women with a life-threatening foetal diagnosis","authors":"Zuzanna Mucha, Beata Szlendak, Joanna Krzeszowiak, N. Anuszkiewicz, Urszula Tataj-Puzyna","doi":"10.5603/pmpi.a2023.0012","DOIUrl":"https://doi.org/10.5603/pmpi.a2023.0012","url":null,"abstract":"","PeriodicalId":19965,"journal":{"name":"Palliative Medicine in Practice","volume":" ","pages":""},"PeriodicalIF":0.0,"publicationDate":"2023-03-22","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"48511206","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 1
Teaching clinical communication skills in postgraduate medical education with particular emphasis on palliative medicine 在研究生医学教育中教授临床沟通技巧,特别强调姑息医学
Palliative Medicine in Practice Pub Date : 2023-03-16 DOI: 10.5603/pmpi.a2023.0006
A. Ratajska, Agnieszka Nowakowska-Arendt, M. Zając
{"title":"Teaching clinical communication skills in postgraduate medical education with particular emphasis on palliative medicine","authors":"A. Ratajska, Agnieszka Nowakowska-Arendt, M. Zając","doi":"10.5603/pmpi.a2023.0006","DOIUrl":"https://doi.org/10.5603/pmpi.a2023.0006","url":null,"abstract":"","PeriodicalId":19965,"journal":{"name":"Palliative Medicine in Practice","volume":" ","pages":""},"PeriodicalIF":0.0,"publicationDate":"2023-03-16","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"43900136","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
The relationship between the Geriatric Nutrition Risk Index (GNRI) and the prognosis of COVID-19 in diabetic geriatric patients 老年糖尿病患者营养风险指数(GNRI)与COVID-19预后的关系
Palliative Medicine in Practice Pub Date : 2023-03-16 DOI: 10.5603/pmpi.a2023.0013
R. Sivritepe, Sema Uçak Basat, Serhat Mert Tiril
{"title":"The relationship between the Geriatric Nutrition Risk Index (GNRI) and the prognosis of COVID-19 in diabetic geriatric patients","authors":"R. Sivritepe, Sema Uçak Basat, Serhat Mert Tiril","doi":"10.5603/pmpi.a2023.0013","DOIUrl":"https://doi.org/10.5603/pmpi.a2023.0013","url":null,"abstract":"","PeriodicalId":19965,"journal":{"name":"Palliative Medicine in Practice","volume":" ","pages":""},"PeriodicalIF":0.0,"publicationDate":"2023-03-16","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"46451747","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Hospice and Palliative Care Evaluation Symptoms and Problems Checklist (HOPE-SP-CL): A simple tool in the eligibility process for patients in palliative and hospice care 临终关怀和姑息治疗评估症状和问题检查表(HOPE-SP-CL):姑息治疗和临终关怀患者资格评定过程中的一个简单工具
Palliative Medicine in Practice Pub Date : 2023-03-06 DOI: 10.5603/pmpi.a2023.0007
Tomasz Gradalski
{"title":"Hospice and Palliative Care Evaluation Symptoms and Problems Checklist (HOPE-SP-CL): A simple tool in the eligibility process for patients in palliative and hospice care","authors":"Tomasz Gradalski","doi":"10.5603/pmpi.a2023.0007","DOIUrl":"https://doi.org/10.5603/pmpi.a2023.0007","url":null,"abstract":"Received: 17.01.2023 Accepted: 17.01.2023 Early publication date: 6.03.2023 This article is available in open access under Creative Common Attribution-Non-Commercial-No Derivatives 4.0 International (CC BY-NC-ND 4.0) license, allowing to download articles and share them with others as long as they credit the authors and the publisher, but without permission to change them in any way or use them commercially. Tomasz Grądalski 2 Chair of Palliative Medicine, Andrzej Frycz Modrzewski Kraków University, Poland St. Lazarus Hospice, Kraków, Poland","PeriodicalId":19965,"journal":{"name":"Palliative Medicine in Practice","volume":" ","pages":""},"PeriodicalIF":0.0,"publicationDate":"2023-03-06","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"44267441","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Pain descriptors and adaptation of Short Form McGill Pain Questionnaire 2 (SF-MPQ-2) for older people in Brunei Darussalam 文莱达鲁萨兰国老年人的疼痛描述和适应短形式麦吉尔疼痛问卷2 (SF-MPQ-2)
Palliative Medicine in Practice Pub Date : 2023-03-02 DOI: 10.5603/pmpi.a2023.0011
Muhammad Amirul Maidin, Noor Artini Abdul Rahman, Asmah Husaini, Shyh Poh Teo
{"title":"Pain descriptors and adaptation of Short Form McGill Pain Questionnaire 2 (SF-MPQ-2) for older people in Brunei Darussalam","authors":"Muhammad Amirul Maidin, Noor Artini Abdul Rahman, Asmah Husaini, Shyh Poh Teo","doi":"10.5603/pmpi.a2023.0011","DOIUrl":"https://doi.org/10.5603/pmpi.a2023.0011","url":null,"abstract":"Background: Pain is an unpleasant sensory and emotional experience associated with actual or potential tissue damage. It is common in older people, and tends to be under-reported and under-treated. In addition to quantifying pain severity using the visual analogue scale (VAS), use of the translated Short-Form McGill Pain Questionnaire (SF-MPQ-2) to identify pain descriptors may assist with pain assessment in older people. Aims: identify pain descriptors for different pain aetiology in older people using the adapted SF-MPQ-2 Brunei Malay version and compare pain severity assessments using the VAS and SF-MPQ-2. Patients and methods: A prospective study using the translated SF-MPQ-2 in older people admitted or seen in clinic under Orthopaedics and Geriatrics specialties between November 2018 and February 2019. Results: There were 75 participants, with 21 pain descriptors used. The main descriptors for fractures, osteoarthritis or muscle/tendon problems were identified. Despite pain medication, more than a third still experienced moderate to severe pain. However, almost all were satisfied with the pain management. There was a statistically significant difference between pain severity between the VAS and SF-MPQ-2, with the VAS possibly underestimating pain. Conclusions: The adapted SF-MPQ-2 appears feasible for use with older people in Brunei. Further studies are required to formally validate the SF-MPQ-2 in older patients and with specific medical conditions, such as diabetes or surgery.","PeriodicalId":19965,"journal":{"name":"Palliative Medicine in Practice","volume":"24 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2023-03-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"135479557","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Too much outcry about quality of life, what about the quality of death? 对生活质量的抗议太多了,那么死亡质量又如何呢?
Palliative Medicine in Practice Pub Date : 2023-02-27 DOI: 10.5603/pmpi.a2023.0009
Priyanka Mishra, R. Makker, N. Govil
{"title":"Too much outcry about quality of life, what about the quality of death?","authors":"Priyanka Mishra, R. Makker, N. Govil","doi":"10.5603/pmpi.a2023.0009","DOIUrl":"https://doi.org/10.5603/pmpi.a2023.0009","url":null,"abstract":"","PeriodicalId":19965,"journal":{"name":"Palliative Medicine in Practice","volume":"1 1","pages":""},"PeriodicalIF":0.0,"publicationDate":"2023-02-27","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"43075889","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
The Institute for European Hospice Partnerships: Idea, vision, mission, and first steps of its development 欧洲临终关怀协会:理念、愿景、使命和发展的第一步
Palliative Medicine in Practice Pub Date : 2023-02-17 DOI: 10.5603/pmpi.a2023.0010
Andreas Stähli, Halyna Lejzjus
{"title":"The Institute for European Hospice Partnerships: Idea, vision, mission, and first steps of its development","authors":"Andreas Stähli, Halyna Lejzjus","doi":"10.5603/pmpi.a2023.0010","DOIUrl":"https://doi.org/10.5603/pmpi.a2023.0010","url":null,"abstract":"","PeriodicalId":19965,"journal":{"name":"Palliative Medicine in Practice","volume":" ","pages":""},"PeriodicalIF":0.0,"publicationDate":"2023-02-17","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"48656889","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Health-related quality of life of relapsing or remitting multiple sclerosis patients: A case-control study 复发或缓解型多发性硬化症患者的健康相关生活质量:一项病例对照研究
Palliative Medicine in Practice Pub Date : 2023-01-25 DOI: 10.5603/pmpi.a2023.0008
Haniya Noun, Rami Atat, Georges Hatem, R. Ajrouche, Sara Nahas, Maya El-Hajj, Salam Zein, S. Awada
{"title":"Health-related quality of life of relapsing or remitting multiple sclerosis patients: A case-control study","authors":"Haniya Noun, Rami Atat, Georges Hatem, R. Ajrouche, Sara Nahas, Maya El-Hajj, Salam Zein, S. Awada","doi":"10.5603/pmpi.a2023.0008","DOIUrl":"https://doi.org/10.5603/pmpi.a2023.0008","url":null,"abstract":"","PeriodicalId":19965,"journal":{"name":"Palliative Medicine in Practice","volume":" ","pages":""},"PeriodicalIF":0.0,"publicationDate":"2023-01-25","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"45181001","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
0
×
引用
GB/T 7714-2015
复制
MLA
复制
APA
复制
导出至
BibTeX EndNote RefMan NoteFirst NoteExpress
×
提示
您的信息不完整,为了账户安全,请先补充。
现在去补充
×
提示
您因"违规操作"
具体请查看互助需知
我知道了
×
提示
确定
请完成安全验证×
相关产品
×
本文献相关产品
联系我们:info@booksci.cn Book学术提供免费学术资源搜索服务,方便国内外学者检索中英文文献。致力于提供最便捷和优质的服务体验。 Copyright © 2023 布克学术 All rights reserved.
京ICP备2023020795号-1
ghs 京公网安备 11010802042870号
Book学术文献互助
Book学术文献互助群
群 号:481959085
Book学术官方微信