Palliative and Supportive Care最新文献

筛选
英文 中文
Who are you, Who do you want to be, Who do you want to help along the way? 你是谁,你想成为谁,你想帮助谁?
Palliative and Supportive Care Pub Date : 2022-06-01 DOI: 10.1017/S1478951522000645
W. Breitbart
{"title":"Who are you, Who do you want to be, Who do you want to help along the way?","authors":"W. Breitbart","doi":"10.1017/S1478951522000645","DOIUrl":"https://doi.org/10.1017/S1478951522000645","url":null,"abstract":"","PeriodicalId":19953,"journal":{"name":"Palliative and Supportive Care","volume":"20 1","pages":"305 - 306"},"PeriodicalIF":0.0,"publicationDate":"2022-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"91109490","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
PAX volume 20 issue 3 Cover and Front matter PAX第20卷第3期封面和封面问题
Palliative and Supportive Care Pub Date : 2022-06-01 DOI: 10.1017/s1478951522000773
{"title":"PAX volume 20 issue 3 Cover and Front matter","authors":"","doi":"10.1017/s1478951522000773","DOIUrl":"https://doi.org/10.1017/s1478951522000773","url":null,"abstract":"","PeriodicalId":19953,"journal":{"name":"Palliative and Supportive Care","volume":"9 1","pages":"f1 - f4"},"PeriodicalIF":0.0,"publicationDate":"2022-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"73724499","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Increasing our understanding of nonphysical suffering within palliative care: A scoping review. 增加我们对姑息治疗中非身体痛苦的理解:范围回顾。
Palliative and Supportive Care Pub Date : 2022-06-01 DOI: 10.1017/S1478951521001127
Maxxine Rattner
{"title":"Increasing our understanding of nonphysical suffering within palliative care: A scoping review.","authors":"Maxxine Rattner","doi":"10.1017/S1478951521001127","DOIUrl":"10.1017/S1478951521001127","url":null,"abstract":"<p><strong>Objective: </strong>Nonphysical suffering is emotional, psychological, existential, spiritual, and/or social in nature. While palliative care is a discipline dedicated to the prevention and relief of suffering - both physical and nonphysical - little is known about existing research specific to nonphysical suffering within the context of palliative care. This scoping review helps to fill this gap.</p><p><strong>Method: </strong>Three hundred and twenty-eight unique records were identified through a systematic search of three databases (MEDLINE, CINAHL, and PsycINFO). The following keywords were used: (suffering) AND (palliative OR \"end of life\" OR \"end-of-life\" OR hospice OR dying OR terminal* ill*). Thirty studies published between 1998 and 2019 met the inclusion criteria.</p><p><strong>Results: </strong>Losses, worries, and fears comprise patients' primary sources of nonphysical suffering. Patients face numerous barriers in expressing their nonphysical suffering to healthcare providers. The idea that patients can choose how they perceive their circumstances, thereby minimizing their nonphysical suffering, is pervasive in the research. The nature of nonphysical suffering experienced by family caregivers and palliative care clinicians is revealed in the review. The unique and sensitive interplay between nonphysical suffering and both palliative sedation and requests for hastened death is also evident. Overall, seven themes can be identified: (i) patients' experiences of nonphysical suffering; (ii) patient coping mechanisms; (iii) efforts to measure nonphysical suffering; (iv) palliative sedation; (v) requests for hastened death; (vi) family suffering; and (vii) clinician suffering.</p><p><strong>Significance of results: </strong>This is the first scoping review to map palliative care's research specific to suffering that is social, emotional, spiritual, psychological, and/or existential in nature. Its findings expand our understanding of the nature of nonphysical suffering experienced by patients, families, and palliative care clinicians. The review's findings have significant implications for front-line practice and future research.</p>","PeriodicalId":19953,"journal":{"name":"Palliative and Supportive Care","volume":"44 1","pages":"417-432"},"PeriodicalIF":0.0,"publicationDate":"2022-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"85836024","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
The experiences of health professionals, patients, and families with truth disclosure when breaking bad news in palliative care: A qualitative meta-synthesis. 在姑息治疗中突发坏消息时,卫生专业人员、患者和家属披露真相的经验:一项定性综合研究。
Palliative and Supportive Care Pub Date : 2022-06-01 DOI: 10.1017/S1478951521001243
Elizabeth M Miller, Joanne E Porter, Michael S Barbagallo
{"title":"The experiences of health professionals, patients, and families with truth disclosure when breaking bad news in palliative care: A qualitative meta-synthesis.","authors":"Elizabeth M Miller, Joanne E Porter, Michael S Barbagallo","doi":"10.1017/S1478951521001243","DOIUrl":"10.1017/S1478951521001243","url":null,"abstract":"<p><strong>Objective: </strong>Disclosing the truth when breaking bad news continues to be difficult for health professionals, yet it is essential for patients when making informed decisions about their treatment and end-of-life care. This literature review aimed to explore and examine how health professionals, patients, and families experience truth disclosure during the delivery of bad news in the inpatient/outpatient palliative care setting.</p><p><strong>Methods: </strong>A systemized search for peer-reviewed, published papers between 2013 and 2020 was undertaken in September 2020 using the CINAHL, Medline, and PsycInfo databases. The keywords and MeSH terms (\"truth disclosure\") AND (\"palliative care or end-of-life care or terminal care or dying\") were used. The search was repeated using (\"bad news\") AND (\"palliative care or end-of-life care or terminal care or dying\") terms. A meta-synthesis was undertaken to synthesize the findings from the eight papers.</p><p><strong>Results: </strong>Eight papers were included in the meta-synthesis and were represented by five Western countries. Following the synthesis process, two concepts were identified: \"Enablers in breaking bad news\" and \"Truth avoidance/disclosure.\" Several elements formed the concept of Enablers for breaking bad news, such as the therapeutic relationship, reading cues, acknowledgment, language/delivery, time/place, and qualities. A conceptual model was developed to illustrate the findings of the synthesis.</p><p><strong>Significance of results: </strong>The conceptual model demonstrates a unique way to look at communication dynamics around truth disclosure and avoidance when breaking bad news. Informed decision-making requires an understanding of the whole truth, and therefore truth disclosure is an essential part of breaking bad news.</p>","PeriodicalId":19953,"journal":{"name":"Palliative and Supportive Care","volume":"106 1","pages":"433-444"},"PeriodicalIF":0.0,"publicationDate":"2022-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"75645974","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Liminal Space 阈限的空间
Palliative and Supportive Care Pub Date : 2022-05-12 DOI: 10.1017/s1478951522000608
Jenni R. Clarkson
{"title":"Liminal Space","authors":"Jenni R. Clarkson","doi":"10.1017/s1478951522000608","DOIUrl":"https://doi.org/10.1017/s1478951522000608","url":null,"abstract":"","PeriodicalId":19953,"journal":{"name":"Palliative and Supportive Care","volume":"54 1","pages":"914 - 914"},"PeriodicalIF":0.0,"publicationDate":"2022-05-12","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"88432244","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
The thief of love 爱的窃贼
Palliative and Supportive Care Pub Date : 2022-05-10 DOI: 10.1017/s1478951522000384
W. Breitbart
{"title":"The thief of love","authors":"W. Breitbart","doi":"10.1017/s1478951522000384","DOIUrl":"https://doi.org/10.1017/s1478951522000384","url":null,"abstract":"","PeriodicalId":19953,"journal":{"name":"Palliative and Supportive Care","volume":"11 1 1","pages":"451 - 451"},"PeriodicalIF":0.0,"publicationDate":"2022-05-10","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"79652338","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Do-not-resuscitate (DNR) status and major depressive disorder (MDD): Clinical association and hospitalization outcomes 不复苏(DNR)状态与重度抑郁障碍(MDD):临床关联和住院结果
Palliative and Supportive Care Pub Date : 2022-04-27 DOI: 10.1017/S1478951522000463
D. H. Oh, M. Salzler, Rachel L Bernstein, Christopher W Racine
{"title":"Do-not-resuscitate (DNR) status and major depressive disorder (MDD): Clinical association and hospitalization outcomes","authors":"D. H. Oh, M. Salzler, Rachel L Bernstein, Christopher W Racine","doi":"10.1017/S1478951522000463","DOIUrl":"https://doi.org/10.1017/S1478951522000463","url":null,"abstract":"Abstract Objectives To understand (1) the association of Major Depressive Disorder (MDD) and do-not-resuscitate (DNR) status among hospitalized patients and (2) the association of MDD and hospitalization outcomes among DNR patients. Methods This was a cross-sectional analysis of United States Healthcare Cost and Utilization Project, Nationwide Inpatient Sample data from 2009 to 2013 for patients >18 years. To address the first objective, we used multivariable logistic regression among all hospitalized patients to compute the adjusted odds ratio (aOR) of having DNR status if patients have active MDD of varying severities after controlling for age, sex, race, suicidal ideation, and Elixhauser Comorbidity Index. To address the second objective, we used multivariable regression among patients with DNR status to compute aOR of having hospitalization outcomes such as increased length of stay, higher total charges, leaving against medical advice, and mortality if patients have MDD. Results Among all hospitalizations, 2.3% had DNR status. There was an inverse association between severity of MDD and having DNR status. Relative to those without MDD, patients with moderate recurrent MDD episode (aOR 0.74 (95% confidence interval (CI): 0.65–0.85) and severe recurrent MDD episode (aOR of 0.42 (95% CI: 0.37–0.48)) were significantly less likely to have DNR status. Among DNR patients, those with all severities of MDD except mild single episode MDD were >40% less likely to die during hospitalization. Among DNR patients, patients with MDD had 0.7 day longer length of stay, and >$4,500 higher total charges. Significance of results Patients are less likely to have DNR status if they have active MDD. Among patients with DNR status, those with MDD are less likely to die during hospitalization than those without MDD. With current practice, depression is not associated with increased likelihood of death due to foregoing resuscitation prematurely, though the exact mechanisms of these findings need further investigation.","PeriodicalId":19953,"journal":{"name":"Palliative and Supportive Care","volume":"212 1","pages":"542 - 548"},"PeriodicalIF":0.0,"publicationDate":"2022-04-27","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"79712265","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Needs for nurses to provide spiritual care and their associated influencing factors among elderly inpatients with stroke in China: A cross-sectional quantitative study 中国老年住院脑卒中患者护士精神护理需求及其影响因素的横断面定量研究
Palliative and Supportive Care Pub Date : 2022-04-26 DOI: 10.1017/S1478951522000426
Zhangyi Wang, Haomei Zhao, Yue Zhu, Si-feng Zhang, Luwei Xiao, Haiqin Bao, Zhao Wang, Yue Wang, Xuechun Li, Yajun Zhang, Xiaoli Pang
{"title":"Needs for nurses to provide spiritual care and their associated influencing factors among elderly inpatients with stroke in China: A cross-sectional quantitative study","authors":"Zhangyi Wang, Haomei Zhao, Yue Zhu, Si-feng Zhang, Luwei Xiao, Haiqin Bao, Zhao Wang, Yue Wang, Xuechun Li, Yajun Zhang, Xiaoli Pang","doi":"10.1017/S1478951522000426","DOIUrl":"https://doi.org/10.1017/S1478951522000426","url":null,"abstract":"Abstract Objectives To investigate the spiritual care needs and associated influencing factors among elderly inpatients with stroke, and to examine the correlations among spiritual care needs, spiritual well-being, self-perceived burden, self-transcendence, and social support. Methods A cross-sectional quantitative design was implemented, and the STROBE Checklist was used as the foundation of the study. A convenience sample of 458 elderly inpatients with stroke was selected from three hospitals in China. The sociodemographic characteristics questionnaire, the Nurse Spiritual Therapeutics Scale, the Functional Assessment of Chronic Illness Therapy—Spiritual Well-being, the Self-Perceived Burden Scale, the Chinese Self-Transcendence Scale, and the Perceived Social Support Scale were used. Descriptive statistics, correlation, Student's t-test, ANOVA, non-parametric, and multiple linear regression analyses were used to analyze the data. Results The total score of spiritual care needs was 29.82 ± 7.65. Spiritual care needs were positively correlated with spiritual well-being (r = 0.709, p < 0.01), self-transcendence (r = 0.710, p < 0.01), and social support (r = 0.691, p < 0.01), whereas being negatively correlated with self-perceived burden (r = −0.587, p < 0.01). Religious beliefs, educational level, residence place, disease course, spiritual well-being, self-perceived burden, self-transcendence, and social support were found to be the main influencing factors. Significance of results The spiritual care needs were prevalent and moderate. It is suggested that nurses should enhance spiritual care knowledge and competence, take targeted spiritual care measures according to inpatients’ individual personality traits or characteristics and differences of patients, reduce their self-perceived burden and improve their spiritual well-being, self-transcendence and social support in multiple ways and levels, so as to meet their spiritual care needs to the greatest extent and enhance their spiritual comfort.","PeriodicalId":19953,"journal":{"name":"Palliative and Supportive Care","volume":"15 1","pages":"407 - 416"},"PeriodicalIF":0.0,"publicationDate":"2022-04-26","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"86212995","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 3
PAX volume 20 issue 2 Cover and Front matter PAX第20卷第2期封面和封面问题
Palliative and Supportive Care Pub Date : 2022-04-01 DOI: 10.1017/s1478951522000529
Daniel, J., Ouyang, Susan, C., Vaughan
{"title":"PAX volume 20 issue 2 Cover and Front matter","authors":"Daniel, J., Ouyang, Susan, C., Vaughan","doi":"10.1017/s1478951522000529","DOIUrl":"https://doi.org/10.1017/s1478951522000529","url":null,"abstract":"ed and indexed in the following: CINAHL database; Cumulative Index to Nursing and Allied Health Liteature; MEDLINE Change of address: Allow six weeks for all changes to become effective. All communication should include both old and new addresses (with postal codes) and should be accompanied by a mailing label from a recent issue. Editorial Office: William Breitbart, Editor-in-Chief, Memorial Sloan Kettering Cancer Center, Department of Psychiatry and Behavioral Sciences, 641 Lexington Avenue, New York, NY 10022, USA. Telephone: (646) 888-0020. Fax: (212) 888-2356. E-mail: breitbaw@mskcc.org. Office of Publication: Cambridge University Press, One Liberty Plaza, New York, NY 10006, USA: Telephone: (212) 337-5000. Fax: (212) 337-5959. Printed in the United States of America on acid-free paper. Emeritus Lea Baider, Sharett Institute of Oncology, Israel Susan Block, Dana-Farber Cancer Institute, USA Irene Higginson, King’s College London, UK Paul Jacobsen, Ph.D., National Cancer Institute, USA Professor Uwe Koch, University Hospital at Hamburg-Eppendorf, Germany Neil MacDonald, McGill University, Canada Volume 20 April 2022 Number 2","PeriodicalId":19953,"journal":{"name":"Palliative and Supportive Care","volume":"124 1","pages":"f1 - f4"},"PeriodicalIF":0.0,"publicationDate":"2022-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"77021926","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
When I grow up I want to be back here 等我长大了,我想回到这里
Palliative and Supportive Care Pub Date : 2022-03-17 DOI: 10.1017/s1478951522000347
D. H. Xiang
{"title":"When I grow up I want to be back here","authors":"D. H. Xiang","doi":"10.1017/s1478951522000347","DOIUrl":"https://doi.org/10.1017/s1478951522000347","url":null,"abstract":"","PeriodicalId":19953,"journal":{"name":"Palliative and Supportive Care","volume":"6 1","pages":"775 - 775"},"PeriodicalIF":0.0,"publicationDate":"2022-03-17","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"72804487","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
0
×
引用
GB/T 7714-2015
复制
MLA
复制
APA
复制
导出至
BibTeX EndNote RefMan NoteFirst NoteExpress
×
提示
您的信息不完整,为了账户安全,请先补充。
现在去补充
×
提示
您因"违规操作"
具体请查看互助需知
我知道了
×
提示
确定
请完成安全验证×
相关产品
×
本文献相关产品
联系我们:info@booksci.cn Book学术提供免费学术资源搜索服务,方便国内外学者检索中英文文献。致力于提供最便捷和优质的服务体验。 Copyright © 2023 布克学术 All rights reserved.
京ICP备2023020795号-1
ghs 京公网安备 11010802042870号
Book学术文献互助
Book学术文献互助群
群 号:481959085
Book学术官方微信