Journal of renal care最新文献

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Chronic Kidney Disease-Associated Pruritus Severity and Treatment Experiences in Patients Receiving Dialysis 透析患者慢性肾病相关性瘙痒严重程度及治疗体会
IF 2 4区 医学
Journal of renal care Pub Date : 2026-08-05 DOI: 10.1111/jorc.70074
Cheyenne Downey, Frank Doyle, Aisling Walsh, Fatema Alqatan, Lisa Mellon
{"title":"Chronic Kidney Disease-Associated Pruritus Severity and Treatment Experiences in Patients Receiving Dialysis","authors":"Cheyenne Downey,&nbsp;Frank Doyle,&nbsp;Aisling Walsh,&nbsp;Fatema Alqatan,&nbsp;Lisa Mellon","doi":"10.1111/jorc.70074","DOIUrl":"10.1111/jorc.70074","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>Chronic Kidney Disease-associated Pruritus is a chronic itching condition experienced by patients during and between dialysis sessions. The individualised nature of the condition makes prevalence and severity difficult to measure.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Objectives</h3>\u0000 \u0000 <p>The study aimed to identify the prevalence of Chronic Kidney Disease-associated Pruritus amongst patients receiving dialysis in Ireland, characterise symptom burden, severity, and frequency, factors associated with worsening symptoms, and to examine patient experiences of itching.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Design</h3>\u0000 \u0000 <p>A quantitative study with a qualitative free-text element was employed.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Participants</h3>\u0000 \u0000 <p>689 patients undergoing dialysis completed a national survey.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Measurements</h3>\u0000 \u0000 <p>Patients undergoing haemodialysis and peritoneal dialysis completed the 5-D itch scale and a qualitative assessment of itching experiences. Regression analyses examined associations between domains of the 5-D itch scale, patient clinical characteristics and the occurrence of moderate-severe itching. Content analysis was used to report qualitative findings.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>Sixty-two percent (85% haemodialysis; 15% peritoneal dialysis) experienced Chronic Kidney Disease-associated Pruritus; 66% reported moderate-severe itching, with body/trunk region most affected (73%); however, the scalp/face region was most associated with moderate-severe itching (OR = 2.08, 95% CI 1.11–3.870). Four themes were identified: (1) the physical impact of Chronic Kidney Disease-associated Pruritus; (2) the psychological burden of itching; (3) variability in treatment success; (4) itch resolving over time.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusion</h3>\u0000 \u0000 <p>Two-thirds of Irish patients experience moderate-severe Chronic Kidney Disease-associated Pruritus; a prevalence rate higher than international estimates. This condition is psychologically distressing - impacting sleep, overall quality of life, and risk of infection. Patients require improved clinical attention and greater pratitioner education on management of this condition.</p>\u0000 </section>\u0000 </div>","PeriodicalId":16947,"journal":{"name":"Journal of renal care","volume":"52 3","pages":""},"PeriodicalIF":2.0,"publicationDate":"2026-08-05","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148673876","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Translation and Validation of the Japanese Version of the Dialysis Patient-Perceived Exercise Benefits and Barriers Scale 日文透析患者感知运动益处与障碍量表的翻译与验证。
IF 2 4区 医学
Journal of renal care Pub Date : 2026-08-03 DOI: 10.1111/jorc.70076
Ryota Kumakura, Keiko Tasaki, Tomomi Horiguchi, Yuya Asada, Yukari Fujita, Noboru Fujino
{"title":"Translation and Validation of the Japanese Version of the Dialysis Patient-Perceived Exercise Benefits and Barriers Scale","authors":"Ryota Kumakura,&nbsp;Keiko Tasaki,&nbsp;Tomomi Horiguchi,&nbsp;Yuya Asada,&nbsp;Yukari Fujita,&nbsp;Noboru Fujino","doi":"10.1111/jorc.70076","DOIUrl":"10.1111/jorc.70076","url":null,"abstract":"&lt;div&gt;\u0000 \u0000 \u0000 &lt;section&gt;\u0000 \u0000 &lt;h3&gt; Background&lt;/h3&gt;\u0000 \u0000 &lt;p&gt;Regular exercise is recommended for patients undergoing haemodialysis; however, participation rates remain low in Japan. Perceived benefits and barriers are key cognitive determinants of exercise behaviour, yet no validated instrument exists to assess these perceptions among Japanese patients receiving haemodialysis.&lt;/p&gt;\u0000 &lt;/section&gt;\u0000 \u0000 &lt;section&gt;\u0000 \u0000 &lt;h3&gt; Objectives&lt;/h3&gt;\u0000 \u0000 &lt;p&gt;Translate and culturally adapt the Dialysis Patient-Perceived Exercise Benefits and Barriers Scale into Japanese and evaluate its psychometric properties.&lt;/p&gt;\u0000 &lt;/section&gt;\u0000 \u0000 &lt;section&gt;\u0000 \u0000 &lt;h3&gt; Design&lt;/h3&gt;\u0000 \u0000 &lt;p&gt;A methodological study.&lt;/p&gt;\u0000 &lt;/section&gt;\u0000 \u0000 &lt;section&gt;\u0000 \u0000 &lt;h3&gt; Participants&lt;/h3&gt;\u0000 \u0000 &lt;p&gt;In total, 150 adults undergoing maintenance haemodialysis were recruited from facilities across Japan.&lt;/p&gt;\u0000 &lt;/section&gt;\u0000 \u0000 &lt;section&gt;\u0000 \u0000 &lt;h3&gt; Measurements&lt;/h3&gt;\u0000 \u0000 &lt;p&gt;Structural validity was examined using exploratory and confirmatory factor analyses. Concurrent validity was assessed through correlations with physical activity levels measured using the International Physical Activity Questionnaire. Known-groups validity was evaluated by comparing scale scores between participants with and without exercise habits. Reliability was assessed using internal consistency and item–total correlations.&lt;/p&gt;\u0000 &lt;/section&gt;\u0000 \u0000 &lt;section&gt;\u0000 \u0000 &lt;h3&gt; Results&lt;/h3&gt;\u0000 \u0000 &lt;p&gt;Confirmatory factor analysis supported the original six-factor structure with acceptable model fit (CFI = 0.922, TLI = 0.910, RMSEA = 0.055 and SRMR = 0.062). The Japanese version showed moderate concurrent validity with physical activity levels (Spearman's &lt;i&gt;r&lt;/i&gt; = 0.379, &lt;i&gt;p&lt;/i&gt; &lt; 0.01) and discriminated between participants with and without exercise habits (&lt;i&gt;p&lt;/i&gt; &lt; 0.001). Internal consistency was excellent (Cronbach's &lt;i&gt;α&lt;/i&gt; = 0.901), and all item–total correlation coefficients exceeded acceptable thresholds.&lt;/p&gt;\u0000 &lt;/section&gt;\u0000 \u0000 &lt;section&gt;\u0000 \u0000 &lt;h3&gt; Conclusions&lt;/h3&gt;\u0000 \u0000 &lt;p&gt;The Japanese version of the Dialysis Patient-Perceived Exercise Benefits and Barriers Scale is a reliable and valid instrument for assessing exercise-related perceptions among patients receiving haemodialysis in Japan. This tool may facilitate individualised exercise counselling and support culturally appropriate exercise interventions in renal care.&lt;/p&gt;\u0000 &lt;/section&gt;\u0000 ","PeriodicalId":16947,"journal":{"name":"Journal of renal care","volume":"52 3","pages":""},"PeriodicalIF":2.0,"publicationDate":"2026-08-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13430978/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148663672","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Chronic Kidney Disease-Associated Pruritus in Haemodialysis: A Mixed-Methods Study of Symptom Burden and Patient Experience 血液透析中的慢性肾病相关性瘙痒:症状负担和患者体验的混合方法研究。
IF 2 4区 医学
Journal of renal care Pub Date : 2026-07-29 DOI: 10.1111/jorc.70075
Gülay Turgay, Çiğdem Özdemir Eler
{"title":"Chronic Kidney Disease-Associated Pruritus in Haemodialysis: A Mixed-Methods Study of Symptom Burden and Patient Experience","authors":"Gülay Turgay,&nbsp;Çiğdem Özdemir Eler","doi":"10.1111/jorc.70075","DOIUrl":"10.1111/jorc.70075","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>Chronic kidney disease-associated pruritus is a common and often under-recognized symptom among people receiving haemodialysis and may substantially impair daily life and wellbeing.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Objectives</h3>\u0000 \u0000 <p>To determine the prevalence and severity of pruritus in people receiving haemodialysis and to explore the lived experiences of those with moderate-to-severe pruritus.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Design</h3>\u0000 \u0000 <p>Explanatory sequential mixed-methods study.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Participants</h3>\u0000 \u0000 <p>A total of 294 adults receiving haemodialysis in three dialysis centres participated in the quantitative phase. The qualitative phase included 48 participants selected from the quantitative sample who had moderate-to-severe pruritus, defined as a Five-D Itch Scale score of 12 or higher.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Measurements</h3>\u0000 \u0000 <p>Data were collected between October 2025 and January 2026. Quantitative data were collected using the Five-Dimensional Itch Scale and a sociodemographic and clinical information form developed for this study. Qualitative data were generated through at least two semi-structured interviews with each participant and analysed using reflexive thematic analysis. Integration was performed at the interpretation stage.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>The mean Five-Dimensional Itch Scale score was 8.00 ± 3.21, and moderate-to-severe pruritus prevalence was 16.3%. Multivariable analysis showed lower symptom reporting among married participants, whereas comorbidity and previous pruritus-related education were associated with higher symptom reporting. Qualitative findings indicated that pruritus was experienced as a fluctuating burden affecting sleep, daily comfort, and social roles. Participants described trial-and-error self-management strategies and expressed a need for proactive assessment, practical guidance and individualised nursing care.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusions</h3>\u0000 \u0000 <p>Chronic kidney disease-associated pruritus remains a multidimensional burden in haemodialysis care. Standardised assessment and person-centred nursing care may improve its recognition and management.</p>\u0000 </section>\u0000 </div>","PeriodicalId":16947,"journal":{"name":"Journal of renal care","volume":"52 3","pages":""},"PeriodicalIF":2.0,"publicationDate":"2026-07-29","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/jorc.70075","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148604367","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
The Experience of “Feeling Cold” in Patients Undergoing In-Centre Haemodialysis 中心血液透析患者的“冷感”体验。
IF 2 4区 医学
Journal of renal care Pub Date : 2026-07-27 DOI: 10.1111/jorc.70073
Vivi de Fries Bjerrum, Johanne Weiers, Signe Heine Sørensen, Helle Meldgaard Kjær, Ingrid Villadsen Kristensen, Christina Egmose Frandsen, Jeanette Finderup
{"title":"The Experience of “Feeling Cold” in Patients Undergoing In-Centre Haemodialysis","authors":"Vivi de Fries Bjerrum,&nbsp;Johanne Weiers,&nbsp;Signe Heine Sørensen,&nbsp;Helle Meldgaard Kjær,&nbsp;Ingrid Villadsen Kristensen,&nbsp;Christina Egmose Frandsen,&nbsp;Jeanette Finderup","doi":"10.1111/jorc.70073","DOIUrl":"10.1111/jorc.70073","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>The symptom of “feeling cold” in patients with kidney failure is underexplored in the literature and absent from standard symptom assessment tools. Virginia Henderson highlighted temperature regulation as a fundamental need, emphasising the importance of addressing this symptom in renal care. It has been observed that patients in in-centre haemodialysis are relying on the usage of heating pads and blankets all year around.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Objective</h3>\u0000 \u0000 <p>To examine how patients undergoing haemodialysis experience the symptom of “feeling cold”.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Design</h3>\u0000 \u0000 <p>A qualitative study with a phenomenological approach.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Participants</h3>\u0000 \u0000 <p>Twenty-six adult patients with kidney failure receiving in-centre haemodialysis participated.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Approach</h3>\u0000 \u0000 <p>Individual semi-structured interviews were conducted, with an interview guide based on Van Manen's four lifeworld existentials. Data were analysed using Malterud's systematic text condensation.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Findings</h3>\u0000 \u0000 <p>Participants reported diverse experiences of “feeling cold,” often describing it negatively. This symptom significantly affected their psychological, physical, and social well-being. Some participants also noted experiences of “feeling hot,” indicating a complex interplay of temperature sensitivity.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusions</h3>\u0000 \u0000 <p>“Feeling cold” emerged as a meaningful and distressing experience among patients with kidney failure. These findings enhance the understanding of patients' lived experiences and highlight the need for further investigation into the prevalence and severity of this phenomenon, including among patients with kidney failure not on dialysis. Addressing temperature sensitivity might improve symptom assessment and overall patient care in renal healthcare settings.</p>\u0000 </section>\u0000 </div>","PeriodicalId":16947,"journal":{"name":"Journal of renal care","volume":"52 3","pages":""},"PeriodicalIF":2.0,"publicationDate":"2026-07-27","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/jorc.70073","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148604397","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Experiences of Children Undergoing Peritoneal Dialysis: A Descriptive Phenomenological Study 儿童腹膜透析的经验:一项描述性现象学研究。
IF 2 4区 医学
Journal of renal care Pub Date : 2026-07-06 DOI: 10.1111/jorc.70072
Eda Demir, Duygu Sönmez Düzkaya
{"title":"Experiences of Children Undergoing Peritoneal Dialysis: A Descriptive Phenomenological Study","authors":"Eda Demir,&nbsp;Duygu Sönmez Düzkaya","doi":"10.1111/jorc.70072","DOIUrl":"10.1111/jorc.70072","url":null,"abstract":"&lt;div&gt;\u0000 \u0000 \u0000 &lt;section&gt;\u0000 \u0000 &lt;h3&gt; Background&lt;/h3&gt;\u0000 \u0000 &lt;p&gt;Kidney transplantation is the preferred kidney replacement therapy for children with kidney failure; when not feasible, peritoneal dialysis is the preferred dialysis modality. Despite its clinical advantages, children undergoing peritoneal dialysis face significant emotional, physical and psychosocial challenges that remain poorly documented in the literature, particularly from the child's own perspective.&lt;/p&gt;\u0000 &lt;/section&gt;\u0000 \u0000 &lt;section&gt;\u0000 \u0000 &lt;h3&gt; Objectives&lt;/h3&gt;\u0000 \u0000 &lt;p&gt;This study aimed to explore the lived experiences of children undergoing peritoneal dialysis, with a view to informing family-centred nursing care and improving psychosocial support for this vulnerable population.&lt;/p&gt;\u0000 &lt;/section&gt;\u0000 \u0000 &lt;section&gt;\u0000 \u0000 &lt;h3&gt; Design&lt;/h3&gt;\u0000 \u0000 &lt;p&gt;A descriptive phenomenological design was employed, using semi-structured individual interviews for data collection. Data were analysed using Colaizzi's seven-step descriptive phenomenological method.&lt;/p&gt;\u0000 &lt;/section&gt;\u0000 \u0000 &lt;section&gt;\u0000 \u0000 &lt;h3&gt; Participants&lt;/h3&gt;\u0000 \u0000 &lt;p&gt;Ten children aged over 7 years with a diagnosis of chronic kidney disease who had been receiving peritoneal dialysis for at least 1 year were recruited through purposive sampling from a tertiary paediatric nephrology unit in southern Turkey between August 2024 and March 2025.&lt;/p&gt;\u0000 &lt;/section&gt;\u0000 \u0000 &lt;section&gt;\u0000 \u0000 &lt;h3&gt; Approach&lt;/h3&gt;\u0000 \u0000 &lt;p&gt;Data were collected through face-to-face semi-structured interviews lasting approximately 30 min and were audio-recorded with the consent of both children and parents. Transcripts were analysed independently by two researchers using MAXQDA 22 software.&lt;/p&gt;\u0000 &lt;/section&gt;\u0000 \u0000 &lt;section&gt;\u0000 \u0000 &lt;h3&gt; Findings&lt;/h3&gt;\u0000 \u0000 &lt;p&gt;Five overarching themes were identified: emotional responses to peritoneal dialysis, physical burden of peritoneal dialysis, disruption to social and school life, family relationships, and coping and social support. Children most frequently reported fear, sadness and stress alongside physical symptoms, including abdominal pain, nausea and sleep disturbances. Social isolation, school absenteeism and disruption to peer relationships were also prominent.&lt;/p&gt;\u0000 &lt;/section&gt;\u0000 \u0000 &lt;section&gt;\u0000 \u0000 &lt;h3&gt; Conclusions&lt;/h3&gt;\u0000 \u0000 &lt;p&gt;Children undergoing peritoneal dialysis experience significant emotional, physical and psychosocial burdens. Family-centred nursing care, routine psychological screening, proactive school liaison and structured peer support are essential to improve outcomes for this population.&lt;/p&gt;\u0000 ","PeriodicalId":16947,"journal":{"name":"Journal of renal care","volume":"52 3","pages":""},"PeriodicalIF":2.0,"publicationDate":"2026-07-06","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148391293","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Global Variation in Predictors of Uptake of Conservative Kidney Management: A Systematic Review and Meta-Analysis 全球变化的预测摄取保守肾管理:系统回顾和荟萃分析
IF 2 4区 医学
Journal of renal care Pub Date : 2026-07-04 DOI: 10.1111/jorc.70071
Kerry-Lee Rosenberg, Naaheed Mukadam, Gordon Paterson, Jemima Sneddon, Diane Xu, Kashif Anwari, Aine Burns, Ben Caplin
{"title":"Global Variation in Predictors of Uptake of Conservative Kidney Management: A Systematic Review and Meta-Analysis","authors":"Kerry-Lee Rosenberg,&nbsp;Naaheed Mukadam,&nbsp;Gordon Paterson,&nbsp;Jemima Sneddon,&nbsp;Diane Xu,&nbsp;Kashif Anwari,&nbsp;Aine Burns,&nbsp;Ben Caplin","doi":"10.1111/jorc.70071","DOIUrl":"https://doi.org/10.1111/jorc.70071","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>For older people and those with more comorbidities, kidney replacement therapy may not offer a mortality benefit. Conservative kidney management represents an alternative treatment pathway for kidney failure without dialysis.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Objectives</h3>\u0000 \u0000 <p>To identify the clinical and socioeconomic factors associated with choosing a non-dialysis care pathway and to explore geographical variation.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Methods</h3>\u0000 \u0000 <p>MEDLINE, Embase and Web of Science databases were searched. Studies, which included patients with kidney failure choosing non-dialysis care and a comparator group of patients preparing for or receiving kidney replacement therapy, were selected. Exposures included clinical and socioeconomic factors. The outcome was a choice to have non-dialysis care. Random-effects meta-analysis was performed; with subgroup analysis by region.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>In total 43 studies, including 51,872 participants, were selected. Female sex was associated with choosing non-dialysis care (pooled OR 1.47, 95% CI 1.26–1.71). There was no overall association between non-white ethnicity and treatment choice in Western countries. However, in North America non-White groups had lower odds of receiving non-dialysis care compared to white patients (OR 0.70, 95% CI 0.60–0.81). Socioeconomic deprivation was associated with choosing non-dialysis care in Asia, as was low educational attainment (OR 2.85, 95% CI 1.54–5.26). There was an overall association between living alone and non-dialysis care (pooled OR 1.55, 95% CI 1.24–1.93).</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusion</h3>\u0000 \u0000 <p>The geographical variation in these results highlights the importance of social and political context in understanding treatment access. We identify living alone and low socioeconomic status as possible predictors of choosing non-dialysis care. This analysis cannot ascertain if these associations arise from appropriate shared decisions, challenges to the decision making process or barriers to accessing kidney replacement therapy. Nevertheless, this review illustrates the interplay of socioeconomic, interpersonal and systemic factors at play and lays the foundation to unravelling these complexities.</p>\u0000 </section>\u0000 </div>","PeriodicalId":16947,"journal":{"name":"Journal of renal care","volume":"52 3","pages":""},"PeriodicalIF":2.0,"publicationDate":"2026-07-04","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/jorc.70071","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148386411","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Developing a Set of Core Patient-Reported Outcomes for Kidney Replacement Therapy: A Modified Delphi Study 开发一套核心患者报告的肾脏替代治疗结果:一项修改的德尔菲研究。
IF 2 4区 医学
Journal of renal care Pub Date : 2026-07-01 DOI: 10.1111/jorc.70069
Jessica Nikolovski, Brendan Smyth, Shyamsundar Muthuramalingam, Stephen McDonald, Jessica Roydhouse, Olalekan Lee Aiyegbusi, Claudia Rutherford, Amy Luchterhand, Paolo Cardelli, Rachael L. Morton, the ANZDATA PROMs Delphi Group
{"title":"Developing a Set of Core Patient-Reported Outcomes for Kidney Replacement Therapy: A Modified Delphi Study","authors":"Jessica Nikolovski,&nbsp;Brendan Smyth,&nbsp;Shyamsundar Muthuramalingam,&nbsp;Stephen McDonald,&nbsp;Jessica Roydhouse,&nbsp;Olalekan Lee Aiyegbusi,&nbsp;Claudia Rutherford,&nbsp;Amy Luchterhand,&nbsp;Paolo Cardelli,&nbsp;Rachael L. Morton,&nbsp;the ANZDATA PROMs Delphi Group","doi":"10.1111/jorc.70069","DOIUrl":"10.1111/jorc.70069","url":null,"abstract":"&lt;div&gt;\u0000 \u0000 \u0000 &lt;section&gt;\u0000 \u0000 &lt;h3&gt; Background&lt;/h3&gt;\u0000 \u0000 &lt;p&gt;Patient-reported outcome measures can highlight the impact of kidney failure and kidney replacement therapy on a person's health-related quality of life and symptom burden. But their implementation is limited and heterogeneous within Australian and New Zealand kidney care.&lt;/p&gt;\u0000 &lt;/section&gt;\u0000 \u0000 &lt;section&gt;\u0000 \u0000 &lt;h3&gt; Objective&lt;/h3&gt;\u0000 \u0000 &lt;p&gt;Identify one generic health-related quality of life and one kidney-specific patient-reported outcome measure suitable for inclusion within the Australia and New Zealand Dialysis and Transplant Registry, including the mode and location of administration, timing and frequency of completion, and data presentation format.&lt;/p&gt;\u0000 &lt;/section&gt;\u0000 \u0000 &lt;section&gt;\u0000 \u0000 &lt;h3&gt; Design&lt;/h3&gt;\u0000 \u0000 &lt;p&gt;A three-phase modified Delphi study comprising two online surveys and a virtual consensus workshop.&lt;/p&gt;\u0000 &lt;/section&gt;\u0000 \u0000 &lt;section&gt;\u0000 \u0000 &lt;h3&gt; Participants&lt;/h3&gt;\u0000 \u0000 &lt;p&gt;Patients, carers, clinicians, researchers, and kidney registry staff from Australia, New Zealand and the United Kingdom.&lt;/p&gt;\u0000 &lt;/section&gt;\u0000 \u0000 &lt;section&gt;\u0000 \u0000 &lt;h3&gt; Measurements&lt;/h3&gt;\u0000 \u0000 &lt;p&gt;Participants voted on: their preferred patient-reported outcome measures, the mode and location of administration, timing and frequency of completion, and how they would like the data presented at the individual and aggregated levels.&lt;/p&gt;\u0000 &lt;/section&gt;\u0000 \u0000 &lt;section&gt;\u0000 \u0000 &lt;h3&gt; Results&lt;/h3&gt;\u0000 \u0000 &lt;p&gt;Fifty-three people consented to the study, 41 completed Survey #1, 43 completed Survey #2, and 30 attended the consensus workshop. The EuroQOL-5 Dimensions-5 Levels for generic health-related quality of life and the Integrated Palliative care Outcome Scale-Renal for kidney-specific outcomes reached majority vote. Participants agreed on electronic completion at home or in the dialysis unit to allow for staff support if needed. Consensus was not reached on the frequency of administration; most voted for completion at the commencement of dialysis or transplant and 6-monthly thereafter as a minimum.&lt;/p&gt;\u0000 &lt;/section&gt;\u0000 \u0000 &lt;section&gt;\u0000 \u0000 &lt;h3&gt; Conclusion&lt;/h3&gt;\u0000 \u0000 &lt;p&gt;The EuroQOL-5 Dimensions-5 Levels and the Integrated Palliative care Outcome Scale-Renal were recommended for collection by the Australia and New Zealand Dialysis and Transplant Registry. These will enable standardised, meaningful assessments of patients' health outcomes and support continuous quality im","PeriodicalId":16947,"journal":{"name":"Journal of renal care","volume":"52 3","pages":""},"PeriodicalIF":2.0,"publicationDate":"2026-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/jorc.70069","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148361096","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Issue Information: Journal of Renal Care 3/2026 期刊信息:Journal of Renal Care 3/2026
IF 2 4区 医学
Journal of renal care Pub Date : 2026-06-30 DOI: 10.1111/jorc.70070
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引用次数: 0
Occupational Therapy Services Provided to Adults Diagnosed With Kidney Disease: A Scoping Review 为诊断为肾脏疾病的成人提供的职业治疗服务:一项范围审查
IF 2 4区 医学
Journal of renal care Pub Date : 2026-06-30 DOI: 10.1111/jorc.70068
Jane Levison, Susan Brandis
{"title":"Occupational Therapy Services Provided to Adults Diagnosed With Kidney Disease: A Scoping Review","authors":"Jane Levison,&nbsp;Susan Brandis","doi":"10.1111/jorc.70068","DOIUrl":"https://doi.org/10.1111/jorc.70068","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>Chronic kidney disease and treatment have a severe and detrimental impact on life participation, reducing independence, autonomy, physical and cognitive function requiring a multidisciplinary approach. Occupational therapists have comprehensive skills in enabling independence and quality of life, yet the role in a kidney team is poorly understood.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Objectives</h3>\u0000 \u0000 <p>To identify occupational therapy services for adults diagnosed with kidney disease which will inform future practice, service planning and role definition.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Methods</h3>\u0000 \u0000 <p>Following Joanna Briggs Institute methodology for scoping reviews and the PRISMA-ScR guidelines, PubMed, Scopus, PsycINFO-OVID, ProQuest, and CINAHL were searched from inception to 15 December 2025. The population of interest was adults at any grade of kidney disease, the concept being occupational therapy services/models of care, and the context of any service setting. Results were transferred from Endnote to Covidence, duplicates removed and the title and abstract of articles screened. The full text of the remaining articles was assessed by two researchers, and themes were identified in alignment with the research questions.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>The search provided 1603 results, with 434 duplicates removed leaving 1169 articles. Following title and abstract screening, 40 papers remained for full text review, resulting in 23 studies for data extraction and analysis. Themes identified included types of occupational therapy interventions, grade of disease progression when interventions were undertaken, models of care and service location. The most reported occupational therapy roles related to activities of daily living, equipment prescription and mental health interventions.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusions</h3>\u0000 \u0000 <p>While the occupational therapy role for patients with kidney disease is evolving worldwide, notably over the past 5 years, it is still underutilised. Further research is required to inform the development of clinical practice guidelines for clear role delineation.</p>\u0000 </section>\u0000 </div>","PeriodicalId":16947,"journal":{"name":"Journal of renal care","volume":"52 3","pages":""},"PeriodicalIF":2.0,"publicationDate":"2026-06-30","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/jorc.70068","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148343348","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Implementation of Personalised Peritoneal Dialysis Strategies and Their Associations With Dialysis Adequacy, Complication Control, and Quality of Life Improvement 个体化腹膜透析策略的实施及其与透析充分性、并发症控制和生活质量改善的关系。
IF 2 4区 医学
Journal of renal care Pub Date : 2026-06-22 DOI: 10.1111/jorc.70067
Meiyang Zhou, Haole Huang, Canxin Zhou
{"title":"Implementation of Personalised Peritoneal Dialysis Strategies and Their Associations With Dialysis Adequacy, Complication Control, and Quality of Life Improvement","authors":"Meiyang Zhou,&nbsp;Haole Huang,&nbsp;Canxin Zhou","doi":"10.1111/jorc.70067","DOIUrl":"10.1111/jorc.70067","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>Peritoneal dialysis is an established kidney replacement therapy for people with kidney failure, allowing home-based treatment, autonomy and preservation of residual kidney function. However, large differences in solute transport, fluid balance and treatment adherence make long-term management difficult. Conventional empiric approaches may not adequately address these variations. This study evaluated the effect of a structured, personalised peritoneal dialysis strategy on dialysis adequacy, volume control, complication rates, and health-related quality of life.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Methods</h3>\u0000 \u0000 <p>In this single-centre, prospective, randomised controlled trial, 298 people receiving peritoneal dialysis were enroled between January 2018 and January 2025 and randomly assigned (1:1) to an intervention group or a control group (<i>n</i> = 149 each). The intervention programme included prescription stratification guided by the peritoneal equilibration test, monthly bioimpedance analysis for fluid assessment, residual kidney function preservation measures, nutritional support and remote monitoring with alert feedback. The control group received conventional outpatient peritoneal dialysis care. The primary endpoint was weekly Kt/V at 12 months. Secondary endpoints included creatinine clearance, overhydration, rate of residual kidney function decline, peritonitis incidence, hospitalisation, Kidney Disease Quality of Life 36-item instrument scores, and safety.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>At 12 months, the intervention group had a higher weekly Kt/V than the control group (1.92 ± 0.34 vs. 1.74 ± 0.36; <i>p</i> = 0.003). The intervention was also associated with improved solute clearance and volume control, slower decline in residual kidney function, lower peritonitis and hospitalisation burden, and better health-related quality of life, without additional safety concerns.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusion</h3>\u0000 \u0000 <p>Structured personalised peritoneal dialysis management improves dialysis adequacy, fluid status, and person's well-being, while maintaining safety and feasibility.</p>\u0000 </section>\u0000 </div>","PeriodicalId":16947,"journal":{"name":"Journal of renal care","volume":"52 2","pages":""},"PeriodicalIF":2.0,"publicationDate":"2026-06-22","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148295520","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
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