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IJFAB: International Journal of Feminist Approaches to Bioethics最新文献

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Knowing with the Disability Community: Building a Disability Standpoint for Health Policy Research 了解残障社群:为卫生政策研究建立残障立场
IJFAB: International Journal of Feminist Approaches to Bioethics Pub Date : 2021-09-01 DOI: 10.3138/ijfab-14.2.03
Laura M. Cupples
{"title":"Knowing with the Disability Community: Building a Disability Standpoint for Health Policy Research","authors":"Laura M. Cupples","doi":"10.3138/ijfab-14.2.03","DOIUrl":"https://doi.org/10.3138/ijfab-14.2.03","url":null,"abstract":"Abstract:For the last eighteen months, I have worked with a group of disability and health policy researchers. I began this interview-based project trying to learn how these researchers’ disability identities shaped their work. How did their disability standpoint contribute to the liberatory nature of their research? I found that the disability standpoint of these researchers was in fact hard-won and grew not just out of their own disability experiences but out of their connections with the larger disability community. These connections, for the most part, helped researchers come to “claim crip,” and that later influenced their research.","PeriodicalId":13383,"journal":{"name":"IJFAB: International Journal of Feminist Approaches to Bioethics","volume":"2 1","pages":"36 - 60"},"PeriodicalIF":0.0,"publicationDate":"2021-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"89825605","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 1
A Tsunami of Love: Overcoming the Violence of Curiosity—The Lived Experiences of Young Adults Born with Variations of Sex Characteristics 爱的海啸:克服好奇心的暴力——天生性别特征变异的年轻人的生活经历
IJFAB: International Journal of Feminist Approaches to Bioethics Pub Date : 2021-09-01 DOI: 10.3138/ijfab-14.2.02
E. De Clercq
{"title":"A Tsunami of Love: Overcoming the Violence of Curiosity—The Lived Experiences of Young Adults Born with Variations of Sex Characteristics","authors":"E. De Clercq","doi":"10.3138/ijfab-14.2.02","DOIUrl":"https://doi.org/10.3138/ijfab-14.2.02","url":null,"abstract":"Abstract:This study provides insight into the experiences of young adults born with variations of sex characteristics to identify aspects of care and social support that need improvement. Semi-structured interviews with intersex youths in Switzerland were analyzed using interpretative, phenomenological analysis. Young adults desire timely, patient-centered information about their diagnoses. Peer support is key to delivering high-quality care but rarely systematically implemented. Intersex youth often face misrepresentation, stigma, and discrimination in medical settings and in society. Increased visibility alone cannot tackle these issues, but a feminist curiosity of care will enable health providers and society to overcome preconceptions of body normativity.","PeriodicalId":13383,"journal":{"name":"IJFAB: International Journal of Feminist Approaches to Bioethics","volume":"188 1","pages":"11 - 35"},"PeriodicalIF":0.0,"publicationDate":"2021-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"76568900","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 1
The Turnaway Study: Ten Years, a Thousand Women, and the Consequences of Having—or Being Denied—an Abortion by Diana Green Foster. 《逃避研究:十年，一千名妇女，以及堕胎或被拒绝堕胎的后果》作者:戴安娜·格林·福斯特。
IJFAB: International Journal of Feminist Approaches to Bioethics Pub Date : 2021-09-01 DOI: 10.3138/ijfab.14.2.br03
K. MacKay
{"title":"The Turnaway Study: Ten Years, a Thousand Women, and the Consequences of Having—or Being Denied—an Abortion by Diana Green Foster.","authors":"K. MacKay","doi":"10.3138/ijfab.14.2.br03","DOIUrl":"https://doi.org/10.3138/ijfab.14.2.br03","url":null,"abstract":"","PeriodicalId":13383,"journal":{"name":"IJFAB: International Journal of Feminist Approaches to Bioethics","volume":"12 1","pages":""},"PeriodicalIF":0.0,"publicationDate":"2021-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"79988070","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 24
A Second Chance at Health 第二次健康机会
IJFAB: International Journal of Feminist Approaches to Bioethics Pub Date : 2021-09-01 DOI: 10.3138/ijfab-14.2.05
Jennifer Elyse James
{"title":"A Second Chance at Health","authors":"Jennifer Elyse James","doi":"10.3138/ijfab-14.2.05","DOIUrl":"https://doi.org/10.3138/ijfab-14.2.05","url":null,"abstract":"Mass incarceration and the aging prison population in the United States is an ethical crisis, understudied in empirical bioethics research. In this article, I share one woman’s narrative to illustrate how older Black women describe accessing healthcare while incarcerated and identify sites for bioethical exploration. I argue that, due to the punitive nature of prison healthcare interactions, wherein women are seen as inmates first and patients second, healthcare providers are caught in a trap of competing ethical commitments to their patients and the state. As the prison population ages, these challenges will become more acute. Feminist bioethics has a critical role to play in imagining new possibilities for accessing, giving, and receiving care in the carceral context.","PeriodicalId":13383,"journal":{"name":"IJFAB: International Journal of Feminist Approaches to Bioethics","volume":"35 1","pages":""},"PeriodicalIF":0.0,"publicationDate":"2021-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"76211366","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Medical Sexism: Contraception Access, Reproductive Medicine, and Health Care by Jill B. Delston (review) 医学性别歧视:避孕途径、生殖医学和卫生保健吉尔·b·德尔斯顿著(综述)
IJFAB: International Journal of Feminist Approaches to Bioethics Pub Date : 2021-09-01 DOI: 10.3138/ijfab.14.2.br04
Deborah McNabb, L. Campo-Engelstein
{"title":"Medical Sexism: Contraception Access, Reproductive Medicine, and Health Care by Jill B. Delston (review)","authors":"Deborah McNabb, L. Campo-Engelstein","doi":"10.3138/ijfab.14.2.br04","DOIUrl":"https://doi.org/10.3138/ijfab.14.2.br04","url":null,"abstract":"","PeriodicalId":13383,"journal":{"name":"IJFAB: International Journal of Feminist Approaches to Bioethics","volume":"37 1","pages":"200 - 204"},"PeriodicalIF":0.0,"publicationDate":"2021-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"79036319","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Between Autonomy and Solidarity: An African Woman’s Autoethnography 在自治与团结之间:一位非洲妇女的自我民族志
IJFAB: International Journal of Feminist Approaches to Bioethics Pub Date : 2021-09-01 DOI: 10.3138/ijfab-14.2.04
C. Kithinji, H. Maleche, Ann Masiga, J. Masiga
{"title":"Between Autonomy and Solidarity: An African Woman’s Autoethnography","authors":"C. Kithinji, H. Maleche, Ann Masiga, J. Masiga","doi":"10.3138/ijfab-14.2.04","DOIUrl":"https://doi.org/10.3138/ijfab-14.2.04","url":null,"abstract":"Abstract:As an infant, my grandmother chewed my food for me because I was not capable of chewing on my own. As an adult, most African men still want to chew my food for me. So, how do African women consent to research when culturally they must surrender their autonomy? We join in solidarity and create our own collective autonomy. We know the rules of our patriarchal society and outwardly adhere to them. As an ethicist, I (Caroline Kithinji) have developed a sense of responsibility and solidarity with female research subjects; we collaborate in the full understanding of our lack of autonomy.","PeriodicalId":13383,"journal":{"name":"IJFAB: International Journal of Feminist Approaches to Bioethics","volume":"11 1","pages":"61 - 69"},"PeriodicalIF":0.0,"publicationDate":"2021-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"84597228","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Birthing Alone: An Ethical Analysis of Pandemic Policies Banning Birthing Partners 单独生育:禁止生育伴侣的流行病政策的伦理分析
IJFAB: International Journal of Feminist Approaches to Bioethics Pub Date : 2021-09-01 DOI: 10.3138/ijfab-14.2.08
Phoebe Friesen, S. Towle, T. Perez
{"title":"Birthing Alone: An Ethical Analysis of Pandemic Policies Banning Birthing Partners","authors":"Phoebe Friesen, S. Towle, T. Perez","doi":"10.3138/ijfab-14.2.08","DOIUrl":"https://doi.org/10.3138/ijfab-14.2.08","url":null,"abstract":"Abstract:During the COVID-19 pandemic, several hospitals implemented “birthing alone” policies, banning companions (e.g., partners, family members, doulas) from accompanying individuals giving birth. We offer an ethical analysis of these policies. First, we examine them through a consequentialist framework of risks and benefits. Second, we consider the significance of birth, highlighting the unique ways in which risks, relationships, and rights are understood in the context of obstetrics. We conclude that birthing alone policies are largely unjustified, as the harm they are certain to cause outweighs their possible benefits and because they fail to take into account what matters to mothers.","PeriodicalId":13383,"journal":{"name":"IJFAB: International Journal of Feminist Approaches to Bioethics","volume":"24 1","pages":"114 - 143"},"PeriodicalIF":0.0,"publicationDate":"2021-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"81723499","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 5
Donchin and Holmes Emerging Scholar Prize Paper Understanding and Correcting Sex Disparity in Cardiovascular Disease Research: Ethical and Practical Solutions Donchin和Holmes新兴学者奖论文:理解和纠正心血管疾病研究中的性别差异:伦理和实用的解决方案
IJFAB: International Journal of Feminist Approaches to Bioethics Pub Date : 2021-09-01 DOI: 10.3138/ijfab-14.2.06
Lida Sarafraz
{"title":"Donchin and Holmes Emerging Scholar Prize Paper Understanding and Correcting Sex Disparity in Cardiovascular Disease Research: Ethical and Practical Solutions","authors":"Lida Sarafraz","doi":"10.3138/ijfab-14.2.06","DOIUrl":"https://doi.org/10.3138/ijfab-14.2.06","url":null,"abstract":"Cardiovascular disease is the leading cause of death of women in the United States, yet cardiovascular research is disproportionately conducted using male human subjects and male animal models. This article deploys Katrina Hutchison’s (2019) analysis of gender disparity in clinical trials as a moral aggregation problem to address the problem of underrepresentation of women in cardiovascular research. I identify cost concerns, convenience, pregnancy, and negligence as potential reasons for the underrepresentation of women in CVD research. Finally, I suggest that multilevel strategies will be needed to eliminate sex disparity in CVD research and improve patient care.","PeriodicalId":13383,"journal":{"name":"IJFAB: International Journal of Feminist Approaches to Bioethics","volume":"123 1","pages":""},"PeriodicalIF":0.0,"publicationDate":"2021-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"76072406","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Infrahumanisms: Science, Culture, and the Making of Modern Non/Personhood by Megan H. Glick (review) 《人文主义:科学、文化和现代非人格的形成》，作者:梅根·h·格利克(书评)
IJFAB: International Journal of Feminist Approaches to Bioethics Pub Date : 2021-09-01 DOI: 10.3138/ijfab.14.2.br02
Joshua Stein
{"title":"Infrahumanisms: Science, Culture, and the Making of Modern Non/Personhood by Megan H. Glick (review)","authors":"Joshua Stein","doi":"10.3138/ijfab.14.2.br02","DOIUrl":"https://doi.org/10.3138/ijfab.14.2.br02","url":null,"abstract":"","PeriodicalId":13383,"journal":{"name":"IJFAB: International Journal of Feminist Approaches to Bioethics","volume":"9 1","pages":"191 - 196"},"PeriodicalIF":0.0,"publicationDate":"2021-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"89796394","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
A Frigid Hope: A Journey into Chinese Experimental Stem Cell Surgery 冰冷的希望:中国实验性干细胞手术之旅
IJFAB: International Journal of Feminist Approaches to Bioethics Pub Date : 2021-09-01 DOI: 10.3138/ijfab-14.2.10
M. Winchester
{"title":"A Frigid Hope: A Journey into Chinese Experimental Stem Cell Surgery","authors":"M. Winchester","doi":"10.3138/ijfab-14.2.10","DOIUrl":"https://doi.org/10.3138/ijfab-14.2.10","url":null,"abstract":"","PeriodicalId":13383,"journal":{"name":"IJFAB: International Journal of Feminist Approaches to Bioethics","volume":"35 1","pages":"180 - 186"},"PeriodicalIF":0.0,"publicationDate":"2021-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"89085632","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 1
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