European journal for biomedical informatics最新文献

{"title":"Evaluating the Perceptions of Teleconsent in Urban and Rural Communities.","authors":"Saif Khairat,&nbsp;Katie Tirtanadi,&nbsp;Paige Ottmar,&nbsp;Betsy Sleath,&nbsp;Jihad Obeid","doi":"","DOIUrl":"","url":null,"abstract":"<p><strong>Background: </strong>Obtaining informed consent from research study participants continues to meet difficulties. New ways to connect with potential participants are necessary to address barriers, expand enrollment and offer more services to underserved populations.</p><p><strong>Objectives: </strong>Electronic consent is designed to complete consenting sessions remotely and may help combat the obstacles inherent in the traditional informed consent process. We investigate the implementation of an electronic consent platform, Teleconsent, to broaden and diversify recruitment for clinical research.</p><p><strong>Methods: </strong>Semi-structured interviews were conducted with community members to assess their perceptions regarding the acceptability and usability of Teleconsent, a form of electronic consent. Interviews were structured to determine the main benefits, challenges and concerns as detailed by each participant. Participants were divided into rural and urban groupings.</p><p><strong>Results: </strong>We interviewed 40 participants to gather first-time perceptions of Teleconsent. We found overall positive results. Predominately in urban communities, participants possessed the technological skills and amenities to support smooth implementation of this technology. However, many participants reflect on the challenges regarding logistics, privacy and reliability of utilizing Teleconsent in underserved, rural areas. 5 of 19 participants, more than a quarter for the rural group, experienced Teleconsent software problems. During these sessions, an alternative process with paper templates was employed to complete interviews.</p><p><strong>Conclusion: </strong>Perceptions regarding Teleconsent demonstrate current challenges along with potential acceptance within different communities. This is despite the fact that on its own it will not be able to overcome the barriers currently found in the informed consent process. Still, investment in electronic consent, including the development of enhanced and interactive content, can potentially revolutionize this process. Our findings offer a preliminary step towards determining the feasibility and acceptance of Teleconsent, a form of electronic consent, in different communities. More research surrounding the logistics of adoption is necessary in order to determine success.</p>","PeriodicalId":92508,"journal":{"name":"European journal for biomedical informatics","volume":"15 2","pages":""},"PeriodicalIF":0.0,"publicationDate":"2019-08-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7427121/pdf/nihms-1586427.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"38271055","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Evaluating the Perceptions of Teleconsent in Urban and Rural Communities.","authors":"Saif S. Khairat, Katie Tirtanadi, Paige Ottmar, B. Sleath, J. Obeid","doi":"10.24105/EJBI.2019.15.2.1","DOIUrl":"https://doi.org/10.24105/EJBI.2019.15.2.1","url":null,"abstract":"Background\u0000Obtaining informed consent from research study participants continues to meet difficulties. New ways to connect with potential participants are necessary to address barriers, expand enrollment and offer more services to underserved populations.\u0000\u0000\u0000Objectives\u0000Electronic consent is designed to complete consenting sessions remotely and may help combat the obstacles inherent in the traditional informed consent process. We investigate the implementation of an electronic consent platform, Teleconsent, to broaden and diversify recruitment for clinical research.\u0000\u0000\u0000Methods\u0000Semi-structured interviews were conducted with community members to assess their perceptions regarding the acceptability and usability of Teleconsent, a form of electronic consent. Interviews were structured to determine the main benefits, challenges and concerns as detailed by each participant. Participants were divided into rural and urban groupings.\u0000\u0000\u0000Results\u0000We interviewed 40 participants to gather first-time perceptions of Teleconsent. We found overall positive results. Predominately in urban communities, participants possessed the technological skills and amenities to support smooth implementation of this technology. However, many participants reflect on the challenges regarding logistics, privacy and reliability of utilizing Teleconsent in underserved, rural areas. 5 of 19 participants, more than a quarter for the rural group, experienced Teleconsent software problems. During these sessions, an alternative process with paper templates was employed to complete interviews.\u0000\u0000\u0000Conclusion\u0000Perceptions regarding Teleconsent demonstrate current challenges along with potential acceptance within different communities. This is despite the fact that on its own it will not be able to overcome the barriers currently found in the informed consent process. Still, investment in electronic consent, including the development of enhanced and interactive content, can potentially revolutionize this process. Our findings offer a preliminary step towards determining the feasibility and acceptance of Teleconsent, a form of electronic consent, in different communities. More research surrounding the logistics of adoption is necessary in order to determine success.","PeriodicalId":92508,"journal":{"name":"European journal for biomedical informatics","volume":"15 2 1","pages":""},"PeriodicalIF":0.0,"publicationDate":"2019-07-05","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"69016154","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Teleconsent - A New Modality for Informed Consenting.","authors":"Saif Khairat,&nbsp;Jihad S Obeid","doi":"","DOIUrl":"","url":null,"abstract":"","PeriodicalId":92508,"journal":{"name":"European journal for biomedical informatics","volume":"14 4","pages":"63-64"},"PeriodicalIF":0.0,"publicationDate":"2018-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6223264/pdf/nihms-991916.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"36654773","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Teleconsent - A New Modality for Informed Consenting.","authors":"Saif S. Khairat, J. Obeid","doi":"10.24105/EJBI.2018.14.4.10","DOIUrl":"https://doi.org/10.24105/EJBI.2018.14.4.10","url":null,"abstract":"Obtaining informed consent, the process wherein the research participant or patient formally authorizes the researcher or provider to provide care or to exchange medical information between providers, is necessary for the delivery of care or conducting research. The introduction of health information technologies such as telehealth, the ability to deliver healthcare virtually, has facilitated accessibility levels to healthcare services. We introduce a new modality of telehealth to obtain the consent of patients and providers using information technologies. Teleconsent differs from traditional informed consent by extricating the in-person and pen-to-paper signature, instead having a video interaction between the participant and the provider followed by a photo-based or handwritten e-signature.","PeriodicalId":92508,"journal":{"name":"European journal for biomedical informatics","volume":"14 4 1","pages":"63-64"},"PeriodicalIF":0.0,"publicationDate":"2018-08-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"46652856","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}