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European journal of genetics in society : an ethical approach to genetics最新文献

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Against experimentation on human embryos. 反对在人类胚胎上做实验。
European journal of genetics in society : an ethical approach to genetics Pub Date : 1997-07-01 DOI: 10.1179/hrge.3.1.q8752n73x7027747
A. Gemelli
{"title":"Against experimentation on human embryos.","authors":"A. Gemelli","doi":"10.1179/hrge.3.1.q8752n73x7027747","DOIUrl":"https://doi.org/10.1179/hrge.3.1.q8752n73x7027747","url":null,"abstract":"","PeriodicalId":81225,"journal":{"name":"European journal of genetics in society : an ethical approach to genetics","volume":"3 1 1","pages":"13-5"},"PeriodicalIF":0.0,"publicationDate":"1997-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1179/hrge.3.1.q8752n73x7027747","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"65527527","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
From medically assisted procreation to euthanasia: a modern way to deal with ethical dilemmas in modern medicine. 从医学辅助生育到安乐死:处理现代医学伦理困境的现代方法。
European journal of genetics in society : an ethical approach to genetics Pub Date : 1997-01-01 DOI: 10.1179/HRGE.3.2.221056J087M10865
Y. Englert
{"title":"From medically assisted procreation to euthanasia: a modern way to deal with ethical dilemmas in modern medicine.","authors":"Y. Englert","doi":"10.1179/HRGE.3.2.221056J087M10865","DOIUrl":"https://doi.org/10.1179/HRGE.3.2.221056J087M10865","url":null,"abstract":"AbstractSince neither moralists nor jurists have been able to cope with the philosophical questions raised by the technological advances and changing attitudes in health care, a new social structure was created in the seventies known as bioethics. Since then, bioethics has been predominantly used as a new process to express moral rules and repress social evolutions in extremely sensitive fields in society such as assisted procreation techniques and new family planning, sexual abuse of children and sexual liberation, palliative care, euthanasia and quality of life and death.Using examples at the extremities of life (in vitro fertilisation and euthanasia) it will be demonstrated that no single approach to bioethics exists which is often confused with the concept of morals or laws. Bioethics is by essence conflictual and must be used to analyse and understand how the social evolution interacts with the technological advances.A position supported by principles of equality of access, and the respect of autonom...","PeriodicalId":81225,"journal":{"name":"European journal of genetics in society : an ethical approach to genetics","volume":"3 2 1","pages":"22-6"},"PeriodicalIF":0.0,"publicationDate":"1997-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1179/HRGE.3.2.221056J087M10865","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"65528064","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
A sociological perspective on genetic screening. 遗传筛选的社会学视角。
European journal of genetics in society : an ethical approach to genetics Pub Date : 1997-01-01 DOI: 10.1179/HRGE.3.2.E812833R03286441
M. Levitt
{"title":"A sociological perspective on genetic screening.","authors":"M. Levitt","doi":"10.1179/HRGE.3.2.E812833R03286441","DOIUrl":"https://doi.org/10.1179/HRGE.3.2.E812833R03286441","url":null,"abstract":"Social science has an acknowledged role in carrying out empirical research on the effects of screening programmes which provides data for medical professionals and resource managers. However, it will be argued that sociology can contribute to discussion in ethics not simply by the provision of empirical data but also by the different theoretical frameworks it employs which lead to different perspectives on the same topics as those which engage philosophy and psychology.","PeriodicalId":81225,"journal":{"name":"European journal of genetics in society : an ethical approach to genetics","volume":"3 2 1","pages":"19-21"},"PeriodicalIF":0.0,"publicationDate":"1997-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1179/HRGE.3.2.E812833R03286441","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"65527633","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 5
An historical development of patenting microorganisms and genetically engineered animals in the USA and Europe. 美国和欧洲微生物和基因工程动物专利的历史发展。
European journal of genetics in society : an ethical approach to genetics Pub Date : 1996-07-08 DOI: 10.1179/HRGE.2.2.23394007L43022M3
R. D. McTaggart
{"title":"An historical development of patenting microorganisms and genetically engineered animals in the USA and Europe.","authors":"R. D. McTaggart","doi":"10.1179/HRGE.2.2.23394007L43022M3","DOIUrl":"https://doi.org/10.1179/HRGE.2.2.23394007L43022M3","url":null,"abstract":"Patent law was established to encourage useful invention, and it has proved itself to be adaptable to the latest technologies. Genetic engineering has, however, presented a unique challenge to the traditional requirements and scope of patentability in Europe and America. The USA has been responsive to the genetic engineering of animals when interpreting its law, due to the revolutionary Chackrabarty decision in 1980 which opened the way to the patenting of life forms. European law, guided by the European Patent Convention, has been less able to adapt quickly to the concept of animal patents. It was the historical Harvard Mouse that caught the world's attention, and since then animal patenting has been the focus of heated legal and social debate in Europe and America. Never before has international patent law had to address such a complex and lively issue.","PeriodicalId":81225,"journal":{"name":"European journal of genetics in society : an ethical approach to genetics","volume":"2 1 1","pages":"2-14"},"PeriodicalIF":0.0,"publicationDate":"1996-07-08","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"65527277","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
An historical development of patenting microorganisms and genetically engineered animals in the USA and Europe. Part 2. Developments in the EU. 美国和欧洲微生物和基因工程动物专利的历史发展。第2部分。欧盟的发展。
European journal of genetics in society : an ethical approach to genetics Pub Date : 1996-01-01 DOI: 10.1179/HRGE.2.1.8X8M7087U0812157
R. D. McTaggart
{"title":"An historical development of patenting microorganisms and genetically engineered animals in the USA and Europe. Part 2. Developments in the EU.","authors":"R. D. McTaggart","doi":"10.1179/HRGE.2.1.8X8M7087U0812157","DOIUrl":"https://doi.org/10.1179/HRGE.2.1.8X8M7087U0812157","url":null,"abstract":"","PeriodicalId":81225,"journal":{"name":"European journal of genetics in society : an ethical approach to genetics","volume":"2 2 1","pages":"39-46"},"PeriodicalIF":0.0,"publicationDate":"1996-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1179/HRGE.2.1.8X8M7087U0812157","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"65527236","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Predictive and carrier testing of children: professional dilemmas for clinical geneticists. 儿童的预测和携带者检测:临床遗传学家的专业困境。
European journal of genetics in society : an ethical approach to genetics Pub Date : 1996-01-01 DOI: 10.1179/HRGE.2.2.U5741641357JTU7H
A. Chapple, C. May, P. Campion
{"title":"Predictive and carrier testing of children: professional dilemmas for clinical geneticists.","authors":"A. Chapple, C. May, P. Campion","doi":"10.1179/HRGE.2.2.U5741641357JTU7H","DOIUrl":"https://doi.org/10.1179/HRGE.2.2.U5741641357JTU7H","url":null,"abstract":"AbstractRecent advances in molecular genetics mean that doctors are now in a position to test for certain genetic disorders that may develop later in life; similarly, carrier testing has become more frequent. This has prompted debate about the ethical justification of presymptomatic testing of adults. The presymptomatic testing of children is an ethical issue that is even more complex. However, those providing genetic counselling on such topics must consider not only the wishes of the parents but also the rights of the child. This paper reports on a qualitative study of thirty families attending an out-patient Regional Genetics Clinic, and discusses the problems that the genetic counsellor faces in negotiating the everyday exigencies of such work. In particular, we focus on the question of how guidelines, or protocols might help counsellors deal with these routine, practical, dilemmas. The paper examines the way in which these dilemmas are managed by geneticists and families. We explore the potential conf...","PeriodicalId":81225,"journal":{"name":"European journal of genetics in society : an ethical approach to genetics","volume":"2 2 1","pages":"28-38"},"PeriodicalIF":0.0,"publicationDate":"1996-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1179/HRGE.2.2.U5741641357JTU7H","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"65527343","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 20
What rules for procreation? 生育的规则是什么?
European journal of genetics in society : an ethical approach to genetics Pub Date : 1995-01-01 DOI: 10.1179/HRGE.1.1.R25281390571NP72
C. Byk
{"title":"What rules for procreation?","authors":"C. Byk","doi":"10.1179/HRGE.1.1.R25281390571NP72","DOIUrl":"https://doi.org/10.1179/HRGE.1.1.R25281390571NP72","url":null,"abstract":"","PeriodicalId":81225,"journal":{"name":"European journal of genetics in society : an ethical approach to genetics","volume":"1 1 1","pages":"7-11"},"PeriodicalIF":0.0,"publicationDate":"1995-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1179/HRGE.1.1.R25281390571NP72","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"65526907","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 1
The value of genetic material. 遗传物质的价值。
European journal of genetics in society : an ethical approach to genetics Pub Date : 1995-01-01 DOI: 10.1179/hrge.1.2.bg6m471t63127781
{"title":"The value of genetic material.","authors":"","doi":"10.1179/hrge.1.2.bg6m471t63127781","DOIUrl":"https://doi.org/10.1179/hrge.1.2.bg6m471t63127781","url":null,"abstract":"","PeriodicalId":81225,"journal":{"name":"European journal of genetics in society : an ethical approach to genetics","volume":"1 2 1","pages":"1"},"PeriodicalIF":0.0,"publicationDate":"1995-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1179/hrge.1.2.bg6m471t63127781","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"65526917","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
The new gene technology and the difference between getting rid of illness and altering people. 新的基因技术以及摆脱疾病和改变人类之间的区别。
European journal of genetics in society : an ethical approach to genetics Pub Date : 1995-01-01 DOI: 10.1179/HRGE.1.1.276042718403JH80
A. Sutton
{"title":"The new gene technology and the difference between getting rid of illness and altering people.","authors":"A. Sutton","doi":"10.1179/HRGE.1.1.276042718403JH80","DOIUrl":"https://doi.org/10.1179/HRGE.1.1.276042718403JH80","url":null,"abstract":"With the possibility of gene therapy on the horizon in the case of illnesses such as cystic fibrosis, it is probable that some parents, who in the past would have chosen prenatal diagnosis with a view to selective abortion (Royal College of Physicians 1989), in the future will chose neonatal or prenatal diagnosis with a view to gene treatment, should their child be affected by a treatable genetic illness. This is welcome news not only for those who view abortion as an act of homicide, but also for many prospective parents of a different outlook. The possibility of treatment would spare many women (who might otherwise have contemplated the possibility of abortion) the agonising choice between going through the ordeal of having an abortion and loosing a child or giving birth to a child facing a life, the length and quality of which would to be affected by illness and suffering. Whatever their outlook, for couples who are aware that they are at increased risk of having a child affected by a certain disease, the possibility of treating such a child will certainly make the decision to embark on pregnancy easier.","PeriodicalId":81225,"journal":{"name":"European journal of genetics in society : an ethical approach to genetics","volume":"111 1","pages":"12-20"},"PeriodicalIF":0.0,"publicationDate":"1995-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1179/HRGE.1.1.276042718403JH80","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"65526857","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 1
ADPKD and the clinical and ethical challenges of predictive medicine. ADPKD和预测医学的临床和伦理挑战。
European journal of genetics in society : an ethical approach to genetics Pub Date : 1995-01-01 DOI: 10.1179/HRGE.1.1.Q7W24U2013222263
R. Kielstein
{"title":"ADPKD and the clinical and ethical challenges of predictive medicine.","authors":"R. Kielstein","doi":"10.1179/HRGE.1.1.Q7W24U2013222263","DOIUrl":"https://doi.org/10.1179/HRGE.1.1.Q7W24U2013222263","url":null,"abstract":"Progress in human genetics allows for information on severe human disorders such as Cystic Fibrosis, Huntington's chorea, Duchenne's disease, and ADPKD.As only limited therapeutic and preventive measures are available in most cases, genetic information calls for developing carrier ethics, including health risk competence and a redefinition of the concept of responsible parenthood.Pre-implementation diagnosis and early abortion, wherever clinically available and ethically acceptable, will become an instrument of new reproductive ethics. Human ADPKD disorder will be used as an exemplary case study for the impact of the Human Genome Project on medical ethics and carrier ethics in a transcultural perspective.","PeriodicalId":81225,"journal":{"name":"European journal of genetics in society : an ethical approach to genetics","volume":"1 1 1","pages":"2-6"},"PeriodicalIF":0.0,"publicationDate":"1995-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1179/HRGE.1.1.Q7W24U2013222263","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"65526896","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 1
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