Rachael HaileSelasse, Meera Nair Harhay, Brandy-Joe Milliron, Bengucan Gunen, Sneha Hingorany, Jasmine Sweeting, Joanna H Lee, Ann C Klassen
{"title":"The Case for Trauma-Informed Chronic Disease Care: Exploring Trauma Among Adults With Obesity On Dialysis.","authors":"Rachael HaileSelasse, Meera Nair Harhay, Brandy-Joe Milliron, Bengucan Gunen, Sneha Hingorany, Jasmine Sweeting, Joanna H Lee, Ann C Klassen","doi":"","DOIUrl":"","url":null,"abstract":"<p><p>This study describes how U.S. dialysis patients with obesity experience trauma and manage it and co-occurring chronic diseases. We interviewed 40 adult hemodialysis patients and 20 physicians and dietitians. Transcripts were inductively coded using trauma theory. Patients described trauma that impacted their ability to manage co-morbidities. Providers characterized patient trauma and their own vicarious trauma while working in dialysis care. Nearly all patients reported trauma, most with characteristics of chronic, emotional, and/or medical trauma, and many described trauma from systems and vicarious trauma across relationships. Complex intersecting trauma exacerbates chronic disease burdens and may impact treatment effectiveness, successful management of co-morbidities, and patients' relationships. Results demonstrate the need for trauma interventions within chronic disease treatment and community settings.</p>","PeriodicalId":75091,"journal":{"name":"The journal of nephrology social work","volume":"48 1","pages":""},"PeriodicalIF":0.0,"publicationDate":"2024-03-26","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12001835/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144060694","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Rosalba Hernandez, Brett Burrows, Kenneth Wilund, Judith T Moskowitz
{"title":"Expressions of Gratitude and Positive Emotion among Hemodialysis Patients: Qualitative Findings.","authors":"Rosalba Hernandez, Brett Burrows, Kenneth Wilund, Judith T Moskowitz","doi":"","DOIUrl":"","url":null,"abstract":"<p><strong>Objectives: </strong>The current qualitative inquiry solicited hemodialysis (HD) patients to identify events or incidences that have gone well in their day-to-day life, things they consider to be blessings, and to further reflect on the contributors of such events.</p><p><strong>Methods: </strong>Hemodialysis patients kept an electronic journal using investigator-purchased tablet computers.</p><p><strong>Results: </strong>Multiple themes emerged for which HD patients expressed gratitude: 1) life itself, 2) positive or improving health 3) family interactions and social support, 4) clinic resources, favorable treatment therapy, and staff, and 5) other small events.</p><p><strong>Conclusions: </strong>Clinicians are urged to explore the psychological assets that HD patients possess with a focus on how these might be further cultivated and whether their amplification leads to improved quality of life.</p>","PeriodicalId":75091,"journal":{"name":"The journal of nephrology social work","volume":"44 1","pages":"9-12"},"PeriodicalIF":0.0,"publicationDate":"2020-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10353775/pdf/nihms-1602863.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10225974","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Mi-Kyung Song, Sandra E Ward, Laura C Hanson, Feng-Chang Lin, Jill B Hamilton, Gerald Hladik, Jason P Fine, Jessica C Bridgman, Summer K Sun, Margaret S Miles
{"title":"Psychological symptoms and end-of-life decision making confidencein surrogate decision-makers of dialysis patients.","authors":"Mi-Kyung Song, Sandra E Ward, Laura C Hanson, Feng-Chang Lin, Jill B Hamilton, Gerald Hladik, Jason P Fine, Jessica C Bridgman, Summer K Sun, Margaret S Miles","doi":"","DOIUrl":"","url":null,"abstract":"<p><p>This cross-sectional descriptive study explored surrogate decision-makers' psychological symptoms and their own assessment of decision-making abilities before actual involvement in end-of-life decision-making for their loved ones. One hundred-twenty dialysis patients' surrogates (79 African Americans and 41 Caucasians) completed scales measuring decision-making confidence, anxiety and depression, Post-Traumatic Symptoms (PTSS), and a sociodemographic questionnaire. Forty-two (35%) and 14 (11.7%) surrogates showed abnormal scores on anxiety and depression, respectively. Seven (5.8%) surrogates showed abnormal scores on PTSS. While surrogates decision making confidence was high (M=17.70, SD=2.88), there was no association between decision-making confidence and the three psychological variables. Surrogates' confidence was associated only with the quality of relationship with patient (<i>r</i>=0.33, <i>p</i>=0.001).</p>","PeriodicalId":75091,"journal":{"name":"The journal of nephrology social work","volume":"36 ","pages":""},"PeriodicalIF":0.0,"publicationDate":"2012-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4169048/pdf/nihms-378040.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"32685127","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Erica E Perry, Kai Zheng, Andrew Grogan-Kaylor, Mark W Newman, Tiffany C E Veinot
{"title":"Assessing the Effect of a Technology-Based Peer-Mentoring Intervention on Renal Teams' Perceived Knowledge and Comfort Level Working With Young Adults on Dialysis.","authors":"Erica E Perry, Kai Zheng, Andrew Grogan-Kaylor, Mark W Newman, Tiffany C E Veinot","doi":"","DOIUrl":"","url":null,"abstract":"","PeriodicalId":75091,"journal":{"name":"The journal of nephrology social work","volume":"33 ","pages":"8-12"},"PeriodicalIF":0.0,"publicationDate":"2010-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4176688/pdf/nihms463751.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"32707315","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Renal replacement Therapy and Barriers to choice: using a Mixed Methods approach to explore the Patient's Perspective.","authors":"Caroline Jennette, Vimal Derebail, Judy Baldwin, Sandra Cameron","doi":"","DOIUrl":"","url":null,"abstract":"<p><p>Alternatives to in-center hemodialysis as treatment for end-stage renal disease have been shown to increase patient quality of life, decrease co-morbidities and decrease financial strain on both the patient and the health care system. Focus groups (n = 6 groups with 47 participants) and survey data (n = 113) were used to ascertain perceived barriers and facilitators to alternative therapies and psychosocial and educational issues that may affect a patients' choice of modality among patients utilizing in-center dialysis, home dialysis and renal transplantation. Fear emerged as a predominant theme, both at diagnosis and when choosing a modality. Distrust of the medical system, denial and patient experiences with previous modalities were seen as barriers to care. Results imply that interventions addressing fear and providing more comprehensive pre-dialysis education may decrease barriers.</p>","PeriodicalId":75091,"journal":{"name":"The journal of nephrology social work","volume":"32 ","pages":"15-26"},"PeriodicalIF":0.0,"publicationDate":"2009-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4864018/pdf/nihms771970.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"34384432","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}