Caring for the Family Caregiver最新文献

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Palliative Care 姑息治疗

Caring for the Family Caregiver Pub Date : 2020-08-01 DOI: 10.1093/med/9780190055233.003.0003

E. Wittenberg, Joy V. Goldsmith, S. Ragan, T. Parnell

{"title":"Palliative Care","authors":"E. Wittenberg, Joy V. Goldsmith, S. Ragan, T. Parnell","doi":"10.1093/med/9780190055233.003.0003","DOIUrl":"https://doi.org/10.1093/med/9780190055233.003.0003","url":null,"abstract":"Whether they are thrust into the caregiving role or volunteer for it, most caregivers want to know what to do, how to do it, and how to prepare for what is ahead. For some caregivers, information is empowering, and for other caregivers, it is overwhelming. Regardless, examine any study on family caregiving or talk to any family caregiver, and the conclusion will be the same: Family caregivers need information, education, and support. Few caregivers are able to fully understand and use available health information when advocating and caring for chronically ill patients, and this seriously complicates their ability to contribute to patient self-management and support at home. To help caregivers understand their role and get them the help they need, they have to be included in the healthcare system and in the patient care process. In recognizing that caregivers are current and future patients who need care too, this chapter (a) introduces palliative care to illustrate how the patient and family’s illness journey is powerfully influenced by their understanding of the disease and its treatment and (b) outlines the health literate care model to identify important reasons to integrate caregivers. Both foci of this chapter are radically impacted by the pre-existing structure and function of the family. Narrative features of caregiving are used to describe three illness journeys that caregivers traverse.","PeriodicalId":221869,"journal":{"name":"Caring for the Family Caregiver","volume":"176 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2020-08-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"124350101","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Caring for the Family Caregiver 照顾家庭照顾者

Caring for the Family Caregiver Pub Date : 2020-08-01 DOI: 10.1093/med/9780190055233.001.0001

E. Wittenberg, Joy V. Goldsmith, S. Ragan, T. Parnell

{"title":"Caring for the Family Caregiver","authors":"E. Wittenberg, Joy V. Goldsmith, S. Ragan, T. Parnell","doi":"10.1093/med/9780190055233.001.0001","DOIUrl":"https://doi.org/10.1093/med/9780190055233.001.0001","url":null,"abstract":"This remarkable work reveals the plight of the family caregiver in chronic illness through the prism of communication. Examining the high cost and poorly addressed exigencies of the caregiver, including health literacy, palliative care, and health outcomes, Elaine Wittenberg, Joy V. Goldsmith, Sandra L. Ragan, and Terri Ann Parnell use an interdisciplinary approach in an effort to identify the impact of communication and its burdens on the caregiver. This team of scholars present four caregiver profiles, the Manager, Carrier, Partner, and Lone caregiver, each emerging from a family system with different patterns of conversational sharing and expectations of conformity. This volume presents a picture of the costs and losses for caregivers that go unseen and remain invisible for stakeholders in the healthcare experience. By synthesizing current data assessing the experiences of caregivers, as well as integrating the narrative experiences of a range of caregivers living through a variety of illnesses and their specific demands, the writers deliver an unflinching gaze at the journey of the caregiver. With an author team comprised of three health communication researchers and a nurse and health literacy expert, this volume integrates literature addressing caregiver needs and burdens, communication theory and practice, and palliative care and health literacy research to present the groundbreaking concept of the caregiver types and an innovative set of support resources to facilitate improved pathways to better care for the caregiver. Their engaging and rigorous writing style integrates the real stories of caregivers across the scope of the book connecting the reader with the people inside the pages and making the book essential for providers, students, clinicians, policymakers, and family caregivers alike.","PeriodicalId":221869,"journal":{"name":"Caring for the Family Caregiver","volume":"47 1 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2020-08-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"128972741","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 8

Health Literacy 健康知识

Caring for the Family Caregiver Pub Date : 2020-08-01 DOI: 10.1093/med/9780190055233.003.0002

E. Wittenberg, Joy V. Goldsmith, S. Ragan, T. Parnell

{"title":"Health Literacy","authors":"E. Wittenberg, Joy V. Goldsmith, S. Ragan, T. Parnell","doi":"10.1093/med/9780190055233.003.0002","DOIUrl":"https://doi.org/10.1093/med/9780190055233.003.0002","url":null,"abstract":"Caregivers require the skills needed to support complex medical conditions and utilize opportunities to access, understand, and share reliable health information with care recipients to advocate for successful disease management and decisions. This chapter addresses the unique characteristics of caregiver health literacy and the burden of navigating increasingly complex healthcare systems. The connection and consequence between health literacy and social determinants of health upon caregiving, the implications of caregiver health literacy skills, and the influence of culturally and linguistically appropriate standards on enhanced caregiver health literacy, clear communication, and family-centered care are discussed. Health literacy involves not only caregivers’ and patients’ cognitive and functional skills, but also the collaborative efforts among patients, caregivers, healthcare organizations, healthcare providers, and communities. This collaborative view of health literacy underscores the synergy among healthcare recipients, formal and informal healthcare providers, and resources from healthcare systems to reduce health literacy barriers, ease communication burden, and lessen inequities in health.","PeriodicalId":221869,"journal":{"name":"Caring for the Family Caregiver","volume":"23 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2020-08-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"126615460","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0