Ozge Sensoy Bahar, William Byansi, Josephine Nabayinda, Joshua Kiyingi, Phionah Namatovu, Fithi Embaye, Mary M McKay, Kimberly Hoagwood, Fred M Ssewamala
{"title":"\"I decided to participate….because I saw it as benefiting our community and families\": a qualitative study of lay providers' experiences with delivering an evidence-based mental health intervention for families in Uganda.","authors":"Ozge Sensoy Bahar, William Byansi, Josephine Nabayinda, Joshua Kiyingi, Phionah Namatovu, Fithi Embaye, Mary M McKay, Kimberly Hoagwood, Fred M Ssewamala","doi":"10.1186/s13033-023-00593-8","DOIUrl":"10.1186/s13033-023-00593-8","url":null,"abstract":"<p><strong>Background: </strong>Children and adolescents who live in resource-limited communities in sub-Saharan Africa (SSA) experience significant mental health problems, including behavioral problems. In SSA, one of the most significant impediments to expanding services is a scarcity of mental health specialists. Task-shifting can effectively solve the mental health care gap in low-resource settings, yet it is underutilized in child and adolescent mental health. Moreover, the experiences of lay providers are understudied in global mental health, despite their potential impact on intervention effectiveness. In this study, we examined the experiences of community health workers and parent peers with the task-shifting of an evidence-based family strengthening intervention in Uganda.</p><p><strong>Methods: </strong>As part of a larger randomized clinical trial, semi-structured in-depth interviews were conducted with 24 facilitators selected using stratified purposive sampling. Interviews explored their decision to participate in the program; experiences with the training; and experiences with intervention delivery. All interviews were conducted in Luganda (local language) and audio recorded. They were transcribed verbatim and translated into English. Thematic analysis was used to analyze the data.</p><p><strong>Results: </strong>Despite concerns around lack of previous experience and time commitment, facilitators reported high relevance of the intervention to the families in their communities as well as their own as a motivation to participate. They also identified financial incentives as a motivating factor. These two factors also ensured their attendance at the training. They were satisfied with the content and skills provided during the training and felt prepared to deliver the intervention. During intervention delivery, they enjoyed seeing the families engaged and participating actively in the sessions as well as observing positive changes in the families. Some challenges with family attendance and engagement were noted. The facilitators reported an increased sense of self-efficacy and competence over time; and expressed high satisfaction with supervision.</p><p><strong>Conclusion: </strong>Facilitators' positive experiences point to the high acceptability and appropriateness of task-shifting this intervention in low-resource settings. As the global mental health field continues to be interested in task-shifting interventions to lay providers, successful examples should be studied so that evidence-based models can be put in place to support them through the process.</p>","PeriodicalId":47752,"journal":{"name":"International Journal of Mental Health Systems","volume":"17 1","pages":"24"},"PeriodicalIF":3.1,"publicationDate":"2023-08-21","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10440911/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10054765","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Kate Gossip, Claudia Pagliaro, Charlotte Comben, Kevin Fjeldsoe, Harvey Whiteford, Sandra Diminic
{"title":"Using the National Mental Health Service Planning Framework to inform integrated regional planning: a case study in Tasmania, Australia.","authors":"Kate Gossip, Claudia Pagliaro, Charlotte Comben, Kevin Fjeldsoe, Harvey Whiteford, Sandra Diminic","doi":"10.1186/s13033-023-00591-w","DOIUrl":"https://doi.org/10.1186/s13033-023-00591-w","url":null,"abstract":"<p><strong>Background: </strong>The aim of this study was to demonstrate the application of a needs-based mental health service planning model in Tasmania, Australia to identify indicative directions for future service development that ensure the equitable provision of mental health services across the State.</p><p><strong>Methods: </strong>The activity and capacity of Tasmania's 2018-19 mental health services were compared to estimates of required care by: (1) generating estimates of required care using the National Mental Health Service Planning Framework (NMHSPF); (2) collating administrative mental health services data; (3) aligning administrative data to the NMHSPF; and (4) comparing aligned administrative data and NMHSPF estimates to identify priority areas for service development. Findings were contextualised using information about service location, population demographics, and upcoming service development.</p><p><strong>Results: </strong>Bed-based services capacity reached 85% of the NMHSPF estimate. However, access to certain bed types was inequitable across regional areas. Access to jurisdictional clinical ambulatory team-based services was lowest in the South, while overall full-time equivalent staff capacity reached 58% of the NMHSPF estimate. Access to Primary Health Tasmania (PHT) primary care services was highest in the North West; access to Medicare services was highest in the South. Collectively, activity across primary care (PHT, headspace and Medicare) reached 43% of the NMHSPF estimate. Over half of Community Managed Mental Health Support Services were state-wide services.</p><p><strong>Conclusions: </strong>This study demonstrates the application of a needs-based planning model for mental health services. Findings revealed service priority areas across Tasmania and highlight considerations for needs-based planning.</p>","PeriodicalId":47752,"journal":{"name":"International Journal of Mental Health Systems","volume":"17 1","pages":"23"},"PeriodicalIF":3.6,"publicationDate":"2023-07-22","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10362704/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10240045","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Silvia Mongodi, Giulia Salve, Marta Ravasi, Damiano Rizzi, Matteo Mangiagalli, Valeria Musella, Catherine Klersy, Luca Ansaloni, Francesco Mojoli
{"title":"The mental health toll of COVID-19: significant increase in admissions to ICU for voluntary self-inflicted injuries after the beginning of the pandemic.","authors":"Silvia Mongodi, Giulia Salve, Marta Ravasi, Damiano Rizzi, Matteo Mangiagalli, Valeria Musella, Catherine Klersy, Luca Ansaloni, Francesco Mojoli","doi":"10.1186/s13033-023-00590-x","DOIUrl":"https://doi.org/10.1186/s13033-023-00590-x","url":null,"abstract":"<p><strong>Background: </strong>COVID-19 outbreak deeply impacted on mental health, with high rate of psychological distress in healthcare professionals, patients and general population. Current literature on trauma showed no increase in ICU admissions for deliberate self-inflicted injuries in the first weeks after the beginning of COVID-19.</p><p><strong>Objectives: </strong>We tested the hypothesis that self-inflicted injuries/harms of any method requiring ICU admission increased in the year following COVID-19 outbreak.</p><p><strong>Methods: </strong>Retrospective cohort single-center study comparing admissions to ICU the year before and the year after the pandemic start. All patients admitted to polyvalent ICUs-Fondazione IRCCS Policlinico S. Matteo, Pavia, Italy from February 21st, 2019 to February 21st, 2020 (pre-COVID) and from February 22nd, 2020 to February 22nd, 2021 (post-COVID) were enrolled.</p><p><strong>Results: </strong>We enrolled 1038 pre-COVID and 854 post-COVID patients. In post-COVID, the incidence of self-inflicted injuries was 32/854 (3.8% [2.5-5.1]), higher than in pre-COVID (23/1038, 2.2%-p = 0.0014-relative increase 72.7%). The increase was more relevant when excluding COVID-19 patients (suicide attempts 32/697 (4.6% [3.0-6.2])-relative increase 109.1%; p < 0.0001). Both in pre-COVID and post-COVID, the most frequent harm mean was poisoning [15 (65.2%) vs. 25 (78.1%), p = 0.182] and the analysed population was younger than general ICU population (p = 0.0015 and < 0.0001, respectively). The distribution of admissions for self-inflicted injuries was homogeneous in pre-COVID along the year. In post-COVID, no admissions were registered during the lockdown; an increase was observed in summer with pandemic curve at minimal levels.</p><p><strong>Conclusions: </strong>An increase in ICU admissions for self-inflicted injuries/harms was observed in the year following COVID-19 outbreak.</p>","PeriodicalId":47752,"journal":{"name":"International Journal of Mental Health Systems","volume":"17 1","pages":"22"},"PeriodicalIF":3.6,"publicationDate":"2023-07-15","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10349498/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9824080","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Jonathan Knights, Victoria Bangieva, Michela Passoni, Macayla L Donegan, Jacob Shen, Audrey Klein, Justin Baker, Holly DuBois
{"title":"A framework for precision \"dosing\" of mental healthcare services: algorithm development and clinical pilot.","authors":"Jonathan Knights, Victoria Bangieva, Michela Passoni, Macayla L Donegan, Jacob Shen, Audrey Klein, Justin Baker, Holly DuBois","doi":"10.1186/s13033-023-00581-y","DOIUrl":"https://doi.org/10.1186/s13033-023-00581-y","url":null,"abstract":"<p><strong>Background: </strong>One in five adults in the US experience mental illness and over half of these adults do not receive treatment. In addition to the access gap, few innovations have been reported for ensuring the right level of mental healthcare service is available at the right time for individual patients.</p><p><strong>Methods: </strong>Historical observational clinical data was leveraged from a virtual healthcare system. We conceptualize mental healthcare services themselves as therapeutic interventions and develop a prototype computational framework to estimate their potential longitudinal impacts on depressive symptom severity, which is then used to assess new treatment schedules and delivered to clinicians via a dashboard. We operationally define this process as \"session dosing\": 497 patients who started treatment with severe symptoms of depression between November 2020 and October 2021 were used for modeling. Subsequently, 22 mental health providers participated in a 5-week clinical quality improvement (QI) pilot, where they utilized the prototype dashboard in treatment planning with 126 patients.</p><p><strong>Results: </strong>The developed framework was able to resolve patient symptom fluctuations from their treatment schedules: 77% of the modeling dataset fit criteria for using the individual fits for subsequent clinical planning where five anecdotal profile types were identified that presented different clinical opportunities. Based on initial quality thresholds for model fits, 88% of those individuals were identified as adequate for session optimization planning using the developed dashboard, while 12% supported more thorough treatment planning (e.g. different treatment modalities). In the clinical pilot, 90% of clinicians reported using the dashboard a few times or more per member. Although most clinicians (67.5%) either rarely or never used the dashboard to change session types, numerous other discussions were enabled, and opportunities for automating session recommendations were identified.</p><p><strong>Conclusions: </strong>It is possible to model and identify the extent to which mental healthcare services can resolve depressive symptom severity fluctuations. Implementation of one such prototype framework in a real-world clinic represents an advancement in mental healthcare treatment planning; however, investigations to assess which clinical endpoints are impacted by this technology, and the best way to incorporate such frameworks into clinical workflows, are needed and are actively being pursued.</p>","PeriodicalId":47752,"journal":{"name":"International Journal of Mental Health Systems","volume":"17 1","pages":"21"},"PeriodicalIF":3.6,"publicationDate":"2023-07-05","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10320892/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9804191","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Dynamics of hospitalizations and staffing of Ukraine's mental health services during the Russian invasion.","authors":"Irina Pinchuk, Ryunosuke Goto, Oleksiy Kolodezhny, Nataliia Pimenova, Norbert Skokauskas","doi":"10.1186/s13033-023-00589-4","DOIUrl":"https://doi.org/10.1186/s13033-023-00589-4","url":null,"abstract":"<p><strong>Background: </strong>Since February 2022, the people of Ukraine have experienced devastating losses due to the Russian invasion, increasing the demand for mental healthcare across the nation. Using longitudinal data on mental health facilities across the nation up to summer 2022, we aimed to provide an updated picture of Ukrainian mental health services during the 2022 Russian invasion.</p><p><strong>Methods: </strong>We conducted a nationwide longitudinal study on Ukrainian inpatient mental health facilities during the Russian invasion since February 2022. We obtained responses from the heads of 30 inpatient mental health facilities, which represent 49.2% of all psychiatric hospitals in Ukraine. Information on hospitalizations and the number, displacement, and injuries of staff in April and July-September 2022 was obtained from each facility.</p><p><strong>Results: </strong>Facilities across Ukraine reported similar staff shortages in both April and August-September 2022, despite an increase in the number of hospitalizations in July 2022 and a similar percentage of hospitalizations related to war trauma (11.6% in July vs. 10.2% in April, Wilcoxon signed-rank test P = 0.10). Hospitalizations related to war trauma became more dispersed across the nation in July 2022, likely reflecting the return of internally and externally displaced persons to their original locations.</p><p><strong>Conclusions: </strong>The mental health needs and services changed drastically in the first half-year of the Russian invasion of Ukraine, with those in need more dispersed across the country over time. International aid may need to be scaled up to stably provide mental healthcare, given the displacement of the mental healthcare workforce.</p>","PeriodicalId":47752,"journal":{"name":"International Journal of Mental Health Systems","volume":"17 1","pages":"20"},"PeriodicalIF":3.6,"publicationDate":"2023-06-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10290323/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9714135","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Mariane Henriques Franca, Chrianna Bharat, Ercole Novello, Irving Hwang, Maria Elena Medina-Mora, Corina Benjet, Laura Helena Andrade, Daniel V Vigo, Maria Carmen Viana
{"title":"Towards measuring effective coverage: critical bottlenecks in quality- and user-adjusted coverage for major depressive disorder in São Paulo metropolitan area, Brazil.","authors":"Mariane Henriques Franca, Chrianna Bharat, Ercole Novello, Irving Hwang, Maria Elena Medina-Mora, Corina Benjet, Laura Helena Andrade, Daniel V Vigo, Maria Carmen Viana","doi":"10.1186/s13033-023-00583-w","DOIUrl":"https://doi.org/10.1186/s13033-023-00583-w","url":null,"abstract":"<p><strong>Background: </strong>Major depressive disorder (MDD) contributes to a significant proportion of disease burden, disability, economic losses, and impact on need of treatment and health care in Brazil, but systematic information about its treatment coverage is scarce. This paper aims to estimate the gap in treatment coverage for MDD and identify key bottlenecks in obtaining adequate treatment among adult residents in the São Paulo Metropolitan area, Brazil.</p><p><strong>Methods: </strong>A representative face-to-face household survey was conducted among 2942 respondents aged 18+ years to assess 12-month MDD, characteristics of 12-month treatment received, and bottlenecks to deliver care through the World Mental Health Composite International Diagnostic Interview.</p><p><strong>Results: </strong>Among those with MDD (n = 491), 164 (33.3% [SE, 1.9]) were seen in health services, with an overall 66.7% treatment gap, and only 25.2% [SE, 4.2] received effective treatment coverage, which represents 8.5% of those in need, with a 91.5% gap in adequate care (66.4% due to lack of utilization and 25.1% due to inadequate quality and adherence). Critical service bottlenecks identified were: use of psychotropic medication (12.2 percentage points drop), use of antidepressants (6.5), adequate medication control (6.8), receiving psychotherapy (19.8).</p><p><strong>Conclusions: </strong>This is the first study demonstrating the huge treatment gaps for MDD in Brazil, considering not only overall coverage, but also identifying specific quality- and user-adjusted bottlenecks in delivering pharmacological and psychotherapeutic care. These results call for urgent combined actions focused in reducing effective treatment gaps within services utilization, as well as in reducing gaps in availability and accessibility of services, and acceptability of care for those in need.</p>","PeriodicalId":47752,"journal":{"name":"International Journal of Mental Health Systems","volume":"17 1","pages":"19"},"PeriodicalIF":3.6,"publicationDate":"2023-06-16","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10276474/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10013622","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Aly Kassam, Michaela Beder, Saadia Sediqzadah, Matthew Levy, Madeleine Ritts, John Maher, Nicole Kirwan, Samuel Law
{"title":"Impact of COVID-19 on the lives of people with severe mental illness-front-line community psychiatry workers observation from a provincial survey of assertive community treatment teams in Ontario, Canada.","authors":"Aly Kassam, Michaela Beder, Saadia Sediqzadah, Matthew Levy, Madeleine Ritts, John Maher, Nicole Kirwan, Samuel Law","doi":"10.1186/s13033-023-00585-8","DOIUrl":"https://doi.org/10.1186/s13033-023-00585-8","url":null,"abstract":"<p><p>Using an online survey distributed to members of the provincial organization that represents the 88 Assertive Community Treatment (ACT) and Flexible ACT teams in Ontario, Canada, this descriptive study relied on the unique vantage points and observations of the front-line community psychiatry workers who maintained contact with patients through outreach and telecommunication during the height of COVID-19. The patients who suffer from serious mental illness (SMI) were uniquely affected by COVID-19 due to the changes, reduction or shut down of many essential clinical and community support services. Thematic and quantitative analyses of the workers' observations highlighted 6 main areas of note, including significant social isolation and loneliness, clinical course deterioration and life disruption, increased hospital and ER use, police and legal contacts, and substance abuse and related deaths. There were also encouraging signs of positive adaptations in terms of independence and resilience. Reflections of these impacts and potential ameliorating approaches are further discussed.</p>","PeriodicalId":47752,"journal":{"name":"International Journal of Mental Health Systems","volume":"17 1","pages":"18"},"PeriodicalIF":3.6,"publicationDate":"2023-06-16","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10273506/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10013618","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Managers as peer workers' allies: A qualitative study of managers' perceptions and actions to involve peer workers in Norwegian mental health and substance use services.","authors":"Kristina Bakke Åkerblom, Torbjørn Mohn-Haugen, Rita Agdal, Ottar Ness","doi":"10.1186/s13033-023-00588-5","DOIUrl":"10.1186/s13033-023-00588-5","url":null,"abstract":"<p><strong>Background: </strong>Citizens with experience and knowledge about what it is like to use mental health and substance use services are increasingly employed within similar services as peer workers. Peer workers are portrayed as achieving societal obligations and help ensure that the outputs from service provision are more effective. Even though peer workers have worked in mental health and substance use services for a while, few studies have focused on exploring managers' experiences and perspectives about involving peer workers. This knowledge is needed because these managers can enable and hinder equitable involvement and collaboration with peer workers.</p><p><strong>Methods: </strong>A qualitative explorative study was chosen to explore the following research question: How do managers in Norwegian mental health and substance use services experience, relate to, and embrace peer workers as assets in these services? A researcher (Ph.D. student) and a coresearcher (peer worker) conducted four online focus groups with a strategic selection of 17 Norwegian mental health and substance use services managers who had some experience with the involvement of peer workers in their organizations.</p><p><strong>Results: </strong>The results identified using systematic text condensation are as follows: [1] Peer workers boost the ongoing shift toward increased service user involvement. [2] Peer workers are highly valued in the service transformation process. [3] Managers involve peer workers as partners in co-creation. The results show that managers connect with peer workers and facilitate their involvement in collaborative activities across the service cycle. Peer workers' proximity to service users and bridging capacity is highlighted as the reasons for their involvement. Thus, peer workers are involved in co-defining challenges, co-designing potential solutions, co-delivering those service solutions, and, sometimes, co-assessing service solutions to rethink and improve services. As such, peer workers are considered partners in co-creation.</p><p><strong>Conclusion: </strong>As managers involve peer workers, they increasingly discover peer workers' value, and because peer workers are involved, they increase their skills and capacity for collaboration. This research strengthens the knowledge base of the perceived value of peer workers' roles, bringing in new perspectives from management about utilizing and evaluating peer worker roles.</p>","PeriodicalId":47752,"journal":{"name":"International Journal of Mental Health Systems","volume":"17 1","pages":"17"},"PeriodicalIF":3.1,"publicationDate":"2023-06-12","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10259010/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10004385","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Translation of the mental health literacy questionnaire for young adults into Chichewa for use in Malawi: preliminary validation and reliability results.","authors":"Sandra Jumbe, Joel Nyali, Chris Newby","doi":"10.1186/s13033-023-00586-7","DOIUrl":"https://doi.org/10.1186/s13033-023-00586-7","url":null,"abstract":"<p><strong>Background: </strong>Mental Health Literacy (MHL) is the ability to recognise mental disorders, have knowledge of professional help available, effective self-help strategies, skills to give support to others, and knowledge of how to prevent mental disorders. Sufficient MHL is linked to better help seeking behaviour and management of mental illness. Assessing MHL importantly helps identify knowledge gaps and inaccurate beliefs about mental health issues, whilst informing development and better evaluation of MHL interventions. This study aimed to translate the English version of a self-reporting Mental Health Literacy questionnaire (MHLq) for young adult populations (16-30 years-old) into Chichewa for use in Malawi and evaluate the psychometric properties of this Chichewa version.</p><p><strong>Methods: </strong>An established translation methodology was employed, involving back-translation, comparison, forward-translation, comparison, and piloting. The translated Chichewa questionnaire was initially piloted with 14 young adults in a Malawi university, then subsequently administered to 132 young adults in rural community settings across Malawi.</p><p><strong>Results: </strong>Overall internal consistency of the Chichewa translated MHLq was good (Cronbach's alpha = 0.67) although subscales' scores ranged from acceptable (factor 1 and 3) to unacceptable (factor 2 and 4). Confirmatory factor analysis found Factor 1 (Knowledge of mental health problems), Factor 3 (First aid skills and help seeking behaviour) and Factor 4 (Self-help strategies) of the Chichewa version fit very well with related factors of the original English MHLq. For Factor 2 (Erroneous beliefs/stereotypes), 5 out of its 8 items correlated well with the original version. This suggests a four-factor solution is a reasonably good fit to the data.</p><p><strong>Conclusions: </strong>Use of the Malawian MHLq among Chichewa speaking young adult populations is well supported for factors 1 and 3 but not for factors 2 and 4. More psychometric testing with a larger sample is vital to further validate the questionnaire. Further research is needed to carry out test/re-test reliability statistics.</p>","PeriodicalId":47752,"journal":{"name":"International Journal of Mental Health Systems","volume":"17 1","pages":"14"},"PeriodicalIF":3.6,"publicationDate":"2023-06-08","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10249231/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9606665","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"What does receiving autism diagnosis in adulthood look like? Stakeholders' experiences and inputs.","authors":"Parisa Ghanouni, Liam Seaker","doi":"10.1186/s13033-023-00587-6","DOIUrl":"https://doi.org/10.1186/s13033-023-00587-6","url":null,"abstract":"<p><strong>Introduction: </strong>The age of diagnosis is crucial for optimal health outcomes; however, some individuals with Autism Spectrum Disorder (ASD) may not be diagnosed until adulthood. Limited information is available about the lived experience of receiving a diagnosis during adulthood. Thus, we aimed to investigate stakeholders' experiences about the ASD diagnosis during adulthood.</p><p><strong>Method: </strong>We interviewed 18 individuals including 13 adults with ASD who had received a late diagnosis during adulthood and 5 parents of individuals with ASD from various Canadian provinces.</p><p><strong>Results: </strong>Using a thematic analysis, three main themes emerged: (a) noticing differences and similarities, (b) hindering elements to diagnosis, and (c) emotional response to diagnostic odyssey.</p><p><strong>Conclusion: </strong>This study adds to the literature about experiences of receiving ASD diagnosis in adulthood. Given the impact of diagnosis on individuals, it is important to minimize the barriers to ensure individuals who require ASD-related supports can access them in a timely and effective manner. This study highlights the importance of receiving an ASD diagnosis and facilitates positive health outcomes. The findings from the current study can be used to guide adult diagnostic processes and practices to help make ASD diagnosis more accessible.</p>","PeriodicalId":47752,"journal":{"name":"International Journal of Mental Health Systems","volume":"17 1","pages":"16"},"PeriodicalIF":3.6,"publicationDate":"2023-06-08","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10251666/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9600883","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}