{"title":"Survey on the current practice of research ethics committees in the Czech academic environment: a mixed-methods study.","authors":"Renata Veselska, Jan Sirucek, Josef Kure","doi":"10.1186/s12910-024-01157-2","DOIUrl":"https://doi.org/10.1186/s12910-024-01157-2","url":null,"abstract":"<p><strong>Background: </strong>The primary objective of this study was to conduct a comprehensive questionnaire survey on the practices of research ethics committees reviewing academic research projects in Czechia. The study aims to provide an unbiased and objective assessment of the current practices of research ethics committees, namely to obtain the missing data on their functioning in the context of academic research, to identify difficulties and shortages that threaten the responsible functioning of research ethics committees in the country and to investigate the implementation of Additional Protocol on Biomedical Research CETS No. 195 in their practice. Such research has never been conducted in Czechia.</p><p><strong>Methods: </strong>This was a mixed-methods study, in which the online survey with closed and open-ended questions was chosen to explore the situation regarding ethics assessment of research involving human participants. We developed a questionnaire containing 18 questions concerning several aspects of the functioning of research ethics committees. The questionnaire was in Czech language and was administered through the Qualtrics platform anonymously. The target group of 61 research ethics committees at research institutions was approached by emails and we received 43 completely filled questionnaires, i.e., response rate of 67%.</p><p><strong>Results: </strong>We obtained valuable data on the functioning of research ethics committees in Czechia in three main domains: the mandate and composition of the committee; the scope of its agenda; the process of evaluation including the voting procedure. In addition, the final set of open-ended questions provided an in-depth look at the problems faced by research ethics committees in Czechia. From the results is evident that the responsible assessment of the ethics of research involving human subjects is still not satisfactorily addressed and established for routine practice in the country.</p><p><strong>Conclusions: </strong>The outcomes of our study revealed that the main problem of research ethics in Czechia is the lack of national legislation on research ethics governance. To address this problem, the country requires a legislative framework accompanied by supportive measures aimed at educating, guiding and advising research ethics committees, especially in the Czech academic environment.</p><p><strong>Trial registration number: </strong>Not applicable.</p>","PeriodicalId":55348,"journal":{"name":"BMC Medical Ethics","volume":"25 1","pages":"153"},"PeriodicalIF":3.0,"publicationDate":"2024-12-23","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142878646","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":1,"RegionCategory":"哲学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Health equity and distributive justice: views of high-level African policymakers.","authors":"Michelle Amri, Borgar Jølstad, Jesse B Bump","doi":"10.1186/s12910-024-01154-5","DOIUrl":"https://doi.org/10.1186/s12910-024-01154-5","url":null,"abstract":"<p><p>Health equity matters, but there is no universally accepted definition of this or associated terms, such as inequities, inequalities, and disparities. Given the flexibility of these terms, investigating how policymakers understand them is important to observe priorities and perhaps course correct. Accordingly, this study analyzed the perceptions high-level policymakers within the WHO African Region. An online survey was distributed to attendees of the WHO's Fifth Health Sector Directors' Policy and Planning Meeting for the WHO African Region by email. After responses were collected, both inductive and deductive coding were applied. Inductive coding was undertaken to glean central concepts from free-form responses on understandings of health equity and deductive coding was used to assess alignment with four theories of distributive justice using a coding framework. In analyzing central concepts, three became apparent: access to health services and/or health care, financial protection, and recognizing subgroups. And when we investigated alignment with theory, most respondents' understandings of health equity aligned with Rawls' 'Theory of Justice' (95%). Of these responses, 70% were exclusively aligned with Rawls' 'Theory of Justice' and 30% aligned also with another theory (this 30% was split 55% utilitarianism and 45% Sen's Capabilities Approach). Respondent understandings of health equity showed limited alignment with other theories of distributive justice, which were: utilitarianism (n = 7/39; 17.95%), Sen's Capabilities Approach (n = 5/39; 12.82%), and libertarianism (n = 2/39; 5.13%). Our study demonstrates that alignment with certain theories is tied to specific themes (i.e., theoretical underpinnings may guide policymakers to favour certain policy approaches). For instance, a utilitarian-minded policymaker may be focused on a widespread vaccination campaign, whereas a Rawlsian-aligned policymaker may focus on a targeted approach to reach communities that have lower vaccination rates, and a Senian-aligned policymaker may focus on health literacy programs targeted at addressing vaccine-hesitant individuals within communities with lower vaccination rates. These findings can guide high-level policymakers and international organizations to optimize decision-making by clarifying ethical alternatives.</p>","PeriodicalId":55348,"journal":{"name":"BMC Medical Ethics","volume":"25 1","pages":"151"},"PeriodicalIF":3.0,"publicationDate":"2024-12-23","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142878644","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":1,"RegionCategory":"哲学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"The theoretical wedding of computational propaganda and information operations: Unraveling digital manipulation in conflict zones","authors":"Yirgalem A Haile","doi":"10.1177/14614448241302319","DOIUrl":"https://doi.org/10.1177/14614448241302319","url":null,"abstract":"This study explores the theoretical fusion of computational propaganda and information operations in the Tigray war, centering on algorithmic manipulation techniques. Utilizing theoretical frameworks of agenda-setting theory, framing, and information ecology, the study formulates three hypotheses. Employing a multidisciplinary approach, it integrates qualitative and quantitative methods, leveraging tools such as Twitter API (X), twerc, NVivo, Botometer, and Rstat within the Netnographic method. The analysis reveals temporal dynamics of new account infiltrations on Twitter during war, emphasizing their engagement in hashtag campaigns for information/influence operations. A surge in new account creation coinciding with the war’s onset is identified, along with the strategic deployment of political bots within these accounts for algorithmic manipulation. The findings affirm that the theoretical intertwining of computational propaganda and information operations manifests through social media’s agenda-setting and framing effects. The study significantly contributes to the discourse on information warfare in contemporary conflicts by unraveling the intricate web of digital manipulation during the Tigray war.","PeriodicalId":19149,"journal":{"name":"New Media & Society","volume":"113 1","pages":""},"PeriodicalIF":5.0,"publicationDate":"2024-12-23","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142879634","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":1,"RegionCategory":"文学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Aysun Tekbaş, Arian Mauntel, Thomas Lehmann, Hans-Michael Tautenhahn, Utz Settmacher, Teresa Festl-Wietek, Anne Herrmann-Werner
{"title":"Enhancing intercultural competence of German medical students through innovative teaching on medical ethics with a focus on Muslim patients - a pilot study.","authors":"Aysun Tekbaş, Arian Mauntel, Thomas Lehmann, Hans-Michael Tautenhahn, Utz Settmacher, Teresa Festl-Wietek, Anne Herrmann-Werner","doi":"10.1186/s12910-024-01153-6","DOIUrl":"https://doi.org/10.1186/s12910-024-01153-6","url":null,"abstract":"<p><strong>Background: </strong>Effective healthcare delivery in today's diverse society necessitates healthcare providers' adeptness in navigating cultural and religious nuances in patient care. However, the integration of cultural competence training into medical education remains inadequate, particularly concerning the care of Muslim patients. In response, we introduce a novel educational intervention aimed at enhancing intercultural proficiency among medical students, emphasizing care for Muslim patients.</p><p><strong>Methods: </strong>The intervention comprised interactive seminars and simulated patient sessions. With a bespoke and the Cross-Cultural Competence of Healthcare Professionals (CCCHP-27) questionnaire the pre- and post-course intercultural competencies of n = 31 medical students of the Medical Faculty of Jena University were assessed. Additionally, there was a control group consisting of 34 students. Statistical analyses including descriptive statistics, paired samples t-tests, Wilcoxon tests, correlation analysis, Mann-Whitney U-tests, and multiple regression analysis were employed for data analysis.</p><p><strong>Results: </strong>Results of the bespoke questionnaire reveal significant improvements in intercultural knowledge (median pre 1.0 (0.6 - 1.6), median post 2.2 (2.4-2.8), p < 0.001) and in knowledge regarding Muslim patients (median pre 1.0 (0.5 - 1.5), median post 2.5 (2-3), p < 0.001) following the course. Regarding the CCCHP-27, students demonstrated a significant improvement in their skills, with pre-assessment score of 4.10 (± 0.47) and post-assessment score of 4.38 (± 0.40), p = 0.001. Female participants and those with limited prior experience demonstrated greater gains (p = 0.005 and p = 0.053). Notably, the incorporation of a session with a simulated patient garnered favorable feedback, affirming the efficacy of practical application in consolidating learning outcomes.</p><p><strong>Discussion: </strong>Our study emphasizes the importance of integrating intercultural competencies training into medical education and our findings underscore the efficacy of targeted educational interventions in enhancing intercultural competencies among medical students. For the assessment of intercultural competence, our bespoke questionnaire serves as a valuable addition to the German healthcare system.</p><p><strong>Conclusion: </strong>Implementation of similar interventions into medical curricula nationwide is imperative to address the needs of diverse patient populations effectively.</p>","PeriodicalId":55348,"journal":{"name":"BMC Medical Ethics","volume":"25 1","pages":"152"},"PeriodicalIF":3.0,"publicationDate":"2024-12-23","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142878642","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":1,"RegionCategory":"哲学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Trent M. Trombley, António Matias, Sabrina C. Agarwal
{"title":"“Taphonomic Trajectories: Funerary Taphonomy and Preservation at the Medieval Site of Largo Cândido dos Reis, Portugal”","authors":"Trent M. Trombley, António Matias, Sabrina C. Agarwal","doi":"10.1007/s10816-024-09683-4","DOIUrl":"https://doi.org/10.1007/s10816-024-09683-4","url":null,"abstract":"<p>This paper presents taphonomic data from the medieval Portuguese site of Largo Cândido dos Reis that contains the presence of both Christian (<i>n</i> = 217) and Islamic (<i>n</i> = 422) burials. The presence of two faith communities with differing funerary customs utilizing the same geographic space offers a unique opportunity to conduct a comparative approach and examine the extent to which funerary rites influence preservation in human skeletal remains within the same cemetery complex. A sub-sample of 363 individuals was analyzed for taphonomic factors including erosion, cracking and flaking, and skeletal preservation using the anatomical conservation index (ACI) and bone representation index (BRI). These latter two indices were then used to calculate the proportion of well-preserved skeletons (WPS) and well-represented skeletons (WRS) by funerary group. Results demonstrated that, on average, skeletons from Islamic burials exhibited ACI scores of ~ 32% while those from Christian contexts exhibited ACI scores of ~ 44%, respectively. The proportion of well-preserved skeletons from Islamic burials was also significantly lower than those from Christian burials. Elements from Islamic burials also exhibited significantly higher severity of erosion and higher prevalence of malacofaunal remains compared to their Christian counterparts. Results are interpreted in relation to ethnohistoric context, specifically how grave construction varied between Islam and Christianity in central Portugal during the medieval period. These results are an important step in understanding the biocultural dimensions and taphonomic trajectories that funerary behaviors can have, especially in spaces where urban development and sub-surface construction are frequent risk factors.</p>","PeriodicalId":47725,"journal":{"name":"Journal of Archaeological Method and Theory","volume":"26 1","pages":""},"PeriodicalIF":2.3,"publicationDate":"2024-12-23","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142873883","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":1,"RegionCategory":"历史学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Closing the Door to Remain Open: The Politics of Openness and the Practices of Strategic Closure in the Fediverse","authors":"Jamie A. Theophilos","doi":"10.1177/20563051241308323","DOIUrl":"https://doi.org/10.1177/20563051241308323","url":null,"abstract":"In early 2023, Meta announced that its new microblogging platform, Threads, would join the Fediverse, a network of free, open-source social media platforms. This decision created a rift within the Fediverse, with some users supporting Meta’s integration while others strongly opposing it. This research explores the practices and discourses of the latter group—users, developers, and server administrators—who aim to build a safer and more autonomous “free Fediverse.” By framing the Free Fediverse as a digital counterpublic, this article introduces the concept of “strategic closure” to illustrate how these actors resist corporate capture and maintain a safer online environment. Drawing on the theoretical frameworks of sociomateriality and the politics of openness, my analysis highlights the entanglement between discursive and material aspects of these counterpublic practices. This study contributes to the broader discourse on alternative social media politics, emphasizing the ongoing negotiations between openness, safety, and technological design, and offers insights from Science and Technology Studies (STS) for understanding counterpublics in the age of Big Tech.","PeriodicalId":47920,"journal":{"name":"Social Media + Society","volume":"94 37 1","pages":""},"PeriodicalIF":5.2,"publicationDate":"2024-12-23","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142879632","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":1,"RegionCategory":"文学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Maxwell’s Masterful Entanglement of Optics and Electromagnetism: Bottomed Questioning the Incommensurability Tenet","authors":"Rinat M. Nugayev","doi":"10.1007/s10699-024-09968-7","DOIUrl":"https://doi.org/10.1007/s10699-024-09968-7","url":null,"abstract":"<p>It is contended that one of the promising directions for brooding over the problem of incommensurability of paradigms, coined by T. Kuhn and P. Feyerabend, may be associated with the trend of neo-Kantian epistemology, embodied by the writings of Ernst Cassirer. According to Cassirer, the statements fixing connections and relationships between mathematical ideal constructs render a reliable ‘neutral language’ that can serve as a firm ground for comparing the ‘old’ and ‘new’ paradigms. The aim of the paper is to offer Maxwell’s work as a test case against the incommensurability thesis. A case study of the genesis and functioning of a neutral mathematical language related to the Maxwellian solid synthesis of optics and electromagnetism is provided. It is elicited that its basis is constituted by stodgy language of continuum mechanics. The main function of the neutral language was to project the consequences of all the unified partial theoretical schemes (‘old’ rival paradigms) of Ampѐre, Faraday, Biot, Savar et al. onto the grand mathematical model, ‘rewrite’ all known laws in this pervasive mathematical language, compare their conclusions with each other to eliminate contradictions. Eventually the stuff was generalized in a self-consistent system of Maxwell’s equations.</p>","PeriodicalId":55146,"journal":{"name":"Foundations of Science","volume":"32 1","pages":""},"PeriodicalIF":0.9,"publicationDate":"2024-12-23","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142880265","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"哲学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Toward Justice and Community Empowerment in Genomics Studies on Sensitive Traits","authors":"Heini M. Natri, Carolyn Riley Chapman","doi":"10.1002/hast.4930","DOIUrl":"https://doi.org/10.1002/hast.4930","url":null,"abstract":"<p>Community engagement and participatory research have been appropriately employed to increase the relevance, rigor, and acceptability of all types of research, but these approaches may be particularly important in genomics and biomedical research on sensitive traits such as neurodevelopmental, psychiatric, and behavioral ones. Here, we provide an overview of past and ongoing efforts in community engagement in genomics studies and consider successes and opportunities for further improvement. Informed by this knowledge as well as one of the author's experiences, we set out a vision for a more equitable and collaborative genomics where wider communities, including social, ethnic, and other communities that share a particular trait, are included in the research as peers and collaborators, not solely as objects of study.</p>","PeriodicalId":55073,"journal":{"name":"Hastings Center Report","volume":"54 S2","pages":"S56-S65"},"PeriodicalIF":2.3,"publicationDate":"2024-12-21","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1002/hast.4930","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142869044","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"哲学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"About the Special Report","authors":"","doi":"10.1002/hast.4923","DOIUrl":"https://doi.org/10.1002/hast.4923","url":null,"abstract":"","PeriodicalId":55073,"journal":{"name":"Hastings Center Report","volume":"54 S2","pages":"inside_front_cover"},"PeriodicalIF":2.3,"publicationDate":"2024-12-21","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1002/hast.4923","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142869046","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"哲学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Aaron Panofsky, Kushan Dasgupta, Nicole Iturriaga, Bernard Koch
{"title":"Confronting the “Weaponization” of Genetics by Racists Online and Elsewhere","authors":"Aaron Panofsky, Kushan Dasgupta, Nicole Iturriaga, Bernard Koch","doi":"10.1002/hast.4925","DOIUrl":"https://doi.org/10.1002/hast.4925","url":null,"abstract":"<div>\u0000 \u0000 <p>Genomics research is regularly appropriated in social and political contexts to publicly legitimize unjust and malicious political views, policies, and actions. In recent years, there have been high-profile cases of mass shooters, public intellectuals, and political insiders using genomics findings to convince audiences that deadly force and coercive policies against racial minorities are warranted. To create a just genomics, geneticists must consider what makes their research so attractive and adaptable for the legitimization of unjust ends and what they can do to counter such appropriations. We offer insights and recommendations drawing from our research into the many ways online white nationalist and far-right political movements mobilize genetics research to promote their racist, sexist, antisemitic, and homophobic views. First, geneticists should identify and change routine research practices that feed eugenic thinking. Second, geneticists should adopt creative extra-scholarly communication efforts to counter the use of their field's research that occurs in nonscholarly spaces. Third, we identify permissive epistemological and professional practices within the genetics field that have enabled such unjust appropriations to thrive, and we recommend strategies for institutional reform.</p>\u0000 </div>","PeriodicalId":55073,"journal":{"name":"Hastings Center Report","volume":"54 S2","pages":"S14-S21"},"PeriodicalIF":2.3,"publicationDate":"2024-12-21","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1002/hast.4925","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142869049","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"哲学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}