Evelina Pituch, Rym Ben Lagha, Marjorie Aunos, Tiffanie Cormier, Annie Carrier, Cynthia Gagnon, Véronique Gilbert, Aysha Dominique, Antoine Duquette, Marie Turcotte, Rose-Marie Wakil, Carolina Bottari
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"What Services?": Stakeholders' Perceived Unmet Support Needs for Parents With Neurological Disorders.
Background. Knowledge about the needs of parents with neurological disorders who take care of young children is limited. Purpose. The overall aim of this qualitative study was to explore the perceived unmet parent needs, current supports, and potential solutions to optimize supports of parents with neurological disorders in early childhood in a Canadian setting. Method. Focus groups and individual interviews with parents (n = 8), spouses (n = 5), rehabilitation clinicians (n = 8), community partners (n = 7), and researchers (n = 7) were conducted with a total of 35 participants recruited using convenience sampling. Inductive iterative thematic analysis was performed. Findings. The participants identified the need for society to officially recognize parenting with disabilities, adjust public policies, increase the scope of public programs, consider child development and family well-being, and have barrier-free communities. Conclusion. Providing customized solutions that will adequately fill perceived service gaps is of utmost importance to address these families' needs.
期刊介绍:
The Canadian Journal of Occupational Therapy was first published in September 1933. Since that time, it has fostered advancement and growth in occupational therapy scholarship. The mission of the journal is to provide a forum for leading-edge occupational therapy scholarship that advances theory, practice, research, and policy. The vision is to be a high-quality scholarly journal that is at the forefront of the science of occupational therapy and a destination journal for the top scholars in the field, globally.