一项定性研究,为促进青少年食物过敏自我管理和适应的行为干预措施的开发提供信息。

IF 1.2 Q3 PSYCHOLOGY, CLINICAL
Clinical Practice in Pediatric Psychology Pub Date : 2023-03-01 Epub Date: 2022-01-31 DOI:10.1037/cpp0000433
Linda Jones Herbert, Frances Cooke, Ashley Ramos, Emily Miller, Shaylar Padgett, Todd D Green
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引用次数: 0

摘要

目的:青春期是食物过敏(FA)患者的高危期,因为管理责任转移到了青少年身上。本研究采用定性方法探讨不同儿科 FA 患者的 FA 经验,并为行为干预措施的制定提供依据:从 FA 诊所共招募了 26 名 9-14 岁 IgE 媒介型 FA 青少年(M 年龄 = 11.92 岁;62% 为男性;42% 为黑人,31% 为白人,12% 为西班牙裔/拉丁裔)和 25 名主要照顾者(M 年龄 = 42.57 岁;32% 年收入大于 100,000 美元),就 FA 相关经历分别完成定性访谈。访谈被录音、转录并输入定性软件程序 Dedoose。采用基础理论定性分析方法对数据进行分析:新出现的主题包括1)FA 是一种影响日常生活的慢性负担;2)家庭对 FA 感到焦虑;3)家庭发现将 FA 管理从父母移交给子女具有挑战性;4)FA 家庭认为需要做好准备;5)FA 家庭经常为自己的需求进行宣传;6)社会经历影响 FA 的经历:结论:患有 FA 的青少年及其照顾者每天都要承受与慢性疾病相关的压力。提供FA教育、加强压力/焦虑管理、协助父母将FA管理责任移交给青少年、教授执行功能和倡导技能以及促进同伴支持的行为干预措施,可以帮助青少年在日常生活中成功应对和管理FA。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
A Qualitative Study to Inform Development of a Behavioral Intervention to Promote Food Allergy Self-Management and Adjustment among Early Adolescents.

Objective: Adolescence is a high-risk period for patients with food allergy (FA) as management responsibilities shift to the youth. This study used qualitative methods to explore FA experiences among a diverse pediatric FA population and inform behavioral intervention development.

Methods: A total of 26 adolescents ages 9-14 years with IgE-mediated FA (M age = 11.92 years; 62% male; 42% Black, 31% White, 12% Hispanic/Latinx) and 25 primary caregivers (M age = 42.57 years; 32% annual income > $100,000) were recruited from FA clinics to complete separate qualitative interviews about FA-related experiences. Interviews were audio-recorded, transcribed, and entered into Dedoose, a qualitative software program. A grounded theory qualitative analytic approach was used to analyze data.

Results: Emergent themes include: 1) FA is a chronic burden that affects daily life, 2) Families experience anxiety about FA, 3) Families find it challenging to transition FA management from parent to child, 4) FA families feel the need to be prepared, 5) FA families frequently advocate for their needs, and 6) Social experiences affect the FA experience.

Conclusions: Adolescents with FA and their caregivers experience daily stress related to their chronic illness. A behavioral intervention that provides FA education, bolsters stress/anxiety management, assists parents in transitioning FA management responsibility to the youth, teaches executive functioning and advocacy skills, and fosters peer support could help adolescents successfully cope with and manage FA in their daily lives.

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来源期刊
Clinical Practice in Pediatric Psychology
Clinical Practice in Pediatric Psychology Psychology-Clinical Psychology
CiteScore
2.30
自引率
18.20%
发文量
50
期刊介绍: Clinical Practice in Pediatric Psychology® publishes articles representing the professional and applied activities of pediatric psychology. The journal comprehensively describes the breadth and richness of the field in its diverse activities;complements the scientific development of the field with information on the applied/clinical side;provides modeling that addresses the ways practicing pediatric psychologists incorporate empirical literature into day-to-day activities;emphasizes work that incorporates and cites evidence from the science base; andprovides a forum for those engaged in primarily clinical activities to report on their activities and inform future research activities. Articles include a range of formats such as commentaries, reviews, and clinical case reports in addition to more traditional empirical clinical studies. Articles address issues such as: professional and training activities in pediatric psychology and interprofessional functioning;funding/reimbursement patterns and the evaluation of the cost-effectiveness of clinical services;program development;organization of clinical services and workforce analyses;applications of evidence based interventions in "real world" settings with particular attention to potential barriers and solutions and considerations of diverse populations;critical analyses of professional practice issues;clinical innovations, e.g., emerging use of technology in clinical practice;case studies, particularly case studies that have enough detail to be replicated and that provide a basis for larger scale intervention studies; andorganizational, state and federal policies as they impact the practice of pediatric psychology, with a particular emphasis on changes due to health care reform.
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