对格洛斯特郡健康和护理NHS自闭症谱系状况服务促进的在线诊断后小组的评估

IF 1.1 Q4 PSYCHOLOGY, DEVELOPMENTAL
V. Hatton, Ming Xuan Lee
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引用次数: 0

摘要

目的自闭症谱系障碍(ASC)是一种终身发育障碍。根据研究,建议对被诊断为ASC的患者提供诊断后支持,以探索其诊断(Punshow, Skirrow和Murphy, 2009)。格洛斯特郡医疗保健(GHC) NHS基金会信托基金的ASC诊断评估服务为格洛斯特郡内的成年人(18岁以上)提供评估服务。所有接受诊断的人随后被邀请到一个由多学科团队协助的7周后诊断小组。本次服务评价的目的是对上述群体进行评价,以便对其进行改进,从而为未来的客户提供更好的服务。设计/方法/方法总共有14名参与者(6名男性,8名女性)参加了这些小组的活动,为了进行评估,他们接受了采访。调查结果随后,对访谈记录进行了主题分析,确定了四个主题;“自闭症社区”,“作为在线群体一部分的体验”,“巩固的机会”,以及“设计考虑和改进”。还确定了其他分主题。总体而言,服务评估表明,该小组提供了一个分享经验和获得归属感的平台。它还强调,个人对小组是应该在线还是面对面进行促进有不同的偏好,对会议的持续时间也有不同的偏好。进一步的分析还显示,对于家人和朋友的最后一次会议应该是可选的,这样那些没有支持网络的人就不需要参加了,因为这会引起一些人的不安。进一步的发现也被确认。原创性/价值据作者所知,现有的文章只侧重于评估诊断后提供的可用性和自闭症患者对它的总体印象,而不是对特定类型的支持进行深入评估。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
An evaluation of the online post-diagnostic groups facilitated by the autism spectrum condition service at Gloucestershire Health and Care NHS
Purpose Autism spectrum condition (ASC) is a lifelong developmental condition. According to research, it is recommended that those diagnosed with ASC should be offered post-diagnosis support to explore their diagnosis (Punshow, Skirrow and Murphy, 2009). The ASC Diagnostic Assessment Service at Gloucestershire Health Care (GHC) NHS Foundation Trust offers an assessment service to adults (18+) located within Gloucestershire. All those who receive a diagnosis are then invited to a 7-week post-diagnostic group facilitated by the multidisciplinary team. This service evaluation aimed to evaluate the aforementioned group so that it can be improved upon and thus provide a better service for future clients. Design/methodology/approach In total, 14 participants (6 males, 8 females) were interviewed for the purpose of this evaluation following their attendance at these groups. Findings The interview transcripts then underwent thematic analysis with four themes identified; “Autistic Community”, “Experience of Being Part of an Online Group”, “Opportunity for Consolidation”, and “Design Considerations and Improvements”. Further sub-themes were also identified. Overall, the service evaluation identified that the group provided a platform for sharing experiences and gaining a sense of belonging. It also highlighted that individuals have different preferences for whether groups should be facilitated online or face-to-face, and also different preferences for the duration of sessions. Further analysis also revealed the suggestion that the final session, for family and friends, should be optional so that those without a support network, do not need to attend as this caused unease in some. Further findings were also identified. Originality/value To the authors’ knowledge, existing articles have only focused on the evaluation of the availability of post-diagnostic provision and autistic individuals’ general impression of it rather than an in-depth evaluation of a specific type of support.
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来源期刊
Advances in Autism
Advances in Autism PSYCHOLOGY, DEVELOPMENTAL-
CiteScore
2.30
自引率
0.00%
发文量
13
期刊介绍: Advances in Autism is unique in its focus on the health and care aspects and outcomes for people with autism. The journal''s content is international in focus and peer-reviewed. It includes the following: research-based articles evidence-based clinical and support articles articles on policy and advances in services where these can be internationally applied. Key areas of research covered include: clinical developments people''s experience through qualitative research policy debates and outcomes inclusion and quality of life developmental issues population and epidemiological studies services developments evidence-based reviews of key practice issues.
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