John Huber, J. Dexheimer, Hannah Ingraham, C. Desmond, A. Klunk, Kati Kusnier, Dawn Nebrig, Laura Flesch, Annamarie Borich, S. Davies, C. Dandoy
{"title":"在儿科患者骨髓移植过程中测量和改善以家庭为中心的沟通的初步步骤","authors":"John Huber, J. Dexheimer, Hannah Ingraham, C. Desmond, A. Klunk, Kati Kusnier, Dawn Nebrig, Laura Flesch, Annamarie Borich, S. Davies, C. Dandoy","doi":"10.34105/j.kmel.2020.12.027","DOIUrl":null,"url":null,"abstract":"Often, pediatric patients' caregivers feel like they are not being heard or consulted by the healthcare system they have entrusted for their loved ones’ care. These difficulties are well known to the healthcare system, and significant research has been conducted to understand how to provide what’s come to be known as patient- and family-centered care (PFCC). PFCC is grounded in mutually beneficial partnerships among health care providers, patients, and families. In 2019 we started a quality improvement initiative, partnering with families to increase our family-centeredness, initially focusing on communication. We report our quality improvement initiative's initial steps to understand communication between patients and caregivers in the inpatient setting. We report variables identified as barriers to PFCC, and our initial interventions, including small tests of change, to implement and improve PFCC in the inpatient setting. We hope that our experience will inspire others to undertake similar initiatives at their institutions.","PeriodicalId":45327,"journal":{"name":"Knowledge Management & E-Learning-An International Journal","volume":" ","pages":""},"PeriodicalIF":2.5000,"publicationDate":"2020-12-26","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"1","resultStr":"{\"title\":\"Initial steps to measurement and improvement of family-centered communication during the pediatric patient journey of bone marrow transplantation\",\"authors\":\"John Huber, J. Dexheimer, Hannah Ingraham, C. Desmond, A. Klunk, Kati Kusnier, Dawn Nebrig, Laura Flesch, Annamarie Borich, S. Davies, C. Dandoy\",\"doi\":\"10.34105/j.kmel.2020.12.027\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"Often, pediatric patients' caregivers feel like they are not being heard or consulted by the healthcare system they have entrusted for their loved ones’ care. These difficulties are well known to the healthcare system, and significant research has been conducted to understand how to provide what’s come to be known as patient- and family-centered care (PFCC). PFCC is grounded in mutually beneficial partnerships among health care providers, patients, and families. In 2019 we started a quality improvement initiative, partnering with families to increase our family-centeredness, initially focusing on communication. We report our quality improvement initiative's initial steps to understand communication between patients and caregivers in the inpatient setting. We report variables identified as barriers to PFCC, and our initial interventions, including small tests of change, to implement and improve PFCC in the inpatient setting. We hope that our experience will inspire others to undertake similar initiatives at their institutions.\",\"PeriodicalId\":45327,\"journal\":{\"name\":\"Knowledge Management & E-Learning-An International Journal\",\"volume\":\" \",\"pages\":\"\"},\"PeriodicalIF\":2.5000,\"publicationDate\":\"2020-12-26\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"\",\"citationCount\":\"1\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"Knowledge Management & E-Learning-An International Journal\",\"FirstCategoryId\":\"95\",\"ListUrlMain\":\"https://doi.org/10.34105/j.kmel.2020.12.027\",\"RegionNum\":4,\"RegionCategory\":\"教育学\",\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"\",\"PubModel\":\"\",\"JCR\":\"Q1\",\"JCRName\":\"EDUCATION & EDUCATIONAL RESEARCH\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"Knowledge Management & E-Learning-An International Journal","FirstCategoryId":"95","ListUrlMain":"https://doi.org/10.34105/j.kmel.2020.12.027","RegionNum":4,"RegionCategory":"教育学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q1","JCRName":"EDUCATION & EDUCATIONAL RESEARCH","Score":null,"Total":0}
Initial steps to measurement and improvement of family-centered communication during the pediatric patient journey of bone marrow transplantation
Often, pediatric patients' caregivers feel like they are not being heard or consulted by the healthcare system they have entrusted for their loved ones’ care. These difficulties are well known to the healthcare system, and significant research has been conducted to understand how to provide what’s come to be known as patient- and family-centered care (PFCC). PFCC is grounded in mutually beneficial partnerships among health care providers, patients, and families. In 2019 we started a quality improvement initiative, partnering with families to increase our family-centeredness, initially focusing on communication. We report our quality improvement initiative's initial steps to understand communication between patients and caregivers in the inpatient setting. We report variables identified as barriers to PFCC, and our initial interventions, including small tests of change, to implement and improve PFCC in the inpatient setting. We hope that our experience will inspire others to undertake similar initiatives at their institutions.