Jyothsna Kuriakose, Jacopo D'Andria Ursoleo, Barney Isaac, Balamugesh Thangakunam, Donald R Sullivan, Kathleen Lindell, Anne-Marie Russell, Rachel Hadler, Matthew Maddocks, Natalia Smirnova, Russell Portenoy, M R Rajagopal, Sarah Mohammed, Anand S Iyer, Smriti Rana, Natasha Smallwood, Christopher A Jones, Jenifer Jeba Sundararaj
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Top Ten Tips Palliative Care Clinicians Should Know About Caring for People with Interstitial Lung Diseases.
Interstitial lung diseases (ILD) represent a heterogenous group of illnesses with significant multidimensional suffering and varied prognoses. Integration of palliative care (PC), though beneficial, is limited for this group of individuals. The complex care needs of people with ILD and their caregivers are underrecognized and incompletely addressed. This gap necessitates shared care by a multidisciplinary team along the illness trajectory. PC clinicians need to understand the illness patterns, prognoses, therapeutic options including lung transplant, symptom management, and other supportive interventions in ILD care. This article distills the current evidence into 10 practical tips to assist PC clinicians in delivering comprehensive care to people with ILD. These tips have been compiled by a multidisciplinary and interprofessional group consisting of pulmonologists, intensivists, academic clinicians, policy makers, physicians, nurses, and psychologists from specialist PC teams. Well-informed PC teams can significantly influence the illness experience of individuals with ILD and their caregivers, thereby reducing serious health-related suffering.
期刊介绍:
Journal of Palliative Medicine is the premier peer-reviewed journal covering medical, psychosocial, policy, and legal issues in end-of-life care and relief of suffering for patients with intractable pain. The Journal presents essential information for professionals in hospice/palliative medicine, focusing on improving quality of life for patients and their families, and the latest developments in drug and non-drug treatments.
The companion biweekly eNewsletter, Briefings in Palliative Medicine, delivers the latest breaking news and information to keep clinicians and health care providers continuously updated.