关于照顾间质性肺疾病患者,姑息治疗临床医生应该知道的十大提示。

IF 1.8 3区 医学 Q2 HEALTH CARE SCIENCES & SERVICES
Jyothsna Kuriakose, Jacopo D'Andria Ursoleo, Barney Isaac, Balamugesh Thangakunam, Donald R Sullivan, Kathleen Lindell, Anne-Marie Russell, Rachel Hadler, Matthew Maddocks, Natalia Smirnova, Russell Portenoy, M R Rajagopal, Sarah Mohammed, Anand S Iyer, Smriti Rana, Natasha Smallwood, Christopher A Jones, Jenifer Jeba Sundararaj
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引用次数: 0

摘要

间质性肺疾病(ILD)是一组异质性疾病,具有显著的多维痛苦和不同的预后。姑息治疗(PC)的整合,虽然有益,是有限的这组个人。ILD患者及其照护者的复杂照护需求未得到充分认识和充分解决。这一差距需要多学科团队沿着疾病轨迹共同护理。PC临床医生需要了解疾病模式、预后、包括肺移植在内的治疗选择、症状管理和ILD护理中的其他支持性干预措施。本文将目前的证据提炼成10个实用提示,以帮助PC临床医生为ILD患者提供全面的护理。这些建议是由一个多学科和跨专业的小组编写的,该小组由肺科医生、重症监护医生、学术临床医生、政策制定者、医生、护士和来自专业PC团队的心理学家组成。消息灵通的PC团队可以显著影响ILD患者及其照护者的疾病经历,从而减少严重的健康相关痛苦。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Top Ten Tips Palliative Care Clinicians Should Know About Caring for People with Interstitial Lung Diseases.

Interstitial lung diseases (ILD) represent a heterogenous group of illnesses with significant multidimensional suffering and varied prognoses. Integration of palliative care (PC), though beneficial, is limited for this group of individuals. The complex care needs of people with ILD and their caregivers are underrecognized and incompletely addressed. This gap necessitates shared care by a multidisciplinary team along the illness trajectory. PC clinicians need to understand the illness patterns, prognoses, therapeutic options including lung transplant, symptom management, and other supportive interventions in ILD care. This article distills the current evidence into 10 practical tips to assist PC clinicians in delivering comprehensive care to people with ILD. These tips have been compiled by a multidisciplinary and interprofessional group consisting of pulmonologists, intensivists, academic clinicians, policy makers, physicians, nurses, and psychologists from specialist PC teams. Well-informed PC teams can significantly influence the illness experience of individuals with ILD and their caregivers, thereby reducing serious health-related suffering.

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来源期刊
Journal of palliative medicine
Journal of palliative medicine 医学-卫生保健
CiteScore
3.90
自引率
10.70%
发文量
345
审稿时长
2 months
期刊介绍: Journal of Palliative Medicine is the premier peer-reviewed journal covering medical, psychosocial, policy, and legal issues in end-of-life care and relief of suffering for patients with intractable pain. The Journal presents essential information for professionals in hospice/palliative medicine, focusing on improving quality of life for patients and their families, and the latest developments in drug and non-drug treatments. The companion biweekly eNewsletter, Briefings in Palliative Medicine, delivers the latest breaking news and information to keep clinicians and health care providers continuously updated.
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