对年幼自闭症儿童的照料者实施干预的文化适应质量评价。

IF 2.7 3区 医学 Q1 ANTHROPOLOGY
James D Lee, Hedda Meadan, Michelle M Sands, Adriana Kaori Terol, Melanie R Martin Loya, Christy D Yoon
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引用次数: 0

摘要

许多基于证据的自闭症实践旨在改善家庭和儿童的结果。护理人员实施的干预是这种循证实践的一个例子,因为它旨在加强护理人员在自然环境中的能力。尽管在早期自闭症干预中由护理人员实施的干预得到了研究的支持,并被许多从业者和家庭使用,但来自不同文化或语言背景的年轻自闭症儿童的边缘化家庭需要对这些干预措施进行额外的适应,以增加上下文的契合度。如果没有这些适应,在自闭症研究中代表性不足的边缘化家庭可能无法公平地获得干预措施。虽然文献表明,干预措施的文化适应可能是确保公平实施的有效方法,但如果不评估文化适应的质量和严谨性,仍然很难在这些人群中声称其有效性。因此,我们使用文化适应检查表(一种基于生态效度框架和实施科学的评估文化适应质量的新工具)对16项照顾者实施的文化适应或量身定制干预措施的研究进行了回顾。研究结果揭示了文化适应的巨大差异和广泛使用的实践。讨论了现有文献的局限性和对未来研究的启示。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
A quality appraisal of cultural adaptation of caregiver-implemented interventions for young autistic children.

Many evidence-based practices in autism aim to improve outcomes for both family and child. Caregiver-implemented intervention is one example of such evidence-based practice as it aims to strengthen caregivers' capacity in a natural environment. Although caregiver-implemented interventions in early autism intervention are supported by research and used by many practitioners and families, marginalized families of young autistic children from diverse cultural or linguistic backgrounds require additional adaptations to these interventions for increased contextual fit. Without these adaptations, interventions may not be equitably accessible among marginalized families who are underrepresented in autism research. While literature suggests that cultural adaptation of interventions may be an effective way to ensure equitable implementation, it is still difficult to claim its effectiveness among these populations without appraising the quality and rigor of cultural adaptation. Therefore, we conducted a review of 16 studies of caregiver-implemented interventions that were culturally adapted or tailored using the Cultural Adaptation Checklist, a novel tool for appraising the quality of cultural adaptation based on the ecological validity framework and implementation science. The results revealed great variation and use of a wide range of practices in cultural adaptation. Limitations of current literature and implications for future research are discussed.

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来源期刊
CiteScore
5.10
自引率
12.00%
发文量
93
期刊介绍: Transcultural Psychiatry is a fully peer reviewed international journal that publishes original research and review articles on cultural psychiatry and mental health. Cultural psychiatry is concerned with the social and cultural determinants of psychopathology and psychosocial treatments of the range of mental and behavioural problems in individuals, families and human groups. In addition to the clinical research methods of psychiatry, it draws from the disciplines of psychiatric epidemiology, medical anthropology and cross-cultural psychology.
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