了解青少年参与发育神经科学研究的障碍。

IF 4.9 2区 医学 Q1 NEUROSCIENCES
Emma Renwick, Kristabel Stark, Emily Tan, Jenna Gonzalez, Alexis Brieant
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引用次数: 0

摘要

在发育神经科学研究中增加年轻人的代表性对于阐明认知、行为和心理健康的神经生物学机制至关重要。然而,该领域在优化招聘策略和减少代表性不足人群参与的障碍方面面临着严峻挑战。为了检查这些挑战并确定解决方案,我们采用定性方法评估青少年样本中参与研究的障碍。数据来自美国农村地区青少年的半结构化在线焦点小组。样本包括20名参与者(年龄13-18岁,65% %女性)。一部分问题涉及对研究参与的兴趣和潜在障碍,数据使用专题分析进行分析。结果显示了五个关键主题:交通、时间、安全、护理人员参与和其他障碍。许多参与者强调了他们对照顾者的交通依赖,以及对参与研究的总体时间承诺的担忧。对磁共振成像(MRI)的误解导致青少年对参与的犹豫。这些障碍中的许多都与研究环境相关,但对于农村社区的年轻人来说可能尤其突出,而农村社区的年轻人在发育神经科学研究中往往代表性不足。根据这些数据,我们提出了潜在的解决方案,如社区外展和教育、公平补偿和基于社区的伙伴关系。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Understanding barriers to adolescent participation in developmental neuroscience research.

Increasing representation of youth in developmental neuroscience research is essential to elucidating neurobiological mechanisms of cognition, behavior, and mental health. However, the field faces critical challenges in optimizing recruitment strategies and reducing barriers to participation among underrepresented populations. To examine these challenges and identify solutions, we employed a qualitative approach to assess barriers to research participation among a sample of adolescents. Data were drawn from semi-structured online focus groups with adolescents in a rural area of the United States. The sample included 20 participants (ages 13-18 years, 65 % female). A subset of questions addressed interest in research participation and potential barriers, and data were analyzed using thematic analysis. Results indicated five key themes: transportation, time, safety, caregiver involvement, and other barriers. Many participants highlighted their reliance on caregivers for transportation, as well as concerns about the overall time commitment of research participation. Misconceptions about magnetic resonance imaging (MRI) contributed to adolescents' hesitancy to participate. Many of these barriers are relevant across research settings, but may be especially salient for youth in rural communities, a population often underrepresented in developmental neuroscience research. Based on the data, we offer potential solutions such as community outreach and education, fair compensation, and community-based partnerships.

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来源期刊
CiteScore
7.60
自引率
10.60%
发文量
124
审稿时长
6-12 weeks
期刊介绍: The journal publishes theoretical and research papers on cognitive brain development, from infancy through childhood and adolescence and into adulthood. It covers neurocognitive development and neurocognitive processing in both typical and atypical development, including social and affective aspects. Appropriate methodologies for the journal include, but are not limited to, functional neuroimaging (fMRI and MEG), electrophysiology (EEG and ERP), NIRS and transcranial magnetic stimulation, as well as other basic neuroscience approaches using cellular and animal models that directly address cognitive brain development, patient studies, case studies, post-mortem studies and pharmacological studies.
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