智障人士听力相关生活品质之评估。

IF 2 2区医学 Q1 EDUCATION, SPECIAL

Journal of Intellectual Disability Research Pub Date : 2025-09-18 DOI:10.1111/jir.70036

Susanna Zielonkowski, Philipp Mathmann, Awa Naghipour, Susanne Wasmuth, Lukas Prein, Ross Parfitt, Werner Brannath, Martin Scharpenberg, Vincent Jankovic, Anja Neumann, Katharina Schwarze, Karolin Schäfer, Christian Speckemeier, Corinna Gietmann, Katrin Neumann

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引用次数: 0

摘要

背景：智力残疾者比一般人群更容易出现听力损失，但在大多数情况下，这种情况仍未被认识和管理。本研究的目的是确定智力残疾者的听力状况是否可以由他们自己和/或他们的照顾者正确评估，以及听力损失是否会损害智力残疾者的听力相关生活质量。方法：在前瞻性队列研究中，HörGeist， 1053名智力残疾患者接受了听力筛查，必要时在其生活环境中进行诊断评估和干预。参与者的护理人员自行编写了一份由多个部分组成的问卷，其中包括与听力相关的生活质量问题，并与听力测试结果进行了交叉核对。采用多变量回归验证听力相关生活质量评分与听力损失程度之间的关联。结果：463名（44.0%）参与者被诊断为听力损失；其中，事先知道的病例只有120例（25.9%）。404名参与者（59.0%）和580名照顾者（61.5%）的听力状况评价正确；高估率分别为34.6%和33.4%（敏感性分别为0.223/0.271）。听力相关生活质量平均得分为3.0分（满分4分）。多变量回归显示听力损失程度与听力相关生活质量之间存在小而显著的相关性（β = -0.069; p 2 = 0.081）。结论：建议定期进行听力测试以改善智力残疾者的听力相关生活质量。

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Evaluating the Hearing-Related Quality of Life in People With Intellectual Disabilities.

Background: People with intellectual disabilities are more likely to have hearing loss than the general population, but in most cases, it remains unrecognised and unmanaged. The aims of this study were to determine whether the hearing status of people with intellectual disabilities can be correctly evaluated by themselves and/or their caregivers, and whether hearing loss compromises the hearing-related quality of life of people with intellectual disabilities.

Method: In the prospective cohort study, HörGeist, 1053 individuals with intellectual disabilities received hearing screening and, where necessary, diagnostic assessment and intervention within their living environment. A self-developed multipart questionnaire, including items regarding hearing-related quality of life, was answered by caregivers of the participants and was cross-checked with the results of the hearing tests. A multivariable regression was performed to verify an association between the hearing-related quality of life score and the degree of hearing loss.

Results: Hearing loss was diagnosed in 463 (44.0%) participants; thereof, only 120 (25.9%) cases were known beforehand. In 404 participants (59.0%) and 580 caregivers (61.5%), hearing status was rated correctly; it was overestimated in 34.6% and 33.4%, respectively (sensitivity: 0.223/0.271, respectively). The mean hearing-related quality of life score was 3.0 of 4 possible points. The multivariable regression revealed a small but significant association between the degree of hearing loss and hearing-related quality of life (β = -0.069; p < 0.001; adjusted R² = 0.081).

Conclusions: Regular audiometric tests are recommended for improving the hearing-related quality of life in people with intellectual disabilities.

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来源期刊

Journal of Intellectual Disability Research Multiple-

CiteScore

5.60

自引率

5.60%

发文量

期刊介绍： The Journal of Intellectual Disability Research is devoted exclusively to the scientific study of intellectual disability and publishes papers reporting original observations in this field. The subject matter is broad and includes, but is not restricted to, findings from biological, educational, genetic, medical, psychiatric, psychological and sociological studies, and ethical, philosophical, and legal contributions that increase knowledge on the treatment and prevention of intellectual disability and of associated impairments and disabilities, and/or inform public policy and practice. Expert reviews on themes in which recent research has produced notable advances will be included. Such reviews will normally be by invitation.