在监狱之外:评估住院囚犯的临终关怀和替代决策。

IF 2.1 3区 医学 Q2 HEALTH CARE SCIENCES & SERVICES
Zack Watson, Julie Brown, Abhinav Vyas, Stacey Tillman, Sumi Misra, Rajiv Agarwal, Cheryl Gatto, Allison McCarthy, Mohana Karlekar
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引用次数: 0

摘要

被监禁者保留宪法规定的保健权利,但他们在获得姑息治疗和指定代理人方面面临着独特的挑战,特别是在丧失行为能力的情况下。我们提出了两例患有生命限制疾病的住院IPs,他们在识别和参与代孕方面遇到了重大障碍。这两个案例都强调了由于惩教政策而导致的与代理人沟通延迟和生命末期探视受限的影响。这些延迟限制了最佳跨学科PC和丧亲支持的提供。尽管《田纳西州卫生保健决定法》提供了明确的法律指导,但医疗和惩教人员之间的错误信息和程序歧义阻碍了及时和适当的护理。我们的研究结果强调需要改进制度政策和培训,以确保ip获得充分的EOL护理。提高对法律框架的认识、更明确的替代识别协议以及卫生保健和惩教系统之间的合作,对于维护面临严重疾病或死亡的知识产权者的权利和尊严至关重要。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Beyond Bars: Evaluating End-of-Life Care and Surrogate Decision-Making for Hospitalized Incarcerated Persons.

Incarcerated persons (IPs) retain the constitutional right to health care, yet they face unique challenges in accessing palliative care (PC) and designating surrogates, especially when incapacitated. We present two cases of hospitalized IPs with life-limiting illnesses who experienced significant barriers in identifying and engaging surrogates. Both cases underscore the effect of delays in communication with surrogates and restricted end-of-life (EOL) visitation due to correctional policies. These delays limited the delivery of optimal interdisciplinary PC and bereavement support. Despite clear legal guidance under the Tennessee Health Care Decisions Act, misinformation and procedural ambiguity among medical and correctional staff impeded timely and appropriate care. Our findings highlight the need for improved institutional policies and training to ensure IPs receive adequate EOL care. Enhanced awareness of legal frameworks, clearer surrogate identification protocols, and collaboration between health care and correctional systems are essential to upholding the rights and dignity of IPs facing serious illness or death.

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来源期刊
Journal of palliative medicine
Journal of palliative medicine 医学-卫生保健
CiteScore
3.90
自引率
10.70%
发文量
345
审稿时长
2 months
期刊介绍: Journal of Palliative Medicine is the premier peer-reviewed journal covering medical, psychosocial, policy, and legal issues in end-of-life care and relief of suffering for patients with intractable pain. The Journal presents essential information for professionals in hospice/palliative medicine, focusing on improving quality of life for patients and their families, and the latest developments in drug and non-drug treatments. The companion biweekly eNewsletter, Briefings in Palliative Medicine, delivers the latest breaking news and information to keep clinicians and health care providers continuously updated.
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