越南自闭症谱系残疾儿童父母中与污名相关的因素

IF 3.2 2区 心理学 Q1 PSYCHOLOGY, DEVELOPMENTAL
Thi Loan Khanh, Anh Thi Lan Mai, Thuy Linh Duong, Lan Anh Nguyen
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引用次数: 0

摘要

自闭症谱系残疾儿童的父母经常会遇到严重的耻辱。目前还没有任何研究确定所有三种类型的耻辱-感知,自我和制定-特别是没有涉及越南父母,也没有探索由于语言和文化差异而产生的耻辱体验。本横断面描述性研究旨在确定越南河内自闭症谱系障碍儿童父母的病耻感相关因素。该研究采用分层抽样方法,通过结构化的自我管理问卷,收集了2023年2月至10月期间河内国家儿童医院和五个残疾儿童特殊教育中心的846名家长的数据。该研究确定了影响自闭症儿童父母所经历的三种耻辱的几个因素。在父母相关因素中,睡眠时间和婚姻状况与所有三种病耻感类型均显著相关,而父母年龄和经济状况影响其中一种或两种病耻感类型。与儿童有关的因素,如年龄、残疾持续时间和残疾程度与所有三种耻辱类型有关,而健康保险、学校教育和性别与一种或两种耻辱类型有关。此外,痛苦行为、社会支持和照顾者负担是所有三种类型的耻辱感的显著预测因子,照顾者负担是整体上最强的预测因子(β分别= 0.34、0.42和0.31,p
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Factors Associated with Stigma Among Parents of Children with Autism Spectrum Disability in Vietnam.

Parents of children with autism spectrum disability frequently encounter significant stigma. There has not been any research identifying all three types of stigma -perceived, self, and enacted-, especially none involving Vietnamese parents, nor exploring the experience of stigma due to language and cultural differences. This cross-sectional descriptive study aimed to identify factors associated with stigma among parents of children with autism spectrum disorder in Hanoi, Vietnam. Using a stratified sampling method, the study collected data from 846 parents at the National Children's Hospital and five special education centers for children with disabilities in Hanoi between February and October 2023 through structured self-administered questionnaires. The study identified several factors that influence the three types of stigma experienced by parents of children with ASD. Among parent-related factors, hours of sleep and marital status were significantly linked to all three stigma types, while parental age and economic status affected one or two types of stigma. Child-related factors such as age, disability duration, and disability levels were associated with all three stigma types, whereas health insurance schooling and gender were linked to one or two types. Additionally, distressed behaviours, social support, and caregiver burden were significant predictors of all three types of stigma, with caregiver burden emerging as the strongest predictor overall (β = 0.34, 0.42 and 0.31 respectively, p < 0.001). This study can assist in identifying populations at risk and suggests that healthcare professionals should provide effective personalized care and early interventions to reduce stigma for parents of children with ASD.

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来源期刊
CiteScore
8.00
自引率
10.30%
发文量
433
期刊介绍: The Journal of Autism and Developmental Disorders seeks to advance theoretical and applied research as well as examine and evaluate clinical diagnoses and treatments for autism and related disabilities. JADD encourages research submissions on the causes of ASDs and related disorders, including genetic, immunological, and environmental factors; diagnosis and assessment tools (e.g., for early detection as well as behavioral and communications characteristics); and prevention and treatment options. Sample topics include: Social responsiveness in young children with autism Advances in diagnosing and reporting autism Omega-3 fatty acids to treat autism symptoms Parental and child adherence to behavioral and medical treatments for autism Increasing independent task completion by students with autism spectrum disorder Does laughter differ in children with autism? Predicting ASD diagnosis and social impairment in younger siblings of children with autism The effects of psychotropic and nonpsychotropic medication with adolescents and adults with ASD Increasing independence for individuals with ASDs Group interventions to promote social skills in school-aged children with ASDs Standard diagnostic measures for ASDs Substance abuse in adults with autism Differentiating between ADHD and autism symptoms Social competence and social skills training and interventions for children with ASDs Therapeutic horseback riding and social functioning in children with autism Authors and readers of the Journal of Autism and Developmental Disorders include sch olars, researchers, professionals, policy makers, and graduate students from a broad range of cross-disciplines, including developmental, clinical child, and school psychology; pediatrics; psychiatry; education; social work and counseling; speech, communication, and physical therapy; medicine and neuroscience; and public health.
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