Thi Loan Khanh, Anh Thi Lan Mai, Thuy Linh Duong, Lan Anh Nguyen
{"title":"越南自闭症谱系残疾儿童父母中与污名相关的因素","authors":"Thi Loan Khanh, Anh Thi Lan Mai, Thuy Linh Duong, Lan Anh Nguyen","doi":"10.1007/s10803-025-06942-5","DOIUrl":null,"url":null,"abstract":"<p><p>Parents of children with autism spectrum disability frequently encounter significant stigma. There has not been any research identifying all three types of stigma -perceived, self, and enacted-, especially none involving Vietnamese parents, nor exploring the experience of stigma due to language and cultural differences. This cross-sectional descriptive study aimed to identify factors associated with stigma among parents of children with autism spectrum disorder in Hanoi, Vietnam. Using a stratified sampling method, the study collected data from 846 parents at the National Children's Hospital and five special education centers for children with disabilities in Hanoi between February and October 2023 through structured self-administered questionnaires. The study identified several factors that influence the three types of stigma experienced by parents of children with ASD. Among parent-related factors, hours of sleep and marital status were significantly linked to all three stigma types, while parental age and economic status affected one or two types of stigma. Child-related factors such as age, disability duration, and disability levels were associated with all three stigma types, whereas health insurance schooling and gender were linked to one or two types. Additionally, distressed behaviours, social support, and caregiver burden were significant predictors of all three types of stigma, with caregiver burden emerging as the strongest predictor overall (β = 0.34, 0.42 and 0.31 respectively, p < 0.001). This study can assist in identifying populations at risk and suggests that healthcare professionals should provide effective personalized care and early interventions to reduce stigma for parents of children with ASD.</p>","PeriodicalId":15148,"journal":{"name":"Journal of Autism and Developmental Disorders","volume":" ","pages":""},"PeriodicalIF":3.2000,"publicationDate":"2025-07-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":"{\"title\":\"Factors Associated with Stigma Among Parents of Children with Autism Spectrum Disability in Vietnam.\",\"authors\":\"Thi Loan Khanh, Anh Thi Lan Mai, Thuy Linh Duong, Lan Anh Nguyen\",\"doi\":\"10.1007/s10803-025-06942-5\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"<p><p>Parents of children with autism spectrum disability frequently encounter significant stigma. There has not been any research identifying all three types of stigma -perceived, self, and enacted-, especially none involving Vietnamese parents, nor exploring the experience of stigma due to language and cultural differences. This cross-sectional descriptive study aimed to identify factors associated with stigma among parents of children with autism spectrum disorder in Hanoi, Vietnam. Using a stratified sampling method, the study collected data from 846 parents at the National Children's Hospital and five special education centers for children with disabilities in Hanoi between February and October 2023 through structured self-administered questionnaires. The study identified several factors that influence the three types of stigma experienced by parents of children with ASD. Among parent-related factors, hours of sleep and marital status were significantly linked to all three stigma types, while parental age and economic status affected one or two types of stigma. Child-related factors such as age, disability duration, and disability levels were associated with all three stigma types, whereas health insurance schooling and gender were linked to one or two types. Additionally, distressed behaviours, social support, and caregiver burden were significant predictors of all three types of stigma, with caregiver burden emerging as the strongest predictor overall (β = 0.34, 0.42 and 0.31 respectively, p < 0.001). This study can assist in identifying populations at risk and suggests that healthcare professionals should provide effective personalized care and early interventions to reduce stigma for parents of children with ASD.</p>\",\"PeriodicalId\":15148,\"journal\":{\"name\":\"Journal of Autism and Developmental Disorders\",\"volume\":\" \",\"pages\":\"\"},\"PeriodicalIF\":3.2000,\"publicationDate\":\"2025-07-03\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"\",\"citationCount\":\"0\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"Journal of Autism and Developmental Disorders\",\"FirstCategoryId\":\"102\",\"ListUrlMain\":\"https://doi.org/10.1007/s10803-025-06942-5\",\"RegionNum\":2,\"RegionCategory\":\"心理学\",\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"\",\"PubModel\":\"\",\"JCR\":\"Q1\",\"JCRName\":\"PSYCHOLOGY, DEVELOPMENTAL\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"Journal of Autism and Developmental Disorders","FirstCategoryId":"102","ListUrlMain":"https://doi.org/10.1007/s10803-025-06942-5","RegionNum":2,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q1","JCRName":"PSYCHOLOGY, DEVELOPMENTAL","Score":null,"Total":0}
Factors Associated with Stigma Among Parents of Children with Autism Spectrum Disability in Vietnam.
Parents of children with autism spectrum disability frequently encounter significant stigma. There has not been any research identifying all three types of stigma -perceived, self, and enacted-, especially none involving Vietnamese parents, nor exploring the experience of stigma due to language and cultural differences. This cross-sectional descriptive study aimed to identify factors associated with stigma among parents of children with autism spectrum disorder in Hanoi, Vietnam. Using a stratified sampling method, the study collected data from 846 parents at the National Children's Hospital and five special education centers for children with disabilities in Hanoi between February and October 2023 through structured self-administered questionnaires. The study identified several factors that influence the three types of stigma experienced by parents of children with ASD. Among parent-related factors, hours of sleep and marital status were significantly linked to all three stigma types, while parental age and economic status affected one or two types of stigma. Child-related factors such as age, disability duration, and disability levels were associated with all three stigma types, whereas health insurance schooling and gender were linked to one or two types. Additionally, distressed behaviours, social support, and caregiver burden were significant predictors of all three types of stigma, with caregiver burden emerging as the strongest predictor overall (β = 0.34, 0.42 and 0.31 respectively, p < 0.001). This study can assist in identifying populations at risk and suggests that healthcare professionals should provide effective personalized care and early interventions to reduce stigma for parents of children with ASD.
期刊介绍:
The Journal of Autism and Developmental Disorders seeks to advance theoretical and applied research as well as examine and evaluate clinical diagnoses and treatments for autism and related disabilities. JADD encourages research submissions on the causes of ASDs and related disorders, including genetic, immunological, and environmental factors; diagnosis and assessment tools (e.g., for early detection as well as behavioral and communications characteristics); and prevention and treatment options. Sample topics include: Social responsiveness in young children with autism Advances in diagnosing and reporting autism Omega-3 fatty acids to treat autism symptoms Parental and child adherence to behavioral and medical treatments for autism Increasing independent task completion by students with autism spectrum disorder Does laughter differ in children with autism? Predicting ASD diagnosis and social impairment in younger siblings of children with autism The effects of psychotropic and nonpsychotropic medication with adolescents and adults with ASD Increasing independence for individuals with ASDs Group interventions to promote social skills in school-aged children with ASDs Standard diagnostic measures for ASDs Substance abuse in adults with autism Differentiating between ADHD and autism symptoms Social competence and social skills training and interventions for children with ASDs Therapeutic horseback riding and social functioning in children with autism Authors and readers of the Journal of Autism and Developmental Disorders include sch olars, researchers, professionals, policy makers, and graduate students from a broad range of cross-disciplines, including developmental, clinical child, and school psychology; pediatrics; psychiatry; education; social work and counseling; speech, communication, and physical therapy; medicine and neuroscience; and public health.