Neda Tahmasebi, Talieh Zarifian, Atieh Ashtari, Akbar Biglarian, Mehrdad Memarzadeh, Siyamak Tahmasebi Garmatani, Marjan Larimian
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Demographic characteristics were collected before the TNO-AZL preschool children's quality of life (TAPQoL) questionnaire was completed.</p><p><strong>Results: </strong>The QoL was compared to an overall score and the average score of items and domains on the TAPQoL questionnaire between the groups. The results showed a significant difference between the two groups in social functioning (t=2.96, p = 0.004), cognitive functioning (t=2.21, p = 0.03), emotional functioning (t=3.99, p<0.01), and the total score (p<0.001). However, no significant difference was observed in physical functioning (t= 0.78, p=0.43), and toddlers with oral clefts had more reasonable scores.</p><p><strong>Conclusion: </strong>The QoL of toddlers with oral clefts who received care from a multidisciplinary team was slightly better than that of the healthy group. Therefore, participating in these teams could lead these children to a similar QoL as their peers. Medical systems can provide easy accessibility to cleft care teams for patients and their families.</p>","PeriodicalId":14537,"journal":{"name":"Iranian Journal of Child Neurology","volume":"19 2","pages":"39-49"},"PeriodicalIF":0.9000,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11994126/pdf/","citationCount":"0","resultStr":"{\"title\":\"Evaluation of the Health-Related Quality of Life in Non-Syndromic Persian Toddlers with Orofacial Clefts Undergoing Team Care and Compared with a Control Group.\",\"authors\":\"Neda Tahmasebi, Talieh Zarifian, Atieh Ashtari, Akbar Biglarian, Mehrdad Memarzadeh, Siyamak Tahmasebi Garmatani, Marjan Larimian\",\"doi\":\"10.22037/ijcn.v19i2.45318\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"<p><strong>Objectives: </strong>Maintaining and enhancing patients' quality of life (QoL) are considered the most significant objectives in healthcare systems. 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引用次数: 0
摘要
目标:维持和提高患者的生活质量(QoL)被认为是医疗保健系统中最重要的目标。这些目标与全球医疗保健提供者的干预直接相关。本研究旨在评估接受唇腭裂干预的幼儿的健康相关生活质量(HRQoL),并与健康对照组进行比较。材料与方法:本研究为横断面研究。从一家儿科医院招募了36名年龄在18至36个月的唇腭裂患儿,接受团队护理,并根据纳入标准与健康同龄人相匹配。在完成TNO-AZL学龄前儿童生活质量(TAPQoL)问卷前收集人口学特征。结果:比较两组间TAPQoL问卷的总分和题域平均分。结果显示,两组在社会功能(t=2.96, p = 0.004)、认知功能(t=2.21, p = 0.03)、情绪功能(t=3.99, p)方面存在显著差异。结论:多学科团队护理的唇腭裂患儿的生活质量略好于健康组。因此,参加这些团队可以使这些孩子获得与同龄人相似的生活质量。医疗系统可以为病人及其家属提供方便的护理团队。
Evaluation of the Health-Related Quality of Life in Non-Syndromic Persian Toddlers with Orofacial Clefts Undergoing Team Care and Compared with a Control Group.
Objectives: Maintaining and enhancing patients' quality of life (QoL) are considered the most significant objectives in healthcare systems. These objectives are directly associated with the intervention of healthcare providers across the globe. This study aimed to evaluate the health-related quality of life (HRQoL) of toddlers who have undergone interventions for oral clefts and compare it with a healthy control group.
Materials & methods: The present study is cross-sectional. Thirty-six toddlers aged 18 to 36 months with oral clefts undergoing team care were recruited from a pediatric hospital and matched with healthy peers based on inclusion criteria. Demographic characteristics were collected before the TNO-AZL preschool children's quality of life (TAPQoL) questionnaire was completed.
Results: The QoL was compared to an overall score and the average score of items and domains on the TAPQoL questionnaire between the groups. The results showed a significant difference between the two groups in social functioning (t=2.96, p = 0.004), cognitive functioning (t=2.21, p = 0.03), emotional functioning (t=3.99, p<0.01), and the total score (p<0.001). However, no significant difference was observed in physical functioning (t= 0.78, p=0.43), and toddlers with oral clefts had more reasonable scores.
Conclusion: The QoL of toddlers with oral clefts who received care from a multidisciplinary team was slightly better than that of the healthy group. Therefore, participating in these teams could lead these children to a similar QoL as their peers. Medical systems can provide easy accessibility to cleft care teams for patients and their families.