{"title":"日本特殊需要儿童和典型发育儿童的兄弟姐妹健康相关生活质量：一项横断面研究","authors":"Hisashi Nakaguchi, Junko Honda, Satoshi Takatani, Qiting Lin, Mari Kitao, Takafumi Soejima, Noriyuki Nishimura","doi":"10.1177/10598405251333293","DOIUrl":null,"url":null,"abstract":"<p><p>With the global rise in children with disabilities, their siblings may experience various impacts on their daily lives. This study investigates health-related quality of life (QOL) and related factors among siblings of students attending special-needs schools in Japan. A cross-sectional study was conducted with two groups: 71 siblings of children with disabilities and a control group of 398 siblings of typically developing children, using the KINDL<sup>R</sup> QOL scale. Results showed a median QOL score for siblings of children with disabilities of 72.92 versus 71.88 for siblings of typically developing children (<i>p </i>= 0.711). This lack of significant difference may be attributed to existing social support systems and special-needs schools in Japan, which may reduce the burden on siblings of children with disabilities. These findings highlight the importance of maintaining and improving support systems for siblings of children with disabilities while continuously monitoring their well-being at home and in their communities.</p>","PeriodicalId":50058,"journal":{"name":"Journal of School Nursing","volume":" ","pages":"10598405251333293"},"PeriodicalIF":1.5000,"publicationDate":"2025-04-13","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":"{\"title\":\"Health-Related Quality of Life Among Siblings of Children with Special Needs and Typically Developing Children in Japan: A Cross-Sectional Study.\",\"authors\":\"Hisashi Nakaguchi, Junko Honda, Satoshi Takatani, Qiting Lin, Mari Kitao, Takafumi Soejima, Noriyuki Nishimura\",\"doi\":\"10.1177/10598405251333293\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"<p><p>With the global rise in children with disabilities, their siblings may experience various impacts on their daily lives. This study investigates health-related quality of life (QOL) and related factors among siblings of students attending special-needs schools in Japan. A cross-sectional study was conducted with two groups: 71 siblings of children with disabilities and a control group of 398 siblings of typically developing children, using the KINDL<sup>R</sup> QOL scale. Results showed a median QOL score for siblings of children with disabilities of 72.92 versus 71.88 for siblings of typically developing children (<i>p </i>= 0.711). This lack of significant difference may be attributed to existing social support systems and special-needs schools in Japan, which may reduce the burden on siblings of children with disabilities. These findings highlight the importance of maintaining and improving support systems for siblings of children with disabilities while continuously monitoring their well-being at home and in their communities.</p>\",\"PeriodicalId\":50058,\"journal\":{\"name\":\"Journal of School Nursing\",\"volume\":\" \",\"pages\":\"10598405251333293\"},\"PeriodicalIF\":1.5000,\"publicationDate\":\"2025-04-13\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"\",\"citationCount\":\"0\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"Journal of School Nursing\",\"FirstCategoryId\":\"3\",\"ListUrlMain\":\"https://doi.org/10.1177/10598405251333293\",\"RegionNum\":4,\"RegionCategory\":\"医学\",\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"\",\"PubModel\":\"\",\"JCR\":\"Q3\",\"JCRName\":\"NURSING\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"Journal of School Nursing","FirstCategoryId":"3","ListUrlMain":"https://doi.org/10.1177/10598405251333293","RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q3","JCRName":"NURSING","Score":null,"Total":0}
Health-Related Quality of Life Among Siblings of Children with Special Needs and Typically Developing Children in Japan: A Cross-Sectional Study.
With the global rise in children with disabilities, their siblings may experience various impacts on their daily lives. This study investigates health-related quality of life (QOL) and related factors among siblings of students attending special-needs schools in Japan. A cross-sectional study was conducted with two groups: 71 siblings of children with disabilities and a control group of 398 siblings of typically developing children, using the KINDLR QOL scale. Results showed a median QOL score for siblings of children with disabilities of 72.92 versus 71.88 for siblings of typically developing children (p = 0.711). This lack of significant difference may be attributed to existing social support systems and special-needs schools in Japan, which may reduce the burden on siblings of children with disabilities. These findings highlight the importance of maintaining and improving support systems for siblings of children with disabilities while continuously monitoring their well-being at home and in their communities.
期刊介绍：
The Journal of School Nursing (JOSN) is a bi-monthly peer-reviewed forum for improving the health of school children and the school community. The JOSN includes original research, research reviews, evidenced-based innovations in clinical practice or policy, and more. In addition to nursing, experts from medicine, public health, epidemiology, health services research, policy analysis, and education administration, also contribute.
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