Bridgette Glanville, Jennifer Oates, Kitty-Rose Foley, Aida Hurem, Lily Osmetti, Kachina Allen
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This review draws on 40 sources, including 29 peer-reviewed articles, 8 clinical guidelines, 2 books, and 1 position statement, identified through comprehensive searches of databases such as CINAHL, ERIC, Medline, APA PsycINFO, and grey literature in May 2024. Findings indicated that 96.8% of identified challenges pertained to communication, while fewer (3.2%) focused on voice-specific issues. Similarly, supports primarily addressed communication (91.3%), with 8.7% targeting voice needs. Communication challenges included barriers faced by autistic TGD individuals and those interacting with them, including healthcare professionals, peers, and family. Supports were identified as strategies and resources to enhance service delivery and client wellbeing, such as using visual aids or offering multiple communication options. However, significant gaps remain in addressing the unique voice and communication needs of this population, particularly regarding voice dysphoria, camouflaging versus identity disclosure, and communication within healthcare settings. Autistic TGD individuals represent a unique population whose needs are not sufficiently addressed by current guidance. 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引用次数: 0
摘要
自闭症跨性别和性别多样化(TGD)个体面临着独特的声音和沟通挑战,加上少数族裔压力因素,影响了他们的福祉和获得护理的机会。语言病理学家在提供性别确认和神经多样性确认支持方面至关重要;然而,与这些交叉人群一起工作的指导仍然有限。这一范围审查绘制了当前语音和通信挑战的知识,确定了可用的支持,并展示了语言病理学家现有指导的局限性。本综述采用了40个来源,包括29篇同行评议文章,8篇临床指南,2本书和1份立场声明,通过综合检索CINAHL, ERIC, Medline, APA PsycINFO等数据库和2024年5月的灰色文献确定。调查结果表明,96.8%的挑战与沟通有关,而较少(3.2%)的挑战与语音相关。同样,支持主要针对通信(91.3%),8.7%针对语音需求。沟通挑战包括自闭症TGD个体以及与他们互动的人(包括医疗保健专业人员、同龄人和家人)所面临的障碍。支持被确定为加强服务提供和客户福祉的策略和资源,例如使用视觉辅助或提供多种沟通选择。然而,在解决这一人群独特的声音和沟通需求方面仍然存在重大差距,特别是在声音不安、伪装与身份披露以及医疗保健环境中的沟通方面。自闭症TGD个体是一个独特的群体,其需求在目前的指导中没有得到充分的解决。这篇综述强调了研究和临床实践中的重大差距,并呼吁改进临床指南和语言病理学家的专业培训,以加强护理。
Harmonizing Identities: A Scoping Review on Voice and Communication Supports and Challenges for Autistic Trans and Gender Diverse Individuals.
Autistic trans and gender diverse (TGD) individuals face unique voice and communication challenges compounded by minority stressors, impacting wellbeing and access to care. Speech pathologists are crucial in providing gender-affirming and neurodiversity-affirming support; however, guidance for working with this intersectional population remains limited. This scoping review mapped current knowledge on voice and communication challenges, identifies available supports, and demonstrates the limitations of existing guidance for speech pathologists. This review draws on 40 sources, including 29 peer-reviewed articles, 8 clinical guidelines, 2 books, and 1 position statement, identified through comprehensive searches of databases such as CINAHL, ERIC, Medline, APA PsycINFO, and grey literature in May 2024. Findings indicated that 96.8% of identified challenges pertained to communication, while fewer (3.2%) focused on voice-specific issues. Similarly, supports primarily addressed communication (91.3%), with 8.7% targeting voice needs. Communication challenges included barriers faced by autistic TGD individuals and those interacting with them, including healthcare professionals, peers, and family. Supports were identified as strategies and resources to enhance service delivery and client wellbeing, such as using visual aids or offering multiple communication options. However, significant gaps remain in addressing the unique voice and communication needs of this population, particularly regarding voice dysphoria, camouflaging versus identity disclosure, and communication within healthcare settings. Autistic TGD individuals represent a unique population whose needs are not sufficiently addressed by current guidance. This review highlights significant gaps in research and clinical practice and calls for improved clinical guidelines and specialized training for speech pathologists to enhance care.
期刊介绍:
The Journal of Autism and Developmental Disorders seeks to advance theoretical and applied research as well as examine and evaluate clinical diagnoses and treatments for autism and related disabilities. JADD encourages research submissions on the causes of ASDs and related disorders, including genetic, immunological, and environmental factors; diagnosis and assessment tools (e.g., for early detection as well as behavioral and communications characteristics); and prevention and treatment options. Sample topics include: Social responsiveness in young children with autism Advances in diagnosing and reporting autism Omega-3 fatty acids to treat autism symptoms Parental and child adherence to behavioral and medical treatments for autism Increasing independent task completion by students with autism spectrum disorder Does laughter differ in children with autism? Predicting ASD diagnosis and social impairment in younger siblings of children with autism The effects of psychotropic and nonpsychotropic medication with adolescents and adults with ASD Increasing independence for individuals with ASDs Group interventions to promote social skills in school-aged children with ASDs Standard diagnostic measures for ASDs Substance abuse in adults with autism Differentiating between ADHD and autism symptoms Social competence and social skills training and interventions for children with ASDs Therapeutic horseback riding and social functioning in children with autism Authors and readers of the Journal of Autism and Developmental Disorders include sch olars, researchers, professionals, policy makers, and graduate students from a broad range of cross-disciplines, including developmental, clinical child, and school psychology; pediatrics; psychiatry; education; social work and counseling; speech, communication, and physical therapy; medicine and neuroscience; and public health.