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IF 4.9 3区医学 Q1 GERIATRICS & GERONTOLOGY

Innovation in Aging Pub Date : 2024-10-29 eCollection Date: 2024-01-01 DOI:10.1093/geroni/igae096

Anna Jolliff, Jordan R Hill, Matthew Zuraw, Christian Elliott, Nicole E Werner

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引用次数: 0

摘要

背景和目标：阿尔茨海默病及相关痴呆症（ADRD）患者的农村照护者面临着独特的照护挑战。目前的干预措施并未解决农村 ADRD 照护者所遇到的许多系统性障碍，包括与地理位置、医疗保健服务获取途径和经济不安全有关的障碍。本研究的目的是深入了解农村 ADRD 照护者在获得照护支持方面的需求、优势和策略，并以 "角色 "的形式表现这些属性，以用于设计针对农村 ADRD 照护者的干预措施：在这项以用户为中心的定性设计研究中，我们对自我认同的农村地区 ADRD 患者的照顾者进行了半结构化访谈。访谈数据被拷贝到虚拟白板上，然后使用亲和图来确认先验属性，并归纳出与农村 ADRD 患者照顾者相关的属性。然后，通过团队讨论、咨询研究顾问委员会以及农村护理人员和社区合作伙伴的审查，对 "角色 "进行验证：结果：对 N = 19 个访谈的分析得出了与农村 ADRD 患者护理者相关的 7 个归纳属性和 5 个不同的角色：有能力的克里斯蒂娜（Christine）、有联系的克里斯蒂（Connected Connie）、孤立的艾琳（Irene）、学习的拉里（Larry）和有洞察力的丹（Dan）。这些角色在归纳属性上存在差异，包括经济保障、主观农村性、态度、联系性和信息行为，包括对传统信息和技术信息的偏好：本研究确定的 "角色 "可以作为一种工具，用来表示和有效地表达与设计干预措施和技术相关的属性之间的交叉和相互作用，以满足农村 ADRD 护理者的支持需求。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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Representing the Needs of Rural Caregivers of People Living With Alzheimer's Disease and Related Dementias Through User Personas.

Background and objectives: Rural caregivers of people living with Alzheimer's disease and related dementias (ADRD) face unique caregiving challenges. Current interventions do not address many of the systemic barriers experienced by rural ADRD caregivers, including barriers related to geography, healthcare services access, and financial insecurity. The objective of this study was to gain a deeper understanding of rural ADRD caregivers' needs, strengths, and strategies in obtaining caregiving support, and to represent these attributes in the form of personas that can be used to design interventions for rural ADRD caregivers.

Research design and methods: In this qualitative user-centered design study, we conducted semistructured interviews with self-identified caregivers of people living with ADRD in rural areas. Interview data was copied to a virtual whiteboard, and affinity diagramming was used to confirm a priori attributes and yield inductive attributes relevant to rural ADRD caregivers. Attributes were assigned to personas, which were then validated through team-based discussion, consultation with a study advisory board, and review by rural caregivers and community partners.

Results: Analyses of N = 19 interviews yielded 7 inductive attributes relevant to rural ADRD caregivers of persons living with ADRD and 5 distinct personas: Capable Christine, Connected Connie, Isolated Irene, Learning Larry, and Discerning Dan. Personas differed on inductive attributes including financial security, subjective rurality, attitudes, connectedness, and information behavior, including preferences for traditional versus technology-based information seeking.

Discussion and implications: The personas identified in the present study can be used as tools to represent and efficiently communicate the intersection and interaction of attributes relevant to designing interventions and technologies to meet the support needs of rural ADRD caregivers.

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来源期刊

Innovation in Aging GERIATRICS & GERONTOLOGY-

CiteScore

4.10

自引率

0.00%

发文量

审稿时长

15 weeks

期刊介绍： Innovation in Aging, an interdisciplinary Open Access journal of the Gerontological Society of America (GSA), is dedicated to publishing innovative, conceptually robust, and methodologically rigorous research focused on aging and the life course. The journal aims to present studies with the potential to significantly enhance the health, functionality, and overall well-being of older adults by translating scientific insights into practical applications. Research published in the journal spans a variety of settings, including community, clinical, and laboratory contexts, with a clear emphasis on issues that are directly pertinent to aging and the dynamics of life over time. The content of the journal mirrors the diverse research interests of GSA members and encompasses a range of study types. These include the validation of new conceptual or theoretical models, assessments of factors impacting the health and well-being of older adults, evaluations of interventions and policies, the implementation of groundbreaking research methodologies, interdisciplinary research that adapts concepts and methods from other fields to aging studies, and the use of modeling and simulations to understand factors and processes influencing aging outcomes. The journal welcomes contributions from scholars across various disciplines, such as technology, engineering, architecture, economics, business, law, political science, public policy, education, public health, social and psychological sciences, biomedical and health sciences, and the humanities and arts, reflecting a holistic approach to advancing knowledge in gerontology.