每个病人的疾病轨迹分析。

IF 2.2 3区 医学 Q2 HEALTH CARE SCIENCES & SERVICES
Juliet Jacobsen, Karin Boo Hammas, Mikael Segerlantz, Joakim Ekstrand, Sanjoy Mahajan, Jenny Klintman
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引用次数: 0

摘要

背景:摘要统计往往掩盖了个别患者的痛苦,从而阻碍了质量改进工作。我们的目标我们的目标是在保留个体经历的同时,展示一个群体在生命末期的医疗经历。设计:我们开发了一种名为 "每位患者疾病轨迹分析 "的数据显示方法。我们使用一个示范队列对该方法进行了测试,该队列由 192 名癌症患者组成,他们被转诊到瑞典地区一家专业的居家姑息治疗诊所。病历审查提供了有关疾病轨迹事件的详细信息,重点是计划外住院。结果:我们为每位患者创建了从癌症诊断到死亡的时间轴,并使用了对数刻度:与传统的线性时间尺度相比,这种尺度扩大了生命末期的时间分辨率。这种方法有助于评估个人、小规模高需求群体和人群未得到满足的姑息关怀需求和关怀质量。结论在多达 200 人的人群中,对每个病人的疾病轨迹分析是可行且有前景的。利用随机抽样的方法,可以将其推广到更大的人群中。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Per-Patient Illness Trajectory Analyses.

Background: Summary statistics often hide individual patients' suffering, thereby impeding quality improvement efforts. Objectives: We aimed to show the experience of a population with health care toward the end of life while preserving the experience of the individual. Design: We developed a data display method called per-patient illness trajectory analysis. We tested it using a demonstration cohort of 192 patients with cancer referred to a regional Swedish specialized home-based palliative care practice. Chart review provided detailed information about illness trajectory events with a focus on unplanned hospitalization. Results: We created per-patient timelines spanning from cancer diagnosis until death and using a logarithmic scale: Compared with a conventional, linear timescale, this scale expands the time resolution toward the end of life. The method fosters the assessment of unmet palliative care need and care quality for individuals, small high-need groups, and populations. Conclusion: In populations of up to 200 people, per-patient illness trajectory analysis is feasible and promising. Using random sampling, it could be extended to larger populations.

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来源期刊
Journal of palliative medicine
Journal of palliative medicine 医学-卫生保健
CiteScore
3.90
自引率
10.70%
发文量
345
审稿时长
2 months
期刊介绍: Journal of Palliative Medicine is the premier peer-reviewed journal covering medical, psychosocial, policy, and legal issues in end-of-life care and relief of suffering for patients with intractable pain. The Journal presents essential information for professionals in hospice/palliative medicine, focusing on improving quality of life for patients and their families, and the latest developments in drug and non-drug treatments. The companion biweekly eNewsletter, Briefings in Palliative Medicine, delivers the latest breaking news and information to keep clinicians and health care providers continuously updated.
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