"这真的很复杂":让主要利益相关者参与进来,为针对自闭症青少年的新颖家长主导型性健康教育计划提供信息。

IF 3.2 2区 心理学 Q1 PSYCHOLOGY, DEVELOPMENTAL
Kelly T Cosgrove, Caitlin Middleton, Talia G Thompson, Brian Be, Lindsey DeVries
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引用次数: 0

摘要

患有自闭症的青少年在处理与青春期、性行为和人际关系相关的变化时经常会遇到困难,而父母可能是这一人群性健康和生殖健康教育(SRE)的有用来源。尽管如此,很少有以证据为基础的计划来支持父母扮演这一角色。因此,有必要制定此类计划,特别是那些包含主要利益相关者生活经验的计划。本定性调查旨在确定自闭症青少年的自闭症教育需求,并为家长主导的新型自闭症教育计划提供信息。数据是通过半结构式访谈和两轮焦点小组收集的,焦点小组包括两个利益相关群体:自闭症儿童的父母(4 人)和成年自闭症自我倡导者(4 人)。对焦点小组进行了录音和逐字记录。研究小组对所有四份记录誊本进行了快速定性分析,并对各小组的主要发现进行了总结和三角测量。研究小组确定了四大主题:"赋予家长作为教育者的权力"、"个性化支持和教育"、"考虑文化和交叉身份 "以及 "优先考虑安全"。家长可以在为自闭症青少年提供自闭症教育方面发挥主要作用,他们很可能会从参与一个量身定制的计划中受益,该计划将安全放在首位,并考虑到文化和其他方面的身份对内容提供的影响。未来需要对此类计划的实施进行研究。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
"It's Really Complicated": Engaging Key Stakeholders to Inform a Novel Parent-led Sexual Health Education Program for Autistic Youth.

Autistic adolescents frequently encounter difficulties in managing changes associated with puberty, sexuality, and relationships, and parents may be a useful source of sexual and reproductive health education (SRE) for this population. Despite this, few evidence-based programs exist to support parents in this role. Thus, there is a need for the development of such programs, particularly those incorporating the lived experiences of key stakeholders. The present qualitative investigation aimed to determine the SRE needs of autistic youth and to inform a novel, parent-led SRE program. Data were collected through semi-structured interviews conducted with two rounds of focus groups with two stakeholder groups: parents of autistic children (N = 4) and adult autistic self-advocates (N = 4). Focus groups were recorded and transcribed verbatim. The research team conducted rapid qualitative analysis on all four transcripts, and major findings were summarized and triangulated across groups. Four overarching themes were identified: "Empower parents as educators," "Individualize supports and education," "Consider cultural and intersecting identities," and "Prioritize safety." Parents can serve a primary role in providing SRE to autistic youth and would likely benefit from participating in a tailored program that prioritizes safety and considers the influence of culture and other aspects of identity on content delivery. Future research on the implementation of such a program is needed.

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来源期刊
CiteScore
8.00
自引率
10.30%
发文量
433
期刊介绍: The Journal of Autism and Developmental Disorders seeks to advance theoretical and applied research as well as examine and evaluate clinical diagnoses and treatments for autism and related disabilities. JADD encourages research submissions on the causes of ASDs and related disorders, including genetic, immunological, and environmental factors; diagnosis and assessment tools (e.g., for early detection as well as behavioral and communications characteristics); and prevention and treatment options. Sample topics include: Social responsiveness in young children with autism Advances in diagnosing and reporting autism Omega-3 fatty acids to treat autism symptoms Parental and child adherence to behavioral and medical treatments for autism Increasing independent task completion by students with autism spectrum disorder Does laughter differ in children with autism? Predicting ASD diagnosis and social impairment in younger siblings of children with autism The effects of psychotropic and nonpsychotropic medication with adolescents and adults with ASD Increasing independence for individuals with ASDs Group interventions to promote social skills in school-aged children with ASDs Standard diagnostic measures for ASDs Substance abuse in adults with autism Differentiating between ADHD and autism symptoms Social competence and social skills training and interventions for children with ASDs Therapeutic horseback riding and social functioning in children with autism Authors and readers of the Journal of Autism and Developmental Disorders include sch olars, researchers, professionals, policy makers, and graduate students from a broad range of cross-disciplines, including developmental, clinical child, and school psychology; pediatrics; psychiatry; education; social work and counseling; speech, communication, and physical therapy; medicine and neuroscience; and public health.
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