"BottegaMente"：意大利自闭症谱系障碍患者实习计划。

IF 2.9 2区医学 Q1 EDUCATION, SPECIAL

Research in Developmental Disabilities Pub Date : 2024-10-30 DOI:10.1016/j.ridd.2024.104859

Paolo Alfieri , Francesco Scibelli , Patrizia Sannino , Eleonora Napoli , Deny Menghini , Stefania Stellino , Giovanni Valeri , Stefano Vicari

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引用次数: 0

摘要

背景：对于患有自闭症谱系障碍（ASD）的人来说，向成年过渡是一项挑战。工作是成人生活中最持久、最具影响力的方面之一，因为它在帮助人们寻找意义方面发挥着关键作用。然而，有关就业前计划在改善自闭症青少年和年轻成年人的健康和福祉方面的有效性的研究仍然有限。本探索性研究旨在评估一项名为 "BottegaMente "的全国性实习计划对自闭症青少年、成年人及其家庭的适应功能、情绪调节和生活质量的影响：该计划有 82 名参与者，年龄在 13-36 岁之间，需要家庭的积极参与，以确保从计划阶段到实施阶段都能满足自闭症患者的需求。我们收集了实习前（T0）和实习后（T1）的定量数据：结果：我们的研究表明，实习有效地提高了自闭症青少年和成人的适应能力，尤其是在家庭生活和工作技能等方面，与 T0 相比，T1 的标准化结果反映了这一点：这项研究是评估自闭症青少年和成人就业前实习计划有效性的开创性工作之一。虽然是初步研究，但这些发现有助于今后有关就业的研究，而就业是影响整体生活质量和幸福感的重要因素。

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“BottegaMente”: An Italian program of internship for people with autism spectrum disorder

Background

Transitioning into adulthood can be challenging for individuals with Autism Spectrum Disorder (ASD). Work is one of the most enduring and impactful aspects of adult life, as it plays a key role in helping people find meaning. However, research on the effectiveness of pre-employment programs in improving the health and well-being of autistic adolescents and young adults remains limited. This exploratory study aims to assess the impact of a nationwide internship program, "BottegaMente", on the adaptive functioning, emotion regulation, and quality of life of autistic teens, adults, and their families.

Method

The program involved 82 participants, aged 13–36, and required active family involvement to ensure it addressed the needs of autistic individuals from the planning stages through implementation. Quantitative data were collected before (T0) and after the internship (T1).

Results

Our study demonstrated that the internship effectively enhanced adaptive skills, particularly in areas like home life and work skills for autistic adolescents and adults, as reflected by standardized outcomes at T1 compared to T0.

Conclusion

This research is one of the pioneering efforts to evaluate the effectiveness of pre-employment internship programs for autistic adolescents and adults. Although preliminary, these findings could help to shape future studies on employment, an essential factor for overall quality of life and well-being.

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来源期刊

Research in Developmental Disabilities Multiple-

CiteScore

5.50

自引率

6.50%

发文量

178

期刊介绍： Research In Developmental Disabilities is aimed at publishing original research of an interdisciplinary nature that has a direct bearing on the remediation of problems associated with developmental disabilities. Manuscripts will be solicited throughout the world. Articles will be primarily empirical studies, although an occasional position paper or review will be accepted. The aim of the journal will be to publish articles on all aspects of research with the developmentally disabled, with any methodologically sound approach being acceptable.