JASPER(联合注意、象征性游戏、参与和调节)干预唐氏综合症:试点研究。

IF 2.9 2区 医学 Q1 EDUCATION, SPECIAL
Anne-Michelle Engelstad , Linnea Joffe-Nelson , Sophie R. Hurewitz , Katherine G. Pawlowski , Nicole T. Baumer
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引用次数: 0

摘要

背景:患有唐氏综合症(DS)的儿童通常需要语言、社交和调节方面的支持,但很少有儿童为此接受行为干预。联合注意、象征性游戏、参与和调节(JASPER)干预作为一种以临床医生和照顾者为媒介的方法,具有广阔的前景。目的:本试验性研究的目的是:(1)描述唐氏综合症儿童的行为表型;(2)量化接受 JASPER 后儿童参与的变化;(3)测量照顾者采用 JASPER 策略的情况;以及(4)为未来研究提出假设和方向:16 名患有 DS 的幼儿及其照顾者参加了研究。他们被随机分配到两种情况中的一种:立即干预或等待名单对照。在COVID-19大流行期间,进行远程干预:照顾者学会了实施 JASPER 策略,试点数据表明,他们在游戏过程中的共同参与和调节能力有所提高。病例系列数据显示了干预反应的个体差异性。远程干预的实施可能与更多参与者的保留有关:JASPER可能是改善DS幼儿共同参与和情绪调节的可行治疗方案。家长似乎乐于在家中学习和实施 JASPER 策略。远程提供 JASPER 可能会提高研究或治疗项目的参与度。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
The JASPER (Joint Attention, Symbolic Play, Engagement and Regulation) Intervention in Down Syndrome: A pilot study

Background

Children with Down syndrome (DS) often need support building language, socialization, and regulation, yet few receive behavioral intervention for this. The Joint Attention, Symbolic Play, Engagement and Regulation (JASPER) intervention holds promise as a clinician-caregiver-mediated approach.

Aims

The aims of this pilot study were to (1) describe the behavioral phenotype of children with DS (2) quantify change in child engagement following JASPER receipt, (3) measure caregiver adoption of JASPER strategies, and (4) generate hypotheses and directions for future research.

Methods and procedures

Sixteen toddlers with DS and their caregivers enrolled in the study. Dyads were randomly assigned to one of two conditions: immediate intervention or waitlist control. During the COVID-19 pandemic, intervention was delivered remotely.

Outcomes and results

Caregivers learned to implement JASPER strategies and pilot data suggest improvements in joint engagement and regulation during play. Case series data show individual heterogeneity of intervention response. Remote intervention delivery may be associated with greater participant retention.

Conclusions and implications

JASPER may be a viable treatment option to improve joint engagement and emotion regulation in young children with DS. Parents appear receptive to learning and implementing JASPER strategies at home. Remote JASPER delivery may improve participation in research or treatment programs.

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来源期刊
CiteScore
5.50
自引率
6.50%
发文量
178
期刊介绍: Research In Developmental Disabilities is aimed at publishing original research of an interdisciplinary nature that has a direct bearing on the remediation of problems associated with developmental disabilities. Manuscripts will be solicited throughout the world. Articles will be primarily empirical studies, although an occasional position paper or review will be accepted. The aim of the journal will be to publish articles on all aspects of research with the developmentally disabled, with any methodologically sound approach being acceptable.
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